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texlauras baja fan
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Posted: Thu Jun 5th, 2008 11:23 |
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Started beni 5/5/08 Added mino 5/23/08
MP meds: Beni 20mg q 6 hrs; incr to q 4 hrs w/ unavoidable sun exposure; Mino 25 mg qOd
Palliative non-MP meds used: Tylenol, zyrtec
Light exposure: Our general norm (in car for errands, changing locale, church, etc about 4x/wk for an hr or so, well covered and w/ noirs), and extra this wk for an outdoor wedding and related family events
Symptoms: h/a 4, fatigue 3, joint & muscle pain 3, irritability 3
Comments: the transition to mino has gone quite smoothly, with all symptoms manageable … actually doing better than with just beni alone. Being in the sun results in irritability (of course), but zinc cream is helping. It’s getting hot now, for the fully covered up clothing, but we’re still doing it.
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(Mom of 10 yo, on his behalf; 64 lbs) Borelliosis/Lyme, migraines, asthma, food & envir allergies; initial 1,25D=58, 25D=19 Apr08; beni May08; ph2 July08; ph3 Mar09; Noirs, low lux home, covered up; 25D=10 Mar09; lite exp r/t school
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Aussie Barb
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Posted: Thu Jun 5th, 2008 22:24 |
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Thank you for letting us know you have started minocycline. Please review the information threads pinned to the top of this forum so you will be able to independently locate answers to frequently asked questions. See What should I know about Minocycline?
During Phase One you will learn to identify your immune response symptoms and manage all aspects of the MP....avoiding natural light and vitamin D, getting adequate rest, pacing activities, eating well, using palliative meds appropriately and managing the immune response by adjusting Benicar and minocycline.
Don't ramp up until you are able to tolerate a symptom increase unless experience tells you that an increase would dampen intolerable symptoms. See When to increase antibiotics
An increase in any symptom that correlates with MP therapy is probably due to immunopathology. These symptoms can be controlled by adjusting MP medications and using palliative meds as needed.
Let us know how it goes......... all best, Barb ..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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texlauras baja fan
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Posted: Sun Jun 15th, 2008 06:36 |
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Started beni 5/5/08 Added mino 5/23/08
MP meds: Beni 20mg q 6 hrs
Mino increased to 50 mg qOd a few days ago
Palliative non-MP meds used: none
Light exposure: our normal amount (some days almost none, some days out for errands, church, etc)
Symptoms: fatigue 4, joint & muscle pain 4, crying spells 3
Comments: some increase in pain and fatigue, with the higher dose of mino, but nothing unmanageable
noted thank you.
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(Mom of 10 yo, on his behalf; 64 lbs) Borelliosis/Lyme, migraines, asthma, food & envir allergies; initial 1,25D=58, 25D=19 Apr08; beni May08; ph2 July08; ph3 Mar09; Noirs, low lux home, covered up; 25D=10 Mar09; lite exp r/t school
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texlauras baja fan
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Posted: Tue Jun 24th, 2008 21:24 |
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Started beni 5/5/08 Added mino 5/23/08
MP meds: Beni 20mg q 5-6 hrs (q 4 hrs on days with more sun exp)
Mino 50 mg qOd
Palliative non-MP meds used: none
Light exposure: our normal amount (some days almost none, some days out for errands, church, etc)
Symptoms: fatigue 2, joint & muscle pain 4 (has a sore shoulder right now), crying spells 1
Comments: a good week, with more frequent beni taking care of the IP pain. Had one exceptionally good day, and will increase mino in 2 days.
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(Mom of 10 yo, on his behalf; 64 lbs) Borelliosis/Lyme, migraines, asthma, food & envir allergies; initial 1,25D=58, 25D=19 Apr08; beni May08; ph2 July08; ph3 Mar09; Noirs, low lux home, covered up; 25D=10 Mar09; lite exp r/t school
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Posted: Thu Jun 26th, 2008 09:36 |
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Based on your report of tolerable symptoms, you could increase mino to 75mg. See How To Identify Immunopathology (Herx) and How to assess symptoms. Finding the pace of therapy that works for you is part of the experience gained throughout the MP journey.
