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healingjason
Member in Phase 3
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Posted: Mon Dec 22nd, 2008 03:26 |
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For the record, Jason has had the symptoms of a mild cold - cough, fatigue and slight runny nose. However, he is recovering quickly.
This makes me wonder, yet again, whether this is an IP episode or not. I have been advised by the Board previously of the possibility that sinus and cold symptoms may be an IP episode (herx) rather than a viral infection.
No other family member has contracted a cold virus from him so perhaps it is IP. Alternatively, perhaps his weakened immune system makes him more prone to catching colds.
As I have posted, Jason does not seem to herx much on the MP and I have surmised that maybe one symptom of his autism illness, hypo-sensitivity, is relevant to this phenomenon.
I have also commented that nasal congestion, which was very common prior to Jason going on the MP, has subsided a lot which makes me think his immune system has been strengthened by the MP and, hopefully, he is dealing with brain bugs rather than bugs in his nasal passages.
On the behaviour and development front, the major battle of course, Jason is continuing to show subtle improvements. His final school report included a ‘Principal’s Award’. Whether this was a sop to dedicated partents who are trying to do the best for Jason or a reflection of genuine improvements worthy of the Principal’s commendation I do not know.
His main teacher commented thus
I have enjoyed a positive relationship with Jason, as have all other adults, as the year has progressed. For the most part, he has been happy and settled in the class. Jason's willingness to stay on task during activities (and remain within a group) has increased significantly during the year. We wish him ‘all the best’ for next year, and expect that he continues to make progress at…’.
Jason is improving, albeit ever so slowly. Whether this would have happened without the MP cannot be known as the improvements are still not significant enough yet to signify that Jason will recover, as expected from the theory.
He is at the very low functioning end of the ASD spectrum – no speech and very limited language understanding. However, he is improving a lot socially and seems to be much more confident in dealing with people and the outside world generally. Perhaps as this confidence grows it will bring forth a greater desire to empathise and participate with others and thereby bring on speech. He certainly is communicating more in a non-verbal way.
Still hoping.
John
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Dad of Jason 13 yrs ASD. Chronic infection evident from abnormal urinary amino acids, as found by the Uni of Newcastle, Australia. Benicar 40 mg QW8H from 7 Apr 07. Phase 3 from 28 June 08. Part covered up, sunscreen 25D 10 (08/09) 22 (02/10)
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BARNEY
Moderator
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Posted: Mon Dec 22nd, 2008 04:40 |
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John,
I always treat everything like it is a herx...even if it appears to be a cold...that was how I made sense of everything on MP....and it has paid off. If it went on longer than I felt a herx could be ....I took care of it. (ie allergy time...if the symptoms continued..then I would take care of it with allergy meds). Hope this helps. Sometimes, when I know it is a herx...I take 20mg extra Benicar which would relax the herx.
I am just in awe of Jason's recoveries, especially in school.
You are setting the way for other parents of autistic children...so please keep up the good work.
This is my opinion...MP is the greatest thing for our illnesses and we are showing the world that healing is possible.
Please have a very MERRY CHRISTMAS AND A HAPPY AND HEALTHIER NEW YEAR, for you and yours!!!
HANG IN THERE, WE WILL MAKE IT!!!! BARNEY
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar40/20mg&xtra
as needed,stage5,
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healingjason
Member in Phase 3
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Posted: Tue Dec 23rd, 2008 02:16 |
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Thanks Barney. Best to you too and all the folks on the MP.
I am now thinking jason has had a mild viral infection rather than a herx as I have now developed cold symptoms too, presumably, I have caught the cold from him.
John
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Dad of Jason 13 yrs ASD. Chronic infection evident from abnormal urinary amino acids, as found by the Uni of Newcastle, Australia. Benicar 40 mg QW8H from 7 Apr 07. Phase 3 from 28 June 08. Part covered up, sunscreen 25D 10 (08/09) 22 (02/10)
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healingjason
Member in Phase 3
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Posted: Mon Jan 26th, 2009 23:12 |
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I think it time to provide an update on progress with Jason.
We are coming to the end of the summer vacation Down Under and Jason has behaved beautifully this holidays. We have had a number of people over and Jason has accepted, nay welcomed them into our home. In the past, Jason would often become distressed on these occasions (hence there were very few) or would retreat to a room on his own and watch his DVDs alone. Last night, he happily moved amongst the people and was not at all interested in retreating on his own – a first to my knowledge since he became autistic.
As a testament to his vastly improved behaviour, it occurred to me yesterday while waiting in a queue at the supermarket that I was not anxious while Jason was at my side. In the past, this has often proved stressful because Jason would not wait easily or would embarrass us in some way or another. He now just nestles in next to me and is very comfortable waiting and is very happy to take in the surroundings - all the people coming and going etc. He now likes nothing more than going to the mall or the supermarket (lots of light I know) which is a blessed relief for us and it is a pleasure to have him with us which is not something I would have said in times past.
