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Vicki SA
Member in Phase 3
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Posted: Tue Jan 17th, 2006 05:36 |
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Benicar 40mg q8hr started 27/12/05
Minocycline 25mg qod started 13/01/06 Day 18
Previous posts in the Benicar only Forum
http://www.marshallprotocol.com/reply.php?topic_id=5168
Day 22
I've started the mino on Day 18 (the Friday) and left it until Monday to take the next dose. Late Friday I noticed the muscle pain was a bit more than expected and then on Saturday I had a loose bowel movement. It felt a bit irritated and this is the opposite to normal! Sunday was pretty usual and then I took the next Mino on Monday Morning (Day 21). Today (Day 22) I have noticed that I have muscle pain, sharper and earlier in the day than usual and for some reason I am particularly noticing my stomach muscles, so that is a bit out of the ordinary. Hopefully all this adds up to herxing.
I will see how I go for the rest of the week and then I will either continue every other day or take the Mino on Mon, Wed & Fri (the days I work).
cheerio Vicki
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ME/CFS 2000, Splenectomy, 8/05 - 1,25D51,25D16.5, Ph1 12/05, Ph3 1/07, Zoton 40mg, 2008 - NoIRs, hat, cover with light r/t Work 3/7, NoIRs, hat, cover well, invis. zinc for outside, low lux home, Sept09 25D - 8
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Vicki SA
Member in Phase 3
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Posted: Wed Jan 18th, 2006 19:20 |
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Benicar 40mg q8hr started 27/12/05
Minocycline 25mg qod started 13/01/06 Day 18
19/01/06 Day 2 of 3rd dose of Mino – feeling pretty crappy (herxing/immune response?), had a pretty good sleep but would have like to slept more but wasn’t able to. Muscles were pretty sore last night, particularly calf muscles and this time the right one was worse. This morning I still have a heaviness about my muscles.
Something that I haven’t mentioned is that I have had a bit of conjunctivitis in my eyes for the last week. We have had pretty hot weather here and I wondered if wearing the NoIRs increases the humidity around your eyes? I have been putting some drops from the Chemist in them and my eyes are much better but not quite back to normal yet.
17/01/06 One of my symptoms with ME/CFS is that I have struggled to get to sleep and take one or 2 hours to drop off. At present I seem to have adjusted to sleeping between 8 hourly Benicar. Perhaps I am more tired but I seem to be able to get to sleep reasonably quickly after the 10pm dose and usually go back to sleep after the 6am dose. Maybe the routine is helping!
I have also noticed that the night sweats I had after starting the Benicar now seemed to have passed.
cheerio Vicki
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ME/CFS 2000, Splenectomy, 8/05 - 1,25D51,25D16.5, Ph1 12/05, Ph3 1/07, Zoton 40mg, 2008 - NoIRs, hat, cover with light r/t Work 3/7, NoIRs, hat, cover well, invis. zinc for outside, low lux home, Sept09 25D - 8
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
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Posted: Wed Jan 18th, 2006 19:45 |
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Thanks Vicki
welcome to mino forum. Thank you for posting your index.. and for filling your sig line.. you may wish to abbreviate some of it so it all fits in better.. I see it is cut off some.
you may find the info here of interest.
Will Herxing cause increased eye inflammation?
EYE INFLAMMATION and Th1 diseases
and
INSOMNIA post
I have insomnia and fatigue. What should I do?
It pays to be familiar with the FAQ
My Herxheimer reaction is too strong. What should I do? ..
Do not hesitate to use any of the meds adjustments.
Check these options one at a time to assess and adjust your own situation. << if having problems please check if you need to make adjustments in any area, and feel free to ask on the Board. thank you.
If you are concerned do not hesitate to contact your Dr.
all best, Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Vicki SA
Member in Phase 3
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Posted: Thu Jan 19th, 2006 03:07 |
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Thanks Barb - great Links!
