| Author | Post |
|---|
Christina
Member in Phase 3
| Joined: | Wed Dec 7th, 2005 |
| Location: | St. Louis, MO, USA |
| Posts: | 214 |
| Status: |
Offline
|
|
Posted: Mon Mar 6th, 2006 03:52 |
|
Today started 40mg Benicar Q8H. Stopped 200mg Mino last Thursday.
* Diagnosis: RA, joint pain/inflammation in all joints. No organ involvement.
* Phase 1
* Current meds: 40mg Benicar Q8H, probiotics, darvocet, noni juice for pain.
* D results: 12/20/05 - 1,25D = 28, 25D = 28.
* NoIRs - yes
*
* Are you wearing NoIRs inside and out - yes
* Avoiding Vitamin D & sun/lights: 75% of the time but will be more careful now
* Have you blocked your windows - most, will spend most time in dark rooms
* How often do you go outside - about 5 out of 7 days a week.
* How long do you stay outside - Including drive times about 1 hour per day
* When going outside, are you covering up completely - mostly but will now
* Taking Benicar - yes starting today
* Start date of Benicar - 3/5/2006
* Dose mg /schedule of Benicar - 40mg Benicar Q8H but will start Q6H tomorrow
* Taking Minocycline: no
* Mino start date: will start therapeutic dose of 25mg Q6H tomorrow
* Dose mg /schedule of minocycline - will be 25mg Q6H tomorrow
* Any other antibiotics? No
* Have you contacted your Dr. Please make sure your Dr is kept up to date with your progress and any suggestions made on the Board. - will at end of week.
* Are you, have you been taking steroids: not for over a year. Ceased Jan 2005
* Other antibiotics: Minocycline 200mg daily. Ceased 3/2/2006
* Are you, have you been taking other medications: no
* Anything else we need to know. I have osteopenia due to pred overuse.
Hello all,
I have begun what I hope to be my cure for this horrible, crippling disease. I started Benicar only this morning and have only taken two doses so far. My next one is at 11:00pm. I think I'm going to move to Q6H because I am in tremendous joint pain. I have had no other symptoms to suggest it's any kind of herxing, so I'm thinking this is probably good ol' arthritis. Since I feel so bad, I'm going to start 25mg of Minocycline Q6H starting tomorrow morning. My question is if the Mino helps relieve my RA symptoms, how am I ever going to start the true MP? I'm afraid the pain will be too intense for me to ever go to an every other day schedule of Mino. Do you have any suggestions or encouragement? I am devoted to this protocol entirely so I will do what I have to but, I'm hoping I can figure out how to do it without intolerable pain. Although I feel terrible I am still excited that I have started the MP.
Christina
____________________
Sero-neg RA 22 yrs osteopenia 125D28 Ph1Mar06 Ph3Mar07 25D9 (Dec06)
|
Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19523 |
| Status: |
Offline
|
|
Posted: Mon Mar 6th, 2006 07:07 |
|
Hello Christina
Welcome to the Report Forum and to MP. Thank you for filling your details so well.. very helpful to you and to those reading..
I will move this report to the mino forum when you have begun the mino. for continuity.
We would expect Pain / Symptoms may be exacerbated by any light exposure.
see PAIN CONTROL
Why do I have to stop taking supplements? re Noni Juice.
Why is my 'herx' more intense after exposure to Light & / or Vitamin D?
Natural light > protect skin and eyes..
Artificial light > protect eyes / not skin..
re mino start: as soon as you start avoiding light and taking Benicar you have started the MP. Achieving tolerable herxing is always the aim. Tolerable herxing is achieved by adjusting the meds to suit you as an individual.
It may be difficult for you to assess how to adjust the mino schedule to your best advantage until you are diligently avoiding light.. as light exposure itself will cause hormone fluctuations/symptoms..
Here are the Tools to check: to help you.
