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DianeC
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Posted: Sun Jan 29th, 2006 07:55 |
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from Benicar DianeC Today was my first day on Mino 28Jan @25mg Benicar 40mg q6h since 10Jan I took my dose at 12 noon. My biggest problem was trying to divide the powder equally. When I opened the capsule I poured some of it into the larger empty vegetarian capsule and saved that for my next dose to be taken 48 hours from that dose.
Is it imperative that it be exact? as I will be taking the remainder of the capsule's contents in 48 hours.
I wasn't sure how to copy and paste the URL from the previous "Benicar only" thread to link it to this new thread There is really nothing more to report at this time but then again it is early yet!
Happy to have started the mino!
Best to all of you!!
DianeC
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chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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Aussie Barb
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Posted: Sun Jan 29th, 2006 08:08 |
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Diane
Welcome to Mino forum. Your lead in link has been added.. and also, when you have finished typing your text, pressing and holding the delete button for a while will take up the excess white space. thank you.
re dividing the mino: whether or not you are taking the remainder in 48H, the contents would be better to be as close to halved as possible each time, as MP operates in this moment, this day. there are some methods discussed in this FAQ and the links within. or you may be able to get tablets for more convenience.
How do I take a low dose of minocycline when the capsules only come in 50mg?
let us know if you have any questions. all best, Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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DianeC
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Posted: Mon Jan 30th, 2006 08:39 |
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Today is Day 2 Mino @25mg Benicar 40mg q6h This morning I did not want to get out of bed and was awakened at 11 AM by the phone But amazingly, once I got going, I was like the energizer bunny and I am still going strong almost 16 hours later I feel pretty good today! Possibly the calm before the storm?
Tomorrow at 12 noon I will be taking my second dose of 25 mg mino
Barb, thank you for welcoming me to the mino forum; I am glad to have progressed to this step Thank you for the links regarding dividing the mino. There were alot of tips and helpful suggestions which I will try. Once my capsules are gone I will request the tablets as I see that they will be so much easier
Best wishes to all
DianeC
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chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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DianeC
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Posted: Tue Jan 31st, 2006 08:33 |
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Today 30Jan I took my 2nd dose of 25mg mino at noon. I am thinking that I should change the time that I take it (I sleep from approx 3 AM or 4 AM until 12 noon)
Upon awaking at noon I have my decaf, a pear and some almonds...that is breakfast but that may too much food to be taking with the mino???
I know a few years ago when I was on doxy, I had to take it with food as I would get an awful stomach ache, but then again, now looking back in retrospect, that was probably herxing and I should have endured and not suppressed it
Last night I slept so soundly!! It was wonderful! Fireworks could have been going off and I would not have heard them The only problem is that I do not want to get up at 12 now and would rather just stay in bed
I think my herxing will be starting in the feet and lower leg area. My feet have been icy cold these for the last couple of evenings and I have found to avoid those terrible toe and foot cramps, I put the heating pad on them for a few minutes My question....should I NOT use the heating pad and let the cramps occur as part of the herx instead of dampening it My fingers are also cold and raynauds has returned.
Tom asked the pharmacist today if they had a little gadget (plastic holder or ??) to assist with dividing the capsules and she said that because the capsules have filler in them, how do you know you are getting equal parts? When I run out of capsules I think I will ask for tablets
Well I am getting sleepy so will say goodnight and best wishes to all
DianeC
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chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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DianeC
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Posted: Wed Feb 1st, 2006 07:14 |
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Today 31 Jan Benicar 40mg q6h I will be taking 25mg mino tomorrow. Today I felt the best I have felt in a very long time and I can't understand why? Bounds of energy! No herxing today only the start of the icy feet but did not lead to cramps.
I take my Benicar every six hours and can't remember if I took my 12 Am dose. I use a pill divider but must have gotten distracted and so I am not sure. Instead of waiting the 6 hours, should I take one in 4 hours so there is no chance of losing the inflammatory blockade? Or because I do take it every 6 hours would I be covered?
Is it more effective taking the mino without food? Looking forward to what tomorrow will bring!
Best to all!
