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West Tennessee
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Posted: Thu Sep 7th, 2006 20:36 |
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Hi Everyone,
Benicar 40mg q 4-6, Minocycline 25mg q 48
Took My first Minocycline Tuesday night and not aware of any herxing yet. All my symptoms were occurring prior to starting Minocycline. I talked about some of my symptoms in the Benicar only forum. WestTennessee Benicar
My 25-D level on 5-15-06 was 44.2. I was supplemented by my doctor after that test with Vit D3 from 2,000iu qd to 6,000iu qd and for a week in august even up to 12,000iu qd. On 8/9/06 I stopped all vit D supp. but by then I had alot of hypervitaminosis-D symptoms. I have not had a repeat 25-D level since I just stopped supp. on 8/9/06. I doubt I will be doing much herxing right away with such high 25-D levels.
My most lingering symptom of hypervitaminosis-D is a skin burning sensation on by entire back. I never had this symptom until my doctor raised my Vit D3 dosage so high.
Since starting the MP on 8/29/06 my stinging comes and goes. My back pain, fatigue, mental fog, and muscle twitches are about the same. I have had very bad burning on the bottom my feet in the past, but starting Lyrica has completely relieved that. I don't believe my back stinging is related to my neuropathy even though my neurologist isn't sure.
I am a single mom and I have to take my daughter to and from school very day. The total time is 1 and half hours in the sun each day. Some days are more if she has after school activities. I have tried increasing my Benicar 40mg dose to very 4 hours when I have to take my daughter to school. The problem is if I followed Dr Marshall's suggestion of increasing Benicar q4 if you have sun exposure, I would have to stay on q4 at all times during the week due to school trips
We have just recently moved to a new town and school so I find it hard to have someone else take her for me at this time. I wear my Noirs inside and outside and use zinc oxide on any exposed skin when out in the sun. If I can tolerate Benicar 40mg q4, should I do this dosing during the week and go back down to Benicar q6 on weekends? I will be taking my second dose of Minocycline tonight. If I continue not to have any significant herxing, I may extend my dose out to 72 hours and see how I feel. If anybody has any suggestions or advice for me regarding my Benicar dosing due to the necessary outside time, I would greatly appreciated it.
All take care,
West Tennessee
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Lyme Ph1Aug06 Ph2Dec06 Ph3Feb07 25-D 11/2009 <7.0 ng/ml Noirs all outings
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Aussie Barb
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Posted: Thu Sep 7th, 2006 21:02 |
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WT
Welcome to the Mino forum and thank you for posting..
I have edited to add your Benicar Link and some white space.. please leave some white space in your text so it is not all in one block.. it can be too difficult for unwell Members and Staff to read. thank you..
Information re neuropathy: Will the MP treat paresthesia and neuropathy?
Benicar: If Dr agrees, some who go out to work each day, take their Benicar Q4 or 5H during the day. - or you can take extra half tablet (20mg) any time during cycle as you are going out.. see also BenicarQuiklink
extending your mino dosing to help find the Herx is often helpful..
see FAQs I'm eager to get well. How can I speed up my progress on the MP?
and this self assesser herx checker FAQ. may help you to check each aspect to get best value Why isn't the Marshall Protocol working? what am I doing wrong?
I don't know if you plan on having more children, but this FAQ is essential Information. Can a pregnant woman be on the Marshall Protocol?
thanks, all best, Barb ....
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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West Tennessee
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Posted: Thu Sep 7th, 2006 21:25 |
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Thanks for your quick response and advice Barb. Think I'll follow the Benicar 40mg q5 during the work week for now and see how things go.
Take care,
West Tennessee
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Lyme Ph1Aug06 Ph2Dec06 Ph3Feb07 25-D 11/2009 <7.0 ng/ml Noirs all outings
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West Tennessee
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Posted: Sat Sep 9th, 2006 07:39 |
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Benicar 40mg q4-6h, Minocycline 25mg q48h
10 days on Benicar now. I've gone between 4 to 6 hours dosing based on the amount of time I have to spend outside. I'm on my 2nd dose of Minocycline 25mg q48h. I had reported in earlier post that I was having a burning sensation on my back that comes and goes. I think it is due to the sun because when I begin to feel it, I increase my Benicar to q4h and in about an hour or so the burning sensation is either better or gone.
