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Aussie Barb
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Posted: Sat Dec 11th, 2004 05:04 |
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To All, the best I can do with sending the soup is  << click here  ... Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Sat Dec 11th, 2004 05:26 |
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Saturday December 11th 3.30pm ish is Day 17 of mino @ 25mg daily schedule used to control herx. to delay bacteria killing. Dr M says it might take some time (weeks) for me to get to that point of having extended the doses to Q48H."
Benicar: 20mg Q3H & 40mg night. no Q last 2 days.
Last night I had a *window* of clear head!!! I was able to tidy and sort my computer desk (for the last few years when I am *well enough* to *sort* that is cause for celebration!)
I slept well, woke for Benicar and had crazy dreams about being exposed to light!!! that would be a nightmare, right?
Last night I was planning what I was going to do today, with my clear head..... but.... alas, today I am tired, resting, but otherwise fine.. am spending some time smelling the roses before I make any more changes.. whew!!
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Mon Dec 13th, 2004 05:44 |
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Monday December 13th 3.30pm ish is Day 19 of mino @ 25mg daily schedule used to control herx. to delay bacteria killing. Dr M says it might take some time (weeks) for me to get to that point of having extended the doses to Q48H."
Benicar: 20mg Q3H & 40mg night.
Gut: bloated, pressure, feels weak, which extends to whole of me.> depressed.
resting. continuing.... with eyes open looking for an opportunity to extend mino, but none yet. when the mino is due the symptoms step up to unbearable and put paid to that idea.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Foundation Staff
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Posted: Mon Dec 13th, 2004 06:12 |
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Barb,
Put it in the context of the length of your illness and the severity of your symptoms. It's gonna take time and patience but I know you have it in spades!
Hang in there,
Meg
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Aussie Barb
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Posted: Mon Dec 13th, 2004 20:26 |
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Tuesday December 14th 6am ish is Day 20 of mino @ 25mg daily schedule used to control herx. to delay bacteria killing. Dr M says it might take some time (weeks) for me to get to that point of having extended the doses to Q48H."
Benicar: 20mg Q3H & 40mg night.
I have noticed that my fingernails grow more slowly but stronger. and that the excess skin usually on my heels, that can lead to cracking, is non existent now on MP.
Am Still *sick.. fatigued, weak. still body odor. the bloating IBS etc has been worse again the last couple of days and there is no outer reason for it. no light exp or change of diet. can feel the *ice pepper* in my throat when I exhale.
other continuing noticable herxing symptoms that I haven't thought to mention are *wet ear.. inside and sometimes behind.. sticky eyes.. skin sticky oily, < I use exfoliating gloves in the shower.. a big effort when so weak.
there is a lot of *work *happening....
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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CelticLadee
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Posted: Tue Dec 14th, 2004 00:15 |
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Hey Barb, 
Interesting.... I have also noted my fingernails are stronger, my body odor is bad, my face is more oily, my ears get wet inside, the heels on my feet aren't so calloused so aren't cracking & I have sticky eyes at times. Pretty strange combination! Only a MPer huh? 
Well, I am washing my face and armpits twice a day and taking a bath every other day in Epsom salts which helps. I asked my hubby to buy me some Tom's of Maine deodorant in Rose and Jasmine cause my Now Nature's deodorant stick... salt type stick... was not doing the job anymore. LOL. I felt like Pepie Le Pew! (the French cartoon skunk) 
Eeewww!  
Hoping you continue to gain ground in our quest to be free from stinky oily producing CWD bugs! 
Keep up the good work HRH.
xoxo CelticLadee ette
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FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)
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Aussie Barb
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Posted: Tue Dec 14th, 2004 01:28 |
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Thanks Meg... the depression has lifted. I don't feel so disheartened today.. I can see how much IS Happening & why I am so sick..
Thanks HRM QCL. it is good to acknowledge what we can see of what is happening
Thanks to All... Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Tue Dec 14th, 2004 19:13 |
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Wednesday December 15th 5.15am ish is Day 21 of mino @ 25mg daily schedule used to control herx. to delay bacteria killing. Dr M says it might take some time (weeks) for me to get to that point of having extended the doses to Q48H."
Benicar: 20mg Q3H & 40mg night.