Perhaps this is an instance of the "insidious" nature of the healing that occurs on the MP. That is, you suddenly recognise or acknowledge that a subtle improvement has occurred, something you tend to take for granted when it has actually not been present for the duration of the illness.
Jason also now seeks out his older brother to play and is starting to cautiously venture out and approach other children, though ever so slowly.
I suppose I cannot rule out improvement that would have occurred without the MP as ASD children apparently do well and even recover without medical interventions – see pubmed: Can children with autism recover? If so, how?
Of course, Jason has a very long way to go and whether he is cured or comes close to a cure appears to be a long way off. It seems like he will be on the MP meds for the estimated full length of time estimated for MPers to recover – Trevor has stated that it will take 2-5 years.
I have a strong belief in the theory (though still not shared) but I do worry that his sun and light infractions may be slowing progress.
As we don’t know the nature of the microbiota we are dealing nor have any clinical precedents, I guess it is just impossible to know ahead of time whether Jason can recover or do well. We do know that Jason’s disablement has been very profound, in terms of his very low functioning, even compared to his autistic peers, and this suggests to me a very pathogenic mictoibiota in terms of the effects they have had and are still having on Jason’s functioning. I also know from a laboratory screen done many years ago on a limited number of CFS adults and autistic children that his likely intracellular bacterial burden has been extremely high (see an early post on Tim Roberts’ work). I hang onto this as an objective measure of the degree of difficulty we are dealing with.
I think there is slow and steady progress – certainly no regression – and allied to a belief in Trevor’s science and prognostocations, this gives me hope, despite the length of time it is taking for more obvious signs of a cure to present themselves.
John
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Dad of Jason 13 yrs ASD. Chronic infection evident from abnormal urinary amino acids, as found by the Uni of Newcastle, Australia. Benicar 40 mg QW8H from 7 Apr 07. Phase 3 from 28 June 08. Part covered up, sunscreen 25D 10 (08/09) 22 (02/10)
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BARNEY
Moderator
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Posted: Tue Jan 27th, 2009 00:53 |
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What a truly wonderful report!!!! We are so happy for your family and especially for Jason (who seems to be calming so great). I read all your reports to my husband and he compares them to my healing. Jason definitely is healing...the extent we will see...but I just know it will be great.
I am so thankful for your posts, they will help others who follow.
HANG IN THERE, WE WILL MAKE IT!!!!BARNEY
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar40/20mg&xtra
as needed,stage5,
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expate
Member in Phase 3
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Posted: Tue Jan 27th, 2009 02:05 |
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Just to let you know I do follow Jason's progress and appreciate your dedication.
Odette
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Hypervitaminosis D 1,25-D 52 pg/ml, 25-D 38 (4/08), 25-D 34 (8/08), 25-D 29 (10/08), 25-D 14 (3/09), 25-D 15: D3=15, D2<4 (6/09): all ng/ml, started Ph1 7/17/08, Ph2 11/4/08, Ph3 2/18/09. Covered up, but no facemask any longer. NoIRs. Home low light.
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healingjason
Member in Phase 3
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Posted: Mon Feb 23rd, 2009 22:20 |
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Cause for great hope?
We celebrated Jason’s 12th birthday a few days ago and we were thrilled to see him react so excitedly to the extended family singing ‘Happy birthday’ around him with the birthday cake in front of him. I had feared he would be oblivious to the occasion (as he has always been) and that he would not know how to blow the candles out.
I need not have worried. Not only did he blow the candles out with great gusto but he positively beamed with delight at all the attention he was getting. So much so that we went through the ritual again, much to his and all our enjoyment! Our best birthday celebration ever.
Later on we all rode our bicycles around the yard with Jason in pursuit squealing delightedly and then taking his turn to ride around too – he can balance but has to yet to master how to apply the brakes – he uses his feet.
While he has yet to utter a word he continues to respond more and more to people and this gives me hope.
John
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Dad of Jason 13 yrs ASD. Chronic infection evident from abnormal urinary amino acids, as found by the Uni of Newcastle, Australia. Benicar 40 mg QW8H from 7 Apr 07. Phase 3 from 28 June 08. Part covered up, sunscreen 25D 10 (08/09) 22 (02/10)
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Freddie Ash
Member in Phase 3
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Posted: Mon Feb 23rd, 2009 23:30 |
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HI JOHN
This is Fred in WV. Thank you so much for posting this great report on Jason. I believe the MP it the only way to go and the only hope we all have with all these TH1 diseases. Keep up the good work John and keep on reporting to us about Jason.
Remember, we are all in this together and I am pulling for us.
