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MORGELLON'S
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VEZ R.N.
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 Posted: Thu Aug 10th, 2006 01:20

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I was just searching some sites and read with interest some info on Morgellons disease after watching a special on ABC. According to their web site many of those afflicted have symptoms much like those of Th1 inflammatory disease and indeed many have also been diagnosed diseases like CFS, ALS, MS, Lymes etc.  The CDC has just recently decided to form an investigative group to research this disease which in increasing at a pretty high rate.  Could this be another Th1 inflammatory disease? The skin involvement has some very unusual characteristics, large filamentous bodies and granular substances. It is affecting families and appears to be infectious.  Any thoughts on this one? PS. the brain fog has lifted today and I feel great.....well at least for now:cool:



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Dr Trevor Marshall
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 Posted: Thu Aug 10th, 2006 02:57

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From everything I have observed or read, Morgellon's is yet another of the idiopathic Th1 diseases; which means it will almost certainly respond to the MP.

Many, many, of the symptoms overlap with what we have seen in other syndromes - for example, you will find many posts here reporting the crawling feeling under their skin (from folks whose skin is not producing the Morgellons fibres).

Steve
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 Posted: Fri Aug 11th, 2006 21:23

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     Apparently the majority of the increasing numbers of reported Morgellons cases are in Florida, Texas, and California. I recall reading about one study where it was claimed that the majority of Morgellons positive subjects were also found to be infected with LD (Borrelia). I'm in touch with a few people around the country who have Morgellons disease and it really is dreadful to them. I believe there are even a few Morgellons sufferers already here on the forum.

     As for having "any thoughts on this one".........it certainly appears to be Th1 related if not in essence a Th1 disease as Dr. Marshall alluded. I would add that it may have a few surprises, such as: 1) capable of acute onset as opposed to slow-growing, chronic typical Th1 disease. 2) involving genetic material not only from bacteria, but possibly from other organisms such as arthropods, nematodes, or fungi.

     I have other ideas about Morgellons, but they are more speculative and controversial, so this is not the place for airing them. That being said, I did come across some material that suggested GMO cotton may have something to do with it. Who knows?



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alinanjeff
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 Posted: Fri Aug 11th, 2006 23:02

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Dont you think its a little strange that those 3 states you speak of..California, Texas and Florida...think about it what do they have in a common..A ocean..(yes) but many morgellons patients have never seen the ocean..So what else.???????? TWeakers ? drugs ?   HOW ABOUT THE SUN !!!



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VEZ R.N.
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 Posted: Sat Aug 12th, 2006 00:17

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Yes, one of the commonalities would be the sun.  Since nothing has come remotely close to helping the victims and their medical providers are clueless I don't understand why they would not try the MP. I did post a lengthy email on their web site addressed specifically to the mother of the child who was in the ABC special.  I outlined her alternatives and gave sound rationale for d testing and at a minimum a diagnostic probe using the MP....I included references as well. This one is very interesting..........VEZ



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zip22045
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 Posted: Mon Nov 6th, 2006 18:21

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Get any more info on th1, morgellons and MP being  a potential cure???  Whatever feedback or info you have wood be greatly appreciated. I have Morgellons and trying to figure out if MP will help me... Fondly, ZIP

You can email me



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Aussie Barb
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 Posted: Mon Nov 6th, 2006 18:34

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Zip
Welcome.
Dr Marshall wrote above:
"From everything I have observed or read, Morgellon's is yet another of the idiopathic Th1 diseases; which means it will almost certainly respond to the MP.

Many, many, of the symptoms overlap with what we have seen in other syndromes - for example, you will find many posts here reporting the crawling feeling under their skin (from folks whose skin is not producing the Morgellons fibres)."

This Member is responding to MP. You may wish to read the progress report and or make contact by private message.
all best, Barb ...



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goodhealth
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 Posted: Sat Dec 23rd, 2006 16:45

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Another thing that they have in common is a large population of people who have migrated from South America, a home to many esoteric nematodes that have not even been categorized by western medicine. 