Ramping too quickly is not advised but there is no need to tarry. You will gain confidence in your knowledge of the actions of your immune response and when to increase as you get more experience in independently adjusting the MP meds.
Let us know how you are doing........
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texlauras baja fan
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Posted: Fri Jul 4th, 2008 19:52 |
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MP meds: Beni 20mg q 4-5 hrs
Mino 75 mg qOd
Palliative non-MP meds used: none
Light exposure: our normal amount (some days almost none, some days out for errands, church, etc)
Symptoms: fatigue 2, joint & muscle pain 3, crying spells 1, h/a 4 (once when we were late w/ beni dose, but it resolved quickly)
Comments: no significant change in symptoms, w/ incr in mino dose; good energy level and attitude
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(Mom of 10 yo, on his behalf; 64 lbs) Borelliosis/Lyme, migraines, asthma, food & envir allergies; initial 1,25D=58, 25D=19 Apr08; beni May08; ph2 July08; ph3 Mar09; Noirs, low lux home, covered up; 25D=10 Mar09; lite exp r/t school
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natalie17
Moderator
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Posted: Sat Jul 5th, 2008 07:34 |
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In phase one, it's a good idea to experiment with minocycline and Benicar to see how they work for you. Extend the mino dosing schedule to every 72 hours to see if symptoms are dampened or if more immunopathology is provoked.
And conversely, when symptoms peak (not necessarily intolerable), reduce the mino dose to see if that dampens symptoms. You could also try taking lower dose minocycline every six or 12 hours (25mg every 6 hours or 50mg every 12 hours or a daily dose of 25-50mg) to see if this dosing has an anti-flammatory effect for you.
When a symptom approaches intolerable try an extra Benicar, both oral and sublingual. If that is not effective, increase to every four hours around the clock (set an alarm) to see if that measure is effective to quell the symptom.
The resulting information can be added to your personal tool kit. You will gain experience adjusting MP meds to maintain tolerable immune system reactions. This skill will carry you smoothly through the protocol; when you have learned to manage on a day-to-day basis, you will be equipped to handle a crisis if it occurs.
Let us know how the experimenting goes...........
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CFS/ME| Inderal Clonazepam OC Protein Powder Calcium| Sept06 1,25D=75 Dec08 25D<4.4| avoid light D, NoIRs, pretected when out | Ph2-Feb08 | ABCofMP
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texlauras baja fan
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Posted: Sat Jul 12th, 2008 04:55 |
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MP meds: Beni 20mg q 4-5 hrs
Mino 75 mg qOd (to increase to 100mg tomorrow)
Palliative non-MP meds used: none
Light exposure: our normal amount (some days almost none, some days out for errands, church, etc -- always well covered, which is getting much HOTTER  ).
Symptoms: all were holding steady at about a 2, until he & twin brother were feeling so good they started doing strenuous exercise in the house ... then we saw a hike in symptoms, up to: fatigue 4, joint & muscle pain 5, crying spells 5 (no h/a's this week). We squashed the exercise and things went back to the 2 range. They're sort of learning to self-regulate activity levels, but we have to remind them to slow down some.
Comments: We're pleased with the progress! Good to see my boys with energy and wanting to run and jump, even though it's clear they can't take too much of it yet.
Plan: Request ph2 guidelines
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(Mom of 10 yo, on his behalf; 64 lbs) Borelliosis/Lyme, migraines, asthma, food & envir allergies; initial 1,25D=58, 25D=19 Apr08; beni May08; ph2 July08; ph3 Mar09; Noirs, low lux home, covered up; 25D=10 Mar09; lite exp r/t school
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IngeD
Moderator
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Posted: Sat Jul 12th, 2008 05:08 |
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Thank you for posting. It is time to consider Phase 2:
Please see How do I know if I'm ready for phase two? for information on how to request the questionnaire. Please send for it asap so there will be no delay in your progression to phase 2. When you see or call your doctor, be sure to ask about the tests you need to monitor your progress on the MP.
