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DNStog
Advocate
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Posted: Tue Aug 9th, 2005 04:05 |
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Right on, Barb!
Good to read that your herxing is getting less nasty.
Okay, you awesome Aussie, if you're willing to do an eight day cycle, I'll be glad to join you. 
Still cruising ~~~~~ Donna
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Sarcoidosis/skin, joints, lungs, nerves, Raynauld's, uveitis, hypothyroid, sinus, wt. gain, Peradontal disease, GERD-hiatal hernia, breast ca 11/06, 25D7, Synthroid, Wellbutrin, eye vits, melatonin, Milk Thistle, Quercetin, Rx glacier, cover up, low lux h
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19385 |
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Posted: Tue Aug 9th, 2005 17:02 |
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Thank you Donna ...
Wednesday August 10th 6 am. PHASE 2 / level .5 / cycle 2 / Day 1 / mino is 50mg QOD > today / Benicar 20mg Q3H / Quercetin TID
I havent previously reported the presence (for years) of skin under my armpits all bumpy, like permanent goose bumps... was reminded by Melinda's report that hers have now gone away.
The gut herx waxed and waned yesterday, and the underlying immune system run was there too.. getting uncomfortable.. gut pressure. last night, hot, sweats, BO. so began cycle 2 this am.
The memory herx and accompanying misery had lifted yesterday.. good. nice break. In Phase 2, I am quieter in myself.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
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Posted: Wed Aug 10th, 2005 01:26 |
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2.30pm
no herxing so far today. a nice break.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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DNStog
Advocate
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Posted: Wed Aug 10th, 2005 02:07 |
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Whooopppeee, way to go Barb!!!!
You can't see me, but I'm doing cartwheels after hearing of your herx break.
Donna @@@@@@@@@@... those were my cartwheels.
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Sarcoidosis/skin, joints, lungs, nerves, Raynauld's, uveitis, hypothyroid, sinus, wt. gain, Peradontal disease, GERD-hiatal hernia, breast ca 11/06, 25D7, Synthroid, Wellbutrin, eye vits, melatonin, Milk Thistle, Quercetin, Rx glacier, cover up, low lux h
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Arlene
inactive member
| Joined: | Tue Nov 16th, 2004 |
| Location: | New Jersey USA |
| Posts: | 385 |
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Posted: Wed Aug 10th, 2005 21:45 |
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Dear Barb,
Glad you are getting some relief. 
Best to you Warrier Princess  , Arlene
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CFS'93,Lyme/Borreliosis'02,hypothyroid,restless leg, sleep distb, Synthriod,Mirapex,Ambien,DHEA. 12/2/04-Benicar q6h, Mino start 12-31-04, Quercitin Q8H, 1,25D/D 11/04-68/18, 1/05-40/28, 9/05-14/9 PhaseII 4-19-05
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
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Posted: Wed Aug 10th, 2005 21:52 |
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Thank you Donna, and Arlene ..
Thursday August 11th 11 am. PHASE 2 / level .5 / cycle 2 / Day 2 / mino is 50mg QOD > not today / Benicar 20mg Q3H / Quercetin TID
Feels totally different now. Having space from a pushing herx has been good. I am feeling quieter. I went out into the world for an hour yesterday with no ill effects.. took the Benicar Q4H for 3 doses.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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BARNEY
Member in Phase 3
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Posted: Thu Aug 11th, 2005 01:22 |
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AUSSIE BARB,
YOU ARE JUST SUCH AN INSPIRIATION AND I AM SO HAPPY FOR YOU THAT THE HERX IS GETTING BETTER.
WHAT DID THE WORLD LOOK LIKE TO YOU? SO VERY GREAT THAT YOU FINALLY GOT TO SEE SOMETHING BESIDES YOUR HOUSE.
KEEP ON 'TRUCKIN'.
HANG IN THERE, WE WILL MAKE IT!!!! BARNEY
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar20mg@3hrs, xtra as needed, Mino25mg @other day
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Aussie Barb
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Posted: Thu Aug 11th, 2005 02:03 |
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Thanks Barney ...