However, some adult nematodes are killed by antibiotics because the worms are dependant upon certain bacteria for their lives and the antibiotic destroys the bacteria. 

Since the symptoms, at least some, do overlap, I would wish some Morgellons infected persons to try the protocol.  I believe it would be difficult to convince an insurance company to cover the costs for an ailment that does not yet exist.  Also, there are many Morgellons forums now, and they do not all interact with each other.


I am new here, but I found an above answer that the MP will create a healthier immume system which will, in turn, destroy parasites.  I am wondering if that answer is including nematodes, most of which are not at all handled by the human immune system.  Not only tapeworms and hookworms, but filiarisis and such infections, which plague many poor victims in the third world, are of concern to me, as many people now know that such a nematode is involved in Morgellons.    



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Over-Heated in PHX
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 Posted: Sat Dec 23rd, 2006 19:55

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Hello goodhealth,

Are you suffering morgellons yourself?  I have a chronic case of Morgellons, or what Morgellons will eventually be termed to be, and I have every faith that the Marshall Protocol will work, IMO that would be "work for all Morgies". 

There is of course a chance that Morgellons does not occur naturally but has been created through some sort of experiment.  The fibers fluoresce and can be found not only in the skin, secretions, and lesions, but can be found on windowsills outdoors.  The FBI database does not include this fiber, so identification through the FBI database failed.  So yes, it could be something unique, unnatural, very built to last...possibly.

We don't know that though, but there are things that we do know.  Like many of the symptoms are shared with lyme-borrelia diseases and that some 90% or more test positive for these borrelioses infections.  If all the Morgellons subjects trying out the Marshall Protocol were simply addressing this common infection, and possibly the underlying cause..  then these persons may no longer be fertile ground for the Morgellons infections.

My thinking is this:  Why struggle against the tide trying to prove Morgellons MAY be some this or that, a person may still be mumbling this theory the day they are called home, and still have had no help in getting their theory proven after countless years of suffering.  All to be right.  All to prove to the world this group was/is not DoP (delusional).  First those who say these things, rob one of their dignity, medical care and family connections, finances, homes, careers.. Why let that continue?  Get the MP!  Get a TIGER IN YOUR TANK~  THEN GO AFTER THE SON OF A GUNS who need a lesson in reality.  Time to shore-up and batten down the hatches.  Get well on the MP and stop the unrewarding trek down DeadEnd Avenue.  Here on the MP get the Lyme symptoms under control, amp-up a failing immune system and return your quality of life.

As long as I have been reading the forums, no lab has pinned down a specific nemotode that is previously identified, so I find that hard to believe that it IS one of them; (though people may have some south-of-the-border shall we say parasite or two). It seems Morgellons sufferers have a variety of strange infections and there is a reason why we are fertile ground. 

Attack the fertile ground. Get rid of these diabolical macrophages and all the twisted things that happen to our bodily systems as a result. When some of this is cleared up, maybe we won't seem like Home Sweet Home to every varmint around.

I'm not sure about the human immune system and nematode life.  Some are said to live symbiotically, some kind of buddies we have had since time began.  Okay, so maybe we do.  Maybe pinworms etc. will live on, but IMO these are not the source of Morgellons disease. 

Amping up the immune system could help, somewhere here there is a great thread or article explaining how the innate and acquired immune system are different yet intereact by Dr. Marshall.  I don't think we know enough about the immune system to be sure what it may be capable once things are back in working order.

So, goodhealth, here's one morgie guinea pig at pre-MP stages waiting on Benicar at the first of the year.  I'm certain there will be others, and surely some other comments will follow here concerning your questions.

Welcome to the MP!

From

OH:) ...in PHX

Last edited on Sun Dec 24th, 2006 00:03 by Over-Heated in PHX



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jrfoutin
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 Posted: Sat Dec 23rd, 2006 20:57

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Goodhealth,
Welcome.

How to Register and Use This Board
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Please fill REQUIRED SIGNATURE LINE see Information to include Thank You...