Yesterday afternoon I had a window of relief for a few hours. I was still weak but less intensity.. but then *it came back with a vengeance. >>
as Intense Inflammation upper Right quadrant of abdo.
once I was able to go to sleep, slept well, woke somewhat depressive, Benicar dose helps tidy that up when mild.
tinea itch feeling on top of toes.. and still gut inflammation. > sick, weak, tired. resting.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Reenie
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Posted: Tue Dec 14th, 2004 22:26 |
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Hey CL and Barb,
Well, at least I'm not the only Pepi around here...
Upper right quadrant of abdomen? That would be your liver, my pet. 
Take care... xoxo
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Aussie Barb
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Posted: Wed Dec 15th, 2004 20:45 |
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Thursday December 16th 6.45am ish is Day 22 of mino @ 25mg daily schedule used to control herx. to delay bacteria killing. Dr M says it might take some time (weeks) for me to get to that point of having extended the doses to Q48H." (is 5 weeks of more freq dosing so far)
18 weeks of Benicar from Aug 12th: 20mg Q3H & 40mg night.
Mino overview: Sept 10th to Oct 3rd: from initial dose of 1.5mg up to 12.5 mg & stop due to broken / no NoIRs: the mino stint being @ Aussie Barb Page: 1 2 3
then continuing on Benicar only with continuous intolerable herxing.
Recommence Mino Nov 7th from initial dose of 3mg to 4mg Q48H, to 4mg Q12H... to 12.5mg Q12H (2 weeks)
to 25mg Daily Nov 24th till 15th Dec. (ie. another 3 weeks ie *some weeks* as per Dr M above)
New ABx (@ 1/8) commenced 16th Dec: to 1/4 on 17th Dec & cont.
inexplicably I have had less depression again the last couple of days.
For the last couple of afternoons ie around 22hrs after mino dose I have had a window of relief for 2 hours. I was still weak but less all herx intensity.. less skin sticky oily, less inflammation, less sick, more clear /able to think/do. what a relief!! my first real experience of regular waning / no herx... When the mino is due or overdue >>>> then it begins to kick up again.. .. goes to unbearable.. and it has been taking me hours to get it bearable again..if at all before bed.
so I am still taking the mino Q24H.. and last night I stayed fairly reasonable!! no kick up, no real suffering.
as you can see, I am amazed at the change.. and this morning is all symptoms milder, but all still present.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Thu Dec 16th, 2004 08:05 |
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continuing ... Thursday December 16th 6pm ish
Dr. Marshall has suggested an additional antibiotic to see if I can get past the continuous Herx. New abx to be taken Q48H as long as herx allows.. along with mino 25mg daily as yet.
Today has been another day of some intense inflammation and milder skin symptoms, and some mild depression... having to take the Benicar 20mg before the 3 hrs was up each time..
Thursday December 16th: Tonight I have taken my first dose (1/8) of the additional antibiotic.. along with the 25mg mino.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Thu Dec 16th, 2004 19:26 |
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Friday December 17th 5.30am ish is Day 2 of abx combo mino @ 25mg daily + 2nd ABx Q48H schedule being used in my case to gain control of herx. <overview here
Benicar 20mg toward Q3H yest & 40mg night.
Yest afternoon just before ABx due time... I was starting to go downhill again.. took both abx.. started to lift.. could definitely feel the difference of the 2nd abx.. I became very tired, woozy and went into total body muscle stiffness. went to bed and slept soundly.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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jolbell69
Health Professional
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Posted: Thu Dec 16th, 2004 22:30 |
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Dear Barb,
Keep going my friend - I`m sure the good times for both of us are ahead!! Always rooting for you...........
Jo.xxx
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DX:ChronicBorreliosis&Bartonella,ME/CFS,AutoimmuneThyroid&Hypoadrenia.
TX:Armour90mg,Prozac.Started MP:19may04.
25,D=16.7ng/ml,(Jan05).Benicar,40mg,q6h.Restart 8May09 after 5months break.VitD,25=8ng/ml(May09)
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Aussie Barb
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Posted: Fri Dec 17th, 2004 20:08 |
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Saturday December 18th 6am ish is beginning Day 3 of abx combo mino @ 25mg daily & extending as able + 2nd ABx Q48H schedule being used in my case to gain control of herx. Day 24 of trying to extend the mino dose from 25mg daily out to Q48H <overview here
Benicar 20mg Q3H yest & 40mg night.
