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Aussie Barb
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Posted: Fri Mar 4th, 2005 10:15 |
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Friday March 4th 8.25pm no abx tonight.
Benicar 20mg Q2H day & 40mg night <5H... Q BID
Has been a high herx day: Herxy cough, tight chest managed with Benicar 20mg Q2H all day.. felt more in control this afternoon although still there. skin herx.. always weak, slow physically.. gut inflammation is high. mentally emotionally fine.. nice change..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Sat Mar 5th, 2005 06:28 |
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Saturday March 5th 4.25pm is Q48H no abx tonight, too herxy yet...
Benicar 20mg Q2H day & 40mg night <4H... Q TID
Herx: high herx in morning.. gut feels *punched* altho not painful, just *sick / hit, persistent herxy cough, chest tight. I am amazed at the intensity this can get up, as I havent had known lung symptoms or disease.. .
had to keep Benicar 20mg @ Q2H all day. start coughing coming toward the 2 hours.. sneezing some.
Have needed to increase the Q to quell the anxiety depressive miseries that begin to come upon me when it is *time* for more Q.
have rested and napped..
Dr M says today, re the good news and the bad news:
"In any case, the bad news is that you are likely to have herxing for 18-36 months as you work through the phase 3 antibiotics. The good news is that you have been through the worst of the herx by the end of the first 12 months."
..Trevor..
It is a long time and a big commitment..
I am very thankful for the full management plan that is MP..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Sat Mar 5th, 2005 23:26 |
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Sunday March 6th 9am is Day 3 after abx dose of (mino 25mg + 1/4 new abx)
Benicar 20mg Q2H day & 40mg night <4H... Q TID
I am going to number the days re the abx so I can see better what is happening re the herx..
Mino 25mg daily was not holding me.. was still herxing. after 4th day of daily 25mg mino lung herx was becoming intolerable and had to add the 2nd abx to get to longer schedule.
Day 1 after low dose 2abx a/a was very strong herxing all day. needing both Benicar 20mg Q2H and Q TID to keep chest / cough controlled. need for Benicar re gut herx / gullet burning wakes me.. have to get up for awhile after Beni to let it settle..
Day 2 strong herx controlled more easily with Benicar 20mg Q2H and Q TID anxiety herx returns, controlled by taking extra Q. thirsty: need for Benicar re gut herx / gullet burning wakes me.. have to get up for awhile after Beni to let it settle..
Day 3 is today: still needing both Benicar 20mg Q2H and Q TID to keep cough and anxiety controlled. thirsty: chest still tight.. gut is sick from herx / lighter today. so far.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Sun Mar 6th, 2005 06:56 |
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Sunday March 6th 5pm is Day 3 after abx dose (took same dose of combo mino 25mg + 1/4 new abx 5pm)
Benicar 20mg Q2-3H day Q back to BD today...
The herx had settled as the day wore on. was still needing meds as posted to maintain this..
then this afternoon .... clear!: best I have felt for a long time.. I wouldnt be able to *do *anything, but I feel brighter.. 
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Mon Mar 7th, 2005 09:44 |
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Monday March 7th 7.45pm is Day 1 after abx dose
Benicar 20mg Q2-3H day Q BID...
more comfortable herxing today: needing meds a/a to keep cough managed.
rested napped. tired. feet etc puffy. having a shower exhausts me still.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Tue Mar 8th, 2005 10:29 |
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Tuesday March 8th 8.35pm is Day 2 after abx dose
Benicar 20mg Q3H day Q BID...
mildest herxing ever experienced today.. I was able to be *in it* objectively.. and try to think how capable I am minus the herxing... could I go out more? go to Family gatherings? the answer is yet "No, I am not well enough, not strong enough." I am staying in the cave because I am not well enough to go out of it..
The Beni 20mg @ Q3H was fine.. some in the chest, upper palate so mildly numb transient. gut, mild transient.. a very different day. interesting knowing that bacteria are being killed while the herxing is indeed mild. no anxiety miseries.
I am experimenting with the dosing and timing so will not take abx tonight, to see how much herx on Day 3 as expressed by Dr M as maybe the higher herxing day on the 2nd abx?
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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kgg/mpg
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| Joined: | Tue Oct 12th, 2004 |
| Location: | Arizona USA |
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Posted: Tue Mar 8th, 2005 14:21 |
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Barb, happy to read that you are having a mild herx day. You deserve it!