Before you commence the next phase, please post in the Phases Two and Three forum so we can discuss the details of your next antibiotic. We look forward to welcoming you there when you have received a response to your completed questionnaire
Kind Regards, IngeD
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Rickettsiosis per neurop chron bronch adhesions IBS pre-diabetes HTN 125D51 Ph1Jan07 25D26.4(Dec06) 25D12.8 (Jun07) 25D8.4 (Jun08)25D6.4 (June09) NoIRs limited outings covered lo lux home Ph3
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texlauras baja fan
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Posted: Mon Jul 21st, 2008 05:30 |
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MP meds: Beni 20mg q 4-5 hrs
Mino 100 mg qOd
Palliative non-MP meds used: none
Light exposure: our normal amount (some days almost none, some days out in the car, always well-covered)
Symptoms: fatigue 3, joint & muscle pain 2, crying spells 1, h/a 1
Comments: pretty uneventful week, with few noticeable symptoms and continuing to have good energy level and attitude. Overall better than he’s been in years (as long as he avoids sun/lights and doesn’t exercise too much). Thank you Dr. Marshall and co! And all the sacrifices are worth it.
Plan: to see MP doctor next week and begin ph2 soon
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(Mom of 10 yo, on his behalf; 64 lbs) Borelliosis/Lyme, migraines, asthma, food & envir allergies; initial 1,25D=58, 25D=19 Apr08; beni May08; ph2 July08; ph3 Mar09; Noirs, low lux home, covered up; 25D=10 Mar09; lite exp r/t school
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texlauras baja fan
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Posted: Thu Jan 15th, 2009 04:55 |
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Here's some history, about how we got through the earlier stages of Phase Two:
Posted: Sat Jul 26th, 2008 04:43
Palliative non-MP meds used: none
Light exposure: 2 days for commuting (under 1 hr/day); 2 days for doc appts/errands (2-3 hrs/day)
Symptoms: fatigue 3, joint & muscle pain 2, irritability & crying spells 5 (only got bad 1x, which was today), h/a 1
Comments: moderators and doc have given OK for ph2
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Posted: Fri Aug 8th, 2008 05:45
Palliative non-MP meds used: none
Light exposure: trip out of town for doc’s appt, very hot & sunny, 4-5 hrs/day x 2 days; 5 days for commuting, in past 2 wks (under 1 hr/day); 2 days for church; other days almost none.
Symptoms: fatigue 5, joint & muscle pain 4, irritability & crying spells 4
Comments: tolerating new antibx OK thus far; biggest change is he mentions feeling tired more often, and some transient pains. I inadvertently waited 12 days instead of 10, to begin cycle 2 (needing to get more organized with 3 of us beginning ph2 …). No h/a's in a LONG time, which is a huge blessing!
Plan: keep going with the ph2 cycles; he’s in good spirits.
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Posted: Sun Aug 24th, 2008 01:13
Palliative non-MP meds used: none
Light exposure: commuting for childcare, errands, church - 6x in 2 wks (1-2 hrs/day); started school, part-time schedule with accommodations – 3 days; other days almost none.
Symptoms: fatigue 5, joint & muscle pain 4, nightmare 6, irritability & crying spells 4
Comments: Started 4th grade this week, after MP doc gave OK for part-time attendance (3 half-days), with reduced light classroom, constant Noirs, & no recess or PE. Will attempt to stay up to speed with full curriculum via homework. Trying all this out at a new school for us, the public elementary in our small rural town. Had been in a private school in nearby larger university city before, but the principal there was reluctant to try part-time attendance (due to nature of their curriculum, mostly group work). Public school has been quite accommodating thus far, with doc writing necessary orders. This has been a stressful and emotional transition, but we’ll hope for the best. (We couldn’t do home-schooling, b/c of my health and energy level).