DianeC
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chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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Aussie Barb
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Posted: Wed Feb 1st, 2006 07:48 |
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Diane
see FAQs Why do we take minocycline only every other day? Why do I feel worse on the second day? What time of day should I take it?
What times should I take my Benicar? What if I forget a dose? taking another in 4H is safe. see safety of ARB here.
all best, Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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jillian
Member in Phase 2
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Posted: Wed Feb 1st, 2006 17:37 |
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DianeC,
Welcome to the MP!
Like you, I too have had 'energizer' Herxes, also had the 'just wanna stay in bed' Herxes. and LOTS of the 'can't get warm' Herxes. Between Herxes, I've also felt better than pre-MP.
And, don't get too concerned about dividing the Mino just do your best!
For me, a 'pill minder' that has four compartments per day, for 7 days (Walmart for around $7 I think) has been invaluable. I load up the Benicar, and put the mino in as expected. As the brain fog heightens, which it inevitably does, I found I don't remember much of anything about which meds I did or didn't take. You may want to review HELPFUL HINTS FOR THOSE ON THE MARSHALL PROTOCOL
Even though I had been reading sarcinfo and MP.com for years, when I started the MP it helped me a lot to re-read other peoples Progress Reports (even the older ones). Actually, it continutes to be a big help for me! I was amazed at how differently I read them once I too was on the MP .
Happy Herxing and 'til later,
Jillian from North Dakota
Last edited on Wed Feb 1st, 2006 17:40 by jillian
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PrimryDX-PulmoSarc79,FMS,CFIDS,etc,disabled93. AvoidD/Noirs Aug02. Oct02: 1,25D=42 NTfrzen; Apr05:25D=10. P1 Oct05-Feb06; ModP2C Feb-Nov06; P2 Nov14-Dec06; ModP2BSS Jan-Mar07; ModP2CBSS Mar07-. Noirs & total light control in house.
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DianeC
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Posted: Thu Feb 2nd, 2006 07:49 |
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Hello Jillian!
Congratulations to you! I see that you are already in phase 2 so it sounds like you are doing well When did you actually start MP and do you have different herxes now than what you had at the begining?
If I had known that my herxes initially were going to be ones filled with intense energy I would have started MP sooner! Thank you for sharing that these energizer herxes also happened to you It is interesting how people can herx in so many different ways.
I have to laugh now looking back as I prepared to start MP by getting everything in order including the walker by my bed! I really expected more dramatic changes but I am very pleased with the transition
I realize that the bad herxes have to come too and I am ready to accept them in order to get well and will welcome them!
Yes, I just about mutilated the mino capsule today! Trying to open it was the first challenge Thank you for the tips and links!
Thanks again, Jillian and Happy Herxing to you too!!
DianeC
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chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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DianeC
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Posted: Thu Feb 2nd, 2006 08:21 |
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Today 1 Feb Benicar 40mg q6h Mino 25 mg Again today I was filled with energy like nothing before and was able to get so much done! I realize that this will probably not last and I am ready for whatever comes
I am sleeping so soundly now and believe that because my body is so rested that that could be contributing to the extra energy I have all day and night long, but at the same time I do not want to get out of bed when it it time
I am adhering well to the diet with absolutely no Vit D or folic acid and I rarely go outdoors. I noticed that I am not limping at all now like I was weeks ago
My NOIRS are on constantly except for sleeping and taking a shower and it seems now that my perception of light is brighter than before looking through the NOIRS. Color perception is a little off as well.
Today I took the mino a short while after breakfast instead of with it with no stomach upset so that was nice
Wishing all of you good health
DianeC
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chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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jillian
Member in Phase 2
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Posted: Thu Feb 2nd, 2006 16:44 |
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Diane,
I started the MP 10/10/05.
Another similarity we've shared is that, except for while Herxing heavily, I've slept much, much, much better. Isn't sleep WONDERFUL? My sleeping patterns have been skewed at times, up all night/sleep all day (or some version thereof), but when I sleep, I SLEEP. My sleeping fluctuates from 3-4 hours to 20 hours, with the usual about 8 hours.
I make sure I do my Mino capsules before I trim my fingernails. Amazing how thin, yet tough, those capsules are! I squeeze the capsule gently around the middle a couple of times before opening, seems to me it loosens the joint a bit...