Even though my 25-D level is very high at 44.2, I believe I am herxing! I noted a bad headche a few hours after I took my dose and a repeat of the headache during the next evening. About 12 hours after my 2nd dose I had trouble with several things at once. I had an increase in my mucles twitching,on and off burning sensation in my right foot and a feeling of numbess in my right leg. Very stiff neck pain. It was hard to move my neck from side to side and the pain extended to my lower back also. I applied hot rice packs on my back pain. This did provide some relief.
After about four hours of this, I just felt exhausted. Most of my symptoms had begun to eased up. I had a period during the afternoon that I felt pretty good. Then around 6pm I felt like I was hurting everywhere and felt heavy. My BP was 87/53 which I have been doing just fine with. My best guess is I am having some tolerable herexing. I feel real sleepy right now, may try to sleep without my Ambien and see how long I sleep.
Night Night to all,
West Tennessee
Last edited on Sat Sep 9th, 2006 07:45 by West Tennessee
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Lyme Ph1Aug06 Ph2Dec06 Ph3Feb07 25-D 11/2009 <7.0 ng/ml Noirs all outings
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West Tennessee
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Posted: Tue Sep 12th, 2006 18:05 |
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Benicar q4-6h, Minocycline 25mg q48-72
Hello All,
I have extended my 4th dose of Minocycline 25mg out to 72h to see if I noticed any more herxing. I have a very high 25-D of 44.2. I have been so afraid I would not be able to herx until my levels come down further, but I have had mild herxing with each dose every since I started the Minocycline. I am so thankful.
At 60 hours out, I have noticed an increase in my muscle twitching both in area coverage and intensity. I also have an increase in neck and lower back pain. My energy level is down and mental fog is worse. All is tolerable, Not having any anxiety today. My doctor is calling in Librium to the pharmacy today for my anxiety. He didn't want to prescribe Valium as recommeded by Dr. Marshall. Hope there is no problem with Librium.
I plan to take my 5 th dose of Minocycline 25mg tonight. After tonights dose, I will wait another 72 hours since I did herx more than with the 48 hours.
Take care all,
West Tennessee
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Lyme Ph1Aug06 Ph2Dec06 Ph3Feb07 25-D 11/2009 <7.0 ng/ml Noirs all outings
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Posted: Wed Sep 13th, 2006 04:17 |
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Hi West,
Our experience has been with the more popular benzodiazepine, Valium which we know works better than its generic form.
All benzos are habit-forming and should be used with discretion but they are not contraindicated on the MP. We suggest you use Librium only when anxiety is intolerable. Please let us know how you get along with it.
Best,
Meg
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West Tennessee
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Posted: Sun Sep 17th, 2006 00:42 |
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Hello to everybody,
Benicar 40mg q 4-6h, Minocycline 25mg q 72h
I'm on my 6th dose of Minocycline. My last two doses have been spaced out to 72h . I had some mild to moderate herxing during my 60th hour, lasting for about 4 hours, I took my 6th dose last night and I will pay very close attention to my symptoms over the next 72 hours. If I have very little or only mild herxing to occur, I plan to increase my minocycline up to 50mg.
I will have been on Minocycline at 25mg for two weeks this coming Monday. I am very thankful I am herxing at all since my 25-D level was so high when I began the MP.(44.2) I will be repeating my 25-D level this week. I will post again if I have any significant herxing within these 72 hours. Yesterday I had a bad headache about 5 hours before my next dose of Mino 25mg was due.
I saw a new doctor yesterday. She stated she would not prescribe the Benicar at such high levels that are required by the MP. I am thankful my other doctor will, at least for now, My new doctor ordered blood work to check my kidney function. She stated the high doses of Benicar can damage your kidneys and need to be monitored closely.
She also changed my anxiety medication from Librium to Valium 2mg. This doctor did not personally like the Libriun my other doctor prescribe. She also order Ultram 50mg for my neck and low back pain.
We will all just keep pushing forward at our slow and steady pace. For the first time we know there is a wonderful prize waiting at the finish line, our health back.
Keep smiling,
West Tennessee
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Lyme Ph1Aug06 Ph2Dec06 Ph3Feb07 25-D 11/2009 <7.0 ng/ml Noirs all outings
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Aussie Barb
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Posted: Sun Sep 17th, 2006 00:51 |
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WT
Thank you for posting.. You are managing all well, and gaining experience.. good to see you have the Valium and ultram..