Plan: see how it goes with school; will pull back more if he’s not tolerating it. His attitude is good, as usual.
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Posted: Thu Sep 4th, 2008 23:25
Palliative non-MP meds used: none
Light exposure: attending school 3 half-days per week (w/ noirs, reduced light, covered up, K cream); 15 min commute each way; other days none.
Symptoms: fatigue 5; irritability & crying spells 5; sleep disturbance & nightmares 5; joint pains 3
Comments: He complains of being tired a lot after going to school. He’s also moodier and doesn’t sleep well on those nights. Nightmares are becoming more bothersome. I’ve also noticed a trend of him having ‘breakdowns’ about 4-6 hrs after taking the mino.
Plan: If too symptomatic from school, we may have to reconsider the home-schooling option. We’re giving it one more week, before deciding.
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Posted: Tue Sep 16th, 2008 13:09
Palliative non-MP meds used: none
Light exposure: attending school 3 half-days per week (w/ noirs, reduced light, covered up, K cream); 15 min commute each way; trip out of town for doc yesterday (few hrs in car); other days none.
Symptoms: fatigue 5; irritability & crying spells 5; joint pains 3
Comments: increasing antibx went fine. Sleeping better than he was before; still just crankier than usual (seems to be sun-related & sometimes presents more as hyperactivity).
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Posted: Sat Sep 27th, 2008 15:42
Palliative non-MP meds used: none
Light exposure: school for 5 hrs, x2 days each week (w/ noirs, reduced light, covered up, K cream); in car for school, childcare, errands, etc (30-45 mins, several days/wk); other days none.
Symptoms: hyperactivity and irritability 5; crying spells 5; sharp pain in joints (only a few times) 4; vivid/disturbing dreams 4; fatigue 4
Comments: showing some signs of stress and not enough rest, due to school and some busy family schedules, namely more “melt-downs” with crying, negativity and arguing with brother (which is out of character). Also, seems to get hyper and wound up more, rather than fatigued (although still complains of feeling tired at times).
Plan: inadvertently went 2 days between mino doses once this cycle, making it 11 days long instead of 10; will move to cycle 3 tomorrow. Will work on earlier bedtimes and more resting time during the day.
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Posted: Sun Oct 12th, 2008 02:19
Palliative non-MP meds used: none
Light exposure: school schedule has changed to 2 hrs/day x5 days/wk (fully covered, noirs, K-cream); 15 min commute each way
Symptoms: crying spells 6; fatigue 6
Comments: his fatigue has been more pronounced on some days, interfering with things he enjoys (like playing with visitors). His crying spells have also been worse. All signs of IP, I guess.
Thanks Aussie Barb, for the feedback. 25D was redone in Sept & came in at 23. I'll add to signature line.
Our local public school had been making accommodations for us, following MP doc’s orders for p/t attendance, noirs, etc. Then school wanted to put a more formal accommodation plan in place (federal 504 law, with many steps/hoops involved), demanding we get a 2nd opinion from a local doc and let him write the accommodations. School became more and more clear about not wanting to participate in any “alternative medicine” treatments, and after much discussion with them, our attorney, appropriate advocates, etc., we decided NOT to pursue the 504 process. Instead we changed our enrollment to p/t based on certain subjects (not medical reasons), which is why we must now attend 5 days/wk. This p/t enrollment is an option designed for home-schoolers, and we will home-school for the other subjects. School is still allowing the essential Noirs, and teachers close blinds and allow boys to keep their backs to windows. Has been an interesting process, to say the least.
Plan: Will see how this school schedule works and stick it out until end of semester in Dec. Then may go to all home-school in Jan, if needed. Getting a bit more rest now (since classes are in afternoon), which has helped.