Re Herxing--especially now on 100mg of Mino (been here a few weeks), I've had a 'usual' group of symptoms, with a one or more of them intensifying. Sometimes a symptom will drop off, or another will come on!
Although you haven't yet experienced a heavy/strong or so-called intolerable Herx, keep in mind Aussie Barb's words of wisdom 'do not hesitate' to use your Beni and/or Mino to see what they do. Many of us have found we've stretched the definition of intolerable because we've lived so long with intolerable disease symptoms, so we hesitate. Just do it!
'til later,
Jillian
____________________
PrimryDX-PulmoSarc79,FMS,CFIDS,etc,disabled93. AvoidD/Noirs Aug02. Oct02: 1,25D=42 NTfrzen; Apr05:25D=10. P1 Oct05-Feb06; ModP2C Feb-Nov06; P2 Nov14-Dec06; ModP2BSS Jan-Mar07; ModP2CBSS Mar07-. Noirs & total light control in house.
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Bill
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Posted: Thu Feb 2nd, 2006 21:24 |
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Hi DianeC
I have also started mino about a two weeks ago and before i did i found that MYRAC is a sub for mino it comes in a 100mg. tab it is scored and with a cheap pill cutter no more powder to mess with.
Good luck
Bill
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Diagnosis, Sarcoid May 2005 lymph biopsy/Phase 1 MP,Started Benicar 40mg q6 1/7/06 started mino 75mg. q48 4/11/06 ,diazepam 5mg tid, D tests 11/05/05:1,25D=60 & 25D=19.8, avoiding light & D, NoIRs 12/13/05
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DianeC
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Posted: Fri Feb 3rd, 2006 07:46 |
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Hi Bill,
It is so nice to hear from you Thank you for the information regarding splitting the mino. I never heard of MYRAC but will look into it as soon as I am ready to renew my prescription.
I wish you all the best of luck in your quest for optimal health with just enough herxing to make it tolerable
Best to you!
DianeC
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chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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DianeC
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Posted: Fri Feb 3rd, 2006 08:11 |
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Hello again Jillian!
Wow, it really looks like you are progressing well! Did I read your signature line correctly whereas by Nov 17th you were already taking 100mg of mino every 72 hours?? I guess that means that you are in phase 2?
How were you able to get through Phase 1 so quickly? Did I read somewhere that sometimes phase 1 can take 3 months? I guess it is different for everyone and we have to listen to our bodies to know when we are ready to advance to the next phase.
I am so happy for you that you are doing so well with just enough herxing to be tolerable but not unbearable
Well today my "energizer herx" ended! Today was alot different than the last 2 days! My left side particularly the hip is my weak area and today I started getting sudden jolts of pain mostly when walking and my balance was off a little.
Last summer the orthopedic surgeon stated that in 2 years I will need a hip replacement but since I am now on MP I have hope that maybe my health will improve so that I will not need that
Again, Happy Herxing to you Jillian!!
DianeC
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chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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DianeC
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Posted: Fri Feb 3rd, 2006 08:37 |
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Today 2 Feb Benicar 40mg q6h Tomorrow 25 mg mino Well today was alot different that the last 2 days! Started herxing! My left side (particularly the hip) is my weak side where I have most of my problems including pain, difficulty walking and slight loss of balance.
You wouldn't think I had any of those problems the last few days; in fact I can't remember when I limped last. But today while walking I would get sudden jolts of pain in the left hip and groin area consequently I started walking very gingerly. Last summer I was told I have bone spurring there and loss of cartilege & will need a hip replacement within 2 years
My energy level was diminished which is quite different from my usual rising at 12 noon and going until 3 or 4 Am sometimes without much of a break. I just seemed to be moving at a slower pace today. I still have that metallic taste every morning which does not seem to want to go away A few other minor things going on but nothing serious No icey feet today and no cramps!
Wishing all of you Happy, Tolerable Herxing!
