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Freddie Ash Member in Phase 3

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Posted: Fri Sep 14th, 2007 16:31 |
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HI ALL
This is Fred in WV. This may not be in the right place but I want to tell all that today while at Walmart shoping I went to get the cheese without the vit-D and found that most of the cheese slices have now also added the phosphorus with the vit-D. It looks to me like Dr Marshall has gotten to some one by tell us that we need phosphorus to absorb the calcium not the vit-D.
Remember, we are all in this together and I am pulling for us.
Your friend in sarcoidosis
Freddie
____________________ Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
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jcwat101 Research Professional

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Posted: Fri Sep 14th, 2007 19:01 |
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Freddie,
I would be a bit surprised if they really had added phosphorus because cheese naturally has a lot. Are you sure they added it? What exactly did the label say?
Joyce Waterhouse
____________________ 20 yrs with CFS/FM/Lyme/IBS, food sensitivities; 1,25D/25D 8/04:64/11 1/05:22/6 9/05:1,25D=12 10/06:22/8, 4/07:25/<4 chewed Ben. 40mg q8h; Mod. P2: 2/23/05, P2: 4/06; P3: 1/1/07
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Freddie Ash Member in Phase 3

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Posted: Fri Sep 14th, 2007 23:17 |
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HI JOYCE
This is Fred in WV. As best I can remember it said, CALCIUM + VIT-D + PHOSPHORUS. This was on the front of the package.
Remember, we are all in this together and I am pulling for us.
Your friend in sarcoidosis
Freddie
____________________ Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
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tickbite Member

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Posted: Sun Sep 16th, 2007 21:58 |
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here's an interesting way to look at it http://www.sciencedaily.com/releases/2007/09/070916143504.htm
(i'm being facetious )
"LL37 provides a new potential target to block in the treatment of chronic inflammatory diseases and a possible component for vaccines against infectious diseases and cancers, the authors note."
Any takers?! Come on! maybe the next best thing to prednisolone. i don't understand the autoimmunity crowd. How do they not see the bugs and acknowledge them? it's like staring out into the night sky and not realizing that the stars aren't just like our sun. Trevor quoted someone once and said something like "it is folly to blame conspiracy theory when ignorance can be put to blame." Which sounds awfully like an inflated ego, but in the case of matter of fact it's very frustrating to be the truth knower. Go take a staining and genome class, autoimmunity people.
~g
____________________ "Lyme","CFS", Meningitis
Phase3 8-2-07, MP on hold 11/2007
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jcwat101 Research Professional

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Posted: Wed Sep 19th, 2007 20:12 |
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Bacteriality — Understanding Chronic Disease -- New Vitamin D article
I just thought this thread was an appropriate place for a link to Amy Proal's new article on Vitamin D. The Vitamin D article is a comprehensive source of information on Vitamin D that should address most, if not all, the issues from a new perspective based on Dr. Marshall's discoveries. It also has over 100 links references.
And there are also many other interesting articles and interviews on the site that relate to the MP. And she and Paul keep adding more.
Joyce Waterhouse
____________________ 20 yrs with CFS/FM/Lyme/IBS, food sensitivities; 1,25D/25D 8/04:64/11 1/05:22/6 9/05:1,25D=12 10/06:22/8, 4/07:25/<4 chewed Ben. 40mg q8h; Mod. P2: 2/23/05, P2: 4/06; P3: 1/1/07
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rainbowcatcher Member

| Joined: | Wed Oct 27th, 2004 |
| Location: | United Kingdom |
| Posts: | 432 |
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Posted: Fri Sep 21st, 2007 09:27 |
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Another 'new' article:
http://news.independent.co.uk/health/article2974479.ece

____________________ 74yr old(mom) HX:Sarc/lung'85 HTN Tinn skin eruptions.eye pressure systemic burning.Diverticulitis.02/05 25D=7 1,25D=28; 02/06 25D=7 125D=13/ Paracetamol/(Acicdof & cranberry 4/07)diazepam.NoIR & light 6/05|4-6hr Olmetec Aug05| Mino Sept05| 03/06
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Freddie Ash Member in Phase 3

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Posted: Fri Sep 21st, 2007 15:45 |
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HI JOYCE & ALL
This is Fred in WV. ON the added Phorphorus to the cheese, the package on the front reads as follows:
CALCI - 3 ESSENCIAL BONE BUILDING NUTTIENTS
CALCIUM - VITAMIN D - PHORPHORUS
I hope you can understand the way I put it here. To me they added the Phorphorus, but I am not always correct in my thinking.
Also, thank you Raninbowchatcher for that article this is what I see some of every week, TAKE MORE VIT-D TO GET WELL.
Remember, we are all in this together and I am pulling for us.
Your friend in Sarcoidosis
Freddie
____________________ Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
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jcwat101 Research Professional