The Essential Information is in ABOUT THE MARSHALL PROTOCOL and all links alphabetised in the ABC of MP
Let us know if you have any questions. all best, Barb ...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Christina
Member in Phase 3
| Joined: | Wed Dec 7th, 2005 |
| Location: | St. Louis, MO, USA |
| Posts: | 214 |
| Status: |
Offline
|
|
Posted: Mon Mar 6th, 2006 22:27 |
|
3/5/2006 - started 40mg Benicar Q8H. Stopped 200mg Mino three days before.
Hello again,
I am feeling quite a bit better today. Not as good as when I was taking 200mg mino daily but definitely better than yesterday. This morning at 6am I started taking Benicar q6h as opposed to Q8H and I also added 25mg mino Q6H. This does seem to be helping, thank goodness. I'm guessing my symptoms level off, I can begin reducing the mino to Q8H, and then Q12H and see how if affects me? When do you suggest I try this?
Thanks for your help.............Christina
____________________
Sero-neg RA 22 yrs osteopenia 125D28 Ph1Mar06 Ph3Mar07 25D9 (Dec06)
|
Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19523 |
| Status: |
Offline
|
|
Posted: Mon Mar 6th, 2006 22:30 |
|
Christina
You will begin to feel when you can extend the mino schedule. no hurry. all tolerable herxing is killing bacteria. tolerable is the aim. always.
Barb ...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Christina
Member in Phase 3
| Joined: | Wed Dec 7th, 2005 |
| Location: | St. Louis, MO, USA |
| Posts: | 214 |
| Status: |
Offline
|
|
Posted: Wed Mar 8th, 2006 03:40 |
|
Thank you Aussie Barb. I might try to go Q8H on Thursday afternoon and see what happens. I don't have to go anywhere for four days and it would be a good time to test it. I should be able to lock myself in my dark house for the entire time. That way I will know it's not the light.
Thanks! Christina
____________________
Sero-neg RA 22 yrs osteopenia 125D28 Ph1Mar06 Ph3Mar07 25D9 (Dec06)
|
Christina
Member in Phase 3
| Joined: | Wed Dec 7th, 2005 |
| Location: | St. Louis, MO, USA |
| Posts: | 214 |
| Status: |
Offline
|
|
Posted: Thu Mar 9th, 2006 04:20 |
|
3/5/2006 - started 40mg Benicar Q8H. 3/6/2006 - changed Benicar to Q6H and started mino at 25mg Q6H.
Hello all,
I am still taking the therapeutic dose of Mino to stop the arthritic pain, but today I felt different sensations. I felt more fatigued and lethargic, muscles felt weaker, felt a little light headed and my blood pressure was lower than the last four days. No big deal really. The only weird symptom I'm getting is itchy skin all over. I don't have a rash or redness, just itchiness. I've noticed that many people have mentioned itchy skin as a herx. I'm hoping that's what this is and not just an allergic reaction to Benicar. I'd really be bummed if I couldn't do this because of an allergic reaction. Is it possible to herx so soon after starting Benicar and mino, especially when the mino is at a dose that's supposed to stop herxing?
Thanks, Christina
____________________
Sero-neg RA 22 yrs osteopenia 125D28 Ph1Mar06 Ph3Mar07 25D9 (Dec06)
|
Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19523 |
| Status: |
Offline
|
|
Posted: Thu Mar 9th, 2006 05:11 |
|
Christina
The ARB (Benicar) and the antibiotics do not cause the symptoms; they make the symptoms evident. The cause is your inflammatory disease.
You may not require the mino dosing to be as frequent as Q6H.. I am going on the extended schedule that was holding your symptoms pre MP.
You may have to experiment some with adjusting your medications to find the schedule which will achieve tolerable symptoms for you..
see FAQ and the links within for some options. My Herxheimer reaction is too strong. What should I do?
let us know if you have any questions. all best, Barb ....