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Posted: Fri Oct 31st, 2008 01:15
Palliative non-MP meds used: chloroseptic throat spray
Light exposure: school 2 hrs/day x5 days/wk (fully covered, noirs, K-cream); 15 min commute each way; weekend activities in partial sun and with commuting, 1-2 hrs x3
Symptoms: irritability and anger episodes with out-of-character behavior like shouting, talking back, being intentionally unkind to brother, and crying uncontrollably 7; fatigue 4; brief headaches 4; caught a cold with sore throat, runny nose, etc (along with everyone else in our area, then made a good recovery in a few days) 5
Comments: the anger episodes have happened about 5x in 2 ½ wks. It’s been a challenge, since none of our previously helpful methods of calming him down have worked. So, the episodes drag on, for 45 mins to over an hour – too long to be out of control. The 2 worst episodes were after weekend activities with significant sun exposure, but other times I couldn’t necessarily peg it down to the sun. So, I’m wondering if any of this is IP (in addition to the sun). Our current school schedule may be too much, and I’m learning that we’ll need to spend the entire weekend inside (which is difficult), to recover from the school week.
Plan/Question: Just in case this is IP, I thought of (slowing down rate of antibx increases). I just don’t feel great about making an increase, when he’s having this much trouble. Any feedback appreciated!
P.Bear R.N. wrote: Laura, With his level of IP/versus sun flare I would not move up antibiotics but might reduce them slightly to see if this helps.
best, P.B
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Posted: Tue Nov 11th, 2008 22:37
Palliative non-MP meds used: none
Light exposure: school 2 hrs/day x5 days/wk (fully covered, noirs, K-cream); 15 min commute each way; 2 extra hrs of being out on Friday, due to childcare issues
Symptoms: big mistake on our part – lost the benicar blockade (10 hrs between doses, then kept dosing q 5hrs, before realizing what had happened), then had a BIG problem on Saturday with crying, rage, shouting, & great difficulty calming down, which lasted about 90 mins – 9; fatigue –5; day-to-day irritability – 6
Comments: same as brother’s about the melt down (see his post), but he was a bit worse. And his moods and fatigue are a bit worse, too, from day to day. Generally it’s all tolerable, but I can see he’s not himself …
I had proceeded with a small increase in antibx, before reading PB’s advice (after last post). My bad, and maybe that’s part of the problem …
Plan: get some input from doctor and moderators, before proceeding.
P.Bear R.N. wrote: Laura, I would not try to push too hard on increasing the ph2 antibx; but would cut back a bit whenever things get too hairy. The boys will still be making progress even at lower dosing and are making excellent progress by even being at this level so soon.
best, P.B.
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December 12th 2008:
MP meds: Phase 2 meds
Beni 20mg q 4-5 hrs, extra SL 10mg about 2x/day
(before and after school), & up to 4-5x/day when symptomatic
Palliative non-MP meds used: none
Light exposure: school 2 hrs/day x5 days/wk (fully covered, noirs, K-cream); 15 min commute each way; occasional brief outings on weekends, always covered
Symptoms: occasional moodiness, irritability, and crying – 5; fatigue – 5; mild headaches (2-3x) – 4; occasional joint pain - 4
Comments: doing much better, and on an even keel for the most part. ‘Hard to believe a month has passed since the boys’ last post (sorry) ... We got on top of the problems we were having, by several means: 1st, we got more aggressive with benicar dosing, at first sign of problems (the mood and behavior issues, mainly). MP doc was persistent in reminding us to handle these outbursts as IP and to TAKE MORE BENICAR, which has helped. Also we slowed down all the ramping of antibx, and cut back (the dose of 1 med) some with baja fan. Lastly, we tried to really investigate the triggers to outbursts, and discovered that light & infrared from TV & computers was probably more of a culprit than the light exposure at school. So, we’ve worked to cut down on electronic box time, tried to have them use Noirs while viewing (a difficult battle), lowered brightness even more on screens, etc. Now things are back to manageable, with normal personalities at play again. Whew … what a relief!
