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Aussie Barb
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Posted: Fri Sep 10th, 2004 02:03 |
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Aussie Barb EDIT: these small doses of minocycline are no longer recommended.
Aussie Barb's Progress Report Benicar
Day 30 Friday September 10th
Benicar 20mg Q3 - 4h Day; 40mg @ 9pm then 20mg prn ie Q3 - 4 h Night. = 4 tabs per day:
Q for herx only.
sleeping nicely. woke 2.40am. took 20mg Benicar. slept.
very tired. so extending Benicar out to q4h to see how it feels.
I check Journal. stable except for time adjusting to NoIR glasses.
am on the edge of Depression all the time today. tried the NPS. (later edit: reason?>> I did it again!!!!!  > I slept in & forgot thyroxine. so I'm obviously a long way from Hyper yet  was sticking to my bed, being quiet to keep it suppressed. am quite weak. am really steady.
 MINO Comm: 50mg tablet > divide in 4 = 12.5mg > crush & divide in 4 = 3+mg > divide in 2 = 1.5mg Friday 10am. (squashed onto the end of a banana)
next mino due to look at Sunday morning.... depending on how going?? maybe 3mg?
feel *good heavy aura* in sinus & upper teeth, slight itching face, scalp.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Reenie
inactive member
| Joined: | Wed Jul 21st, 2004 |
| Location: | Phoenix, Arizona USA |
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Posted: Fri Sep 10th, 2004 03:35 |
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I spoke too soon, you ARE here! 
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CelticLadee
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Posted: Fri Sep 10th, 2004 21:02 |
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I hope all goes well for you on the full protocol my fellow int MP ette!
My best to you,
CelticLadee int MP ette
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FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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Aussie Barb
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Posted: Sat Sep 11th, 2004 07:54 |
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Thank You CelticLadee for such an amazing Welcome!! xx
& Thank You Queenie Reenie & Lilly ... I feel so very Blessed xx
Day 1 Mino Friday September 10th Day 30 Benicar
change >Benicar 20mg Q4h Day; 40mg @ 9pm = 3 tabs per day:
Q for herx only.
took first antibiotic........ 1.5 mg!!!!! is all... ( divided a small 50mg tablet to get that.) .......... the full Marshall Protocol potentiates the mino action so powerfully, and IMO I was better to do my "mino probe" than take the risk of hurting myself.
feeling better and worse at different times. *all over the shop* .
weak giddy and then better.
gut disturbed then settled.
very steady Girl.
Day 2 Mino Saturday September 11th 7.45pm post.
Benicar 20mg Q4h Day; 40mg @ 9pm = 3 tabs per day:
Q for herx only.
slept thru better last night.
woke feeling better than I have for a few days. ahhh
gut> probiotics
some chest pressure.
s.o.b & giddiness, on exertion, this afternoon / tonight..
all heavy enough sx but bearable, managable with being sedentary.
husb is away for 24 hours from tonight; and he has asked me to not have mino while he's so far away, and it being Sunday tomorrow. and we have no other support around. happily living the isolated CFS life in a new Community this last 3 years, I have no support nearby at all. I hadn't thought about this before.  hmm...
later edit: my husb reminds me (<brainfogged) that we do know ppl I could call. it's just that we don't have a lot of contact with them.
will see in the morning how I'm feeling re chest pressure etcccccc... before making any decisions..
Last edited on Sat Sep 11th, 2004 15:02 by Aussie Barb
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Sat Sep 11th, 2004 22:03 |
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Day 3 Mino Sunday September 12th
Benicar 20mg Q4h Day; 40mg @ 9pm = 3 tabs per day:
Q for herx only.
slept well with a couple of wakes.
woke with some *good* pressure on sinuses, upper teeth
chest is ok this morning. maybe a *clearer* feel. like the *good* pressure (above).
gut is ok.
