| Author | Post |
|---|
Leesa
Member in Phase 3
|
Posted: Wed Jan 18th, 2006 19:48 |
|
Benicar 40mg Q6H and Mino 25mg QOD/Predfore Eye Drops 3X a day/ Lotemax 1X a day (week 1 for Lotemax)-Week 2 on MP
I feel like my old self today. Great, not tired or sick or too sore. Is that OK? I will try to stretch out to 3 days with the Mino this time, took it yesterday will wait till tomorrow and I will let you know what happens...
What next?
BTW-One MP'er said that they wore their NoIRs all the time-24/7. I have ALL my windows covered (most with blackout curtain material) and all lights than 30 lux in every room. I do not need to wear the glasses all the time do I? I feel that it is important for me to look normal and feel normal at home with my kids and do not wish to wear them all the time unless it becomes necessary to herx more.
Leesa
Last edited on Wed Jan 18th, 2006 20:13 by Leesa
____________________
Sarcoidosis(12-04 biopsy):Uvitus-eyes, Swollen- Parotid Glands, Granulomas-arms, some joint pain & fatigue; Started MP 1-06;Phase 2 03-06 Phase 3 07/06 NO MORE Eye Drops! D test 11-04:1,25D-70 & 25D-46;(9-06)25D-17 (1-07)& 16(2-2008)
|
Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
|
|
Posted: Wed Jan 18th, 2006 21:37 |
|
Thanks Leesa
Just follow your Phase One doc.. some have it printed for convenience.. stretching the dose to 3 days now may find some more herx.. and if the herx has settled, as per the Phase One doc it is time to increase to mino 50mg QOD..
If you have the Natural light completely shut out of your home and the lighting is at less than 30 lux you are right without your glasses.
Natural light > protect skin and eyes..
any bright Artificial light (above 30 lux) > protect eyes / not skin..
all best, Barb ...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Leesa
Member in Phase 3
|
Posted: Sun Jan 22nd, 2006 22:48 |
|
Benicar 40 mg Q6H and Mino 50 mg QOD-end of week 2
I went up to 50mg of Mino and no herx day 1 or day 2, took 50 mg again today (day 3) and no herx, will see how tomorrow goes, if no herx will go till day 3 without takng mino. I actually am kind of disappointed that I have had no herx, I feel like no herx;no progress?????? true or too soon to be worried?
So, I am reviewing things: I took the lux meter around and found hidden "hot spots" that were too bright: like my refrigerator, the light was too high and the kids bathroom, a bit too hight. so where I could not find a lower wattage bulb, I used aluminum foil around the light bub! Cool!!! it worked. the clothes dryer, too hight-used electrical tape to lower the light. The light under the microwave over my cooking range-too hight. Weird places that I missed before....
I sewed a blackout curtain for my back door so when the kids go in and out to play, I do not get showered with sun.
As far as foods, making sure I am eating right.... I even ordered a ton of food that our site talks about online....flour from Hodgskin's Mills, and cocoa and powdered whole milk......I think I am really getting the hang of the food, but I still eat yogurt and cottage cheese and eat a bit of cheese with no fortified D and half and half in my coffee...if I do not herx do you think that at some point I should try to discontinue all dairy, has that been necessary for anyone?
I have only gone out in the sun 1 time in 2 weeks for a doctors appt, and I totally covered up and wore my shades the whole time. I wear my NoIRs while on the computer and while I watch tv (I rarely watch tv). I go out for a family walk every night well after dark and I wear my glasses as cars pass (with bright headlights) and have gone to the store in the dark pm twice, but kept my NoIRs on the entire time.
Just going over ereything.....any advice?
Leesa
____________________
Sarcoidosis(12-04 biopsy):Uvitus-eyes, Swollen- Parotid Glands, Granulomas-arms, some joint pain & fatigue; Started MP 1-06;Phase 2 03-06 Phase 3 07/06 NO MORE Eye Drops! D test 11-04:1,25D-70 & 25D-46;(9-06)25D-17 (1-07)& 16(2-2008)
|
Dr Trevor Marshall
Foundation Staff
|
Posted: Sun Jan 22nd, 2006 22:52 |
|
Leesa,
I suspect you won't herx 'normally' until your 25-D drops to around 20ng/ml, and that may take a month or two.
|
Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
|
|
Posted: Sun Jan 22nd, 2006 23:04 |
|
Thanks Leesa
as well as 25D and light, for a list to check, see the self assesser FAQ Why isn't the Marshall Protocol working? what am I doing wrong? the steroids can also have an effect for a while.
and the rest is patience..
all best, Barb ...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Leesa
Member in Phase 3
|
Posted: Mon Jan 23rd, 2006 02:00 |
|
Thanks for your replies Barb and Dr. Marshall, I am reviewing the list and it seems like I am following everything well. I wonder as a mom of three preschools that require a lot of help and are home with me most of the time, am I not resting enough? That is a hard one for me? I am not sure where the balance is.
