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Tessa
Member in Phase 2
| Joined: | Wed Nov 30th, 2005 |
| Location: | Australia |
| Posts: | 79 |
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Posted: Tue Nov 7th, 2006 04:35 |
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Hi DR. Marshall,
I'm very happy + excited that you are coming to Perth.
It was through hearing you on the 6PR talkback radio program + speaking to Peter VanDer A that prompt me to join the MP.
It has worked wonders for me, I can't say I'm completely cured yet, but I,m on the way to a complete recovery.
I would love to meet with you + other members[pa tients] in an informal setting.I would be happy to open my home for this meeting.The only problem is that only about 30-40 people would be able to be invited [asked].
If this idea is of any help please cotact me,as I would be more than happy to help organise this.
All the best on your work,+ your Australian visit.
regards, Rosa.
____________________
Sarcoidosis/lungs and chest nodes joint pain Ph1Mar06 ModPh2Sep06 Ph2Apr08 NoIRs low lux home cover up
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Dr Trevor Marshall
Research Team
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Posted: Wed Nov 8th, 2006 01:04 |
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Rosa,
Thank you for your kind offer. Let's see how things work out for Perth. At this point nothing has been finalized except that I will be there 
Please note that the presentation at John Curtin School of Medical Research, ANU, has been rescheduled to 2:30pm, so that the 4pm Fire Drill does not come in the middle of my presentation
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Mirek
Member in Phase 3
| Joined: | Sun Aug 29th, 2004 |
| Location: | Perth, Australia |
| Posts: | 54 |
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Posted: Wed Nov 8th, 2006 08:39 |
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Hi Trevor,
Would be great to meet you finally in Perth after 4 years on MP?
Thanks to you my health is exceptional. I don't seem to be spending much time on the MP website these days, as I'm able to work full time, travel, eat anyting I like and be outdoors (though forever conscious of the sun. Wearing a hat is part of daily routine). As for the Sarc, as far as I can tell free of it. No more herx felt.
Cheers
Mirek
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Sarc Oct01, Started MP in Oct02, Completed Phase 3 in March 07. Feeling a lot better, no sign of sarc in lungs, 90% health. Nexium 40mg daily
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Belinda
Research Team
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Posted: Wed Nov 8th, 2006 20:24 |
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I know many of you in Australia are making plans to see Trevor on his upcoming tour. We now have a related press release online at this link.
We'll be thinking about you and celebrating the new organization in your country.
BelindaLast edited on Wed Nov 8th, 2006 20:46 by Belinda
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Dr Trevor Marshall
Research Team
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Posted: Wed Nov 8th, 2006 21:09 |
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The flyers for the JCSMR and Bio21 presentations are now online at URLs
http://autoimmunityresearch.org/Marshall_JCSMR_flyer.pdf
http://autoimmunityresearch.org/Marshall_Bio21_flyer.pdf
Please share them with your physicians and friends.
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edj2001
Advocate
| Joined: | Tue Oct 18th, 2005 |
| Location: | Allen, Texas USA |
| Posts: | 146 |
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Posted: Thu Nov 9th, 2006 11:09 |
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Congratulations on the new organization in your country. Look forward to pictures of the various events.
Best regards,
Gene
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Sarc98 A.Fib uveitis sk cancer basal/melanoma colon tmr bladder tmr bph|digitex 0.125mg q24h propafenone 150mg q8h armour 60mg q24h proscar 5mg q24h Guaifensin 600mg qid Aspirin 81mg q12h |1,25D=50 (10/05), 25D=7 (4/08)| avd l&D
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19133 |
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Posted: Fri Nov 10th, 2006 22:38 |
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reposting: for those who have not seen the latest:
TREVOR'S AUSTRALIAN VISIT NOVEMBER 12 to 21
Meeting times for the various patient sessions are now being finalised
The Sydney Patient Session is now on the morning of
Saturday 11 November.
The Sydney patient meeting will be preceeded by a short inaugural meeting of the Australian Autoimmunity Foundation.
The timetable will be a 10.30am meeting of the Foundation
- followed by an 11.00 am presentation and Q&As by Dr Marshall.
Place
The Ku-ring-gai Library Meeting Room, which is located adjacent to Ku-ring-gai Library, at 799 Pacific Highway, Gordon.
Access and parking details
I hope that not too many are inconvenienced by this unavoidable change of arrangement
RobertTownsend
Canberra Members who are able to - are travelling to this Sydney meeting.
REPORT: see Trevor Down-Under
...............................
The Brisbane Patient Session is
2.30pm Monday November 13
at the New Farm Library Community Hall.
...............................