If you do need to know at all, there is this Information:
To protect your organs from damage by asking Doc(s) to increase the Benicar to 40mg every 4 hours, when you need it. A recent paper should keep Doc comfortable about higher dose ARBs:
"Long-term safety of high-dose angiotensin receptor blocker therapy in hypertensive patients with chronic kidney disease"
Looking forward to seeing how you go, and your 25D result.. all best, Barb ...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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West Tennessee
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Posted: Thu Sep 21st, 2006 15:26 |
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Hi Gang,
Benicar 40 q4, Minocycline 50mg q48
I have an update , but a question also. I've been on Benicar for 23 days. Because I am a single mom, I have to be out in the sun daily. I wear my Noirs, hat, and coat my exposed skin with the new translucent Zinc Oxide. Due to being out so much, I've been taking my Benicar 40 mg q4 hours and I am tolerating it very well. Average BP is 87/47
I was on Mino 25mg for two weeks, with the last three doses extended out to 72 hour. The first two 72 hour doses I had fairly decent amout of herxing. My last 72 hour I had pretty much nothing. With this occurring, I decided to increase up to 50 mg q 48 and see what happened.
I took my first 50mg dose at 7pm Monday 9/18/06. I fell asleep shortly after that, and I slept for 18 hours straight except for when the alarm went off for my Benicar. When I did wake up I was so emotional, I couldn't handle anything. I would say I was crying if I were awake. The crying was over nothing serious. I decided to go back to sleep, and put this day in my past.
Yesterday was one of the best days I have had in years. No pain, good energy, and good mood!!!!
I took my 2nd dose of Mino 50mg last night.
Here is my question. I have been taking Estradiol 2mg IM q 10 days to manage my hot flashes, mood and energy level. It has been one month and three days since my last shot. I have had not had one hot flash, nor any breast tenderness. Do you want me to stay on a schedule with the estrogen, or just take the lowest dose that keeps my hot flashes under control? I would appreciate your guidance on this matter.
Take care all,
West Tennessee
____________________
Lyme Ph1Aug06 Ph2Dec06 Ph3Feb07 25-D 11/2009 <7.0 ng/ml Noirs all outings
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Aussie Barb
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Posted: Thu Sep 21st, 2006 19:55 |
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WT
Thank you for posting..
for guidance, see this FAQ to discuss with your Dr..: Why should I avoid hormone replacement medication?
"the lowest dose that keeps my hot flashes under control" is in line with our recommendations of
If you have intolerable symptoms of a hormone deficiency and your doctor orders supplementation, standard (low) doses of hormone medication, less than a few milligrams per day in most cases, will probably not interfere with the immune system. It will be advantageous to wean off this supplementation as symptoms allow.
ie. Monitor symptoms and with your Drs guidance, reduce or eliminate medications or supplements as symptoms resolve. <<<
thanks, all best, Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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West Tennessee
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Posted: Fri Sep 22nd, 2006 19:23 |
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Hello,
Benicar 40mg q4-6, Minocycline 50mg q48
I have a quick question that I have not been able to find the answer to in anyone's posting. I am 51 and my GP wants me to have a colonoscopy in the next few weeks. I did have a stool sample positive for blood, but a repeat was negative. Is there any reason I should postpone this test until I finish the MP? I am just begining Phase 1 of the protocol. Thank you for guidance in this matter.
Happy Days to all,
West Tennessee
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Lyme Ph1Aug06 Ph2Dec06 Ph3Feb07 25-D 11/2009 <7.0 ng/ml Noirs all outings
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Posted: Sat Sep 23rd, 2006 01:08 |
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West,
There is no contraindication to having a colonoscopy while on the MP. With your history of a stool positive for blood, it's a good idea to have this exam.
You might try to time your antibiotic dosing so that you are feeling your best during the testing time.
Best, Meg
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West Tennessee
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Posted: Sat Sep 23rd, 2006 03:56 |
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Hi Meg,
Was looking for a good excuse not to go through that fun procedure. Really, I'm glad I can get it taken care of now. Thanks for letting me know it's both safe and necessary.
