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Meg Mangin R.N.
Research Team
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Posted: Thu Sep 8th, 2005 16:51 |
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Barb,
For a more detailed explanation of folic acid, please see:
THE IMPORTANCE OF AVOIDING VITAMIN D AND FOLIC ACID
Best,
Meg
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Alison
Member
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Posted: Tue Feb 21st, 2006 13:46 |
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Hi All,
I just had a small epiphany of sorts. 
In late August '05 I started on 300 mg daily of palafer for iron deficient anemia as a result of my yearly physical.
In late Oct '05 I started experiencing an arrhythmia and chest tightness that really scared me. The episodes would involve heavy palpitations (where I could count the beats without feeling my pulse). And my heart rate appeared to drop to 30 beats/min. My doc first suspected heart block. I was put off of work for a total of 2 months while a number of cardiac tests were performed. EKG, stress test, echo and holter all came back "normal". Only an event monitor finally caught PVCs. I was told that there was nothing to worry about. "Go back to work, reduce stress, and get some exercise." Easy for them to say! I still have the episodes! Some days are better than others.
I had asked my GP about starting back on the iron - "Is there any way that could have caused the arrhythmia?" After all, it's the only thing that had changed recently, so I thought I would ask. She said, emphatically, "No". So I let it go. After all, she's the doctor, not me.
But now I'm reading here that iron fuels Th1 inflammation. Ding ding ding! Ephiphany! I suspect that I may have Sarc with lung & cardiac involvement, but I haven't been diagnosed yet. If I do, then these past few months make a lot more sense.
I see my doc today, and I plan on advocating for the D Metabolyte test. I'll let you know what happens.
Thanks for all the info on this site and all the great work you are doing towards better health for others!
Alison
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PRE-MP; SX: fatigue, arrhythmia, cough, mem loss, anxiety, irritability; No DX; D-Tests: Feb06 [25D=14, 125D=29], Aug06 [25D=26, 125D=72], Feb07 [25D=9, 125D=38], Sep07 [25D=20, 125D=41]; Every day I learn that I have a lot more to learn
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Kas
Member in Phase 2
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Posted: Wed May 14th, 2008 18:36 |
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Whilst I fully understand that my recent diagnosis of anemia ( hemoglobin 110 (115-155 g/L), hematocrit 0.33 (0.33- 0.45 l/l) and RBC 3.51 (3.60- 5.01), is most likely due to chronic inflammation, which will be addressed eventually by the MP, I would like to know how low these numbers can go before they become dangerous.
Given how slow my progress on the MP is, it could be years before an improvement is seen, and in that time, do I risk permanent organ damage, which would be counterproductive to my conquering sarc and then being left with organs which are not functioning? How do I know my kidney and liver results and now my palps are in fact an IP or the result of not enough oxygen reaching these organs? I have been on the same level of abx for quite some time due to very aggressive IP reactions and bloodwork which does not make doc comfortable in increasing the abx yet.
I am battling to raise my BP above the 60- 70/40 range, experiencing frequent bouts of tacchycardia and for the first time in my life, have extreme fatigue, often accompanied by dizziness, reminiscent of my early days on Benicar and not at all pleasant to live with in the long term. I also noticed this morning, that my lips had a definite blueish tinge to them, which means I am not getting enough oxygen to my organs, and proof of this could be my declining kidney function, despite all efforts to manage IP reactions.
The new iron test mentioned, does not seem to be available in Canada. I also have below normal folic acid levels and my D levels are extremely low, as I am most compliant with the dietary restrictions we need to observe.
My doctor wanted to supplement me with iron. I told her to hold off until she has read the MP guidelines on this ( will give them to her next week), but do I allow supplementation to bring me up to low normal levels? I would prefer, of course, not to drop so low that I need a transfusion. I also need to work to afford my MP meds, so becoming bedridden, is not an option for me if I am to stay on the MP for the long term.
Thanks for any input and advice here.
P.S. Although I have had low ferretin counts in the past, I have, until now, never had any hemoglobin or RBC problems, and to be honest, I have never felt this low, either. In the past, even on the MP, my energy levels were really good.
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Sarc Dx by splenectomy 03- Lungs, lymph nodes, liver. Non MP meds: natural progesterone cream three weeks a month; cal/mag; probiotics; milk thistle daily; cranberry caps prn; quercetin prn.Noirs outdoors and under flourescent work lights, Spectra 3 cream
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Meg Mangin R.N.
Research Team
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Posted: Wed May 14th, 2008 21:41 |
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Kas, since we have already explained all these issues at length many times in your progress report thread, I will refer you (again) to My doctor says I'm anemic. What should I do?
If, after several years on the MP, you are not yet convinced of its merit and need constant reassurance, it's time for you to take stock and decide if you want to continue or try another treatment.
Kind regards.......
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