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Aussie Barb Member in Phase 3

| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
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Posted: Thu Nov 4th, 2004 18:56 |
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Aussie Barb on the comeback trail Quercetin saves the day!!
Friday November 5th 5.50 am ish
Benicar: now 12 weeks 20mg now Q3h Day; 40mg @ 9pm 7H
Mino Sept 10th to Oct 3rd: from initial dose of 1.5mg up to 12.5 mg & stop due to no NoIRs: then continuing on Benicar Only.
Good News:
After that 1 dose of Q 250mg yesterday, I have woken feeling more refreshed than I have for the whole Month since last taking the mino 12.5mg!!
* I have known I have very much inflammation.. I could feel far more than my D showed.
* I have always had a problem with the toxicity of attempted treatments. It has been what has stopped me / almost killed me every time!! The Benicar has been my Protector this time.... but....>>>>>>
Quercetin has been My Lifesaver!!! a month after the last dose of mino it has saved me...
from Aussie Barb's Progress Report Page: 5 6
____________________ Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Lilly Guests visiting Phase 1/2/3

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Posted: Fri Nov 5th, 2004 15:16 |
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Hi Barb,
I'm glad you found some relief. I also use quercetin and find it helps a lot.
Best wishes,
Lilly
____________________ ME/CFIDS Prozac Wellbutrin Trazadone NADH.Noirs avoiding D,sun from07/04;25D=36;Ph2 restart Sep06. Ph3 03/07
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GeorgeinRollaMO Member in Phase 3

| Joined: | Tue Aug 10th, 2004 |
| Location: | Rolla, Missouri USA |
| Posts: | 492 |
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Posted: Fri Nov 5th, 2004 16:44 |
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Ladies, you have inspired me to take Q just before going to bed at night to see what effect that has with my leg spasms. Last night was one of my worse nights for spasms. I did drink a glass of red wine at supper, which I have thought to be an offending food. I will report the results. Thanks! George
____________________ Borreliosis:7/14/04--125D=57,25D=61. Ben 9/1/04. Mino 10/5/04. 4/13/05--125D=58,25D=43. 8/17/05--125D=52,25D=36. April 06=125D=38,25D=29. 8/29/06--125D=37,25D=29. June 07 25D=23. Oct31'07,25D=19.
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Aussie Barb Member in Phase 3

| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
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Posted: Fri Nov 5th, 2004 17:50 |
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Hey there Lilly & George, thanks for posting 
I took another 1 Q only - yesterday... was all I needed.... and I feel like a human being again... a feeling I had forgotten....
as Big John said to me, "Take some time now to smell the roses" ..... thanks John, it IS good.
My husband said "I'm pleased you're feeling good."
well .. I'm not feeling *good* but this much is better. 
Barb....
____________________ Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Reenie inactive member
| Joined: | Wed Jul 21st, 2004 |
| Location: | Phoenix, Arizona USA |
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Posted: Fri Nov 5th, 2004 18:06 |
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Hi George,
As for your leg spasms, I know how troublesome they can be, as does Meg. I used to get them horribly and everytime I read about yours, I can almost feel them again. 
I used to try to associate them w/something in my diet, (noticed you've mentioned that too) but now, when I look back, it was always after (time delay) I spent a day out in the sun, such as riding my Harley. 
I would try to blame it on either diet or being upright for too long, or maybe a circulation issue or even losing potassium due to being out, but I can clearly see now, how the sun was the culprit, via Hypervitaminosis D.
I'm saying all of this to you, since as I read thru your progress posts, the spasms seem to occur the worst for you, after you've gone back out in the daylight, for a time. Remember, there's a time delay of about 6-8hrs.
Note: this increase in sxs from the sun feels like a herx, but it's not.
Please also be aware, that if you add Q at a time when you've had too much sun, the Q will, most likely cause you to feel sicker, (dizzy, sweats, nauseated) like it did, me, when I tried adding Q after sun exposure.
Barb is already diligently cave dwelling, so she wouldn't have this problem. Last edited on Fri Nov 5th, 2004 18:11 by Reenie
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GeorgeinRollaMO Member in Phase 3