I am still on eye drops, so that may make a difference too and patience and time as my 25D comes down. It is recommended to have it tested again (if you wish) at 30 or 60 days? Should I do that soon? Mine started at 46 and it has only been 2 weeks.
Is your health before starting the MP an indicator as to how severe you will herx. I was functioning almost normal (sort of)....so does that mean that my herxes will be less severe or can one never predict?
I am so blessed to be doing this....each day I just know I am getting closer to being better! Patience has never been one of my strengths, so I am learning something new!
Leesa
____________________
Sarcoidosis(12-04 biopsy):Uvitus-eyes, Swollen- Parotid Glands, Granulomas-arms, some joint pain & fatigue; Started MP 1-06;Phase 2 03-06 Phase 3 07/06 NO MORE Eye Drops! D test 11-04:1,25D-70 & 25D-46;(9-06)25D-17 (1-07)& 16(2-2008)
|
Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
|
|
Posted: Mon Jan 23rd, 2006 02:09 |
|
Thanks Leesa
Phase One is the training ground where you will learn to find the balance.. and you and your Family and friends become more educated about what to expect.
The eye drops can make a difference, but a balance is necessary there as well..
D tests: How often should I test D levels? What are the target numbers?
indicator Q: It may take folks with a large bacterial load a long time to recover, but there is no way of knowing for sure.
CELL WALL DEFICIENT BACTERIA AND THE MARSHALL PROTOCOL says in part There is definitely a variation in the effectiveness of various antibiotics in patients. The factors seem to be:
1. Patient's prior exposure to the antibiotics
2. Strength (or weakness) of the patient's own immune system
3. Species of bacteria present
4. Concomitant health problems - eg kidney failure
5. Concomitant infections - eg fungal, viral
6. Medications being taken by the patient
MARSHALL PROTOCOL SUCCESS STORIES has many stories of progressive symptomatic improvement.
some draw up a chart of past disease symptoms so they can tick them off as they come off the list.
all best, Barb ....
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Leesa
Member in Phase 3
|
Posted: Mon Jan 23rd, 2006 03:35 |
|
I just read this....wow, what great words to hear!
The superiority of minocycline over other tetracyclines:
There is a HUGE difference. I have seen people die on doxycycline, while they recover on minocycline and demeclocycline. Please understand that the Marshall Protocol may seem simple, but it has a lifetime of my own research behind it. Anything you change will likely get you into trouble. That is why the website is here, and the moderators will help you understand issues like this.
..Trevor..
____________________
Sarcoidosis(12-04 biopsy):Uvitus-eyes, Swollen- Parotid Glands, Granulomas-arms, some joint pain & fatigue; Started MP 1-06;Phase 2 03-06 Phase 3 07/06 NO MORE Eye Drops! D test 11-04:1,25D-70 & 25D-46;(9-06)25D-17 (1-07)& 16(2-2008)
|
Julia
Member in Phase 3
|
Posted: Mon Jan 23rd, 2006 14:42 |
|
Hi Leesa,
I've just been reading your posts, and I'm so glad you've started the MP. Welcome to the road to health! I love your letter to your friends and family. I love the fact that your church are being so supportive.
You asked,
Is your health before starting the MP an indicator as to how severe you will herx.
No! I wasn't (I thought) very seriously ill before starting MP - in fact when I read the posts of some of the folk here I felt a real fraud. I wasn't on oxygen, I wasn't in bed, I wasn't in a wheelchair, I was still working.
But the MP discloses bugs where you never knew you had bugs. So, it's your adjustment of the meds that decides how severe your herx is going to be. The aim is to keep it tolerable - partly so that you still have a life, but also so that you don't suffer organ damage from herxing too enthusiastically!
By the way, take care with your efforts to darken the house - it doesn't sound safe to be using aluminium foil anywhere near lights, as it's an extremely good conductor of electricity.
As a teacher and mother, I would add, don't worry about the children. They don't yet have a mental image of what a mum's supposed to be like, and hey, if she comes in a cave and wearing shades, they won't care as long as she's fun and loves them to bits.
I do hope you can get off the eye drops soon. I had four courses of them and my eyes just kept on getting worse. But when I started mino, they started healing, and now they're fine 
All the best!
Julia 
____________________
Sarc/uveitis/hypercalcaemia/ankle osteoarthritis/eczema. MP May04. 25D Apr09:5.6. Life is good! Julia's story
|
Leesa
Member in Phase 3
|
Posted: Tue Jan 24th, 2006 23:13 |
|
Thanks for the post Julia! I found a specialty light store with lower wattage bulb, thanks for the advice! I hope to get off the eye drops soon too.