Finding it hard to get to sleep is definitely a ME/CFS symptom for me. Years ago we used to milk rounds at night and people used to say how can you sleep during the day. We would laugh and say we definitely didn't get to sleep until our heads hit the pillow - so it was never a problem then (pre DD!).Hopefully it is on its way out the door now - yay!
cheerio Vicki
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ME/CFS 2000, Splenectomy, 8/05 - 1,25D51,25D16.5, Ph1 12/05, Ph3 1/07, Zoton 40mg, 2008 - NoIRs, hat, cover with light r/t Work 3/7, NoIRs, hat, cover well, invis. zinc for outside, low lux home, Sept09 25D - 8
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Vicki SA
Member in Phase 3
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Posted: Fri Jan 20th, 2006 21:52 |
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MP day 26
Benicar 40mg q8hr started 27/12/05
Minocycline 25mg qod started 13/01/06 Day 18
19/1/06 Thoughts about herxing – I am taking the Mino at 6 in the morning and the effects seem to be worse by that evening and continue to about lunchtime the next day and then I start to feel a bit better.
20/1/06 Took 4th dose of Minocycline at 6am. Commenced menstruation. I felt pretty jaded and considered staying home but forecast was for over 40°C and work is airconditioned. I felt a bit overwhelmed at work, had a busy morning working with clients (with complex issues). I was very glad to go for my 1st rest before 12. I was pleased to get to 2pm and take pain meds and Benicar/Votum. I felt a bit better but finished at about 4 and called into visit a friend in respite on the way home. Then I went home and rested on the bed and watched the Cricket on TV. When I took my 6pm meds I realized that the ½ tablet of minocycline had stuck to the dosette! I had definitely tasted it when I swallowed the pills so I must have just had the crumbs LOL! Oh well, tomorrow is another day.
21/1/06 I took the 4th dose of Minocycline REALLY! LOL It is another hot day here today (40°C+) after another very warm night. We have evaporative cooling so that is ok but I will still keep activity levels low as I don’t cope with heat and can easily head toward heat stroke. Ok off to re-read the Phase I guidelines and what to do if a herx is too strong.
cheerio Vicki
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ME/CFS 2000, Splenectomy, 8/05 - 1,25D51,25D16.5, Ph1 12/05, Ph3 1/07, Zoton 40mg, 2008 - NoIRs, hat, cover with light r/t Work 3/7, NoIRs, hat, cover well, invis. zinc for outside, low lux home, Sept09 25D - 8
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
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Posted: Fri Jan 20th, 2006 22:33 |
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Thanks Vicki
To find Information, click the ABC in my sig line.. the first post is FAQs only and the next 2 are all Essential Info with links alphabetised in categories.
Look under H for Herx Management.
all best, Barb ....
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Vicki SA
Member in Phase 3
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Posted: Fri Jan 20th, 2006 23:43 |
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Thanks Barb, that is handy!
cheerio Vicki
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ME/CFS 2000, Splenectomy, 8/05 - 1,25D51,25D16.5, Ph1 12/05, Ph3 1/07, Zoton 40mg, 2008 - NoIRs, hat, cover with light r/t Work 3/7, NoIRs, hat, cover well, invis. zinc for outside, low lux home, Sept09 25D - 8
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Vicki SA
Member in Phase 3
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Posted: Fri Jan 27th, 2006 01:42 |
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MP day 32
Benicar 40mg q8hr started 27/12/05
Increased Minocycline 50mg qod on Day 32
27/01/06
I increased the Mino to 50mg today. I have had a headache and the ‘run over by the bus feeling’ all day. Some of this is due to the consequences from my Tai Chi lesson on Tuesday but I had rested well after it and also most of yesterday (Thursday). I think perhaps an increase in muscle pain is what I can expect as part of herxing for me. We have had more hot weather here with yesterday (Australia Day) being another 40+°C. I finished work a couple of hours early and am now home resting in bed (& using the laptop to write this!).