8am up Mino: took 2.- mg (1/24th of 50mg tablet)   I write down as I divide it up, so that I don't lose track.. with my brainfog I need to do this
being on the mino made me feel better already I can feel it pick me up. separate / apart from the discomforts. Happy Me 
eyes are feeling hot. Last edited on Sun Sep 12th, 2004 00:43 by Aussie Barb
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Lilly
Member
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Posted: Sun Sep 12th, 2004 01:43 |
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Barb, I am so pleased and happy for you !!!
You are an inspiration to me. You go girl!!
Love, hugs,
Lilly
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ME/CFIDS Prozac Wellbutrin Trazadone NADH.Noirs avoiding D,sun from07/04;25D=36;Ph2 restart Sep06. Ph3 03/07
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Aussie Barb
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Posted: Sun Sep 12th, 2004 03:04 |
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omggggggg You Ppl are so wonderful.... *shakes head*..... Thank You Lilly xxx mwa mwa
CONT>
Day 3 Mino Sunday September 12th
Benicar 20mg Q4h Day; 40mg @ 9pm = 3 tabs per day:
Q for herx only
this MP experience is like no other!!!! it is amazing!!!! good to have the training ground Thanks Trevor..
2pm.I can feel pressure like in a tight drum in my upper resp / chest..... all from 2mg mino within the MP structure.
something sure happening. I am so happy, excited.
have been weak, very steady, resting all day.
sinuses feel clear!!
5pm some liver pressure. Benicar helps, and probiotics absolutely nec BD
husb home. all is well
Last edited on Sun Sep 12th, 2004 08:23 by Aussie Barb
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Mon Sep 13th, 2004 04:37 |
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Day 4 Mino Monday September 13th <(singing) Happy Birthday to Me 54 today, I've got the Key to the Door, never had MP before......
Benicar 20mg Q4h Day; 40mg @ 9pm = 3 tabs per day:
Q for herx only.
slept well with a couple of wakes.
Not one part of me feels better today !!! My chest is so very completely tired.... I've clung to the bed.... except that I did get up to check on My MP Buddies from time to time and also to have some choccy cake and icecream for a pleasant change from the usually sensible diet
My Very Best Wishes to You All, and Thank You for all You are to Me Barb
Happy Birthday Paulscha xxxx
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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jolbell69
Health Professional
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Posted: Mon Sep 13th, 2004 09:21 |
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HAPPY BIRTHDAY BARB!!!
Love,
Jo. (UK)xxxxxxxxxx
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DX:ChronicBorreliosis&Bartonella,ME/CFS,AutoimmuneThyroid&Hypoadrenia.
TX:Armour90mg,Cortef10mg,Florinef0.1mg,Prozac.StartedMP:25June04.
25,D=16.7ng/ml,(Jan05)No1,25Ddone.Benicar,20mg,q6h.Started Phase I:19May05.Started Phase II:16Sept05
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CelticLadee
inactive member
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Posted: Mon Sep 13th, 2004 14:06 |
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Happy Birthday Queen Aussie Barb!
Today is also my little 5 yr. old angel, grand daughter's birthday - two angels were born on the 13th.
Hope your chest situation is relieved with the Q today Barb. Hang in there girl.
Mmmmmmmmmm chocolate cake and ice cream sounds so good. It's been 3 years since I've tasted that wonderful flavor. Enjoy it for me too.
All my best to you,
CelticLadee
Last edited on Mon Sep 13th, 2004 14:09 by CelticLadee
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FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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Aussie Barb
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Posted: Mon Sep 13th, 2004 17:22 |
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Thank You Wonderful Girls
kisses huggss xoxoxoxoxx
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Renee_RN
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| Joined: | Thu Jul 22nd, 2004 |
| Location: | Michigan USA |
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Posted: Mon Sep 13th, 2004 19:26 |
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Happy Birthday Barb !!!!!!
.... and an even Happier Birthday next year at this time !!!!!!