ESSENTIAL INFORMATION ABOUT THE MP (Required Reading)
MP Phase One / How to do the MP, Simple Explanations, D-tests, Weaning from Steroids, Benicar Information, Physician Papers, Medications to Avoid, Hypervitaminosis-D Symptoms, foods to avoid, avoiding sun/lights, NoIR sunglasses, Quercetin, Herxheimer Reaction/ Immunopathology, Helpful Hints, tutorials and more.

MP FAQs.... Easy Finder (Required Reading) Alphabetical Keyword Answers to over 50 Frequently Asked Questions- Immunopathology, Antibiotics, Meds, Blood pressure, Light, Blood tests, phase two, statistics, recovery, Th1 diseases, etc.


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zip22045
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 Posted: Tue Dec 26th, 2006 19:13

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Good heath

MP does seem to work to restore an immure system suffering form TH1 disease. This in itself is a major breakthrough and great benifit to TH1 disease sufferers. Also, in my personal experience, antibiotics particularly, in various combinations and strengths can control and may be found to perhaps eliminate Morgallions. You can email me ZIP



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goodhealth
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 Posted: Wed Dec 27th, 2006 21:51

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How-Do, Over-Heated in PHX

There are many more nematodes existing than have been even named, not to mention treated.  Some are very dangerous.  Some are extraordinarily hard to detect in the human body and the results of their invasion are diagnosed to be other things.  The liver fluke, for one, has just recently been linked to liver cancer.  They are doing studies, now, because this fluke is notoriously difficult to kill.  Mothers, if untreated, can pass other helminths on to their children.  They can invade the brain and cause motor problems and often, once there, there is no guaranteed cure.  You cannot operate because they lay there cysts/eggs inside the brain and there are too many of them.  Sometimes, if a person is fortunate, albendazole  in long termed doses can shrink and remove them.

They can leave eggs in the eyeballs and cause blindness.  I am not saying all this disgusting stuff voluntarily, but just so you may be aware that this is no small problem.  Oh, and some scientist think they actually, through secretions or some unknown mechanism, fool the human immune system so they are not attacked. 

There are all sorts of internal damage that worms can do.  It is not a small matter.  There is a pathologist in California who is trying to research the Morgellons problem and the CDC is slated to start work on it in January.

The thought is, in western countries, that people do not get these infections.  Doctors are given just a cursory training in helminths, and usually cannot go much past the occaisional tapeworm, or pinworm.  Even these are sometimes present and not detected in lab tests.  From my reading a lab tech should be doing nothing but worm diagnostics in order to become really expert in it.  Perhaps there are people in more tropical climates doing that, but not in the US.  Also, veterinarians would probably better diagnose worms because ranchers fight constant battles against them and vets are trained in this.  But a vet can lose his license for treating a human.  So, worms are sort of ignored in the states and these poor people with many symptoms indicating worms are just thought of as being delusional and perhaps referred to a psychiatrist.

I do not believe worms are the complete problem with Morgellons.  Some have a symbiotic relationship with certain bacteria.  People have told me some are also involved with fungi.  But most medical people - who are doing more than selling books and raising money for research which is showing next to no results -  the few who are left are feeling very strongly that a worm is involved.  The pity is, American medical people have so little training in this.  Even tropical medicine doctors do not deal in this, but smaller organisms and sometimes nothing more than giving the requisite shots before a trip.  Some worm eggs can hide in the human body, dormant, for up to 5 years.  Some of these things are not an easy cure. 

I have lost touch, but knew a pharmacist who did volunteer work in the aftermath of disasters around the world.  He confirmed the abysmal lack of knowledge of medicine in the west about these strange ailments that he sometimes sees in his travels around the globe.   

Sure, there are delusional people on Morgellons forums.  These poor folks, I think, start reading and posting, mimicking symptoms but 'upping' them into really strange things, like bugs walking through glass.  What do you do in this case?  Kick the person off the forum so that others will not think Morgellons victims are delusional?  I don't know, but that sounds cruel. 

So sometimes Morgellons forums just become a dumping ground for misfits.  But many people on those boards actually do have a shared group of symptoms called Morgellons. 