God Bless,
West Tennessee
____________________
Lyme Ph1Aug06 Ph2Dec06 Ph3Feb07 25-D 11/2009 <7.0 ng/ml Noirs all outings
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West Tennessee
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Posted: Mon Sep 25th, 2006 15:52 |
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Hello,
I'm afraid I had my first mistake that life can throw at you now and then. My daughter stayed with her father this week end. This is the first time she's been away since my starting the MP. I took my sheduled 6:00pm dose of Benicar. I settled in on the couch around 7:30 pm Saturday night. My last dose of Benicar is always at 10:00pm and I fill my next day pill box. The most important thing I do is set my 6:00am alarm for my morning Benicar.
I fell asleep sometime around 7:30pm Saturday night and never woke up until 2:30 am Sunday morning. I was very confused for some reason, but knew I had to take a Benicar. After that , I left my couch and headed for my bed. I never filled my pill box nor did I set my alarm. The next time I woke up was Sunday afternoon at 1:30 pm. I probably would have slept longer, but my daughter called me to scheduled our time to pick her up. I have read other progress reports where people have sleep for long periods of time . It is assumed the body needs this rest in it's healing process.
I am concerned that the eleven hour period of sleeping without taking any Benicar has messed things up for me. Has my blockade been lost? I have read where it can take a week or two to get it back in place. What kind of problems can I expect? Will my herxing be worse because I don't have the full effect of the Benicar?
Anxious to hear back.
West Tennessee
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Aussie Barb
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Posted: Mon Sep 25th, 2006 17:00 |
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WT
see this FAQ What times should I take my Benicar? What if I forget a dose? - taking an extra half tablet (20mg) any time during the cycle, or adjusting dosage to 40mg Q4H. see also BenicarQuiklink may all help getting back on track more quickly..
all best, Barb ....
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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West Tennessee
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Posted: Mon Sep 25th, 2006 19:31 |
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Thanks so much Barb. Just knowing you are out there for us is such a safe feeling! I feel sure I will get back on track just fine.
I plan to have alarms set all over the house. Even if I set one every hour, I'm sure it would remind me of something I need to do. Thanks again for doing God's work.
Take care,
West Ten
____________________
Lyme Ph1Aug06 Ph2Dec06 Ph3Feb07 25-D 11/2009 <7.0 ng/ml Noirs all outings
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West Tennessee
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Posted: Wed Sep 27th, 2006 03:48 |
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Benicar 40mg q4-6, Mino 50mg q72hours
I took my first dose of Mino50mg Sunday 9/24/06. Doing well on Benicar 40mg q4. I take Benicar so frequently due to daily sun exposure.
I saw a new doctor on Thursday 9/24/06. She placed me on Ultram 50mg tid (prn) for pain and Valium 2mg to be used as needed for anxiety. I have taken the ultram , 2 doses most days since getting it last Thursday. I've taken two doses of Valium for anxiety since getting the Valium last week.
I noticed itching Saturday night but no rash at the site. The itching was generalized over my body but was gone about 4 hour later.
Sunday I woke up at 1:30pm. My itching had returned, but this time a red slighly raised rash had also developed. The rash is the located on my inner thighs, back of thighs and buttocks.
By today the itching and light red rash had spread to both of my wrist, soles of feet and palms of hands. If you look close, you can find one or two here and there on other parts of my body. The red areas range in size from a head of a pencil eraser , to the size of a dime. They are pretty much flat now, but will raise up if I scratch them.
I called the doctor today, and she feels I'm probably allergic to the Ultram or the Valium,or one of the other meds I'm taking. She's the doc that didn't like the MP idea. She would like me to stop all meds, but knows I won't stop the Benicar nor the Minocycline. I agreed to stop the Ultram and the Valium. She refuses to give me any new meds untill the rash clears itself.
My question is this " Could the rash with itching be due to skin herxing? The itching is kept comfortable with the use of Benedryl. Do the skin problems others have, sound similar to mine in terms of herxing, or more like a drug reaction? Sure would appreciate some help here. I'm afraid my doctor will want to take me off all meds, because she's not convinced the MP is really that safe. I don't agree with her on this at all, that's why I'm asking for so much information.