cheerio Vicki
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ME/CFS 2000, Splenectomy, 8/05 - 1,25D51,25D16.5, Ph1 12/05, Ph3 1/07, Zoton 40mg, 2008 - NoIRs, hat, cover with light r/t Work 3/7, NoIRs, hat, cover well, invis. zinc for outside, low lux home, Sept09 25D - 8
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Vicki SA
Member in Phase 3
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Posted: Sun Jan 29th, 2006 06:30 |
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MP day 35 (29/1/06)
Benicar 40mg q8hr started 27/12/05
Reduced to Minocycline 25mg qod on Day 35
I felt that the herx was too strong at 50mg Mino on the first cycle and so I have reduced back to 25mg and will probably stay at this dose for a bit longer before trying to increase it again. The symptoms were worse on the first day of the 50mg dose and left me pretty rattled on the 2nd day.
cheerio Vicki
28/01/06
I spent a lot of the day in bed.
Pain less than yesterday
Mood took a dive
Emotional Lability definitely higher
29/01/06
Reduced Mino to 25mg
Had a better day although still pretty lacking in endurance.
Last edited on Sun Jan 29th, 2006 06:33 by Vicki SA
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ME/CFS 2000, Splenectomy, 8/05 - 1,25D51,25D16.5, Ph1 12/05, Ph3 1/07, Zoton 40mg, 2008 - NoIRs, hat, cover with light r/t Work 3/7, NoIRs, hat, cover well, invis. zinc for outside, low lux home, Sept09 25D - 8
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Aussie Barb
Research Team
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Posted: Sun Jan 29th, 2006 07:30 |
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Vicki
The aim or the key is to achieve and maintain tolerable Herxing (physically, mentally, and emotionally) by adjustment of meds dosing and schedule as suited individually to you within the guidelines and combined with the Essential aspects of diligently avoiding Light and vitamin D...
you may wish to further adjust the Benicar and / or the mino schedule as per the FAQ to more frequently..
let us know if you have any questions. all best, Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Vicki SA
Member in Phase 3
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Posted: Fri Feb 3rd, 2006 04:22 |
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MP day 39 (3/2/06)
Benicar 40mg q8hr started 27/12/05
Minocycline 25mg qod started 13/1/06 on Day 18
Fri 3/2/06
I feel like it has been a week since I have posted, not a few days. I have continued on 25mg Mino, in fact with the help of a foggy brain I took the Mino two days in a row (31st & Wed 1st). I had wrapped the second half of the tablet in some alfoil and then later got confused about the days and put it in the wrong day. I was changing from one week’s dosette to the next week’s. LOL I was ok on the Wed 1st although I was very glad to make the end of the work day but things unravelled on the Thurs 2nd. I had to go out for an appointment and was flustered before I left home but got there on time and regrouped. The appointment took a very different turn and I was upset and drove home in tears. I got home and rested and then used the laptop to write about my day. I was definitely ‘feeling’ the emotion more than usual at this stage. I was meant to work today Fri 3/2 but wasn’t up to it and took the day off. I have spent most of the day in bed and am starting to feel a bit better, at least the emotions have settled.
Barb your reply to the last post re herxing being physical, mental and emotional couldn’t have been more spot on. I now have first hand experience LOL.
I have taken another dose of 25mg today Fri 3/2 and I figure that now is not the time to make any decisions about increasing the dose on the Mino (as with all the happenings it is hard to know what has affected what) so I will see what happens in the next few days and then consider my options. I have been reading in the ABC and will continue to do so especially in the next few days!
Oh and sad news on my 40% NoIRs. I had them hooked into the front of my shirt and they fell and I stepped on them, skidding the lenses along the floor. L OL I have cleaned them but they are still unusable due to the scratches. Is there any hope for a local repair or should I just order some more? Thankfully I still have my 10% and 2% to use.
Cheerio VickiLast edited on Fri Feb 3rd, 2006 04:25 by Vicki SA
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ME/CFS 2000, Splenectomy, 8/05 - 1,25D51,25D16.5, Ph1 12/05, Ph3 1/07, Zoton 40mg, 2008 - NoIRs, hat, cover with light r/t Work 3/7, NoIRs, hat, cover well, invis. zinc for outside, low lux home, Sept09 25D - 8
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
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Posted: Fri Feb 3rd, 2006 19:31 |
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Vicki
I dont know of any way of repairing scratched NoIRs except replacing them. sorry.. If you can, you may wish to get spares in case anything like it ever happens again.