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Christina
Member in Phase 3
| Joined: | Wed Dec 7th, 2005 |
| Location: | St. Louis, MO, USA |
| Posts: | 214 |
| Status: |
Offline
|
|
Posted: Sun Mar 12th, 2006 02:29 |
|
3/5/2006 - started 40mg Benicar Q8H. 3/6/2006 - changed Benicar to Q6H and started mino at 25mg Q6H. 3/9/2006 - changed mino to 25mg Q12H.
UPDATE:
Thankfully I feel pretty good on Q12H mino (better than Q6H). I've been on that schedule for a couple of days now. I don't really feel like I'm herxing or flaring right now and my energy level was better today than yesterday. No more weird symptoms. Could this be a good time to lengthen the mino cycle to Q24H or maybe even Q48H to see how I respond?
I'm really starting to realize how very important it is to stay out of the light, as diligently as you say to. I've been much better about it over the last couple of days and wonder if this is why I feel a bit better. I'm thrilled to know that I can have more control of the flare-ups of this RA. I think between control of diet and sun exposure I can work with the MP with a "clean slate". I know I must so I can tell when I'm herxing and when I'm not. The fact that I had weird symptoms is really encouraging. I'm ready for more....I want to see what happens next. I almost welcome the strange symptoms because not only does it validate this protocol but I sometimes welcome different sensations than joint pain. So far the joint pain has been tolerable, and I can handle the other stuff (so far anyway). We'll see what happens in the future but I'm glad I have ways to control it (i.e. changing mino schedule).
Please let me know what you recommend next. If I understand correctly, I think I should move to 25mg Q24H for a couple days to see how I handle it? Am I right? Can I go to 25mg Q48H or is that being hasty?
Thanks...........Christina
____________________
Sero-neg RA 22 yrs osteopenia 125D28 Ph1Mar06 Ph3Mar07 25D9 (Dec06)
|
Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19523 |
| Status: |
Offline
|
|
Posted: Sun Mar 12th, 2006 04:15 |
|
Thanks Christina
You are gaining experience with the symptoms and that is all good. This will stand you in good stead.
You may extend the mino schedule, and you will be able to see for yourself how far you can take it while keeping all at tolerable.. I will add... without pushing the tolerable..
you can adjust your Benicar to Q4H when necessary as well.. for light exposure and symptom management.
all best, and let us know if you have any questions.. Barb ...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Christina
Member in Phase 3
| Joined: | Wed Dec 7th, 2005 |
| Location: | St. Louis, MO, USA |
| Posts: | 214 |
| Status: |
Offline
|
|
Posted: Sun Mar 12th, 2006 18:33 |
|
3/5/2006 - started 40mg Benicar Q8H. 3/6/2006 - changed Benicar to Q6H and started mino at 25mg Q6H. 3/9/2006 - changed mino to 25mg Q12H.
I was due to take my next 25mg mino today at noon. I did feel more stiff and sore this morning but not too bad. I am not experiencing any "strange" symptoms so I decided to go ahead and skip this mino dose and see how I feel today. If it becomes hard to deal with I will take it and/or increase the Beni to Q4H. I hope I feel some herx today because by noon tomorrow it will have been 48 hours since my last mino dose.
I'll keep you posted. Thanks for being there.
Christina
____________________
Sero-neg RA 22 yrs osteopenia 125D28 Ph1Mar06 Ph3Mar07 25D9 (Dec06)
|
Christina
Member in Phase 3
| Joined: | Wed Dec 7th, 2005 |
| Location: | St. Louis, MO, USA |
| Posts: | 214 |
| Status: |
Offline
|
|
Posted: Tue Mar 14th, 2006 02:45 |
|
3/5/2006 - started 40mg Benicar Q8H. 3/6/2006 - changed Benicar to Q6H and started mino at 25mg Q6H. 3/9/2006 - changed mino to 25mg Q12H. 3/11/2006 - changed mino to 25mg Q48H.
Hello,
I took 25mg mino at noon today which was 48 hours since my last dose. As of now, I am not feeling any different at all. If I don't herx on this cycle, what does this mean?
