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marion villa
Member in Phase 3
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Posted: Mon Aug 11th, 2008 02:07 |
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Hi everyone:
I wanted to post here, to say to all the people starting with the MP how I am right now.
I started the MP in october 07 and the full MP in january, now I am in phase 2 and I can say that I feel quite well. In january I had experience strong IP reaction, almost intolerable, because I was learning how to manage the mino doses, and it was confusing at first, to know how I developed with the dose, some people use extra dosing or more frequent dosing to lower symptoms, but I didn´t work this way, I reacted very strongly and I had to wait more than two days to take the next mino dose, and it was scary, because I had high fever, no apetite and extreme fatigue.
The point I really want to talk about is this: When I was very ill before the MP. I had a terribly active, painful, extreme RA. I got my hands and feet very crooked because no treatment ever worked well, I had poor control over the RA for about 10 years, until I was controled with ciclofosfamide ,prednisone and arava.The price was high because I had flu infections and stomach infections all the time which I couldn´t control without taking abx, and all the time I had fatigue, body pain in all the ranges, hair loss, dry eyes, bumps in the skin and swellness in strange ways, ulcers that didn´t heal, strange rashes, and other weird symptoms that nobody doctors believed I had, but they were true.
I had that treatment about 8 years, until I realized it won´t do me good anymore, and I knew about th e MP, benicar wasn´t available in mexico then, so I waited, and read and study.
Then I had benicar here an inmediately I started the MP, miraculously the prednisone weaning process was EASY, almost comfortable, I could never before could wean from it, no matter how hard I tried, God knows how....
then I passed the ph1 tough things I first told you, then all was in it´s place I learned how to do it, and how I did react, moved succesfully through phase 1 to phase 2... and the most astonishing thing is: I WAS TOTALLY BEDRIDDEN BECAUSE RA IN THE PAST, AND SINCE MP, MY COMPLAINTS ARE STOMACH CRAMPS AND SLEEPINESS !!!!!! NO RHEUMATIC JOINT PAIN AT ALL. I AM NOT AN ARTHRITIC WOMAN NO MORE
THANKS DR. MARSHALL, MEG BARB ALL
I feel bad, sometimes, but comparing with the illness itself, this is a piece of cake my friends... and I am heading for a completely healthy life.
So don´t give up, study and hang there, and we soon will give a party, and dance all night ok?
Marion
Last edited on Mon Aug 11th, 2008 02:12 by marion villa
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Lupus, RA, erythema nosodum, skin ulcers, MP 11/07, voltaren, paracetamol advil, almagato,Tylex w/codeine, NoIRs, limited outings covered up,Ph 2 /20 april 2008, 25D<4ng, ph 3/ 22 oct 2008.
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salam
Member in Phase 3
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Posted: Mon Aug 11th, 2008 18:11 |
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| Happy for you. Very convincing post. Wish you the best.
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Diagnosed with Early RA in March 2007. benicar Sep.07; ph1 Oct.07. Ph2 Dec.07. ph 3 Sep. 08.D-25 2.8 Nov 07;7.5 April,08.Less than 7.0 June 08; 9.5 Aug 08 (all in ng/ml).
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Marber144
Member in Phase 2
| Joined: | Wed Mar 5th, 2008 |
| Location: | Connecticut USA |
| Posts: | 55 |
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Posted: Wed Aug 13th, 2008 20:30 |
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Hi Marion, Your progress is so encouraging!
Partying & dancing all night! A goal for me also to think of - having that much fun!! It sounds like you were pretty far down the road with RA. And, not being arthritic anymore must be wonderful. You are very encouraging to me.
Your happiness & gratitude are present in your words.... Thanks for sharing! ~ Martha
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Lyme Hashimoto HTN DDD apnea depression brain-fog OA Bart Babs Erlich/ Synthroid Wellbutrin Cymbalta/ LoLux/D, 3/08: NoIRs, covered, Blue Lizard, Mucinex, limit outings. Mar08(Jul08)[Oct08]~25D14(20)[11]~125D60(59) Beni:Jun29/08 Ph1:Jul20/08 Ph2:Aug28/08
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marion villa
Member in Phase 3
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Posted: Wed Aug 13th, 2008 20:45 |
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martha: far down and for so long!!Let´s say I am in the middle of the voyage, I can see the other side from here!!! thanks for reading.
salam:
I hope you continue succesfully too to your ph 3.
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Lupus, RA, erythema nosodum, skin ulcers, MP 11/07, voltaren, paracetamol advil, almagato,Tylex w/codeine, NoIRs, limited outings covered up,Ph 2 /20 april 2008, 25D<4ng, ph 3/ 22 oct 2008.
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Michele MBK
Member in Phase 2
| Joined: | Fri Jan 4th, 2008 |
| Location: | Virginia USA |
| Posts: | 43 |
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Posted: Thu Aug 14th, 2008 03:33 |
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Marion,
So amazing to see your post! Bless you for enduring all that you have for 10 years!! And so very exciting that your arthritis is under control!!! Wow!!!
Lead the way! I'm right behind you!
Michele
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RA 125D30 D25=16 Elavil Vicodin low lux home NoIRS cover up Ph1May08 Ph2Sept. 21'08 D25=9
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marion villa
Member in Phase 3
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Posted: Fri Sep 12th, 2008 04:19 |
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hi guys:
Phase 2, benicar 40mgQ6 hrs.
Non Mp meds, paracetamol 500mg Q8hrs, advil 200mg Q24 hrs, voltaren 100mgQ24hs.
commentsToday is the las day of this cycle.I´m not having very noticeable IPR wiith 100mg of mino, I am slightly tired(4), mostly because I had my period this week, so the feeling is more related to hormones than to IPR, I had insomnia (4),headache(3), flulike state(3), but I feel ok.(!). I notice a change in my skin : i´m dry and flaky a lot(8), itchy and shedding everywhere. I have a lot of new moles eventhough I´m out of the sun almost completely, so now I am pure white with spots!
sun exposure
yesterday I went in a long car drive for the first time since I began the protocol last october, i was well covered zinc, noirs etc,in the sunlight almost 3 hours and I am not feeling ill today, nor my eyes hurt. So today I am less sensitive to sunlight, this is great news, I also have to tell you,no more GI IPR: no serious stomach cramps, no diarreah ,no ulcers in the skin, almost no bodypain. If I had not so noticeable tiredness I could tell that I felt these days like a normal person.
thanks
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Lupus, RA, erythema nosodum, skin ulcers, MP 11/07, voltaren, paracetamol advil, almagato,Tylex w/codeine, NoIRs, limited outings covered up,Ph 2 /20 april 2008, 25D<4ng, ph 3/ 22 oct 2008.
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