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Frans
Member in Phase 2
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Posted: Thu Jun 30th, 2005 10:32 |
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Wow Barb!
You have proceeded far into phase 2 ! You are definitely killing the critters with a vengeance !
Hold on tight dear Barb, they will succumb !!!
XOXOXOXOX Frans
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Burn-out/nervous breakdown Jan01 125D 48 25D8.48 Ph1Nov06 ModPh2Jan07 Ph2Apr08 Cipramil Seroquel NoIRs lite exp r/t work cover up 25D3.9(Oct07)
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Aussie Barb
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Posted: Thu Jun 30th, 2005 21:17 |
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Friday July 1st 6.25am. off abx day.
Thank you Frans for your support..
After some heavy herxing for a few days, I feel it has lifted some this morning. so far.
the antbite cramps have *threatened a few times yesterday, but with consciously relaxing and stretching I was able to avert them.. something that is not always possible..
feet aching.. mostly full body work is happening..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Fri Jul 1st, 2005 20:52 |
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Saturday July 2nd 6am. today abx combo 3/4 2nd abx + 75mg mino @ 48H #5
This last dose was better but still tough enough. Doing MP, managing all with all meds and good full support is all I can manage in all ways..
take care All..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Sat Jul 2nd, 2005 21:59 |
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Sunday July 3rd 6.45am. off abx day. after #5 of increase of 2nd abx.
This has been a couple of days of less than usual herx but yes, still enough to keep me steady thank you..
I think I have worked out a pattern.. I have been a little short on patterns, so I am pleased to find one..
I think that when I increase the 2nd abx I only need about 4 or 5 doses before the herx lifts some, and it is time to increase again..
and when I increase the mino, that level herxes for around 11 doses, and I begin to feel worse not better when I need to increase..
It is gradually sinking into me how dangerous these diseases are.. that I /we are being killed from the inside out.. I had a sense of that, but am only at the wee beginning of comprehending the scale of destruction and mayhem...
I had a very special Dr that I used to drive a distance to see. He (unusually) had diagnosed all this fibrosis and inflammation and etccs and tried to tell me how dangerous it all was.. and I thought that I would conquer all... of course I was in denial .... He only knew to treat it with diet and exercise (!) and supplements.. he was perplexed that it wasnt working. I asked him about the root cause, as I have always lived and eaten healthily... and he had to confess he didnt know.
so finding MP was the next step!! and I am going to conquer all..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Sun Jul 3rd, 2005 21:13 |
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Monday July 4th 6am. today abx combo I have finally reached the INCREASE TO 100mg mino + 3/4 2nd abx @ 48H #1
Happy 4th to the US Members..
The herx from the last increase of the 2nd abx had waned.. I had 2 days that were better than previously experienced. no jumping around or able to do more... just less herx..
Last night, from 36H till I went to sleep the depression anxiety herx stepped right up.. I could have chosen to take the abx sooner but I decided to treat it instead, and go to bed, and get thru till the abx due time. sleep helps.. I woke at 3am, took Benicar, couldnt sleep any more so got up, was ok, and took increased abx just now..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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anne p
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Posted: Mon Jul 4th, 2005 00:58 |
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Dear Barb
Wow!!!!!! Congrats on reaching 100mg Mino. Full steam ahead eh 
I an taking Votum and will soon start the mino. 
lots of love and hugs
Anne xoxoxoxoxoxoxo
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Sx24years CFS/Lyme/ spinalstenosis abx long term Labs 25D,22-1,25D,23.46(unreliable)MP 7/01/05 PH.1.24/01/05,PH2.5/03/05 stopped MP Sept20 resumed phase1 Jan4/06/ somac40mgday Neurontin 600mg 3xday duatrol3xday imigran50mgprn panadeineforte prn
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spacee
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Posted: Mon Jul 4th, 2005 03:25 |
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Hi Barb, my congrat to you too. SOOOO much hard work that you have gone through to get here. Thanks for being such a good Trailblazer for us.