Thanks...........Christina
____________________
Sero-neg RA 22 yrs osteopenia 125D28 Ph1Mar06 Ph3Mar07 25D9 (Dec06)
|
Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19523 |
| Status: |
Offline
|
|
Posted: Tue Mar 14th, 2006 03:04 |
|
Christina
see the self assessing herx checker FAQ Why isn't the Marshall Protocol working? what am I doing wrong? to check all essential aspects.. also your 25D was 28 so that can have a bearing on no herxing as well.
also It can take some time for the abx to kick in.. or it can kick in at any time.. we recommend following all precautions / instructions in the Phase One Guideline and for more ideas, also see FAQ I'm eager to get well. How can I speed up my progress on the MP?
all best, Barb ...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Christina
Member in Phase 3
| Joined: | Wed Dec 7th, 2005 |
| Location: | St. Louis, MO, USA |
| Posts: | 214 |
| Status: |
Offline
|
|
Posted: Tue Mar 14th, 2006 03:47 |
|
Oh Oh, I was just reading about how to divide the dosage of mino into 25mg. I didn't realize it was imperative to put the remaining mino back into a capsule and air tight container. The dose I took this morning was out of it's capsule for at least 48 hours (more like 60 hours). I'm thinking it was probably dead. Do you agree? I am using 100mg capsules (because I have many of them left from my AP therapy). I was dividing them four ways which I suppose I shouldn't do. Once the capsule is opened (and then closed tightly) how long does the mino keep it's potency?
I'm learning  ...............Christina
____________________
Sero-neg RA 22 yrs osteopenia 125D28 Ph1Mar06 Ph3Mar07 25D9 (Dec06)
|
Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19523 |
| Status: |
Offline
|
|
Posted: Tue Mar 14th, 2006 03:55 |
|
Christina
The mino could very well have lost its potency. is best to always keep it covered sealed.
Once you divide it and keep it in capsules etc it should stay fresh for the limited amount of time you would need it to... we have no way of knowing.
you can take a fresh dose whenever you wish and count the 48H from the fresh dose.
Barb ...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Alayne
Member in Phase 3
| Joined: | Wed Sep 21st, 2005 |
| Location: | California USA |
| Posts: | 554 |
| Status: |
Offline
|
|
Posted: Tue Mar 14th, 2006 06:32 |
|
Christina, I have empty capsules to put the Mino into when I divide it. I make my Mino capsules 1-2 weeks ahead of time and they've never weakened. Or at least, so I think, because I've herxed every time.  Cheers! Alayne
____________________
ME/CFS/FM 6/05:25D-34 1,25D-69, 11/07:25D-8 1,25-37, Sick 6-11 mos/yr x30+yrs. NoIRs/Avoid Sun/D/Use Zinc oxide. 11/17/05-Ph1, 5/06-MPh2, 12/06-MPh2#2, 6/07-MPh2#3,1/08-Ph2, 4/08-Ph3, NonMP Meds: MThistle/Calc&Mag/Lysine
|
Christina
Member in Phase 3
| Joined: | Wed Dec 7th, 2005 |
| Location: | St. Louis, MO, USA |
| Posts: | 214 |
| Status: |
Offline
|
|
Posted: Thu Mar 16th, 2006 12:17 |
|
Mino Q48H, Beni Q6H
Hello,
After my mino dose two days ago, shortly after my joints felt a little worse and my right eye had mild conjunctivitis symptoms that mostly went away the next day (yesterday). About six hours before my next dose of mino (Q48H) I started to develop flu-like symptoms: fever (101.1 F), chills, achy muscles, headache, mild cough with deep breath and my joints were raging. At first I waited to see if it would pass at a tolerable level but it became worse and worse. I finally took my next dose of Mino and Benicar early and have temporarily changed the Benicar dose to Q4H and the Mino Q8H. This morning (7AM Central time here) I still have the same symptoms along with the same fever. It hasn't gotten much better.