Hang in there girl.... and have an extra piece of choccy for me
Last edited on Tue Sep 14th, 2004 07:10 by Renee_RN
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Started MP 07.27.04
D Hydroxy 19.4 ng/mL (ref range 10-60)
D 1,25 Dihydroxy 34.2 pg/mL (ref range 25.1-66.1)
Dx: Chronic lyme, fibromyalgia,
Hx: CFIDS, IBD, IC. RSD. NMH, active CMV, EBV
Was bedridden 5 yrs, semi-functional past yr-2 w/ Zith. S
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WebLady
inactive member
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Posted: Mon Sep 13th, 2004 22:59 |
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Mother/caretaker of a 30yr. old female, dx severe CFS/FM,further issues incl.Hidradenitis Suppurativa resulting in lg. abcesses/2 surgeries. Mostly bedridden. Bell's Palsey 1992. MP7-6-04 Beg.D levels: 14.3 1,25:30.8
Ben.40mg/w-500mgQuerQID/Mino50mg
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Aussie Barb
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Posted: Tue Sep 14th, 2004 08:45 |
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Day 5 Mino Tuesday September 14th
Benicar 20mg Q4h Day; 40mg @ 9pm = 3 tabs per day:
Q for herx only.
slept well with a couple of wakes.
10am up Mino: took 3.- mg I'm so impatient I'm wanting to take some every day...
I am so very tired...feeling unable to communicate... unable to *do.... not much to tell... resting.... except that I check on My MP Buddies from time to time
My face & throat are a little itchy like old hayfever days.
have to take the probiotics to keep *that all happening..
Today I've bordered on depression very slightly...feeling sick of MySelf and then I'm given a lift by revisiting all Your Wonderful Messages..... Thank You So Much.... all is very well, I'm a happy Girl
My Very Best Wishes to You All, and Thank You for all You are to Me Barb
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Tue Sep 14th, 2004 21:39 |
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A quote that tickled me today :
I intend to live forever........
so far, so good........
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Wed Sep 15th, 2004 22:11 |
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Day 7 Mino Thursday September 16th
Benicar 20mg Q3-4h Day; 40mg @ 9pm = 3 or 3 ½ tabs per day:
Q for herx only. Probiotics
slept well with a couple of wakes.
10am up Mino: took 3.- mg feel yick in a couple of minutes. and then ok.
last couple of days I am so very tired...feeling unable to communicate... unable to *do.... not much to tell... resting.... doing minimum
I've been varying the Benicar dose timing between 3 and 4 hrly to see if I'm any less tired, or if I have any more reaction on more often.... but I'm too tired to know what the result is
I did come alive for a little while last night and did a bit
My face & throat are a little itchy, sneeze blow etc... seems to drop to less of a problem if I rest.
have to take the probiotics to keep *that all happening..
otherwise I'm fine z z z z z z z z z z z z z
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Thu Sep 16th, 2004 08:05 |
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Day 7 Mino Thursday September 16th continued 8pm
I'm wondering about this nose do addicts who need a fix have a running nose?
is this happening because I'm lowering the high 1,25D level in my (1,25D addicted) body?
interesting thought ....
I'm very conscious of the inflammation within my body. my body is working, tired... & I'm dealing with a lot mentally emotionally Familiarly beside the MP..... and I'm resting, managing, taking care.... and I'm doing fine, all is well
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Fri Sep 17th, 2004 04:03 |
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Day 8 Mino Friday September 17th 4pm
Benicar 20mg Q3h Day; 40mg @ 9pm = 4 tabs per day:
Q for herx only. Probiotics
slept so well
not mino day today.
taking the Benicar 20mg 3 hourly cos I have a high 1,25D load, and to get that bacteria load accessed.