Mino dose: Friday night: With the support of the testing dose of 2nd ABx, taken Thursday night, Q24H came and went. I have been able to go without the mino right thru past the 24hrs ..... it is now 36 hours; and usually by 23hrs I would be starting to climb the wall needing to take it... I will go right to the 48hrs if it is no bother... that is another 12 hrs here.. and I am not looking like *needing it.. no IBS!!
2nd ABx: I have had some very bearable (actual waxing and waning!!!!!) herxing on the 2nd abx ...taken with the 25mg mino.... bone pain is new.. + my old friend/foe gut inflammation, skin oily sticky, and fatigue, depression, anxiety and brain fog....
so I will take the increased, intended continuing dose of 2nd ABx tonight. + the 25 mg mino still..
I am excited now....
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Sat Dec 18th, 2004 05:54 |
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continuing... Saturday December 18th...4pm ... 6pm will be dose 2 of 2 ABx combo ..
today I don't feel *as* sick all over.... so I can feel *how sick* I really am..
symptoms today > gut inflammation and fatigue and brain fog....& an almost headache but not quite. skin oily sticky is v mild. no waxing waning apparent today. 
am quite able to wait for the ABx due in 2 hrs.. no pressing symptoms.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Sun Dec 19th, 2004 08:51 |
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Saturday December 18th 2nd dose of abx combo mino 25mg + (1/4) 2nd ABx} Q48H schedule being used in my case to gain control of herx. (successfully I would say) <overview here
Benicar 20mg Q3H & 40mg night.
ABx taken 6pm > within half an hour I began to feel very woozy, tired, and went to bed. slept well.
Sunday December 19th... 6.50pm
symptoms today > hard but bearable gut inflammation, heavy pelvic area. high fatigue > sleeping resting. transient wooziness. transient hot spot ribs. transient mild bone pain. transient anxiety. skin more settled today.
must be getting them.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Mon Dec 20th, 2004 06:09 |
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Monday December 19th 4pm 3rd dose of abx combo mino 25mg + 2nd ABx} Q48H due tonight in 2 hours time <overview here
Benicar 20mg Q3H & 40mg night.
Last night I went to bed with the herx inflammation buzzing, and the high degree of wooziness.. slept soundly..
The Lab came to my home this a.m. to collect my blood. good not having to go out. Questions were asked re the light avoidance etc.. an opportunity to put some new thinking into the *real world
Today I've been physically very weak... I'm usually weak on MP but today has been very pronounced, and the dominant symptom. so along with that comes transient emotional fragility.
resting sleeping in between.. looking forward to *the dose*..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Tue Dec 21st, 2004 20:35 |
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Wednesday December 22nd 6.30am abx combo QOD due tonight> 4th dose of mino 25mg + 2nd ABx} Q48H <overview here
Benicar 20mg Q3H & 40mg night.
Sleeping well. herxing is waxing and waning. It is a relief to have herxing and a relief when it has passed.
herx symptoms: gut inflammation> makes me feel so sick
slight transient antbite cramps under left arm and heart area, bones of arms. skin symptoms have settled to very mild. transient hotspots in left & right rib muscles. transient anxiety. body odor is back this morning (?BUN following tough herx last night? - more dead'ns)
mostly weak and quiet, but fine ok.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Tue Dec 21st, 2004 22:31 |
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adding :
I am really tired, on my bed most of the time. thankfully I have good support care help.
my skin and under tissue is sore to rub or scratch.
I never usually have the desire to drink much.. but I am drinking a lot of water lately.
am I better on the 2nd abx? yes, it is better.. I have a break from the constant intensity.. and I feel like I am on the *real MP now
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Wed Dec 22nd, 2004 06:15 |
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continuing ...... Wednesday December 22nd 4.30pm abx combo QOD due to take soon > 4th dose of mino 25mg + 2nd ABx} Q48H <overview here
Today has been a better day. I have been off the bed more. I was able to write some Christmas cards with a stronger hand. Last night's herx must have been a good one cos I can only eat light foods again today.
gut inflammation is *there* to a greater or lesser degree all the time.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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