I was starting to believe the only herx I was going to get was the conjunctivitis herx. But about 42 hours after my previous mino dose I started the flu feelings and it got worse and worse. One think I want to mention is this happened after a glass of red wine with dinner. About an hour after the wine, this all kicked in. Did that have anything to do with it?
What dosage do you think I should go with?
Thanks, Christina
____________________
Sero-neg RA 22 yrs osteopenia 125D28 Ph1Mar06 Ph3Mar07 25D9 (Dec06)
|
Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19523 |
| Status: |
Offline
|
|
Posted: Thu Mar 16th, 2006 12:36 |
|
Christina
some may have some problems with particular foods or it may be coincidental.
Phase One is the time to gain experience in how the meds work for you as an individual to manage your symptoms, and learn to be diligent with light.
As soon as you feel a herx going toward intolerable, you can increase your Benicar as you have done,
and you may take the mino 25mg dose to slow it if the mino works like that for you. You will be getting the feel of how the mino works for you yet. whether it will slow or cause a herx.
Always go with the meds schedule that holds the symptoms to tolerable for yourself. tolerable is the key. and feel free to ask on the Board.
If you are concerned do not hesitate to contact your Dr.
see PAIN CONTROL
Breathing Tips may be helpful.
Will Herxing cause increased eye inflammation?
EYE INFLAMMATION and Th1 diseases
If you need temporary relief of your symptoms such as shortness of breath, nasal congestion, gastric upset or pain, contact your doctor or pharmacist for advice about palliative medications. Any medications that are not on the list of MEDICATIONS TO AVOID WHILE ON THE MARSHALL PROTOCOL are okay to take to relieve intolerable symptoms.
all best, Barb ...
ps. did you stop the Noni juice?
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Christina
Member in Phase 3
| Joined: | Wed Dec 7th, 2005 |
| Location: | St. Louis, MO, USA |
| Posts: | 214 |
| Status: |
Offline
|
|
Posted: Thu Mar 16th, 2006 13:03 |
|
Thank you for all the info. I think the wine may have been a coincidence because the night before I also had one glass of wine and I didn't react.
Yes, I discontinued the Noni Juice.
Thanks,
Christina
____________________
Sero-neg RA 22 yrs osteopenia 125D28 Ph1Mar06 Ph3Mar07 25D9 (Dec06)
|
Christina
Member in Phase 3
| Joined: | Wed Dec 7th, 2005 |
| Location: | St. Louis, MO, USA |
| Posts: | 214 |
| Status: |
Offline
|
|
Posted: Thu Mar 16th, 2006 21:12 |
|
Hi Alayne,
Thanks for the advice. I do need to find those. Does Walgreens sell empty capsules?
Thanks,
Christina
____________________
Sero-neg RA 22 yrs osteopenia 125D28 Ph1Mar06 Ph3Mar07 25D9 (Dec06)
|
Alayne
Member in Phase 3
| Joined: | Wed Sep 21st, 2005 |
| Location: | California USA |
| Posts: | 554 |
| Status: |
Offline
|
|
Posted: Thu Mar 16th, 2006 22:48 |
|
Christina,
I've never been able to find the capsules in drugstores. Health stores or health food stores carry them though. Try Wild Oats, or The Vitamin Shoppe, or whatever you have locally that's equivilent (call first!). I use size 0, but that's because I also crush my Benicar. You can get smaller sizes for the mino if you want, although the bigger capsules are easier to scrape the powder into. -Alayne
____________________
ME/CFS/FM 6/05:25D-34 1,25D-69, 11/07:25D-8 1,25-37, Sick 6-11 mos/yr x30+yrs. NoIRs/Avoid Sun/D/Use Zinc oxide. 11/17/05-Ph1, 5/06-MPh2, 12/06-MPh2#2, 6/07-MPh2#3,1/08-Ph2, 4/08-Ph3, NonMP Meds: MThistle/Calc&Mag/Lysine
|
Current time is 20:59 | Page: 1 2 3 4 5   |
|