My hugs too.
Spaceexoxoxox!
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CFS/FM/tachycardia/bladder and skin inflammation. C-Diff overgrowth 1995
clonazapan 1gm HS, Xanax .50mg HS, Premarin .625, Ultram 50mg BID Restart 9/15,NoIRs, No Vit D diet,Probiotics,11/12/04 25D=25, 1,25D=70, 9/9/05 25D 14, 1,25D 37. Beni Q6H, Mino 10
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kathleen
Member in Phase 2/3
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Posted: Mon Jul 4th, 2005 07:44 |
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Dear Barb,
Too excellent!!!!! Getting up to 100 mg of mino is fantastic. I tried 50 (my 4th try) on Friday and will alternate with 25 (tonight) in hopes that I can survive somehow and gradually be able to tolerate 50. I'm almost fainting alot.
Now I can't wait to see how long it takes you to get to full mino w/the 2nd abx and then on to the third.
I, of course am holding up my end of the line, but never giving up.
XXOO Kathleen
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CFS '86, LTD '86 (50 yrs old)pacemaker - total heart block '99 fatigue, cognitive, sleep, digestion, dysautonomia, weakness, headache, tinnitus, IC, new anemia 9/9/04 D,25 44 - D,125 76 4/05 D,25 24 4/05 Ben 40mg/6hrs, Mod Ph 2
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Aussie Barb
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Posted: Mon Jul 4th, 2005 20:45 |
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Tuesday July 5th 5.45am. off abx day. after dose #1 of increase to mino 100mg.
Thank you to Anne, Spacee, Kathleen, and All, re kind messages..
At around 10H I found when I got up from my chair that I was dizzy and had to take great care walking.. and then the dizziness increased and my speech became slurred (like drunk and incapacitated)... was quite funny.. no concerns because I knew it was herx. I took extra Benicar and within minutes I was coming ok.. took Benicar at 4H to go to bed and slept almost 7H and am fine now. the anxiety would be constant without treatment.. so I keep onto that. I have my 2 alarms going. gut inflammation, and cough flare when Benicar is due..
all is well...
Fireworks Extravaganza a fitting Celebration...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Tue Jul 5th, 2005 07:46 |
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I realise that I go along every day managing things that I dont actually mention, and it may be a help to others to know.
I have constant uncomfortable gut pressure unless I manage it with my meds: and probiotics x 2 per day, milk thistle x 1, and quercetin helps.
sleep: sleep has improved to what it was. sometimes I sleep better than others. almost always wake briefly at least after 12mn or 1am, and sometimes still wake and feel the need to get up around 3 am or so..
cough / clearing throat: mostly stays managed with all the meds.
wet inside ears: constant.
feet puffy. toe: old site of 2 ops.. red. no pain. must be a herx.
skin: particularly on legs: sensitive, ouchy under skin.
full body pressure / herx constant. body temp is erratic.
I am able to manage all with my meds. all is well..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Tue Jul 5th, 2005 21:30 |
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Wednesday July 6th 6.30am. today abx combo 100mg mino + 3/4 2nd abx @ 48H #2
where did those 2 days go to... I have been very happy to have reached 100..
herx has been bearable yet with all meds. Last night and this morning - nausea, and general hit. recently have had to be increasing NPS (progesterone) to keep on top of the anxiety herx..
this morning a creak and crackling in my neck as I move it.. I was wondering what I was rubbing against..
recently: upper backache.. seems to be more this morning.
eyes are more gluggy again..
sleep well between wakes. nausea got me up and attem to distract.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Thu Jul 7th, 2005 03:01 |
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Thursday July 7th 12md. off abx day. after dose #2 of increase to mino 100mg.