Leesa
Last edited on Tue Jan 24th, 2006 23:35 by Leesa
____________________
Sarcoidosis(12-04 biopsy):Uvitus-eyes, Swollen- Parotid Glands, Granulomas-arms, some joint pain & fatigue; Started MP 1-06;Phase 2 03-06 Phase 3 07/06 NO MORE Eye Drops! D test 11-04:1,25D-70 & 25D-46;(9-06)25D-17 (1-07)& 16(2-2008)
|
Leesa
Member in Phase 3
|
Posted: Mon Jan 30th, 2006 04:43 |
|
Benicar 40mg Q6H and Mino 50mg QOD/Day 9 of 50mg/End of 3 weeks on MP
I have only had mild herxing since I started the 50mg of Mino....just a bit tired and dizzy whenever I stand up fast. (I took advantage and went to the movies twice this week in the eve).
Not sure if tomorrow I should up it to 75mg or stretch it out to 3 days before taking any more Mino (I did stretch it out to 3 days mid week-did not see a difference).
I had a chance to talk to Reenie on the phone a bit and I feel better like I am following the MP as per directed! I understand that I may not herx normally until my 25D comes down (maybe another month or so...) so I just want to make sure that I am taking it slow!
Any advice? THANKS again 
____________________
Sarcoidosis(12-04 biopsy):Uvitus-eyes, Swollen- Parotid Glands, Granulomas-arms, some joint pain & fatigue; Started MP 1-06;Phase 2 03-06 Phase 3 07/06 NO MORE Eye Drops! D test 11-04:1,25D-70 & 25D-46;(9-06)25D-17 (1-07)& 16(2-2008)
|
Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
|
|
Posted: Mon Jan 30th, 2006 04:57 |
|
Thanks Leesa
as there is no hurry, you may first wish to stretch the dosing to 3 days to see if it makes a difference.. see 3 day dosing explanation here...
and I'm eager to get well. How can I speed up my progress on the MP?
as per the FAQ herx checker way above: You won't start killing the bacteria in earnest until your 25D drops. So be careful that herx may creep up on you, as your fat storage of 25-D is gradually depleted. best to be cautious all the way.
thanks, Barb ...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Leesa
Member in Phase 3
|
Posted: Mon Jan 30th, 2006 05:03 |
|
Thanks, that is kind of what I thought you may say.....just needed some reassurance.
Leesa
____________________
Sarcoidosis(12-04 biopsy):Uvitus-eyes, Swollen- Parotid Glands, Granulomas-arms, some joint pain & fatigue; Started MP 1-06;Phase 2 03-06 Phase 3 07/06 NO MORE Eye Drops! D test 11-04:1,25D-70 & 25D-46;(9-06)25D-17 (1-07)& 16(2-2008)
|
Leesa
Member in Phase 3
|
Posted: Sun Feb 5th, 2006 04:13 |
|
Benicar 40mg Q6H and Mino 75mg QOD/Predfore Eye Drops 1X a day/ Lotemax 3X a day (week 3 for Lotemax)-Week 4 on MP
HERXING AGAIN!! I am so excited that I am herxing again. I am on day 4 of uping the Mino to 75mg and day since day 2 I have been herxing, it is tollerable but it is definately herxing. Never thought I would be excited to feel bad!! I did not herx much from 50mg but 75mg has brought me much dizziness, some fatigue, body aches and flu like feelings (sort of) and my arms ache like I have exercised too much, but I have not.
GOOD NEWS, I went to the eye doctor this past week, it was the first time that I made an appointment a MONTH in advance and made it to the appointment without calling in or going in for an emergency appointment AND my eyes looked good. The plan: next week drop the Predforte and do 4 drops of Lotemax for a month, go the doctor and if eveything is ok, then add Nevonac one drop at a time in place (dropping one a week) of the Lotemax. Sound good? I will pass it by Margo too. My doctor was pleased and is going to read up a bit on the MP too!!!
____________________
Sarcoidosis(12-04 biopsy):Uvitus-eyes, Swollen- Parotid Glands, Granulomas-arms, some joint pain & fatigue; Started MP 1-06;Phase 2 03-06 Phase 3 07/06 NO MORE Eye Drops! D test 11-04:1,25D-70 & 25D-46;(9-06)25D-17 (1-07)& 16(2-2008)
|
wytnez
Moderator
| Joined: | Mon Nov 29th, 2004 |
| Location: | Texas USA |
| Posts: | 655 |
| Status: |
Offline
|
|
Posted: Sun Feb 5th, 2006 21:02 |
|
That is wonderful news Leesa!!!! I know you are so excited. Looks like I will be seeing you in phase II pretty soon. Take good care.