2:30pm Wednesday:
Please note that the presentation at John Curtin School of Medical Research, ANU, has been rescheduled to 2:30pm Wednesday, so that the 4pm Fire Drill does not come in the middle of my presentation
...............................
The Melbourne Patient Session is now confirmed as being :
Time 3.30 pm to 5.00 pm on Thursday November 16
Place Phylis Hore Room, Rear of Kew Library, Cotham Road (Cnr Civic Drive) Kew 109 Tram Stop No 35
Facilities : Wheelchair access and adjacent disabled parking
Lighting : The room is used as a daytime film theatrette and so can be darkened to our needs
...............................
A patient session in Adelaide is now scheduled
for 3.30 pm on the afternoon of Friday 17 November.
The venue is the ground floor foyer of the HOLIDAY INN 65 Hindley Street Adelaide.
NOTE:
Holiday Inn is set back from the road, and has only a 20ft wide fascia, and so is easy to walk straight past. It is roughly opposite the underground arcade from Hindley through to the Railway station.
.....................
For the Western Australian members -
Dr Marshall will be visiting Perth
on the evening of Sunday 19th, the 20th and morning of 21st November.
Is there any interest in organizing a get-together?
Let's see how things work out for Perth. At this point nothing has been finalized except that I will be there please see Dr Marshall post
An Interview with Perth ABC radio is being organised ..
any meetings will have to organised around this interview time once the details are finalised.
Belinda is the contact for final details. see the press release online at this link.
The flyers for the JCSMR and Bio21 presentations are now online at URLs
http://autoimmunityresearch.org/Marshall_JCSMR_flyer.pdf
http://autoimmunityresearch.org/Marshall_Bio21_flyer.pdf
Please share them with your physicians and friends.
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Sydney Chris
Member in Phase 3
| Joined: | Fri Feb 18th, 2005 |
| Location: | Sydney, Australia |
| Posts: | 436 |
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Posted: Sat Nov 11th, 2006 05:41 |
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The Sydney meeting was really well attended.. I counted around 30 people, some with partners, friends or carers.
Speaking for myself at least, it was great to be able to put faces and stories to the names and to also be able to personally thank Dr Marshall as well as the many members who have assisted me thus far...
I hope the other states are able to get a good turn out and get the cohort benefits we were able to get today, it really was a positive and supportive experience which can only help patients and their partners get through this rocky road just that bit easier....
I would genuinely encourage you if at all possible to attend these sessions, meet Liz, Dr Marshall and your peers.
Best to all..
ChrisLast edited on Sat Nov 11th, 2006 05:44 by Sydney Chris
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Post viral syndrome IgG deficiency 125D74 IgG shots Ph1Mar05 Ph2Nov05 ModPh2Jan06 r/t KFTs Ph3Aug07 NoIRs lite exp r/t commute 25D<7.2(Jan07) 25D14.4(Mar08)
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robyno
Member in Phase 3
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Posted: Sat Nov 11th, 2006 23:57 |
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I whole-heartedly agree with Chris. This meeting was wonderful from lots af perspectives - meeting Trevor and Liz and being able to thank them in person meant a lot to all of us I think. And meeting each other was very special - would love to be there at all the meetings around the country to meet as many MPers and their families as possible, but as that is not possible I'll just look forward to reading about them on the Board.
I am very annoyed at myself for not taking any photos - had the camera out but then got worried about the flash and MP eyes so I put it away again. Will try to do better on Wed in Canberra.
Regards, and thanks to all who made yesterday's meeting so memorable,
Robyn
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Mum of Matt 15 yrs 45 kg, Rickettsia+Lyme sympt,~90% recovered; Noirs Aug05, avoid light&D, Beni 13Sep05 20mg Q6H; in Ph 3 now & has his life back!!
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jrfoutin
Member Advocate
| Joined: | Tue Aug 9th, 2005 |
| Location: | Oregon USA |
| Posts: | 3846 |
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Posted: Sun Nov 12th, 2006 02:18 |
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You know, much of what you have said I noticed at LAX conference too. I know I pestered poor Dr Marshall with my thank you's on more than one occasion. Hard not to. Noticed others did too. What a gift he has given to us all.
I am really enjoying seeing your responses so similar to what I experienced earlier this year. What an amazing and wonderful thing for Australia to have this opportunity with their own native son and his dear wife. So much good there!
Yes! camera and pictures. Reports are fun too, thank you all for your perspectives.--Janet
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Sarcoidosis 125D61, MP10/05 ModP2 12/05 Ph2 6/06 Ph3 10/06, NoIRs limited outings covered, 2/08 25D6.2
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jillian
Member in Phase 2
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Posted: Sun Nov 12th, 2006 05:55 |
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In addition to the wonderful excitement of the new AAF and the updates on the meetings, I must say that the press release and flyers are AWESOME. I'm sending them to my MP doc and chiropractor on Monday. (Don't see the chiro very much any more, the MPs allowing my body to do its job.)