What did the World look like? hahaha that is a funny one... it made me think about it.. and the answer is... I was completely covered under my cape, ie I couldn't see out... just got out from under the cover to attend to the appointment, and back under and home.. the lady who attended to me was a very lovely Lady.. so that was a great pleasure... and there was no waiting.. all good.
Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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CLefelt
Member in Phase 3
| Joined: | Sun Oct 24th, 2004 |
| Location: | New Jersey, USA |
| Posts: | 318 |
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Posted: Thu Aug 11th, 2005 13:05 |
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Barb,
I'm thinking of you and hoping this phase of the herxing will be limited, though it seems productive in that you're coming to terms with issues you've long dealt with. I know your loved ones are great supports, even if they can't fully understand and empathize with your ordeal. We all admire and count on you! You're quite special to us all!
Carol
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Lyme Bartonella CFS FM Chly Pneu; Klonopin Florinef Lexapro TriEst Prog 10/04: 25D=9 1,25D=70 4/05 4/06: 25D=6.2 1,25D=20.9 8/06:25D=<7 1,25=13; Mino 11/36/04 2Abx 3/19/05 3Abx 4/27/06
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kathleen
inactive member
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Posted: Thu Aug 11th, 2005 17:33 |
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Dear Barb, So exciting - a day without major herx - one of those mythical inbetween days on the new abx. I hope that you have many more of them!!! It's something to look forward to.
XXOO no giving up, Kathleen
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CFS '86, LTD '86 (50 yrs old)pacemaker - total heart block '99 fatigue, cognitive, sleep, digestion, dysautonomia, weakness, headache, tinnitus, IC, new anemia 9/9/04 D,25 44 - D,125 76 4/05 D,25 24 4/05 Ben 40mg/6hrs, Mod Ph 2
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
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Posted: Thu Aug 11th, 2005 18:46 |
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Thank you Kathleen & Carol ...
Friday August 12th 7.45am. PHASE 2 / level .5 / cycle 2 / Day 3 / mino is 50mg QOD > today / Benicar 20mg Q3H / Quercetin TID
The gut herx started to build to uncomfortable last night but the Benicar and then sleep kept it tolerable.. woke with a little wheezy cough this morning but the Benicar and then mino sorted that out.. I am not increasing the doses of anything at the moment as it is the meds as they are, - keeping all tolerable from dose to dose, and I am not wanting to push any harder than this at the moment.. I am better emotionally, and needing far less NProgesterone now that I have changed abx.
Physically, after any small exertion, I often have to breathe deeply and thru my mouth re chest pressure... that is enough push for me.. I am generally feeling less pushed by the herx/ immune system.. is good.
see New Progress Report
Aussie Barb
Phase 2
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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ShrnHml
Guest
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Posted: Mon Dec 26th, 2005 12:28 |
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Wow! This is a comment on diminished brain power. I don't remember those posts, and I thought I could not access your thread until I was cleared for Ph2.
After having been considered "smart" all my life, it's humbling to be dumb. Oh well, roll with the punches.
Keep on keepin' on..........Sharon
next thread see Aussie Barb
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Neuroborreliosis, MP 3/05, 1,25D 62; 3/06 25D<4, ModPh2 12/05, Premarin, Effexor, stopped Benicar 1/07....no longer in study
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aleroh
Member
| Joined: | Tue Feb 20th, 2007 |
| Location: | Pennsylvania USA |
| Posts: | 23 |
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Posted: Sat Feb 24th, 2007 09:52 |
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Oh neat this forum allowed me to put down a post. Could you give us an update on your progress? I know for me it would serve as an encouragement. I private messaged you, but I was not sure how that works and if you would definitely get it. Thanks.
AB note: see my current progress report.. sent by pm.Last edited on Sat Feb 24th, 2007 19:49 by Aussie Barb
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Now researching MP. I am a type 1 diabetic, hypothyroid, MVP, Gilbert's syndrome, biliary disconesia (slow moving gallbladder)Irritable bowel (constipation type), allergy induced asthma mild form, biotin deficiency from time to time, fibrocystic breasts,a
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