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Dr Trevor Marshall
Research Team
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Posted: Thu Feb 10th, 2005 15:41 |
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There will be DVDs made of the conference, Eurico, yes.
Assuming our equipment doesn't fail 
..Trevor..
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DaveW
inactive member
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Posted: Thu Feb 10th, 2005 17:44 |
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One good piece of inspiring news, was that the Health Canada rep told my Doctor, that Sankyo was seriously considering applying to release benicar in Canada. This would solve all of our problems - but I'm not going to hold my breath.
- DaveW
____________________
MP Aug14/04,Pre-MP D=19.6,1,25D=37 ratio 1.89 P2>12/27/04.Back to P1 fall/05.Back to P2 05/06. 21 yrs neuro-lyme not dx til 11/05. OlmesTR 40 mg/7hrs. Major: Weakness,IBS-C,pain,bad sleep,anxiety,depression,cognitive focus,memory,CMV,epilepsy & osteo
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DaveW
inactive member
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Posted: Thu Feb 10th, 2005 19:47 |
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Dear Dr Marshall,
I'm not sure I should roll over and accept Health Canada's ruling quite yet. If you can think of any other information or evidence that might act to support the credibility of the MP (in the eyes of the establishment), then please suggest it.
Another question; Would you be willing to chat with a Health Canada representative regarding the use of benicar (and the MP)? I have no idea if they would even be open or willing for such a discussion - but I would not want to suggest or request it without your prior approval.
I have not yet decided if my "appeal" should come now, or at a later date.
Thank-you for your replies.
- DaveW
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MP Aug14/04,Pre-MP D=19.6,1,25D=37 ratio 1.89 P2>12/27/04.Back to P1 fall/05.Back to P2 05/06. 21 yrs neuro-lyme not dx til 11/05. OlmesTR 40 mg/7hrs. Major: Weakness,IBS-C,pain,bad sleep,anxiety,depression,cognitive focus,memory,CMV,epilepsy & osteo
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Dr Trevor Marshall
Research Team
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Posted: Thu Feb 10th, 2005 23:39 |
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DaveW,
I would be happy to discuss our published papers with Health Canada. Please wait until after the conference, until after the FDA participatant has had a chance to talk with patients at the conference, before passing her name along to Health Canada (watch for the announcemnt coming up this weekend)
..Trevor..
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lucie
Member
| Joined: | Mon May 30th, 2005 |
| Location: | |
| Posts: | 99 |
| Status: |
Offline
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Posted: Tue Jun 14th, 2005 21:40 |
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I have seen on Internet that Benicar is know avaliable in Canada from a website:
You have to send your prescription by fax.
http://canadapharmacy.canadadrugs.com/benicar/
Lucie
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Diagnosis CFS, fibro & Lyme,04/05: 1,25D=46&25D= 14, ratio 3,2. Avoiding light & D, wear NoIRs/ Started Olmesartan July 11th 05, 20 mg Olmesartan every 3 hours. Started Mino July 17 2005, 25 mg QOD.
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Brad
inactive member
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Posted: Tue Jun 14th, 2005 23:10 |
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Lucie,
You can try to get it from there but I am sure they will not ship it within Canada. They will only ship to the U.S. We phoned and that is what we were told, because it has not been approved in Canada. Look into it, maybe they have changed their policy.
Paulette
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CFS/FM 12years, Oct1/04-cut D-exp Oct25/04Noirs Jan3/05 Benicar40mgQ6H Jan19-25mg mino July9/05 2nd abx 100mg voltaren Nov17/04 1,25D-33.5, 25D-16.4, D-ratio=2 July/05 25D-2.5ng/ml
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lucie
Member
| Joined: | Mon May 30th, 2005 |
| Location: | |
| Posts: | 99 |
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Offline
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Posted: Wed Jun 15th, 2005 10:31 |
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I am sorry but Benicar is unfortunately not availbalbe from the Website, for canadians. The employee who answered to me at the first time, made a mistake. I checked again this morning and it is impossible to get it.