Also, the weather and short daylight hours are so very helpful for living an MP lifestyle! Hooray for the winter solstice  . Both boys are really enjoying school right now, making friends and getting positive feedback from their teachers. Attending from 1-3pm works out well, for resting in the morning and getting ‘just enough’ exposure to peers, formal academics, etc. We’re pretty relaxed with the homeschooling piece, but making steady progress there, as well.
Last edited on Thu Jan 15th, 2009 06:33 by texlauras baja fan
____________________
(Mom of 10 yo, on his behalf; 64 lbs) Borelliosis/Lyme, migraines, asthma, food & envir allergies; initial 1,25D=58, 25D=19 Apr08; beni May08; ph2 July08; ph3 Mar09; Noirs, low lux home, covered up; 25D=10 Mar09; lite exp r/t school
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texlauras baja fan
Member in Phase 3
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Posted: Thu Jan 15th, 2009 04:59 |
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Today's post:
Phase 2 meds
Palliative non-MP meds used: none
Light exposure: school 2 hrs/day x5 days/wk (fully covered, noirs, K-cream); 15 min commute each way; occasional brief outings on weekends, always covered
Symptoms: fatigue 4, occasional moodiness 4, poor stamina 4
Comments: Finally able to tolerate (an antibx increase), with all going well so far. Both boys felt good through the holidays and their 10th birthday. Had a few too many sweets and deviations from special diet, on a few occasions, with some mild symptoms/behavior issues. Continuing to see that too much light exposure from TV and electronics causes irritability, so we’ve bought extra pairs of regular sunglasses to leave lying around in strategic places.
Doc says they seem to be thriving and we agree. School also going fine, and we’re doing some on-line classes now, to supplement the 2hrs/day they go to a regular classroom. Most days they’re in good moods, with positive outlooks.
Plan: Will return back to more regular ramping of antibx, now that things are manageable again.Last edited on Thu Jan 15th, 2009 06:39 by texlauras baja fan
____________________
(Mom of 10 yo, on his behalf; 64 lbs) Borelliosis/Lyme, migraines, asthma, food & envir allergies; initial 1,25D=58, 25D=19 Apr08; beni May08; ph2 July08; ph3 Mar09; Noirs, low lux home, covered up; 25D=10 Mar09; lite exp r/t school
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texlauras baja fan
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Posted: Sat Mar 7th, 2009 16:49 |
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Last two posts:
Feb. 11, 2009 --
MP meds: Level 3 antibx, Cycle 4, Day 10
Beni 20mg q 4-5 hrs; extra SL 10mg PRN (about 2x/day)
Palliative non-MP meds used: benadryl and naproxen for headache pain 1x, zyrtec for allergy symptoms 2-3 x (when around animals or woods)
Light exposure: school 2 hrs/day x5 days/wk (fully covered, noirs, blinds closed on all windows and desk faces away from windows); 15 min commute each way; occasional brief outings on weekends, always covered; occasional sunny areas at dad’s shop while mom is working
Symptoms: headache, which lasted from one afternoon to next morning, 7; muscle & joint pain 3; fatigue 3; moodiness 3
Comments: We’re not really sure where his h/a came from … he hadn’t had one like that since about May, and usually they resolve much sooner. Could’ve been related to extra sun exposure that week at dad’s shop. Also, he needed a chiropractic adjustment (which has always helped with h/a’s). Otherwise he’s been doing just fine, and has tolerated the regular ramping of antibx well.
Both boys really enjoying their new on-line classes, and thriving at their part-time public school (academically and socially). We are letting them ride the bus home about once a week (with hoods up, hats, noirs, etc), to give them more time with friends. And they’ve even walked ‘home’ from school to Dad’s work place (all of 3-4 blocks!) a few times, on cloudy days. They love these opportunities to feel like “normal” kids.