Saj
____________________
sarc lymph nodes. ph1 1/05,125D 33,25D 10,ph2 5/05,ph3 12/05,125D 21, 25D less than 7
|
Leesa
Member in Phase 3
|
Posted: Mon Feb 6th, 2006 23:19 |
|
I am ordering some clothing recommended on this site for being long sleeve but cool: Solumbra Accessories from this post http://www.marshallprotocol.com/forum37/2613.html
I am still not 100% sure; can I wear any other color clothing outside but black? I am ordering a black jacket, pants and hat and would like to order a head wrap http://www.sunprecautions.com/product.asp?UID=2006020506135313&itemno=3250K05+OS+PWK for under my black hat, but it does not come in black.....is it ok to throw in another color if it is lighter in color, a khaki or blue?? OR best to stay clear-only black. The baseball type hat (with sides that clasps in front of my neck) that I have been wearing is khaki too.....
I am ready to place an order soon if anyone has advice!!!
Last edited on Mon Feb 6th, 2006 23:21 by Leesa
____________________
Sarcoidosis(12-04 biopsy):Uvitus-eyes, Swollen- Parotid Glands, Granulomas-arms, some joint pain & fatigue; Started MP 1-06;Phase 2 03-06 Phase 3 07/06 NO MORE Eye Drops! D test 11-04:1,25D-70 & 25D-46;(9-06)25D-17 (1-07)& 16(2-2008)
|
Foundation Staff.
.
| Joined: | Sun Jul 11th, 2004 |
| Location: | |
| Posts: | 1178 |
| Status: |
Offline
|
|
Posted: Tue Feb 7th, 2006 18:07 |
|
Leesa,
You can wear other colors besides black, it's just that black is best at blocking sunlight from skin. Lighter colors are cooler and some items may be available only in lighter colors.
That drape is a good idea! It will be great for layering on extra coverage as you need it.
Belinda
|
Leesa
Member in Phase 3
|
Posted: Tue Feb 14th, 2006 19:35 |
|
Benicar 40mg Q6H and Mino 75mg QOD/Lotemax eye drops 4X a day-start of week 6 on MP
Tomorrow I am going to 100mg of Mino-I hear that it is a good idea to stay on the 100mg of Mino for about a month even if you feel no more herxing (like if at 2 weeks you feel good, you should still hang out at 100mg for about a month). Is that still recommended?
When do I ask for the questionnaire to go to stage 2 and I just got some blood work done, my doc was a bit concerned because I am dizzy when I go from a bending or seated position to standing...what results do I post?
Leesa
____________________
Sarcoidosis(12-04 biopsy):Uvitus-eyes, Swollen- Parotid Glands, Granulomas-arms, some joint pain & fatigue; Started MP 1-06;Phase 2 03-06 Phase 3 07/06 NO MORE Eye Drops! D test 11-04:1,25D-70 & 25D-46;(9-06)25D-17 (1-07)& 16(2-2008)
|
Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
|
|
Posted: Tue Feb 14th, 2006 21:22 |
|
Thanks Leesa
You may wish to ask for the Q to be making preparation with your Dr and doing the Phase 2 reading.
for informatiuon see
How do I know if I'm ready for phase two?
Where can I find phase two and three?
Unless you have any specific concerns re your blood work there is no need to post more than your Ds in your progress report.
see
What do my lab tests mean?
How often should I test D levels? What are the target numbers?
re dizziness: Why am I dizzy and/or fainting? is it a Herx symptom?
Do take care when changing positions... getting up more slowly, holding firmly, etc, so that you do not fall and hurt yourself. and do check with your Dr if necessary..
Dr Blaney wrote: I would suggest that the patient ensure that they avoid any other toxic exposure such as cleaning products, chemicalized foods, unnecessary meds supplements etc. plus adjust lifestyle to support the process. ie rest, fresh foods, water.
all best, Barb ....
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Leesa
Member in Phase 3
|
Posted: Sat Mar 4th, 2006 21:10 |
|
| I am starting Phase 2 Sunday! Thanks Barb for everything!
____________________
Sarcoidosis(12-04 biopsy):Uvitus-eyes, Swollen- Parotid Glands, Granulomas-arms, some joint pain & fatigue; Started MP 1-06;Phase 2 03-06 Phase 3 07/06 NO MORE Eye Drops! D test 11-04:1,25D-70 & 25D-46;(9-06)25D-17 (1-07)& 16(2-2008)
|
Current time is 14:19 | Page:   1 2 3   |
|