Did you see this Topic New style of NoIRS!
all best, Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aunt Diana
Advocate
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Posted: Fri Feb 3rd, 2006 23:51 |
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| One of the MPers was looking for someone who could use her Noirs....She got a new style and said she would send the old Noirs to the first person she heard from....just not sure who it was (mod edit)>sunflower...but it was just a day or two ago.
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Lyme 1987, neuro cardio fatigue achiness brain fog depression, anxiety. Pacemaker, D.1,25 32; D <5; 12/07 <6, Oxycodone, lorazapam, benedryl, zantac, colase, Noirs, cover-up or avoid sun, house <30lux. Feb 08 Phase 3. 6/08 D <4, D1,25 21
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Vicki SA
Member in Phase 3
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Posted: Sat Feb 4th, 2006 00:35 |
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Thanks for the reminder but I probably need the spectrashields now (as I am unable to wear my contact lenses) and the spectrashields fit fine over my prescription glasses.
cheerio Vicki
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ME/CFS 2000, Splenectomy, 8/05 - 1,25D51,25D16.5, Ph1 12/05, Ph3 1/07, Zoton 40mg, 2008 - NoIRs, hat, cover with light r/t Work 3/7, NoIRs, hat, cover well, invis. zinc for outside, low lux home, Sept09 25D - 8
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Vicki SA
Member in Phase 3
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Posted: Thu Feb 9th, 2006 06:17 |
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5/2/06
mood better
tinnitus (not a new thing for me)
conjunctivitis
buzzing/weakness in muscles (especialially arms and legs)
I have also questioned the amount of time I have been resting. Resting and pacing my activities has been a survival practice for me with ME/CFS and I have learned not to question lack of inspiration too much. If I was well enough and had some energy then I wouldn't be able to stop myself coming up with a project! But this week I have really wondered about the amount of time I am resting. In fact yesterday I printed off my health records (yearly summary) for the last 3 years and was reassured to see the yearly average of time spent horizontal hasn't really changed much. On the MP resting is needed to help recover from the herxing. Just today I realised that I am getting feelings in my muscles that remind me of how I felt when I was first ill and I described it then as muscle weakness. Today just an hour after I took the Mino25mg I could feel buzzing/weakness in my muscles in the familiar places above my knees and elbows (and other places LOL). I think this means that the illness is activated, (ha, ha wonder if it realises that the days are numbered) and also wonder how this relates to the fact that I did go for a short walk late in the day to lift the spirits. I think I read on MP site that exercise and warm muscles seem to activate the inflammation.
cheerio Vicki
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ME/CFS 2000, Splenectomy, 8/05 - 1,25D51,25D16.5, Ph1 12/05, Ph3 1/07, Zoton 40mg, 2008 - NoIRs, hat, cover with light r/t Work 3/7, NoIRs, hat, cover well, invis. zinc for outside, low lux home, Sept09 25D - 8
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Vicki SA
Member in Phase 3
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Posted: Thu Feb 9th, 2006 06:20 |
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6/2/06
symptoms were less obvious although very weary.
7/2/06 1st day in Mino cycle
muscles weak/sore (especially around my knees and elbows).
slept 10 hours
I did the shopping and wanted to sit in the Mall before I had even started!
My arms were flagging from typing.
8/2/06 2nd day in Mino cycle
night sweats
cramping in left calf.
Aching legs and dreaming.
Been feeling pretty flat and just plodding along without much joy.
____________________
ME/CFS 2000, Splenectomy, 8/05 - 1,25D51,25D16.5, Ph1 12/05, Ph3 1/07, Zoton 40mg, 2008 - NoIRs, hat, cover with light r/t Work 3/7, NoIRs, hat, cover well, invis. zinc for outside, low lux home, Sept09 25D - 8
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Vicki SA
Member in Phase 3
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Posted: Thu Feb 9th, 2006 06:28 |
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MP day 45 (9/2/06)
Benicar 40mg q8hr started 27/12/05
Minocycline increased to 50mg 9/2/06 (25mg qod 13/1/06 on Day 18)
9/2/06
50mg Minocycline 1st day in 1st cycle.
