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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19444 |
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Posted: Mon Jun 20th, 2005 19:29 |
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Tuesday June 21st 7.30 am. off abx day.
This herx just keeps coming and coming.. amazing..
when I try to tackle anything more than MP, I reach and feel my boundaries.. it takes all my meds to keep me going with the flow at all times.. all managable in this context.
herx is mainly diaphragmic and gut today. and coughing when I was due for Benicar & Q.. resting, tired.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Mary
Member
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Posted: Mon Jun 20th, 2005 20:06 |
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Barb,
I watch your journey with awe and admiration. You have suffered so much for SO long....and during this past year you continue to give to others. I thank you for all you do and pray you will have a breakthrough to better health.
Mary
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Not MP: Chronic Lyme RA. Been ill for 22+ years 8/04 tests D25 47,1,25D 39,CRP 3.3 high.. Benicar for BP only.
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19444 |
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Posted: Tue Jun 21st, 2005 21:50 |
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Wednesday June 22nd 10 am. today abx combo 75mg mino + 1/2 2nd abx @ 48H #11
Thank You Mary... Thank you to All ..
the same story continues.. gut, esophagus, nausea, aching feet, inflamed (no pain) toes, tired. and meds all helping.. and resting..
I have been able to stand for a couple of minutes now if I have to.. that is an improvement in strength.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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DNStog
Member Advocate
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Posted: Wed Jun 22nd, 2005 01:03 |
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Barb,
You are such an inspiration.  I complain because I have no energy to do housework or gardening and you can barely stand and complain little. I will have to rethink my own self pity when you are so much worse. An extra prayer for you tonight.
Hug, hug, kiss, kiss
Donna
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Sarcoidosis/skin, joints, lungs, nerves, Raynauld's, uveitis, hypothyroid, sinus, wt. gain, Peradontal disease, GERD-hiatal hernia, breast ca 11/06, 25D7, Synthroid, Wellbutrin, eye vits, melatonin, Milk Thistle, Quercetin, Rx glacier, cover up, low lux h
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ShrnHml
Guest
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Posted: Wed Jun 22nd, 2005 02:40 |
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Barb.....at last I've found your progress thread.
I kept looking for you under "Full Protocol", but you are in the "with Q" group.
I, too, am amazed by your perseverence in the face of such difficulties. Everyone here owes you so much and sends healing energy your way.
OOO Sharon
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Neuroborreliosis, MP 3/05, 1,25D 62; 3/06 25D<4, ModPh2 12/05, Premarin, Effexor, stopped Benicar 1/07....no longer in study
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
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Posted: Wed Jun 22nd, 2005 02:50 |
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Thank You Donna, Sharon, All...
I need to explain that although I either sit or lie down mostly that I dont feel to be in any difficulty.. I do have a good husband to do what needs to be done.. and I am truly content... and as I can do better I will do better.. I went thru a lot to come to terms with CFS in the early years but I guess it has stood me in good stead now.. I am scared to say that.. as I am so weak by myself. It is only with wonderful support that I am able to be at peace. Thank you. Barb ....
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
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Posted: Wed Jun 22nd, 2005 06:07 |
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6pm abx day
A herxy day for day 1 and for being at same level for 11th dose..
Today I have needed to take the Benicar Q4H for gut, coughing and emotional herx..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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CLefelt
Member in Phase 3
| Joined: | Sun Oct 24th, 2004 |
| Location: | New Jersey, USA |
| Posts: | 318 |
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Posted: Wed Jun 22nd, 2005 14:16 |
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Barb,
I'd just like to comment on your incredible patience and optimism, while dealing not only with yourself but also with MPers. Sometimes the same questions get asked again and again, and you never fail to be welcoming and supportive.
I hope you understand deeply how appreciative and admiring we are!
Carol
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Lyme Bartonella CFS FM Chly Pneu; Klonopin Florinef Lexapro TriEst Prog 10/04: 25D=9 1,25D=70 4/05 4/06: 25D=6.2 1,25D=20.9 8/06:25D=<7 1,25=13; Mino 11/36/04 2Abx 3/19/05 3Abx 4/27/06
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Thu Jun 23rd, 2005 03:57 |
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Thank You Carol.. and All, for all support and messages. your support really helps.