The lesions just pop up again when they are 'healed'.  This is because the cause of these outer manifestations are under the skin, in the body.  This is also why people think they are being bitten by 'invisible bugs'.  The bites are actually coming from under the skin.  

Nasty stuff.

Anyhow, I kind of agree that you can spend a long time arguing about causes, but what you really need is a cure.  I am thinking that the MP may help some of these people.  After all, not all of them have every symptom of Morgellons.  Some are arthritic, and have other problems, as well.  One of the problems is, a lot of them have given up on doctors, having been hopeful only to be disappointed by them, time and time again. 



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Over-Heated in PHX
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 Posted: Wed Dec 27th, 2006 23:35

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goodhealth wrote:
...

Anyhow, I kind of agree that you can spend a long time arguing about causes, but what you really need is a cure.  I am thinking that the MP may help some of these people.  After all, not all of them have every symptom of Morgellons.  Some are arthritic, and have other problems, as well.  One of the problems is, a lot of them have given up on doctors, having been hopeful only to be disappointed by them, time and time again.  


 

Hello Goodhealth,

The good news is the Morgies who have given up on Doctors can now forget that route and look at science instead. 

I'm very excited about the MP, because of the scientifically-based process I see here. Also, because of the changes I am noting from the simple exclusion  of Dietary D and the sun/brightlights exposures in my own experience.    I haven't started the medications.. as you can see from my signature line I am still a Pre-MP.  My official debut onto the MP as a "Benicar only" will be on January 3rd, 2007.  Please read my thread when you get a chance on the Preliminary Test Results forum..  

http://www.marshallprotocol.com/forum22/7602.html

Through the Morgellons web exchanges, I learned I probably would test positive for lyme-borrelia and sure enough I did with a "very high" titer.  Please note, and as you can see from my signature line, I have had Morgellons lesions for over 10 years.  Now, through the MP, (which I only became aware of through the Morgellons sites), I have learned I mostly likely would test out as having HYPERVITAMINOSIS-D, and sure enough.. a 3.81 ratio and a 99.96 percentile on the 1-25D alone.  I otherwise have pretty darn good blood tests and most people who see me think I look like a picture of health, other than the skin disease.. so, what can I conclude from my own experience?  ...that this Morgellons disease is somehow dependant on the presence of CWD bacteria.

After watching the percentage of failure of those trying miscellaneous treatments, "cures" which no one else can ever repeat by the way, and by listening to the ongoing suffering, as well as the frustrations of all those banging their heads against brickwalls trying desperately to identify "what" morgellons is..  What do I conclude?  They would be better off to exert their energy onto a plan....amping up their immune system.

I fear all the "by guess and by golly" trials taking place with the Morgellons group and/or arranged by their doctors.  The levels of medications consumed in vain attempts to cure can render them with tragedy down the road.  There are no good, workable treatments, or actually positively iD'd creatures as of yet. (Those who claims improvement, may also backslide... and I haven't seen reports of real and true wellness, which is what I am after and people gain through the MP. I'm going to be well, and I am going to be a working model of what happens when Morgies embark on the MP.  i'm going to see not only those fibrous growths leave, but also those painful cellophane colored fluorescing fibers).  BTW, I have strange blood "objects" that have left out of my lesions in both arms and legs, sure these are too big to be the CWD bacteria, but i bet they are the RESULT of the presence of CWD bacteria, not the other way around. I plan to see this end too, and I am seeing evidence that it will.  If you are suffering, I hope you will take the chance on the MP and battle the Morgellons down.

Thank YOU. Goodhealth, for spreading the MP concept around out there in the Morgellons community, I do likewise.  How will we know if this works?  We will know when Morgies buckle down and try it.  The Morgellons sufferers have tried so many things and at levels I fear may be harmful to them longterm.  Why not try something a little less risky and more promising?

Can't beat a functioning immune system. 