I decided to try going up to 50mg Mino today to see if it helped. I have really been trudging along the last few days and even felt awful during sleep last night. I slept ok but every time I had any awareness during the night, then my impression was ‘dreaming and aching’. I decided at the early medication this morning to increase the Mino and it seems to have improved everything. I have felt better today and my confidence and easy going attitude has returned!
Cheerio Vicki
____________________
ME/CFS 2000, Splenectomy, 8/05 - 1,25D51,25D16.5, Ph1 12/05, Ph3 1/07, Zoton 40mg, 2008 - NoIRs, hat, cover with light r/t Work 3/7, NoIRs, hat, cover well, invis. zinc for outside, low lux home, Sept09 25D - 8
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Vicki SA
Member in Phase 3
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Posted: Wed Feb 15th, 2006 04:20 |
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MP day 51 (15/02/06)
Benicar 40mg q8hr started 27/12/05
Minocycline increased to 50mg qod 9/2/06 (25mg qod 13/1/06 on Day 18)
Things seem to be going along ok. I feel that I am herxing although not always quite when I expect it to be. Whilst I have been definitely more 'under the weather' it has been reasonably tolerable. I guess I am needing to rest more and am finding the transitions to different places/situations a bit harder and needing to be dealt with.
Made an appointment to see my Doc in late March, thinking I might need to be discussing Phase 2 around then.
cheerio Vicki
10/2/06 50mg Minocycline 2nd day in 1st cycle.
Missed 5am Votum and didn’t realise!
Slept ok
Energy ok
Itching/burning – shins
Worked and very weary by the end of the day
11/02/06 50mg Minocycline 1st day in 2nd cycle
Took next Mino 50mg anyway
Had a pretty restful day as we had to go out in the evening.
When we went out I had herxing in my muscles and anxiety accompanied it. This reminded me of how I felt in the earlier days of the illness. I managed some social contact and left early. I came home and had the blood zinging in my ears for about an hour after I lay down but slept ok once I got there.
12/02/06 50mg Minocycline 2nd day in 2nd cycle
Had a pretty quiet day and generally felt better after some good resting.
13/02/06 50mg Minocycline 1st day in 3rd cycle
Worked today and had a pretty good day.
A bit of emotional lability
Lower pain levels
14/02/06 50mg Minocycline 2nd day in 3rd cycle
Slept well
Woke with a headache and ‘run over by the bus’ feeling
Stayed in bed and rested and then did the shopping later
Rested again and then slept for a while in the afternoon
Felt better by about tea time
15/02/06 50mg Minoccyline 1st day in 4th cycle
Slept well
Felt lighter (less muscle pain) when I got up
Work day and later noticed all the sore bits along spine, the ‘run over by the bus’ feeling.
Came home from work and rested
Bit of a scratchy throat
____________________
ME/CFS 2000, Splenectomy, 8/05 - 1,25D51,25D16.5, Ph1 12/05, Ph3 1/07, Zoton 40mg, 2008 - NoIRs, hat, cover with light r/t Work 3/7, NoIRs, hat, cover well, invis. zinc for outside, low lux home, Sept09 25D - 8
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Vicki SA
Member in Phase 3
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Posted: Tue Feb 21st, 2006 01:51 |
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MP day 56 (20/02/06)
Benicar 40mg q8hr started 27/12/05
Minocycline increased to 50mg qod 9/2/06 (25mg qod 13/1/06 on Day 18)
16/2/06 50mg Minocycline 2nd day in 4th cycle
Slept well
Rested a lot as it was another very hot day.
Lightly practiced Tai Chi, the first time for about 2 weeks.
Pain levels lower and starting to think about going up to 75mg Mino.
17/2/06 50mg Minocycline 1st day in 5th cycle
Had broken sleep
Work day, pretty sore by the afternoon.