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Posted: Fri Sep 21st, 2007 19:04 |
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Freddie,
I would still be doubtful they added phosphorus to the cheese. By that reasoning, they added calcium to the cheese too, and I have never heard of anyone doing that. I could probably figure it out if you told me how much calcium and phosphorus were in the cheese per serving (should be on package) and I could compare that to the amount found naturally in cheese.
Joyce Waterhouse
____________________ 20 yrs with CFS/FM/Lyme/IBS, food sensitivities; 1,25D/25D 8/04:64/11 1/05:22/6 9/05:1,25D=12 10/06:22/8, 4/07:25/<4 chewed Ben. 40mg q8h; Mod. P2: 2/23/05, P2: 4/06; P3: 1/1/07
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B R H Member in Phase 3
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Posted: Tue Sep 25th, 2007 16:26 |
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Do the writers of this stuff even bother to read what they write?
Under "Colds and flu" - "The researchers said that the vitamin stimulated "innate immunity" to viruses and bacteria."
Under "Diabetes" - "Vitamin D is believed to act as an immunosuppressive agent..."
I guess vitamin D really does have magical properties. So what does magical vitamin D do when a diabetic patient has a cold or flu?
____________________ Lyme, babesiosis, hypothyroidism, asplenia, incomplete quadriplegia, 125D58 (11/06), 25D12 (01/08), Synthroid 25 ug qd, sunscreen & sunglasses outdoors as needed.
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Freddie Ash Member in Phase 3

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Posted: Tue Sep 25th, 2007 17:02 |
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HI JOYCE
This is Fred in WV. I was at the store and checked the lables on the cheese slices again. On Borden's it had phosphorus it read 20% and on Kraft's it read 15%. I hope this helps. Even if it is not added they never had the phosphorus on the front of the package until Dr Marshall found out it took the phosphorus to make the calcium to absorb into our bodies. It looks like they do not want to take a chance on which one is needed, the vit-D or phosphorus. Thanks for all you help on this matter. Thanks for just caring about us(TH1 patients).
Remember, we are all in this together and I am pulling for us.
Your friend in sarcoidosis
Freddie
____________________ Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
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jcwat101 Research Professional

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Posted: Tue Sep 25th, 2007 17:43 |
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Freddie,
Thanks. That sounds about right for the natural level of phosphorus in a serving of cheese (as % of RDA in a serving). Phosphorus is pretty abundant in the diet and most get plenty even without dairy products. But it is interesting that they mentioned it on the label now.
Joyce Waterhouse
____________________ 20 yrs with CFS/FM/Lyme/IBS, food sensitivities; 1,25D/25D 8/04:64/11 1/05:22/6 9/05:1,25D=12 10/06:22/8, 4/07:25/<4 chewed Ben. 40mg q8h; Mod. P2: 2/23/05, P2: 4/06; P3: 1/1/07
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eClaire Member in Phase 2

| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 520 |
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Posted: Tue Sep 25th, 2007 17:52 |
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Did anyone read the recent article about the research in salmonella where scientists sent salmonella into space and found that when it came back it was more powerful/deadly than the same bacteria it was taken from? The article just casually mentioned that we, of course, cannot sterilize astronauts. Hmmm...not feeling too good about the space program at the moment. Also, makes me wonder about the astronaut who attempted to abduct a romantic rival. It seems to me that our Th1 illnesses often have their tipping point moments and perhaps space travel was hers.
Claire
P.S. I know this was not Vit D in the news...more like Th1 in the news.
Last edited on Tue Sep 25th, 2007 17:53 by eClaire
____________________ CFS FMS MCS COPD hypermobility IBS/GERD osteoporosis 125D48 25D8 Ph1Dec06 ModPh2Jun07 NoIRs limited outings covered up low lux home abx brk 3/2/08 to 5/25/08
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wrotek Member in Phase 3

| Joined: | Fri Dec 31st, 2004 |
| Location: | Wroclaw, Poland |
| Posts: | 1122 |
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Posted: Thu Sep 27th, 2007 17:29 |
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Is Vitamin D An Antibiotic?
Antimicrobial Peptideshttp://www.vitamindcouncil.com/newsletter/2006-june-july.shtml
____________________ Lyme reflux chronic pain fatigue depression 125D36 Ph1Sep05 Ph2Oct06 Ph3Apr07 homebound in low lux NoIRs 25D<7 Oct06
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jcwat101 Research Professional