Plan: Keep up the regular ramping
Noted
_____________________________________________________
Today --
MP meds: Level 4 antibx, Cycle 3, Day 3
Beni 20mg q 4-5 hrs; extra SL 10mg PRN (about 2x/day)
Palliative non-MP meds used: zyrtec for allergy symptoms 2-3 x (when around animals or woods)
Light exposure: same as last post
Symptoms: episodes of irritable mood 5, neck stiffness & pain 5, muscle & joint pain 4, mild h/a (only a couple of times) 4, fatigue 4
Comments: after ramping the (ph2 antibx), I saw a recurrence of that ugly irritability we had in the fall. I quickly used more beni, to nip that in the bud. And thankfully we’ve been able to keep ramping the mino, with all things manageable.
Plan: preparing for Ph3; will see doc before starting itLast edited on Sat Mar 7th, 2009 19:40 by texlauras baja fan
____________________
(Mom of 10 yo, on his behalf; 64 lbs) Borelliosis/Lyme, migraines, asthma, food & envir allergies; initial 1,25D=58, 25D=19 Apr08; beni May08; ph2 July08; ph3 Mar09; Noirs, low lux home, covered up; 25D=10 Mar09; lite exp r/t school
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BARNEY
Moderator
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Posted: Sun Mar 8th, 2009 21:33 |
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Texlaura,
Sounds like all is going well, keep up the good work.
It is great that the boys are getting to do some fun things.
HANG IN THERE, WE WILL MAKE IT!!!BARNEY
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar40/20mg&xtra
as needed,stage5,
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texlauras baja fan
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Posted: Sat Apr 25th, 2009 18:34 |
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MP meds: Ph3, Cyc 3, Day 10: (three ph3 meds)
Beni 20mg q 4-5 hrs; extra SL 10mg with most doses (except when sleeping)
Palliative non-MP meds used: none
Light exposure: for p/t school, 2hrs/day with accomodations; daily commuting (about 20 mins each way); and occasional outings for errands, church, family gatherings, library, etc. Always well covered and with NOIRs. Spent one morning visiting old school (about 2 hrs total in very sunny rooms and outside), and felt the negative effects for next 2 days (but had a great time seeing old friends and teachers).
Symptoms: irritable mood 6, fatigue 6
Comments: began ph3 on 3/27. Noticed increased irritability immediately, and began using 30 mg of benicar q 4-5 hrs, pretty much all day (had used 20 mg before, with occasional 10mg PRNs). He also complained about feeling tired much more.
Had lab work done and saw MP doc on 3/16. 25D level great at 10. Some suggestion of liver inflammation, which doc says is disease process &/or IP, with SGOT of 48 and SGPT of 45. Otherwise labs looked good. Osteopathic manipulation by MP doc “felt good” and helped overall.
Attitude is great. Spending lots of time reading. Beginning to do outside activities again at dusk and after dark, now that spring has arrived.
Plan: continue ramping ph3 meds
____________________
(Mom of 10 yo, on his behalf; 64 lbs) Borelliosis/Lyme, migraines, asthma, food & envir allergies; initial 1,25D=58, 25D=19 Apr08; beni May08; ph2 July08; ph3 Mar09; Noirs, low lux home, covered up; 25D=10 Mar09; lite exp r/t school
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BARNEY
Moderator
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Posted: Thu Apr 30th, 2009 02:01 |
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Tex,
Here is some homework for you..please watch the 2 videos and print out the new Phase 1 document since it has lots of new MP info and you can read and reread at your leisure.
The new, updated Phase 1, has links to all phases and stages of MP, there is lots of info that can still help you, here is a link:
http://AutoimmunityResearch.org/phase1.pdf
I will also, give you a link to the the Prague presentation that Trevor just got back from, lots of information to move on saying that the Benicar is more important than the abx.
During the recent Workshop on Clamydial Infection in Prague, Czech Republic, I gave an overview of the therapy which has become known as "The Marshall Protocol." An HD video of that presentation is available at:
http://vimeo.com/4293599
In Prague I also summarized the Science underlying that therapy. The HD video is at http://vimeo.com/4307469
This is a lot of wonderful information. Hope you enjoy it.
HANG IN THERE, WE WILL MAKE IT!!!BARNEY
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar40/20mg&xtra
as needed,stage5,
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