'til later,
Jillian
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PrimryDX-PulmoSarc79,FMS,CFIDS,etc,disabled93. AvoidD/Noirs Aug02. Oct02: 1,25D=42 NTfrzen; Apr05:25D=10. P1 Oct05-Feb06; ModP2C Feb-Nov06; P2 Nov14-Dec06; ModP2BSS Jan-Mar07; ModP2CBSS Mar07-. Noirs & total light control in house.
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Dr Trevor Marshall
Research Team
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Posted: Sun Nov 12th, 2006 16:22 |
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Robyn,
I took some photos, a few seconds of video. I will put it online when I get a few spare moments.
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sherbal
Health Professional
| Joined: | Fri Oct 21st, 2005 |
| Location: | Perth, Australia |
| Posts: | 3 |
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Posted: Mon Nov 13th, 2006 06:06 |
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Hi Trevor
Look forward to seeing you in Perth.
I have several good contacts in ABC Radio here if you would like to set up an interview.
Has a meeting time been made yet?
Regards
David Main
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Dr David Main
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19133 |
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Posted: Wed Nov 15th, 2006 05:05 |
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PERTH MEETING TIME:
We are setting down the Perth meeting time for
Sunday 19th 6.00 pm at Private Venue. (Perth Member Home)
RSVP & details PHONE Peter: 08 9361 2890 Daytime
Needing to know expected numbers ahead of time if possible.
Any questions: Please contact (email/PM) Rosa or DianeW Thank you..
We might end up without a separate doctors meeting in Perth.
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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CFSSSA
Member
| Joined: | Wed Nov 15th, 2006 |
| Location: | |
| Posts: | 2 |
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Posted: Thu Nov 16th, 2006 02:31 |
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Hi
I have come here to this forum because I am unable to contact R Townsend as named on the media release we were emailed last week. I wanted to ask about the Adelaide patients' meeting
a. whether this is an open meeting
b. Whether the details on this board re location and time are still current
We can get an sms message to most of our members to let them know it is on if that is appropriate.
Best Regards
Peter Mitchell
Secretary
CFS Soc SALast edited on Thu Nov 16th, 2006 02:32 by CFSSSA
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CFSSSA
Member
| Joined: | Wed Nov 15th, 2006 |
| Location: | |
| Posts: | 2 |
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Posted: Thu Nov 16th, 2006 05:26 |
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Thanks to Aussie Barb and Robert Townsend, I am now clued in to the information I needed. We will not be sending the SMS, but we have the information to pass on to members who may need it.
Best Regards
Peter Mitchell
Secretary
CFS Soc SA
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19133 |
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Posted: Fri Nov 17th, 2006 21:30 |
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Announcing Interview with Dr Marshall:
ABC Radio in Perth, Western Australia:
Tuesday 21st November 10am for about 20 minutes
720 ABC radio in Perth. http://www.abc.net.au/perth/
To listen live ONLINE http://www.abc.net.au/wa/live_stream.htm
Time differences: World Clock
.......................................................
Dr Marshall writes:
A year ago, Liam Bartlett on ABC Radio, in Perth, broadcast a phone interview with me:
http://www.abc.net.au/wa/stories/s1487053.htm
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Moxie
Member in Phase 3
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Posted: Fri Nov 17th, 2006 22:23 |
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| Moxie's post moved to Trevor down under meeting reports..
____________________
CFS 25 years - FMS. Benicar 3 daily - Ph 2 16/5/05 - Ph 3 10/5/06 Metformin 500mg 1/2 bd. Vit D 45nmol/L (18ng/ml) 1,25 D 92pmol/L (38.3pg/ml)
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Belinda
Research Team
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Posted: Sun Nov 19th, 2006 21:58 |
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JUST A REMINDER...
At about this time -- 24 hours from now, anyone who wants to hear Perth ABC radio interview Trevor Marshall can get it on their computer using live streaming audio.
You may want to check it out now, so you will have everything ready for tomorrow. You will only hear audio when the program in on the air. The broadcast begins on the hour and runs for two hours. Trevor's interview will begin the program.
Belinda
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19133 |
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Posted: Mon Nov 20th, 2006 20:06 |
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PLEASE NOTE ABC CANCELLED:
The ABC Radio Interview has been cancelled, as there is too much news active over here this morning.
That is actually quite fortunate, as I need to squeeze in another presentation down at Murdoch Uni, in addition to the one I did yesterday at Royal Perth Hospital.
More details later...
..Trevor..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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