| Joined: | Tue Aug 10th, 2004 |
| Location: | Rolla, Missouri USA |
| Posts: | 492 |
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Posted: Sun Nov 7th, 2004 02:37 |
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Hi, All, and Thanks, Barb, for starting this thread!
I took one Jarrow Q-500 last night at midnight with my Benicar, then went to bed and asleep. I had no leg spasms during the night! I had to get up about every hour to an hour and a half to pee, but did not have a leg spasm until I awoke around 8:20AM, stretched my legs while in bed. That stretching triggered spasms. But they did not get up to more than maybe a 4 or 5 in intensity, and for just a very short duration. If I had to have spasms, I'd take that every night as compared to the previous night or many previous night's. After, the 8:20AM deal, I went back to sleep until 10:30AM, got up, ate breakfast and fed my parrots, took my noon Ben with another Q, then fell asleep around 1PM until just minutes before 5PM... with no spasms. I would say I definitely was herxing!! And still feel like I am herxing at 9:30PM now. I am one groggy person! I upped my mino to 6 mg yesterday at 4:10PM. The evening was good, no inkling of a herx. But wow! today. When I did 4.5 mg previously, I could feel it, and the herx was a little bothersome, but when I do 6 mg, look out... Caty sure lowers the boom for me. Thankfully, there is no pain like a muscle spasm like my wife gets when she has herxed in the past. I am going to do another Q tonight. Will report on this thread.
I took in all your advice Reenie about the light and rising 125D. Perhaps, I am not paying as close attention as I should. However, I do not think the hardest spasms hit the night after I have been outside. I think that I will start logging my time outside better than I have been doing. If anything, the delay is much longer than 6-8 hours that you mention. I do appreciate your input. It makes me think!
No jokes tonight! George
____________________ Borreliosis:7/14/04--125D=57,25D=61. Ben 9/1/04. Mino 10/5/04. 4/13/05--125D=58,25D=43. 8/17/05--125D=52,25D=36. April 06=125D=38,25D=29. 8/29/06--125D=37,25D=29. June 07 25D=23. Oct31'07,25D=19.
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Aussie Barb Member in Phase 3

| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
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Posted: Sun Nov 7th, 2004 03:11 |
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News on My Quercetin Story...
Sunday November 7th 4am ish
Benicar: now 12 weeks 20mg now Q3h Day; 40mg @ 9pm 7H
Mino: Sept 10th to Oct 3rd: from initial dose of 1.5mg up to 12.5 mg & stop due to no NoIRs: then continuing on Benicar Only.
Despite a lot of enquiring I was never able to find a source of Pure Quercetin in Australia yet. (so if anyone does find a source? please let us all know. thank you so I have had this quercetin combination supplement (no bromelain) that I had kept up my sleeve, not sure if I would even or ever *really* use Q. & not wanting to use this one particularly, except emergency, because it is not Pure.
Eventually, in this last couple of weeks I have ordered Pure Q from US, Reenie sent thank you and have been awaiting it's arrival to take more mino.
I didn't take any Q yesterday (afternoon would have been 24 hours). I am an experimenter / observer. I watch & wait to see what happens. I was tired yesterday, and by last night really seemed to be heading back to yukksville. & here I was hoping to smell the roses as Big John had suggested.
I had slight feeling of facial tic but not visible. At bedtime I was *sick*& downhill, > took the Q. have slept soundly between wakefulness. I'm up here @ 3 am typing this. bright as a button.
Meg said to me 2 days ago "I suspect that you are going through a period of severe Herxing. You can try to add a small amout of mino. I, and others, have reported feeling better with mino on board than when we took a break from it." << thank you Meg x
Despite relief from taking Qx1 x 3 days - My body signs are telling me that yukksville ? herxville is still with me. the toxicity signs including itching, tiredness, brain sx.
The gut inflammation is a constant, but not acute at the moment like it had been. I feel it as a *sick, full* inflamed feeling in the gut.
I can bear this, & the Q gave relief, but the underlying situation is not changed. why should I bear it, (& everyone else bear me)? today I plan to take the small dose mino. ........
My new posting begins>> @ Aussie Barb mino again
but this thread continues for George & anyone else interested 
____________________ Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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GeorgeinRollaMO Member in Phase 3

| Joined: | Tue Aug 10th, 2004 |
| Location: | Rolla, Missouri USA |
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Posted: Sun Nov 7th, 2004 16:16 |
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Wishing you an easy herx, Barb!
I took the Q again near midnight, and had no leg muscle spasms last night for the second night in a row now. Boy! is it ever great to not have those spasms. Felt like a million this morning for about three hours. Then, the herx seems to be returning.
George
____________________ Borreliosis:7/14/04--125D=57,25D=61. Ben 9/1/04. Mino 10/5/04. 4/13/05--125D=58,25D=43. 8/17/05--125D=52,25D=36. April 06=125D=38,25D=29. 8/29/06--125D=37,25D=29. June 07 25D=23. Oct31'07,25D=19.
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Reenie inactive member
| Joined: | Wed Jul 21st, 2004 |
| Location: | Phoenix, Arizona USA |
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Posted: Sun Nov 7th, 2004 23:10 |
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George,
I'm glad the Q is helping and you're logging sun exposure.
Both herx and sun will cause a rise in 1,25-D, so you can get a double whammy. 
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