Best,
Karen
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17 yr old, home bound. VitD1,25=38, VitD25=16
DX: Lyme,CFS, HHV6, EBV, mycoplasma pneumoniae, food allergies, learning difficulties and asthma.Current meds: Singulair, Neurontin, Prilosec, Zantac, Lexapro, Testosterone cream
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anne p
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Posted: Wed Mar 9th, 2005 05:27 |
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Congrats on the good day Barb. So encouraging for you. May you have many more
Question: How does one know whether the herx on the 3rd day of the comb abx is part of the runaway herx or the decaying of abx herx? I find it confusing and hard to understand. 
Anne 
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Sx24years CFS/Lyme/ spinalstenosis abx long term Labs 25D,22-1,25D,23.46(unreliable)MP 7/01/05 PH.1.24/01/05,PH2.5/03/05 stopped MP Sept20 resumed phase1 Jan4/06/ somac40mgday Neurontin 600mg 3xday duatrol3xday imigran50mgprn panadeineforte prn
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Aussie Barb
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Posted: Wed Mar 9th, 2005 08:32 |
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Anne, Thanks...
re: Question: How does one know whether the herx on the 3rd day of the comb abx is part of the runaway herx or the decaying of abx herx? I find it confusing and hard to understand:
A herx is a herx.
:As the mino dose decays, the immune system can kick in, bacteria are killed > herx..
if the immune system kills a large load of bacteria causing the herx to become intolerable, taking another dose of abx will delay the bacteria killing to manage the herx. >>
when you are on mino only, the more frequent mino ie not allowing the abx to decay will delay the bacteria killing. ie. until the body gets *used to* the mino alone.
Adding this particular 2nd antibiotic to the mino has been shown to delay the herx in this situation.. and then herx returns as the antibiotics decay..
Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Wed Mar 9th, 2005 08:46 |
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Wednesday March 9th 7pm is Day 3 after abx dose (took same dose of combo mino 25mg + 1/4 new abx 4pm)
Benicar 20mg Q2-3H day Q BID...
another mild herx day. a little more cough and chest, but managable. very tired, slept a lot today and woke feeling sluggish. feet etc are puffy. body has herxy odor.. milk thistle (with lots of water) is helpful for this and for gut herx..
this less herxing has been like living a song..
I took the abx, and I feel a (very) little *spring* in me.. woohoo.. this is looking better..
gut inflammation flaring at time of reporting. all managable..
Thanks for notes to me.. all best, Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Wed Mar 9th, 2005 08:59 |
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Dr Marshall says : "It is really tough putting your head down and working through the first 12 months of the MP. I think that unless folks understand how dangerous these diseases can be, then there is going to be little hope of success in beating them."
..Trevor..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Thu Mar 10th, 2005 07:53 |
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Thursday March 10th 6pm is Day 1 after abx dose # 3 at this level.
Benicar 20mg Q2H day Q BID...
Began herxing within a couple of hours after abx dose last night.
slept well.
Q2H Beni + Q to keep cough and chest managable. gut inflammation.. some depressive misery today. slept rested most of morning.. brightening this afternoon. herxy body odor. numb hands arms at times.. hips are painful to lie on at times..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Fri Mar 11th, 2005 09:56 |
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Friday March 11th 8pm is Day 2 after abx dose # 3 at this level.
Benicar 20mg Q2H or less day / Q6H night Q TID...
occasional dizzy. is lifting at time of report.
the herx is constant but managable: by taking Benicar 20mg sometimes even short of the Q2H + Q TID to keep me from getting chokey from the coughing. resting relaxing makes a difference to the degree of the constant coughing lung herxing / tickly wheezy tight feel although no actual wheeze...
some transient numbness to palate and even slight sinus drainage once. occasional sneezing. itchy allergy like feeling re nose palate at times..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Sat Mar 12th, 2005 02:31 |
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Saturday March 12th 12.30pm is Day 3 after abx dose # 3 at this level. abx due tonight.
Benicar 20mg Q2H day / Q4H night Q TID...
Yesterday it took me everything I had to keep the herxy cough controlled so that I wasnt chokey..and last night I had a bad time for a while thru the night. and today the Q2H Benicar 20mg is sufficient so far. I could feel the *hurt* in my lungs chest area. still slight dizzy transient. + some very mild transient waves of sinus and palate numbness. a very cute herx symptom.. it is like, *just letting you know I am here killing bugs." and some almost sinus drainage..
also have had some random sneezing and chills / shivers.. and the itchy nose & palate which are old symptoms, that I think of more as disease symptoms than herx.. but they will be the active immune system signs..
also a painful *antbite cramp under arm and into right breast.. a heat bag relieves this one..
all is managable.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Sat Mar 12th, 2005 07:59 |
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Saturday March 12th 6pm is Day 3 after abx dose # 3 at this level. (took same dose of combo mino 25mg + 1/4 new abx 6pm) is dose # 4
Benicar 20mg Q2H day / Q BID...
sleeping a lot today. nose irritable runny. cough herx totally managed by Q2H benicar. can still feel mildly rawish lungs. all fine.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Sun Mar 13th, 2005 06:45 |
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Sunday March 13th 5pm is Day 1 after abx dose # 4 at this level.