To our "joint" (haha couldn't resist:)) recovery in 2007!:cool::cool:

OH in PHX

Last edited on Thu Dec 28th, 2006 00:12 by Over-Heated in PHX



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zip22045
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 Posted: Fri Dec 29th, 2006 02:24

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OH Agree almost entirely with everything you have written and want to thank you for presenting it all in a clear understandable way. I guess the one thing that I think needs to be considered further is if Morgellons is a th1 disease itself or just an opportunistic disease, which thrives, in an immune compromised environment.  Zip



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Over-Heated in PHX
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 Posted: Fri Dec 29th, 2006 04:08

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zip22045 wrote: OH Agree almost entirely with everything you have written and want to thank you for presenting it all in a clear understandable way. I guess the one thing that I think needs to be considered further is if Morgellons is a th1 disease itself or just an opportunistic disease, which thrives, in an immune compromised environment.  Zip

Hi Zip,

I see that Dr. Marshall stated the possibility of the Morgellons to be "yet another idiopathic Th-1 disease" ..but that he would like more test results, specifically the D-tests.  I hope we will get more from Dr. Marshall when he has these in hand and has had the time to evaluate it. 

I have the high value for the D-ratio, I have Hypervitaminosis-D, I have a high concentration of 1-25 D.. if my understanding is correct, this means I have a dominant Th-1 immune response.  That indicates, again if I am correct in my understanding, that the primary offender is CWD bacteria.

If this were not the case, I would have a lower level of 1,25-D as occurs when subjects present with the parasitic protozoan and viral infections.

My assertion then, with one Morgellons D-Panel reporting in, that we should saddle up and ride with the MP and see what happens.:):)

My hope here is that persons suffering Morgellons will recognize that, since most of us have Lyme-Borrelia type disease, that we should go at it from that standpoint.

For myself, I figure it this way, 10 years is plenty long enough to suffer, lose income, opportunity and social contacts. I won't waste another precious minute of my life wondering what Morgellons is. I am not a martyr for the cause of Morgellons.  A healthy soldier will always be a greater asset than one that can barely get out of bed, so, if I am going to spend my energies to see things change, then helping myself NOW is first and foremost. 

I'm not a scientist, and if I had the background, I also don't have the resources to do any kind of laboratory study.  So for me to horse-around with my microscope, or try to argue with the establishment based on what I see.. is pretty pointless. Look at Dr. Marshall and his credentials, and what he has to go through to get his hard scientific results recognized.  Like anyone is going to pay attention to OH and my toy microscope?!?:P

I am very matter-of-fact about this.  Once I took the time to understand the MP, (to the best of my ability), I determined that it is only a logical approach to go after the Morgellons disease as if it is a Th-1 illness, and if it is, we may see results early through direct assault on the disease (my assumption). 

ON the other hand if it is, say, a coinfection of lyme, or some sort of parasite, than the later stages of the MP should knock it out as it does the Babesia infections. Either way we win.

There is always the possibility that having, as you say Zip, the lowered immune system environment that has allowed creatures great and small onboard, which are ordinary parasites and not even "Morgellons".

Anywhichway, the MP has a lovely one-slice bologna sandwich for the offenders once they are in custody.

Of course all the microbiological and molecular understandings are far beyond my comprehension, so this is just my direct and to-the-point opinion.  Solely  thoughts by OH. 

Later maybe we will learn if a possibility exists of some aberrant horseplay that has happened with this Morgellons disease ..as in, we have fluorescent fibers in our bodies and outside in the environment these fibers are found as well.  At this point, what is, is.  In the meantime, Morgies should not sit by and wait for the calvary to ride up, maybe the AutoImmune Research Team IS the calvary for cryin' out loud!
:dude::dude::dude::dude::dude::dude::dude:  OH says JUST DO IT!  Get the immune system amped up!  That surely is not a waste of more time, money, resources, years of life. 

Hey, this way we can, Be prepared like any good boy or girl scout,

..to do whatever the next step in the process may be.:cool:;):shock::D

hee hee,

OH in PHX:)

Last edited on Fri Dec 29th, 2006 04:22 by Over-Heated in PHX



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zip22045
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 Posted: Fri Dec 29th, 2006 12:05

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Couldn't agree more. If MP is working for you and you are satisfied with your progress go with it. There has been some thoughts however, that a Benacar blockade, as it opens up pathways for destroying CWD bacteria also opens up opportunities for further infection. Not up on how this actually works but if you do not have a TH1 disease it's probably not wise to undertake the MP... Zip



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Dr Trevor Marshall
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 Posted: Sat Dec 30th, 2006 06:27

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Zip,
The MP activates the innate immune system by making the molecule at its heart, the VDR, work properly again. It also enables the proper function of several other molecules which are key to innate immunity.