Full body herx rather than any particular part, continues to wax and wane . tired. popping noise in neck w movement continues. all meds management ..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Thu Jul 7th, 2005 08:40 |
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| Big herx in the gut this afternoon, moving to the chest and down left arm. it felt like I had the wind knocked out of me and I was incapacitated for a few hours... have taken Benicar Q4H this afternoon to keep up with it.. and had a rest. NPS helps the anxiety. and all other meds keep all managable all over..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Thu Jul 7th, 2005 20:19 |
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Friday July 8th 5.20am. today abx combo 100mg mino + 3/4 2nd abx @ 48H #3
The time seems to be flying between abx now..
Mornings, I wake after close to 6H from Benicar, - anxiety and agonising needing meds.
Have been having chest pressure from small exertion, or from a change of position to lying down exacerbates it, have to sit up to relieve it.. pulse goes a bit faster then but I cant be bothered counting it.
Reality Check: when I was lying on the bed, for some reason I actually tuned in to how I feel.. errrkk... I was wondering if I will be able to remember how awful this feels when I do feel better.. the main thing will be to enjoy the feeling better.
I personally have no comprehension past this moment... I think it must be like a survival mechanism. so I dont worry about the future.. one moment at a time..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Fri Jul 8th, 2005 22:09 |
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Saturday July 9th 7am. off abx day. after dose #3 of increase to mino 100mg.
Another big herx hit yesterday afternoon.. a pattern ! Benicar Q4H. all meds on deck..
no pain, just a hit in the guts that disables me for a few hours while it lasts.. my feet: are like chunks of burning charcoal all day. not bad, but difficult to describe the sensation.. aching toes and fingers sometimes.. wet ears.. antbite cramp again. anxiety.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Sat Jul 9th, 2005 22:00 |
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Sunday July 10th 7 am. today abx combo 100mg mino + 3/4 2nd abx @ 48H #4
Big whopper gut herx last night kept me awake.. no pain, is big pressure. took more Beni, MT & Q and finally slept.
antbite cramps still around.. less anxiety. clearing throat. wet ears. taking all meds..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Sun Jul 10th, 2005 23:28 |
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Monday July 11th 8.30am. off abx day. after dose #4 of increase to mino 100mg.
herxing steadier yesterday (all is relative) still errrk.. anxiety remains less. still esophageal. gut. taking Benicar Q4H prn for gut inflammation.. and all meds..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Mon Jul 11th, 2005 21:45 |
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Tuesday July 12th 6.45 am. today abx combo 100mg mino + 3/4 2nd abx @ 48H #5
I have remembered that how my body feels may be described as heavy gravity. hard to do anything that requires moving arms around etc..
and the errk is a sick feeling from the inflammation..
transient bone pains. erratic body temp, hot / cold. feet feel like dry ice.. burning cold as a sensation not really cold.. wet ears. esophageal comes and goes. crackly neck.
I had soreness in the Heart area in the afternoon.
The big gut herx hit a bit later last night and kept me awake for awhile. it can come up even if it is only 2H from last Benicar, but I still take the extra Beni straight away. It seems to be a band across the diaphagm, and that was a little sore to touch. it takes some time to settle and then I slept for 4H.
The diaphragm area is all inflammatory feeling most of the time, is now.. all meds..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Wed Jul 13th, 2005 21:24 |
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Thursday July 14th 6.25 am. today abx combo 100mg mino + 3/4 2nd abx @ 48H #6
much the same.. the exertion of having a shower still kills me .. more ache in the tailbone again recently, nothing serious... keeping all managed with all meds..
I had a bad leg cramp this morning..still sore.. and news: a change: I am better this morning than I usually am on abx due morning..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Sat Jul 16th, 2005 01:10 |
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Saturday July 16th 10 am. today abx combo 100mg mino + 3/4 2nd abx @ 48H #7
I am really battling anxiety depressive herx. Keeping all meds chocked in to uphold me ..Benicar Q6H. it may be a sign of time to increase but I thought I had better do this one more abx dose at this level to check it out first ... ~v~v~~
more of feeling cold this time..
Later Edit: the anxiety herx has disappeared since the abx dosing. The abx take me on, ever on. When they get too low for me I get worse and have to accelerate again.. I am happier to be into it than down to it..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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