I've also noticed more balance to Insulin .. with the cutting light/D and prob the Benicar
nose run sneeze blow etc business continues and I see others mention they have it too. all my adult life this has happened with me whenever my Immune System has been challenged.. resting helps.
my body is working, very tired...I'm quiet, resting, managing, taking care.... and I'm Ok
Meg says> at http://www.marshallprotocol.com/forum11/650.html My experience has been a brief increase in symptoms 1-2 hours post ABX which I attribute to the initial kill and then another increase in symptoms the second day which I attribute to the Herxheimer reaction as the inflammation briefly flares in response to the endotoxins released by the dying bacteria. <<
Barb says> this afternoon I can clearly ID with this... I feel the flare in the inflammation particularly ?liver area.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Fri Sep 17th, 2004 18:03 |
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Day 9 Mino Saturday September 18th 6am
37days on Benicar: 20mg Q3h Day; 40mg @ 9pm = 4 tabs per day:
Q for herx only. Probiotics
slept so well.
woke feeling ready to go to battle again... I get a bit battle weary inbetween.
I have a terrible cramp like feeling in the muscles on my ribs under my right arm.. and down my arm.... I've had it before... years ago... is like having been bitten by a heap of ants owwwwwww
7am painful cramping gone after an hour or so
mino 5mg 10am.
Last edited on Fri Sep 17th, 2004 21:58 by Aussie Barb
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Sun Sep 19th, 2004 20:19 |
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Day11 Mino Monday September 20th 8am ish An OverView
39 days on Benicar: 20mg Q3h Day; 40mg @ 9pm = 3 ½ to 4 tabs per day:
Q for herx only. Probiotics BD
slept well. sleeping well generally. only a couple of wakes if any.
Mino morning: woke feeling ready to go to battle again... I'm always eager to take the mino again. I get a bit battle weary inbetween. I have to keep the goal and my Supporters in mind thanks all
Symptoms: I realise I've not had a headache since beginning MP. that is a Miracle in itself. any other symptoms I have are slight, transient, managable. ie within the fact that I cannot, do not go out to work because of the CFS. the symptoms of mucus throat, depression and fragility can usually be managed by taking my meds... thyroxine & Natural Progesterone Spray.
I experienced the positive consequences of cutting exposure to sun / lights / D. and athough I live in always sunny Australia, the sun is not a problem for me because; 1. I drew the drapes and dropped the blinds. and shut off any particularly light rooms. 2. I wear my NoIR glasses. 3. I don't need to go out for anything, my husband goes. 4. I'm not well enough yet to want to go out. and.... 5. if I do have to go.... to the Dr etc.. I have my Cape and Scarf and gloves etc... or in the garden I go early morning or dusk
I stay undercover/s easily have a rest or nap during the day.
I'm happy that MP is designed for us to be able to manage the degree of herx ourselves by lowering the abx and upping the Benicar.. what more could we want
the 1,25D tests are only reliable if frozen. cos they deteriorate to less otherwise. my first test was high enough anyway, and it appears we cannot depend on our lab as some of the Staff are saying there is no need for it to be frozen *anymore*; and the tests are done only once per week, so they are sitting around waiting. so I'm going cautiously anyway. I rang the Lab this morning & was told that all serums transit on ice at 4C degrees & are frozen on arrival. and all 1,25Ds are thawed & tested on the Tuesday.
Aug:1,25D>51.5: 25D no result
Sept: 1,25D>34; & 25D>35
BP: I don't track my BP. I've always had a very low BP even when I was maniacally active If I'm feeling very low, there is only one thing I'll be doing... getting horizontal on a bed.... no taking BP for me.
Benicar: I take my Benicar 20mg (half tablet) q3h day which is equal to 40mg (full tablet) q6h. this dosing suits me best. and I use a timer around the clock.
Quercetin: I have on hand for use for managing herx . I've used it only x 2, I think; when I had chest pressure and it was relieved immediately.
Probiotics: to keep the IBS controlled.
mino 6.25mg 10am today. I divide the 50mg tablet with a tablet splitter, = 25mg; divide, =12.5mg; crush & divide = 6.25mg.
I'm expecting Family visitors this week
Last edited on Sun Sep 19th, 2004 23:21 by Aussie Barb
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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