Thursday June 23rd 4pm. off abx day.
recently there has been more coughing and clearing throat. Today, gut inflammation has been flaring / uncomfortable - even with the milk thistle x 1 per day. and back ache. Q4H Benicar required again today. fragile emotionally.. increasing my Rx natural progesterone made all tolerable, enabled me to go to B @ Q6H. (NP assists my full body function )
I think that when my body function starts to slip may be a sign for me to increase the abx tomorrow morning @ 48H. the abx seem to be supportive of me..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Thu Jun 23rd, 2005 17:24 |
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Friday June 24th 5.30am. today abx combo increase to 3/4 2nd abx + 75mg mino @ 48H #1 at new level
slept well. backache. bloating. feet ache. under skin on legs is ouchy. small cramps all over the place. am ok..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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kathleen
inactive member
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Posted: Fri Jun 24th, 2005 20:27 |
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Wow, You are zooming now. Your "break" really seems to have been a good idea.
I'm wondering if you're having an easier time increasing with it being dark earlier there this time of year, or if you don't go out anyway, so it doesn't matter?
The heat and later sunlight definitely make it harder for me now that it's summer here. But maybe that's just me.
Anyway, major congradulations!!!!
Kathleen
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CFS '86, LTD '86 (50 yrs old)pacemaker - total heart block '99 fatigue, cognitive, sleep, digestion, dysautonomia, weakness, headache, tinnitus, IC, new anemia 9/9/04 D,25 44 - D,125 76 4/05 D,25 24 4/05 Ben 40mg/6hrs, Mod Ph 2
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Fri Jun 24th, 2005 20:40 |
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Thank you Kathleen.
Summer or winter doesnt make any difference to me at the moment because I dont have to leave my cave.
This increase, I have increased the 2nd abx dose when the herx began to degenerate into an immune system run .. and it has given me relief.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Sat Jun 25th, 2005 03:50 |
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Saturday June 25th 4pm. off abx day.
less herx with increase in abx. concentration must be higher yet.. still slow and sludgey but no other obvious physical 'hits'.. a nice little respite..
inflamed toe is still inflamed. gut inflammation.. esophageal. eyes continue blurred. occasional back ache. have been feeling cold around my neck.. it is winter, but it is not really cold (26C / 79F) and is unusual for me..
see ...Childhood Health ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Sat Jun 25th, 2005 19:29 |
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Sunday June 26th 7.30am. today abx combo 3/4 2nd abx + 75mg mino @ 48H #2
This morning was typical abx due morning. I would just stay in bed and float off into the fog instead of getting the abx into me.. and I had to really make myself focus to make sure of taking the correct dose.
bloating or maybe increased diaphragmic herx today. and occasional cramps anywhere.
a note. where my NoIRs press against my face and head, leaves a dent..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Mon Jun 27th, 2005 02:17 |
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Monday June 27th 2pm. off abx day.
the herx is a whole of body experience. a weight on me. I am feeling it more emotionally recently. all meds make all bearable.
hips legs ache in bed.. neck is still cold - needing to be covered. can feel lungs. other things all the same..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Frans
Member in Phase 2
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Posted: Mon Jun 27th, 2005 18:57 |
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Aussie Barb wrote: a note. where my NoIRs press against my face and head, leaves a dent..
Barb, could this be due to dehydration?
xoxoxox Frans
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Burn-out/nervous breakdown Jan01 125D 48 25D8.48 Ph1Nov06 ModPh2Jan07 Ph2Apr08 Cipramil Seroquel NoIRs lite exp r/t work cover up 25D3.9(Oct07)
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Mon Jun 27th, 2005 19:11 |
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Tuesday June 28th 7am. today abx combo 3/4 2nd abx + 75mg mino @ 48H #3
Thanks Frans, I should have noted that this is not new.. I began getting puffy 24+ years ago and herxing adds to it.. it will resolve as my body heals with MP.
usual herxing. managing with all meds ( I am thankful for all meds). esophageal woke me at 5H, took Benicar - slept well. leg cramped when stretching on waking.. was able to unclamp it more quickly today than sometimes, and no residual pain.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Wed Jun 29th, 2005 05:25 |
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Wednesday June 29th 5.30pm. off abx day.
this is hard work but I can do it. esophageal herx flares regularly. antbite cramps on right rib muscles and down right arm so very painful yesterday afternoon / evening. heat applied and extra Benicar and tylenol tabs. overall full body weighed down by herx. managing all with meds.
I t h i n k .... my lips may be showing some pink color. still some lung herx happening.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Wed Jun 29th, 2005 08:21 |
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| tonight.. more verry painful antbite cramp, left side this time, rib muscles, under arm and down arm..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Wed Jun 29th, 2005 18:48 |
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Thursday June 30th 7am. today abx combo 3/4 2nd abx + 75mg mino @ 48H #4
Making the rule for myself to take the abx QOD was the best thing..
upper right gum has unexplained inflammation. right big toe inflammation continues.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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