Benicar 20mg Q2H day / Q4H night Q BID...
Tired day, resting, napping. low spirits today. cough choke lung herx controlled by B + Q as above. feet etc still puffy. gut inflammation constant. body is working hard..occasional milk thistle.
was able to read the newspaper today. that is an improvement.. Family milestone Birthdays looming this year: there is still no way I am interested in, or can manage *going out* or travelling ... that would be a case of me dragging myself along, and I cannot .. the job I am on at the moment is MP.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Jill T
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Posted: Sun Mar 13th, 2005 14:44 |
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Barb,
I'm so sorry to hear that you are having a down day. I hope you will have a little brightness in knowing that you are such a blessing to all of us! Your constant support and advice and warm hugs are so inspiring! Rest well, and know that we are thinking of you!
xoxoxoxo
Jill
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CFS/ChronicLyme Babesia headaches fatique aching chest pains arrhythmia sob paresthesia GERD dizziness depression years of amox for tonsils| 12/04 25D=23,1,25D=77, 8/05 25d=21.6, 10/05 25d=8| probiotics magnesium PH I 2/05, phase II 3/06
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Aussie Barb
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Posted: Sun Mar 13th, 2005 18:43 |
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Monday March 14th 4.40am is Day 2 after abx dose # 4 at this level.
Benicar 20mg Q2H day / Q6H night Q BID...
Slept well. took Beni 20mg @ 3am which was 6H. cough choke cough lung herx and the sadness herx hit me at the same time... no reason, just herx... I realised that having gone 6H thru the night was too long without the Beni.. that the 20mg wasnt pulling me out of it, so I had another 20mg, and have been up and had a cuppa and my Q to go with the B... the tears and the cough are drying up..
well, there is no doubt that MP is doing it's job.. the herxing and the managing..
thanks to all.. xox
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Mon Mar 14th, 2005 04:20 |
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Just sharing something I think some of us may have in common..
My Relatives are starting to want to know...
"Are you getting better?" "Will you be able to go out soon?" etcc..
I guess it does seem a long time to others..
I have been very sick for a very very long time. For many years, putting on a good face, I dragged MySelf to Family get togethers, - whenever I could manage it .. and, for the last 3 years pre MP, was not well enough to do that much.
Until I can get thru this.. until I truly start to feel better enough to want to and am able to do it for Me, I am quite content to live in the moment and to do whatever it takes to do MP..
Dr Marshall says : " It doesn't matter how long it takes. You have started on a lengthy journey, and the extra pain of speeding beyond a comfortable pace will not yield a comparable reduction in the length of the journey."
&: "In any case, the bad news is that you are likely to have herxing for 18-36 months as you work through the phase 3 antibiotics. The good news is that you have been through the worst of the herx by the end of the first 12 months."
& "It is really tough putting your head down and working through the first 12 months of the MP. I think that unless folks understand how dangerous these diseases can be, then there is going to be little hope of success in beating them."
..Trevor..
from FAQs How long does the Marshall Protocol take?
Why does the Marshall Protocol take so long?
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Jill
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Posted: Mon Mar 14th, 2005 04:58 |
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Hi Aussie Barb, you have made a good point. We always try to hide how sick we are for our families, and eventually we just have to say "enough". I want to do all of those things, but I also want to make progress on MP. If we keep stopping to take care of family business, it may take more than 2 years. And how many times do we have to explain that no, we are not feeling better, yet. In fact we are feeling much worse. But this time there is real hope, which makes a big difference to us, and we can only hope, to them.
I want to visit my mother who is not well and 85 years old, having had to give up her care to my brother (bless him). But they live 7 hours away, daylight driving makes us sick, night driving with headlights has the same effect. I'll probably do it, soon. But know it will cost me a lot, and only the MPers will have a clue how much..
At the rate I've been going, it may take more than 2 years anyway, very frustrating.
Hang in there, as Barney says "we will make it" (bless Barney, too)
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CFIDS20yrs, hypothyroid,iritis, neuropathy, hip joints; 9/11/01 25D32, 1,25D74
benicar 9/11/04 @40/6hr; mino start 10/20/04, now@50mg.
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