Lucie
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Diagnosis CFS, fibro & Lyme,04/05: 1,25D=46&25D= 14, ratio 3,2. Avoiding light & D, wear NoIRs/ Started Olmesartan July 11th 05, 20 mg Olmesartan every 3 hours. Started Mino July 17 2005, 25 mg QOD.
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Meg Mangin R.N.
Research Team
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Posted: Fri Jun 17th, 2005 19:08 |
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Lucie,
You can find information on importing Benicar to Canada in this thread:
Where to purchase Benicar for self-pay members
Best,
Meg
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lucie
Member
| Joined: | Mon May 30th, 2005 |
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| Posts: | 99 |
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Offline
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Posted: Fri Jun 17th, 2005 22:40 |
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Meg
a big thank you for the information about Benicar for Canadians. There is so much infromation on this website, that it is hard to find and read all.
Lucie
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Diagnosis CFS, fibro & Lyme,04/05: 1,25D=46&25D= 14, ratio 3,2. Avoiding light & D, wear NoIRs/ Started Olmesartan July 11th 05, 20 mg Olmesartan every 3 hours. Started Mino July 17 2005, 25 mg QOD.
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lisa66
inactive member
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Posted: Thu Jun 30th, 2005 17:26 |
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If you live in Ontario Canada, you can get your prescription filled at a compounding pharmacy in Ottawa Ontario. Benicar is not an approved drug in Canada and likely will never be. This pharmacy specializes in taking the raw material of the drug and putting it into capsules. Your doctor needs to order it in a certain way. Unfortunately most drug plans will not cover medications that are compounded. This pharmacy will not dispense to other provinces in Canada. If you live in another province outside Ontario you can find a compounding pharmacy and asked them if they can prepare the benicar. In Canada it is called Ace olmesarten. You can call them yourself or have your doctor call.
778 Bank Street Ottawa, Ontario, Canada K1S 3V6
Tel: (613) 234-8587 Fax: (613) 236-0393
Toll Free 1-800-461-4697 Fax Toll Free 1-877-504-5995
http://www.glebe-apothecary.com/compounding_services.cfm
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Multiple sclerosis 10 yrs, osteoporosis,?Lymes,
4/05 1,25D= 53, 25D= 35, 11/05 1,25D = 30, 25D = 18. Taking baclofen,Detrol, acidophilus.Avoiding all vitamin D,sunlight,NOIRS, Benicar 40 mg Q6H. minocycline 100 mg Q 2days. Started Phase2 12/05
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Grace
Advocate
| Joined: | Tue Sep 14th, 2004 |
| Location: | Australia |
| Posts: | 387 |
| Status: |
Offline
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Posted: Thu Jun 30th, 2005 19:01 |
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lisa,
how does the cost compare
Grace
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CFS, oct04 Ds=26/48, 4/07=7/24 MP PHI 2/05, PhII 6/05, PhIII 6/06, beni Q6H, Noirs rarely inside no nature light low watt, outside 40%10%, Hat, all covered, no gloves, paracetamol
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lisa66
inactive member
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Posted: Fri Jul 1st, 2005 15:30 |
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Dear Grace,
I will be paying $180 Canadian dollars for 120 capsules at 40 mg each. This converts to approximately $146 US dollars and $191 Australian dollars.
____________________
Multiple sclerosis 10 yrs, osteoporosis,?Lymes,
4/05 1,25D= 53, 25D= 35, 11/05 1,25D = 30, 25D = 18. Taking baclofen,Detrol, acidophilus.Avoiding all vitamin D,sunlight,NOIRS, Benicar 40 mg Q6H. minocycline 100 mg Q 2days. Started Phase2 12/05
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Toronto
inactive member
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Posted: Fri Jul 1st, 2005 23:06 |
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I just ordered from this company. If you are not from Ontario, but you know an MD in Ontario, they may be able to co-sign the script. I don't understand why Benicar is not approved in Canada, does anyone know if the company that makes it is trying to get this approval? Although I'm very grateful to be able to get Olmesartan from Ottawa, it is not covered by my drug plan. If anyone has any info regarding Benicar in Canada please let me know.