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Posted: Sat Oct 6th, 2007 21:00 |
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Higher level of brain lesions associated with higher vitamin D intake.
I'm excited about a study I just read about -- shows those with higher vitamin D intake tended to have a greater volume of brain lesions shown by MRI. There is apparently not yet a full paper -- it was a conference abstract. The multivariate analysis showed it was the higher vitamin D intake, not the calcium that had the association. Of course it was not randomized, but still it should be very helpful in our efforts to show that vitamin D supplementation is an important issue.
Calcium and vitamin D intakes are positively associated with brain lesions in
I googled it
brain lesions vitamin D Payne - Google Search and did find a number of articles.
This link was better than some because it mentioned the multivariate analysis showing only vitamin D showed a statistically significant relationship with lesion volume.
Reuters-- vitamin D intake may have a down side
This one has a place to comment:
could comment BestSyndication Forums :: View topic - Mental Health
Just a brief look shows MRI brain lesions have been linked to depression, stroke, Alzheimer's and bipolar, among other things --see for instance these and the related links:
White matter and subcortical gray matter lesion vo...[Int Psychogeriatr. 2006]
Arch Gen Psychiatry -- White Matter Hyperintensity Progression and Late-Life D
A Fully Automated Method for Quantifying and Localizing White Matter Hyperinte
I think telling friends, relatives, news media etc... about this study will have more impact than a lot of other things many of us have tried.
But if any of you supplemented a lot with vitamin D or got too much sun in the past, don't worry -- it seems likely the MP will reverse any damage, based on the many people who have had their cognitive function improve along with their other diagnosed inflammatory conditions and symptoms.
Joyce Waterhouse
____________________ 20 yrs with CFS/FM/Lyme/IBS, food sensitivities; 1,25D/25D 8/04:64/11 1/05:22/6 9/05:1,25D=12 10/06:22/8, 4/07:25/<4 chewed Ben. 40mg q8h; Mod. P2: 2/23/05, P2: 4/06; P3: 1/1/07
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jcwat101 Research Professional

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Posted: Sat Oct 13th, 2007 19:48 |
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I just wanted to add to my post showing the volume of brain lesions shown by MRI to be correlated with higher vitamin D intake (see above).
This study showed that these MRI lesions are also associated with a higher mortality rate in community dwelling elderly people.
lIncreased risk of death in community-dwelling olde...[J Neurol Sci. 2006] - Pu
Joyce Waterhouse
____________________ 20 yrs with CFS/FM/Lyme/IBS, food sensitivities; 1,25D/25D 8/04:64/11 1/05:22/6 9/05:1,25D=12 10/06:22/8, 4/07:25/<4 chewed Ben. 40mg q8h; Mod. P2: 2/23/05, P2: 4/06; P3: 1/1/07
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Freddie Ash Member in Phase 3

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Posted: Sun Oct 14th, 2007 14:22 |
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HI JOYCE
This is Fred in WV. I do not know if you have answered a question I have(if you did I missed it some where) but I have been concerned about calcification. The reason is I had to have the 2nd bypasses done was that all 4 bypasses calcified hard. Now last Dec my xrays showed lymph nodes calcified for a least 2 years now. Today I saw an article in the local paper that vit-K had something to do with things calcifing. It was a study about preventing varicose veins, eat greens for the vit-K. It said, "THEY CONCLUDED THAT ADEQUATE VITAMIN K IS NEEDED TO HELP ACTIVATE A KEY PROTOEIN THAT BLOCKS THE CALCIFICATION AND CELL PROLIFERATION THAT CAN LEAD TO VEIN DISTORTION AND DISEASE." So would I need more vit-K to stop the calcifition from happening.
I hate to have my bypasses done again due to the calcifation if I need more vit-K. Also I do not need any organs to calcify either. Thanks for any help you can give me to help clear my mind on how to handle this.
Remember, we are all in this together and I am pulling for us.
Your friend in Sarcoidosis
Freddi
____________________ Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
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jcwat101 Research Professional