Your friend in Sarcoidosis
Freddie
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Freddie: dx-sarc 2/82 lymph; skin, eyes, joints, esophagus, intestines, spleen, heart,lungs-meds digitek, L-thyroxine, nexium, furosemide, nattokinase36mg,eat cinnamon w/meals,25D-7; 125-D43
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BARNEY
Moderator
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Posted: Tue Feb 24th, 2009 01:51 |
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DITTO!!!!
I love reading your posts of Jason's progress....what a wonderful birthday party.
HANG IN THERE, WE WILL MAKE IT!!!BARNEY
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar40/20mg&xtra
as needed,stage5,
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healingjason
Member in Phase 3
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Posted: Sat Jul 25th, 2009 04:29 |
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I know many folk are interested in Jason’s progress and I am happy to report the (written) ‘General Comments’ of his teachers as follows -
Jason has settled well into Room 14. Initially he was distressed at times but is now much calmer and happier. Jason has been relating well to staff and other students and is a valued member of the class. Jason has been concentrating very hard on his work tasks and is progressing well in all areas. Well done Jason!
While Jason has yet to utter a word he understands quite a lot (he continues to surprise us). It is totally vexing (and disappointing) that he cannot develop any speech when he is keen to communicate in many different ways, albeit relatively limited to requesting such things as food, assistance with the DVD player and wanting a rough ‘n tumble play etc.
I suppose we have to be thankful that he is at peace with the world and himself and, absent this, he would, presumably, not have a platform to want to develop a greater understanding of the world around him and, hopefully, one day, learn to speak and socialise in more complex ways than he does now.
He is developing simple living skills at home and is especially interested in cooking and food preparation. However, he is blissfully ignorant of so many things - which is a blessing of sorts.
I am keenly awaiting Jason’s 25D blood test results to see if his progress is being limited by too much ingested vitamin D. I expect to get those results in a few days.
John
PS Jason has had a slight runny nose for many days now but he does not seem to have a cold. If he has, it is very mild. We are still in winter Down Under. As I have often discused, I wonder if this is more likely IP symptoms.
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Dad of Jason 13 yrs ASD. Chronic infection evident from abnormal urinary amino acids, as found by the Uni of Newcastle, Australia. Benicar 40 mg QW8H from 7 Apr 07. Phase 3 from 28 June 08. Part covered up, sunscreen 25D 10 (08/09) 22 (02/10)
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Sue from St. Louis
Member in Phase 2
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Posted: Mon Aug 24th, 2009 05:14 |
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As an educator for 40 years, I am interested in your son's progress. The rate of autism is increasing dramatically. Why aren't you following the correct medications and all of the MP directions? Any progress you think you are seeing can't be a result of MP when you don't give Jason the MP meds as prescribed.
Does anyone in Jason's families have a Th1 disease? My grandson was diagnosed with ADD (attention deficit disorder). I have sarcoidosis and his mother (my daughter) has CFS and lupus symptoms. We've both been on MP for some time, but I've had to go very slow to control the IP as I know I have a very high bacterial count. As I've put the puzzle pieces together, I'm sure I've had the bacteria since I was a child.
Looking forward to your response.
Sue from St. Louis
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Sarcoidosis/CNS 1,25D48, D2511, MP 9/06, Ph2 11/07 Benicar 40mg every 6 hrs., Synthroid, Diclofenec, Cymbalta, Wellbutrin, amitriptyline, Lasix (as needed),NOIRs, cover-up, low lux home
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healingjason
Member in Phase 3
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Posted: Tue Aug 25th, 2009 00:56 |
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Sue
You should read the latest posts in the "Jason in phase 3 " thread" - http://www.marshallprotocol.com/forum35/9326-9.html
These discuss Jason's 25D blood level which is low enough to suggest that his compliance with the MP is OK, that is, the sun and light exposure he is getting is not enough to suppress his immune system as shown by a low 25D level.
Jason has always been complying with the dietary restrictions and the meds.
Therefore, his progress can be attributed to the MP (and/or other factors such as maturity or remedial education) and his failure to recover to this point cannot be attributed to non-compliance with the MP. Most likely, his failure to move faster or recover can be put down to his pathogen load.
John
No other family member is known to have Th1 disease at this time. This does not mean that I dismiss the possibility that a family member could have Th1 pathogens, rather, there are no symptoms yet to suggest a recognisable disease in anyone else.
Last edited on Tue Aug 25th, 2009 01:01 by healingjason
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Dad of Jason 13 yrs ASD. Chronic infection evident from abnormal urinary amino acids, as found by the Uni of Newcastle, Australia. Benicar 40 mg QW8H from 7 Apr 07. Phase 3 from 28 June 08. Part covered up, sunscreen 25D 10 (08/09) 22 (02/10)
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