Thanks
Deborah (Toronto)
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Sarcoid lungs.joint DX 10years. , joint pain, asthma and fatigue. , metabolic syndrome, PCO, May 2005 D125- 43, D25 - 8.8. Started MP July 14 Benicar q4h, 5 daily. Noir mino qod 100mg.Oct 20 start phaze 2.
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Meg Mangin R.N.
Research Team
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Posted: Sat Jul 2nd, 2005 00:52 |
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Deborah,
There is information in this SarcInfo thread on importing Benicar to Canada:
<http://tinyurl.com/9nxkw>
And this MP.com thread in the ESSENTIAL INFORMATION ABOUT THE MP forum:
BENICAR: Where to purchase Benicar for self-pay members
Best,
Meg
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Toronto
inactive member
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Posted: Sat Jul 2nd, 2005 23:20 |
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Hi Meg,
Thanks for your reply. What I was really asking is if anybody knew if the company that makes the brand name Benicar is trying to get it approved in Canada, so that people that need it here can have it covered by their drug plans. I already have the generic from Ottawa. I was just curious about the brand name wondering if anybody has the scoop. I also wanted to share this quote with people on this site because it reminds me of what the people on Mp have to live with, and how very brave they really are.
But what a shining animal is man,
Who knows, when pain subsides, that is not that,
For worse than that must follow-yet can write
Music,can laugh, play tennis, even plan.
Edna St. Vincent Millay
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Sarcoid lungs.joint DX 10years. , joint pain, asthma and fatigue. , metabolic syndrome, PCO, May 2005 D125- 43, D25 - 8.8. Started MP July 14 Benicar q4h, 5 daily. Noir mino qod 100mg.Oct 20 start phaze 2.
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Meg Mangin R.N.
Research Team
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Posted: Sun Jul 3rd, 2005 02:25 |
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Deborah,
The last I heard, Sankyo (the pharmaceutical company that makes Benicar), has no plans to sell Benicar in Canada.
Best,
Meg
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Grace
Advocate
| Joined: | Tue Sep 14th, 2004 |
| Location: | Australia |
| Posts: | 387 |
| Status: |
Offline
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Posted: Sun Jul 3rd, 2005 18:35 |
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Deborah
what's the name of the generic benicar
thanks
Grace
____________________
CFS, oct04 Ds=26/48, 4/07=7/24 MP PHI 2/05, PhII 6/05, PhIII 6/06, beni Q6H, Noirs rarely inside no nature light low watt, outside 40%10%, Hat, all covered, no gloves, paracetamol
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Meg Mangin R.N.
Research Team
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Posted: Sun Jul 3rd, 2005 20:26 |
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Grace,
The generic name for Benicar is Olmesartan medoxomil.
In Canada, it is:
Ace olmesarten
Best,
Meg
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lisa66
inactive member
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Posted: Sun Jul 3rd, 2005 22:55 |
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| According to a pharmacist I spoke to in Ottawa, it is not likely that benicar will be approved in Canada. She said that it was because Canada does not feel that it needs another ARB antihypertensive. There are enough available on the market now.
____________________
Multiple sclerosis 10 yrs, osteoporosis,?Lymes,
4/05 1,25D= 53, 25D= 35, 11/05 1,25D = 30, 25D = 18. Taking baclofen,Detrol, acidophilus.Avoiding all vitamin D,sunlight,NOIRS, Benicar 40 mg Q6H. minocycline 100 mg Q 2days. Started Phase2 12/05
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kathy woodman
inactive member
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Posted: Mon Jul 4th, 2005 16:44 |
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Hi Lisa
I have been in contact with a compounding pharmacy here in Newfoundland. They advised me that they called the PCCA (compounding pharmacy association) in Ontario and were told that the active ingredient in Benicar is not available. Maybe your pharmacist would be able to help. If you could e mail me with his/her name or address if he is ok with that. Much appreciated. Thanks
Kathy
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symptoms 20+ years, diag. sarc 2001, ITP 2005, ben Q8h, quer 500 od, mino 100, init 25D 60, 125D 101, latest 25D 14, 125D 38
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