DianeC
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chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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jillian
Member in Phase 2
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Posted: Sat Feb 4th, 2006 01:40 |
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Diane,
I am still in Phase I--100mg Mino is the highest dose on Phase I. Actually, today is day 116 on Phase I for me so I'm just over three months. I suspect I'll be here a little yet, I'm NOT ready to add to the Herxing, and I haven't gone into a general downward spiral that would indicate I should move on either. FYI, in Phase I I had 5 doses of 25mg Mino; 3 doses of 50mg Mino (barely had any Herxing); and so far 16 doses of 100mg Mino (have made up for what didn't happen at 50mg ).
Phase II begins when we introduce a third medication to the Beni + Mino combination. I do have my Phase II meds so will just watch and see what my body/mind want to do. I'm pretty conservative about when I'm ready to increase my abx dosage--after reading sarcinfo and MP.com for three years I've seen what can happen to people that do rush (go by a plan instead of what their body wants). I wanna get as many of the buggies here in Phase I as possible so I don't have to get them AND the ones targeted by the added abx.
I must admit that on some emotional levels it's been interesting to watch others proceed to Phase II more quickly than I have. I knew I had a competitive nature, but didn't realize how much . That's been part of the Phase I surprise for me, the attitudes I've needed to work on (such as doing things 'right' in general instead of what's right for me, feeling I needed to 'tough it out,' etc.). I'd be intrested to know if you find you hit any such issues...
I too hope that the MP resolves some of your hip issues. Don't be surprised at having continuous pain in those areas, lots of other MPers have had a tough 'hip time' too. One of my body's weakest spots has been my mouth. I've had over 24 hours of periodontal surgery and have had facial bone pain for nearly 2 decades (no one could figure out why). Now I can tell 'em--CWD bacteria! My Herxing patterns since beginning the MP seem to always include theses areas to some degree, sometimes pretty uncomfortably. Remember that it's okay to use pain meds on the MP. You don't have to tough it out.
'til later,
Jillian
____________________
PrimryDX-PulmoSarc79,FMS,CFIDS,etc,disabled93. AvoidD/Noirs Aug02. Oct02: 1,25D=42 NTfrzen; Apr05:25D=10. P1 Oct05-Feb06; ModP2C Feb-Nov06; P2 Nov14-Dec06; ModP2BSS Jan-Mar07; ModP2CBSS Mar07-. Noirs & total light control in house.
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DianeC
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Posted: Sat Feb 4th, 2006 08:08 |
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Day 25 Benicar 40mg q6h Day 7 mino q48h Today was my 4th mino even though it is my 7th day since I started the mino so have I stated my first line correctly in blue?
The herx chart is very helpful and I have been using the blank version as it seems my herxes are different than those on the filled in version.
Today was similar to yesterday regarding the diminished energy level. I slept until 1:30 PM instead of 12 noon but felt I needed the rest There was hardly any hip pain today
My shoulders felt very heavy especially the right one to include the right shoulder blade. It felt like activity under the skin much like inflammation More so heaviness and not so much that burning feeling that I had experienced during a workout a few months ago.
I sat doing paperwork for hours earlier this evening and I am right handed and that heavy feeling traveled down my arm to just about the elbow. I do believe that any exercise triggers the mycoplasma activity to include intense heat in the chest area.
I also believe that I have a lot of mycoplasma in the muscle tissue. My cpk has been elevated since 1997 (that was when they first started testing it) In the year 2000 they had done a muscle biopsy on my upper left arm which came back without any noticeable problem. But then again I don't think that they would be looking for CWD bacteria in a muscle biopsy??
I love to exercise so I look forward to the day that I will be able to do it again and not suffer the consequences
Happy Herxing to all!
DianeC
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chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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DianeC
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Posted: Sat Feb 4th, 2006 08:49 |
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Hi Jillian,
You were very wise to read and gain as much information as possible from others who were on the MP before you started. I had been aware of it and seriously started reading about it since last August
For 3 years I was prescribed doxy 200 mg per day and although it saved my eyesight I had the most awful pain (I believe now that I was herxing) but did not have the protection of an inflammatory blockage like Benicar It was the worst chronic pain I had ever suffered in my life and at the time thought that it would never end and I did not know how I could go on.