Back in 2004 there was a lot of guesswork and loose talk about the actions of Benicar, but during 2005 we fully described exactly what part it plays in recovery, and published that in the Theoretical Biology paper and in my recent University presentations.

There is no way that that Benicar compromises the immune system. This is an old-wives tale invented by patients who were trying to justify their inability, or timidity, to adopt the MP for their own recoveries.

We now know that the VDR, activated by reduction of exogenous Vitamin D and Benicar, is equally effective at fighting viral infections and bacterial infections. We know of no downside to using Benicar, and no known risks associated with disease conditions (except for the exuberant immunopathology resulting from an effective innate immune response in Th1 disease).

jillian
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 Posted: Sat Dec 30th, 2006 11:12

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Zip,

If you're interested in learning the science Dr. Marshall is referring to in his post, you can buy the "Science" DVDs (click the link in the upper left corner of the website where you can order the LAX Conference DVDs), OR Dr. Marshall has generously made it available free of charge here on the site. You can watch it by clicking:

for a presentation to a university audience:
BIO21: http://tinyurl.com/yjjlgc

for a presentation to MDs:
http://tinyurl.com/yb274v

Enjoy!

'til later,
Jillian



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PrimryDX-PulmoSarc79,FMS,CFIDS,etc,disabled93. AvoidD/Noirs Aug02. Oct02: 1,25D=42 NTfrzen; Apr05:25D=10. P1 Oct05-Feb06; ModP2C Feb-Nov06; P2 Nov14-Dec06; ModP2BSS Jan-Mar07; ModP2CBSS Mar07-. Noirs & total light control in house.
tickbite
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Joined: Tue Apr 25th, 2006
Location: Tulsa, Oklahoma, USA
Posts: 372
Status:  Offline
 Posted: Sun Dec 31st, 2006 15:29

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zip22045 wrote: There has been some thoughts however, that a Benacar blockade, as it opens up pathways for destroying CWD bacteria also opens up opportunities for further infection. Not up on how this actually works but if you do not have a TH1 disease it's probably not wise to undertake the MP... Zip

 

Considering the depth of infectious material floating around in almost every single person on the planet, hitting up the MP is IMO the smartest thing you could do. Hell, even when folks aren't showing any signs of disease, that is exactly the best and easiest time to top off with the MP. "An ounce of prevention is worth a pound of cure." Something which this country (USA) hasn't accepted.



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"Lyme","CFS", Meningitis
Phase3 8-2-07, MP on hold 11/2007

jrfoutin
Member Advocate


Joined: Tue Aug 9th, 2005
Location: Oregon USA
Posts: 3845
Status:  Offline
 Posted: Sun Dec 31st, 2006 21:49

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Zip,
As per the quote that Greg pulled in the post above, the paradigm of the medications as being the only thing that cleans up the pathogens is problematic, and can lead to the assumption that Benicar is a pathway to spreading more pathogens. This is a very "old medical world" concept that changes once one understands one isn't suppressing their immune system or bypassing it to get well, but enabling it and working with it on the MP.

Dr Marshall has clearly stated the immune system is the only thing that will clean up plasmids. So, with a Benicar blockade full in place, you enable your immune system to do what no antibiotic, or even Benicar can do alone. We're working in vivo here, and it is the only way to do the MP because it requires the immune system. 

When we speak of immunopathology, that is what it is all about -- the immune system and working with it to get well.

Also, you have to realize people are actually getting well on the MP, not getting worse. The MP works.--Janet



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Sarcoidosis 125D61, MP10/05 ModP2 12/05 Ph2 6/06 Ph3 10/06, NoIRs limited outings covered, 2/08 25D6.2

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