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oliviat
Health Professional
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Posted: Thu Jun 16th, 2005 00:07 |
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Trevor: I sent a patient to Dr. VP. with Fibromyalgia. Her name is Linda M. She is getting her D metabolites tomorrow. May I share the results with you and may Dr. VP talk to you about her?
Olivia T
Last edited on Thu Jun 16th, 2005 00:32 by
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Aunt to Michael. He was diagnosesed with Sarc of muscles at age of nine probally had it since he was four. 2/06 Hestarted phase two of MP.
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Dr Trevor Marshall
Research Team
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Posted: Thu Jun 16th, 2005 00:34 |
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Olivia,
I tried to obsfucate the names you left in your message. We try not to name patients or Doctors on this website.
I would be happy to talk with Doc about any of the issues. 
..Trevor..
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DNStog
Advocate
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Posted: Thu Jun 16th, 2005 05:18 |
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I've sent my Kaiser question directly to Dr. Zerhouni today. Quite frankly, I didn't think we Sarc people had a snowball's chance of getting a question on the show. Kaiser insurance has been a real pain to deal with by some of our local friends...ex. friend went to one of their local emergency rooms with chest pains and was told there wasn't a doctor on duty and they couldn't do anything for him. Fortunately he called my husband who told him to get to our favorite hospital ER immediately. He was having an anxiety attack instead of a heart attack, thank goodness. Of course, it never hurts to get our cause out in any appropriate way we can.
Donna
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Sarcoidosis/skin, joints, lungs, nerves, Raynauld's, uveitis, hypothyroid, sinus, wt. gain, Peradontal disease, GERD-hiatal hernia, breast ca 11/06, 25D7, Synthroid, Wellbutrin, eye vits, melatonin, Milk Thistle, Quercetin, Rx glacier, cover up, low lux h
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ShrnHml
Guest
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Posted: Thu Jun 16th, 2005 10:42 |
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Has anyone been able to get Dr. Zerhouni's fax number?
Sharon
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Neuroborreliosis, MP 3/05, 1,25D 62; 3/06 25D<4, ModPh2 12/05, Premarin, Effexor, stopped Benicar 1/07....no longer in study
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scooker48
Member in Phase 3
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Posted: Thu Jun 16th, 2005 12:09 |
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Here is the fax number and again the mailing address for Zerhouni:
Elias A. Zerhouni, M.D.
Director
National Institutes of Health
9000 Rockville Pike Bldg. 1
Bethesda MD 20892
FAX: 301 402 2700
Office: 301 496 2433
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Necrotizing granulomas biopsy 10/88; Dx 12/04 Sarcoid liver spleen. 2/2/05: VitD 25/VitD125 62. 04/07/08 D25 <7.0 L, Liver function normal 3/07; Wear NoIRs outside & for computer screen time. No K creme used.
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