After 3 years I had to get off the doxy as it was causing its own problems. In the back of my mind I worried that some resistant mycoplasma would come back. When I had heard and read about MP I knew that that was the solution for me and it put hope back in my life
From reading your post it really looks like you have a good handle on juggling the meds to get the desired result Almost like a balancing act. You are wise to stay at phase 1 long enough to thoroughly get the job done before progressing to the next phase. I feel alot like you do in that I am in no hurry to progress to the next phase until I am ready
As far as herxing I do believe that I will be able to handle whatever comes as I feel it could not be as bad as what I have experienced in the past. It is wonderful to "want to herx" because at least now we know that it is only temporary and that is the big difference.
I am still trying the grasp more of the technical information from your post pertaining the the dosing schedule but I guess that will come with time. Am I understanding it correctly that by making the herxes more tolerable we are actually doing our bodies a favor in that the healing process will be easier? But at the same time the bug killing will be just as effective??
You seem to be progressing along very nicely
Here's to more Happy Herxing!
DianeC
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chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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Aussie Barb
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Posted: Sat Feb 4th, 2006 09:17 |
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Diane
It is a good isea to be familiar with the Information before you need to use it, although it does become more understandable in practice..
Learning to adjust your medications to achieve tolerable herx is a must to stand you in good stead thru all circumstances..
Have a look at some of the terms used in this FAQ My Herxheimer reaction is too strong. What should I do? ..
Do not hesitate to use any of the meds adjustments.
Check these options one at a time to assess and adjust your own situation. Tools to check: << if having problems please check if you need to make adjustments in any area, and feel free to ask on the Board. thank you.
in part: By adjusting the medications you are gaining the flexibility required to balance all tolerably, learning by your own experience how the MP works, learning how to control your symptoms / Herxing before proceeding to the antibiotic combinations in Phases II and III. The Board Staff is available to help you.
Don't ever hesitate to make these adjustments to keep all Herxing at a tolerable level for you. Do not 'push' the intolerable Herxing. Dr Marshall wrote: There is no point in pushing your body too hard, and you might do damage to it.
You will not be slowing your healing by keeping Herxing tolerable. Tolerable Herxing is essential for Safety and Efficacy of the MP. <<
you may find any of this information by clicking on the ABC in my sig line and scrolling down thru the alphabetised links.. or by reading others progress reports and the replies.
I hope this is helpful. all best, Barb ..
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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DianeC
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Posted: Sun Feb 5th, 2006 08:54 |
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Day 26 Benicar 40mg q6h Day 8 Mino q48h Thank you, Barb, for responding to my post and for the links! I am feeling more and more comfortable each day with navigating the site
Today was much like yesterday. I am ususally very active and moving around all day but today I was forced to sit for hours doing paperwork Other than the heavy right shoulder and arm and the need to sleep longer before waking, I can't think of any other really bothersome symptoms I am ready to feel a little worse but we'll see what happens as tomorrow I will be taking the mino again
I did check the food link and could not find the answer to the following question? I love organic peanut butter and I have it each night around 3AM on a slice of whole wheat/oat bread. I thought I saw somewhere that peanuts contain folate?
It also helps me sleep although at the same time does not help the waistline but then again this is just temporary.
I also love dried apricots and because they are yellow in color wondered if they contain yellow dye or is it natural. Sulphur Dioxide is added as a preservative.
Sorry about the food Questions
Appreciate your concern and guidance!!
DianeC
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chronic fatigue/osteoporosis osteoarthritis, 9/05 25-D 40 1,25-D 52 1/06 Benicar 40mg Q6H Mino 28Jan @25mg q48h Mino 12Mar @50mg q72h Mino 15April @75mg q72h Mino 1May 100mg 5/06 Phase 2 D-25 18 10/06 Phase3 D-25 20 5/07 D-25 under 7
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Aussie Barb
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Posted: Sun Feb 5th, 2006 19:39 |
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Diane
re folate Q: see FAQ Why should I avoid folic acid supplementation? It isn't necessary to drastically reduce foods naturally high in folates. Especially if one is avoiding processed foods that are supplemented with folic acid. Please see:
FOODS TO AVOID and FOODS SAFE TO EAT
You can buy naturally dried fruits, at Trader Joe's and health food stores that don't contain sulphur dioxide, or dry your own. Just look on the label. When they don't contain it, you will most likely have to refrigerate them after opening. others may have experience.
all best, Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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