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Posted: Sun Oct 14th, 2007 17:58 |
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Actually, although there are studies suggesting more vitamin K is helpful with regard to avoiding calcification of arteries, it is yet to be proven.
On the other hand, I have been taking a small amount of vitamin K and it hasn't caused me any problems -- and my Dad has too (Solgar vitamin K), since we haven't been able to get enough in our diet. And we are progressing fine.
When I researched the amounts in food, I found that the only foods that had much were things like spinach, turnip greens and kale. Other leafy greens and some other vegetables had some, but not all that much.
I found one study that did not find an association between calcification and vitamin K intake, so if there is an effect it is not a very obvious one. But other studies I found were more supportive of vitamin K's role. They won't really know until they do a large randomized controlled study.
But the general recommendation for the MP is to try to get near the RDA, from food if possible, and if really necessary from supplements.
I will look for a link that has the amounts of vitamin K in various foods.
Joyce Waterhouse
PS
Here are some links I found. Many sources seem to think we get enough if we eat green vegetables:
MedlinePlus Herbs and Supplements: Vitamin K
This web site is more favorable to getting more and does cite a 1995 study showing a benefit of vitamin K for calcification and it gives the amounts in some foods:
Linus Pauling Institute at Oregon State University
It gives the recommended level for men at 120 mcg and 90 for women.
Here are the amounts in all foods, it is highest among foods some of us don't eat all that often (this is only K1 -- phylloquinone):
Vitamin K content, listed with highest amounts first.
While I'm at it, this links is a good one for finding amounts of all sorts of nutrients in foods, in a convenient way:
***Nutrient Levels found in various foods
PPS I came across another article that showed that levels of K2 (menaquinone) were associated with reduced heart disease (the above links refer to K1, the form of K found in vegetables).
Dietary Intake of Menaquinone Is Associated with a Reduced Risk of Coronary He
Apparently, some studies find that K2 is perhaps more important -- in some part because it is better absorbed. It is food in fermented foods, including cheese.
Another study found that supplemental K1 is absorbed better than the K1 in plants and consuming fat with a meal helps absorption of it:
Comparison of Phylloquinone Bioavailability from Food Sources or a Supplement
But in any case, this is still something being researched and clinical trials are needed (the above were observational studies), so you might talk to your doctor about it.
Last edited on Sun Oct 14th, 2007 20:34 by jcwat101
____________________ 20 yrs with CFS/FM/Lyme/IBS, food sensitivities; 1,25D/25D 8/04:64/11 1/05:22/6 9/05:1,25D=12 10/06:22/8, 4/07:25/<4 chewed Ben. 40mg q8h; Mod. P2: 2/23/05, P2: 4/06; P3: 1/1/07
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Freddie Ash Member in Phase 3

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Posted: Sun Oct 14th, 2007 20:16 |
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HI JOYCE
This is Fred in WV. Thank you so much for all the info. I now think that my bypasses calcified becaue I was on Warfarin and watching not to eat to much foods with vit-K in them. I was on Warfarin almost a year after the first bypasses were done. First bypasses done on March 20,2001 & second one done on Nov 25, 2003, maybe just a enough time to cause the calcification. I think that is also when my lymph nodes calcified but never new about it until last Dec 2006 xrays were done but noted as back to Sept 2005 xrays. Thanks again.
Remember, we are all in this together and I am pulling for us.
Your friend in sarcoidosis
Freddie
____________________ Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
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Dr Trevor Marshall Research Team

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Posted: Sun Oct 14th, 2007 20:26 |
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Freddie,
The single biggest factor in calcification was the lack of function of your VDR produced by the Sarcoidosis. This upsets Parathyroid Hormone (PTH) which is a primary regulator of blood-calcium, as well as transcription of the CASR (Calcium Sensing Receptor), and a lot of other things in the calcium metabolism.
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jcwat101 Research Professional

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Posted: Sun Oct 14th, 2007 20:26 |
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Freddie,
Now it even seems that some think it is better to take some supplemental vitamin K when on warfarin. It seems to stabilize things, and you don't have to worry as much about what you consume in your diet, because it is the fluctuation in amount which is the problem, not the absolute amount.
Low-dose vitamin K to augment anticoagulation cont...[Pharmacotherapy. 2005] -
Joyce Waterhouse
PS I replaced the link.
Last edited on Mon Oct 15th, 2007 02:32 by jcwat101
____________________ 20 yrs with CFS/FM/Lyme/IBS, food sensitivities; 1,25D/25D 8/04:64/11 1/05:22/6 9/05:1,25D=12 10/06:22/8, 4/07:25/<4 chewed Ben. 40mg q8h; Mod. P2: 2/23/05, P2: 4/06; P3: 1/1/07
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