Resting from 4.30pm on
18/2/06 Minocycline 2nd day in 5th cycle
7+hrs sleep, broken
Pain lower
Low endurance
19/02/06 50mg Minocycline 1st day in 6th cycle
Slept well
Sore eyes
Pretty quiet day at home with frequent rests although I did do some Tai Chi.
Pain levels higher but tried out my new percussion massager!
20/2/06 50mg Minocycline 2nd day in 6th cycle
Slept well
Sore eyes
Work day, felt ok, came home and rested.
Noticing sore muscles between ribs.
Sore calves, especially left leg.
I am thinking that it is time to go up to 75mg Mino and interestingly, when it was time to go up to 50mg, I wrote ‘cramping in left calf muscle’.
Cheerio
Vicki
____________________
ME/CFS 2000, Splenectomy, 8/05 - 1,25D51,25D16.5, Ph1 12/05, Ph3 1/07, Zoton 40mg, 2008 - NoIRs, hat, cover with light r/t Work 3/7, NoIRs, hat, cover well, invis. zinc for outside, low lux home, Sept09 25D - 8
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Vicki SA
Member in Phase 3
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Posted: Sun Feb 26th, 2006 06:16 |
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MP day 62 (26/02/06)
Benicar 40mg q8hr started 27/12/05
Minocycline increased to 75mg qod 21/02/06 (50mg 9/2/06, 25mg 13/1/06)
G’day all,
I am on 75mg of Mino now and going ok apart from some slip ups with taking the Benicar on time! This made for a pretty quiet weekend. Daylight savings finishes here at the start of April and so I am really looking forward to the shorter days.
Learning, all the time, learning!
Cheerio Vicki
21/02/06 75mg Minocycline 1st day in 1st cycle
Slept well
Did Tai Chi, then rested and did shopping later and then more resting before tea.
Later in the day felt crappy (weary and sore) and felt herx was stronger at this dose.
Had a bath and went to bed at 8pm
22/2/06 75mg Minocycline 2nd day in 1st cycle
Slept well
Work day, felt ok although pretty weary by the end of the day, came home and went to bed.
Pain levels higher and starting earlier in the day.
23/2/06 75mg Minocycline 1st day in 2nd cycle
Slept well
All over body herx, muscles ‘run over by the bus’ feeling and immune response (scratchy eyes, throat etc).
Headache
Had a pretty quiet day and rested a lot. Felt better towards the end of the day.
24/2/06 75mg Minocycline 2nd day in 2nd cycle
Slept well although less than 7 hours
Work day, got distracted and took the 1pm Benicar about an hour late.
Generally weary and sore today and lacking endurance.
Came home and went to bed at 6pm.
Very glad that it is now the weekend.
25/2/06 75mg Minocycline 1st day in 3rd cycle
Slept well and took Mino at 5am
Stayed in bed until lunchtime, needing a good rest and feeling the herx in my muscles.
After lunch I carried my guitar and music stand up to the kitchen and wondered why arms felt so dagged. A bit later I felt so bad that I had to go and lay down and that was when I realised that I was nearly an hour late for my Benicar! Sheesh! I have all the alarms set on my mobile phone but left it in the bedroom.
Had some time up in the afternoon and made tea and went to bed about 8.
26/02/06 75mg Minocycline 2nd day in 3rd cycle
Had very broken sleep & assume that this is due to the late Benicar yesterday.
Stayed in bed for the morning.
Played my guitar and then later washed my 2 little dogs.
Starting to feel like I am back on track after the Benicar slip ups! That was certainly a lesson in the inflammatory blockade!
Went to bed at 8
Last edited on Sun Feb 26th, 2006 06:20 by Vicki SA
____________________
ME/CFS 2000, Splenectomy, 8/05 - 1,25D51,25D16.5, Ph1 12/05, Ph3 1/07, Zoton 40mg, 2008 - NoIRs, hat, cover with light r/t Work 3/7, NoIRs, hat, cover well, invis. zinc for outside, low lux home, Sept09 25D - 8
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