I'm afraid I'm looking like my dog when she had fleas
West Tennessee
____________________
Lyme Ph1Aug06 Ph2Dec06 Ph3Feb07 25-D 11/2009 <7.0 ng/ml Noirs all outings
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Aussie Barb
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Posted: Wed Sep 27th, 2006 04:01 |
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WT
I have moved your post to your progress report for continuity.. Thank you for posting your details..
for future reference, when noticing a new symptom, (as itch Saturday night) it is important to assess if any meds adjustments are required before proceeding.
see the FAQ I've developed a rash. What should I do?
the benadryl may be helpful.. use caution re sleepiness caused by taking it.
-can take extra half tablet Benicar (20mg) any time during cycle, or adjust dosage to 40mg Q4H. see also BenicarQuiklink
Reduce mino back to 25mg or stop it altogether for now as long as your symptoms do not increase by stopping it.
If using a hydrocortisone OTC use it sparingly. Tissues treated with steroids do not heal well and all steroids are absorbed systemically.
Let us know if you have further questions. all best, Barb ...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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West Tennessee
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Posted: Sat Sep 30th, 2006 19:32 |
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Hi To All,
Benicar 40mg q4-6, minocycline 50mg q72
I've Been on Minocycline 50mg q72 hours for two doses now and have not experienced any significant herxing. I have just taken my third dose today of Mino 50mg. I will wait 48 hr this time and if no notible herx I'll move on to Mino 75mg. I did have an allergic reaction to Ultram(broke out in a rash) and have been changed to Darvocet-N100mg. Not aware that this pain med causes any problems.
This last week my main symptoms have been frequent headaches and my usual fatigue. My sleeping around the clock phase seems to be over. My back skin stinging sensation I had experienced when I first started the MP has completely gone, I also notice less muscle twitching. At least so good things are happening.
I got my latest 25-D results back. On 9/20/06 is was 56. Since my last test in May that was 44.2, I had been on mega doses of Vit D3 per MD, so I am excited to see it that low. I just still worry that I'm not killing as many bacteria as I should because my 25-D is still so elevated.
My husband and my daughter got their D Metabolite test back. Do I post them on the prelim test area for someone to evaluate? My husband was 25-D 29, 1,25D 83 , My daughter was 25-D 55, 1,25D 43. My daughter doesn't supplement with VitD, nor comsume a lot of Vit D food, so I 'm concerned why her 25-D is so elevated. They won't be able to see a doctor till late November. An answer about the correct place to post my family's D results would be greatly appreciated.
Take care all
West Tennessee
____________________
Lyme Ph1Aug06 Ph2Dec06 Ph3Feb07 25-D 11/2009 <7.0 ng/ml Noirs all outings
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Aussie Barb
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Posted: Sat Sep 30th, 2006 21:06 |
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WT
Thank you for posting.
Do consider the headaches before increasing the mino to 75mg..
you report re 25D: "On 9/20/06 is was 56.
Since my last test in May that was 44.2
I am excited to see it that low."
I am unsure. Is the recent result 44.2 or 56.. ? thanks.
Other aspects to check in the self assesser herx checker FAQ.Why isn't the Marshall Protocol working? what am I doing wrong? .
Do I need to get my 25-D down before I start the MP?
Here is Information re How to post for other people
and What to include in your preliminary test result reports.
When you can, please fill the D details etc into your signature line to help Staff and others reading < see this link for all details to include. you may need to abbreviate some of the Info to fit it all in.. Thank You ..
Signature line:
Phase 1 MP 8/29/06, LYME UNDIAG 20+yrs,Diag 8/2/06, FATIGUE,,BACKPAIN,NEUROPATHY, MUSCLE TWITCHING, ANXIETY,INSOMNIA. MEDS-LYRICA 100MG,AMBIEN 12.5MG,Darvocet-n100mg,Estradiol 2mgIM Valium 2mg 8/29/06 BENICAR 40mg q 4-6, Minocycline 50mg q72. Avoid sun/l
Suggested: with the addition of the Ds thanks.. >>>>
LYME 8/2/06 UNDIAG 20+yrs| FATIGUE BACKPAIN NEUROPATHY MUSCLE TWITCHING ANXIETY INSOMNIA| LYRICA AMBIEN Darvocet-n Estradiol Valium| 8/29/06 BENICAR 40mg q 4-6| 9/3/06 Mino/now 50mg| NoIR Avoid light/D|
Thanks, all best, Barb ...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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