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terrylmcc
Member in Phase 3
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Posted: Tue Feb 19th, 2008 02:06 |
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Hello All,
I am currently in phase 3, for the past couple weeks. And been on the MP for just 13 months total.
I have not posted in the alumni forum, and I appologize. The other day I went back to my beginning posts and here it is. I listed all my symptoms I had at the begining of the MP.
BOLD IS THE UPDATED VERSION OF PREVIOUS SYMPTOMS
I know i have a ways to go, but I am seeing good symptom resolution.
YAY 2/18/08
Posted Jan. 27 2007
Benicar has begun!
I took my first dose today. Just a couple hours ago. BP 120/79, and feel fine.
Also wore my Noir's at work today, no real problem, just need time to adjust. And everyone commenting is exhausting, all the questions ect.
I just had to simply say my eyes are sensative, and I have to wear the glasses.
I want to post my symptoms here, as I begin my road to recovery. As I need to remember my origional symptoms. As they go away I'll look back to see what brought me here.
*SO HERES WHAT I FOUND WHEN I LOOK BACK, AND COMPARE TO TODAY*
IF THERE IS NO BOLD NEXT TO THE SYMPTOM, I'M STILL WAITING FOR THOSE SYMPTOMS TO RESOLVE.
Pulminary sarc,
skin sarc, biopsy '02.
Asthma and breathing issues upon exertion, 2 flights of stairs.
shoulder pain, RESOLVED 90%
stabbing chest pains "lung" RESOLVED 99%
uveitis,
opthamalic migraines, "lights" some migraine headaches. only 3 in the past year, used to happen twice monthly. GREATLY IMPROVED TO SAY THE LEAST!
Light sensativity.
Lower back pain, RESOLVED 90%
numbness and tingling in my ankles and shins, both. RESOLVED 80%
Confusion, and bad memory, seems worse lately. MOMENTS OF CLARITY, BUT STILL HAVING BRAIN FOG ISSUES
Chronic sinus problems, and drainage and cough. RESOLVED 90%
I Can't think of anything else at this time...
* I THINK THIS POST COULD END UP IN THE SUCCESS STORY THREAD* Last edited on Tue Feb 19th, 2008 03:29 by terrylmcc
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Sarcoidosis/lung &cutanious biopsy. uveitis Ph1,Jan07 ModPh2,Apr07 Ph2, Dec07 Ph3,Feb08 NoIRs avoid lite exposure, 25 D 6/08 = 5, 25D 3-09 4.
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terrylmcc
Member in Phase 3
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Posted: Tue Aug 19th, 2008 18:44 |
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Hello all,
Have had some wonderful days, 4 in a row last week. Then some mild setbacks.Brain fog 3, Fatigue 3, cough 3, some lung /back pain 5. I sometimes feel like I have a knife in my back. Not a big knife, just a small one, that gets my attention. Cant really tell if its lung IP, or if its spinal related. It is slightly lower than dead center. Also want to note that I often massage my upper pectoral, think it may be lymph-node, drainage related?
A new IP symptom, I had foot surgery, when I was 10. I had stepped on a sewing needle. They left it in my foot, for 2 years. ( they said it would work its way out? ) but it consistently flared up and caused pain, and inflammation. They decided to go in and get it. Basically sliced my foot like lunch meat, looking for it. They even had to do one cut on the top of my foot, and another on the side. I am having alot of IP in that exact area of the scar tissue. Walking upon waking 5, and 2 after i get moving.
Above all, I am managing well, and will continue on current combo for several more months, or years. Whatever it takes.
Improvements to date.
Shin area neuro tingling, rarely noted. 90%
Shoulder pain rarely noted. improved 99%
Summer allergies rarely noted. improved 95%
Lower back pain rarely noted. Improved 95%
As always Thanks --Terry
September 2009
Hi All,
I have had a few Mosquito bites this summer here in the north. Summer is just passing and it was a big mosquito season, lots of rain.
So heres an amazing thing, I was out chatting with a neighbor the other day, and I slapped 2 mosq. on my left arm. In years past, they would itch me for 3 days or so. And usually scab up from so much scratching. The bites never even welted up on my arm, and never my body did not react to the bites that were noticeable.
Two nights ago, i was eating outside and a friend said you have a mosq. on your cheek. I went to slap it but it was faster than I was. A few min later i had the standard welt. and it was fairly large, but it did not itch. By the time dinner was served and we were ready to leave, that mosquito bite welt was gone. It took about 90 min. I was amazed.
Was wondering if anyone else had any similar experiences? My friend was also amazed. Se said "i cant believe that thing is gone, that protocol thing must be doing something good" Best --Terry
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Sarcoidosis/lung &cutanious biopsy. uveitis Ph1,Jan07 ModPh2,Apr07 Ph2, Dec07 Ph3,Feb08 NoIRs avoid lite exposure, 25 D 6/08 = 5, 25D 3-09 4.
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terrylmcc
Member in Phase 3
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Posted: Wed Nov 25th, 2009 01:56 |
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mavis at curemy site wrote: Has anyone been cured? I was just wondering if there is anyone who has been cured and is off the MP and is living a normal lifestyle?
Hi Mavis,
Interesting thread here. And feel the need to post here as well.
I am a sarcie, diagnosed in 01 or 02. I found the "sarcinfo.com" online and took it to my Pulmo, and family Dr. Both turned me down.
Had no idea what this treatment was about. Six years of declining health, reduced lung function every 3 months. I was scared to death. At 45 years old i had 68% lung function. It should have been over 100% according to my pulmo Dr. And was developing neuropathy in my legs, and edema too. It was a slippery slope for me.
Anyhow I stumbled on a DR that advised me to go on the MP. I was excited to find that it was the sarcinfo.com that had grown to this new MP treatment.
Almost 3 years into the protocol, the neuropathy is gone, and the edema is gone too. I no longer have allergies, from pretty much day one they were gone. Prior to the MP, had 20 years of daily Claritin D, and flonase. Years of Advair, methotrexate, floradil, asmanex, Pred packs. All immune-suppressive. I have not had any of those in almost 3 years now.
Today i did over an hour of yard work, i raked leaves and used my leaf blower. Even climbed on a ladder and trimmed some trees. I have not done anything like that in years. This may be why i feel so compelled to write this tonight.
It was not an easy road for me. But if I could have started back in 02, I would have. We all have to choose our own path, and i have told a thousand people about the protocol. To my knowledge not one has signed up. It is a new treatment, and tons of contradiction with all the vitamin D studies n such.
It was not an easy 3 years for me on the MP, I had some scary sleepless nights, and a wicked god awful cough that lasted for weeks. Those were the scariest times for me. I have not had a recent, pulmonary function test. But I do have more freedom of air flow. Just in my opinion. I will test one day, to see where it really is. I think i will see some tremendous improvements.
I hope this helps you or maybe someone else decide to do the MP. It is a choice we all made for ourselves, I for one am so happy with where it has taken me.
Bless all of you who have helped me along the way. And Dr. Marshall for his brilliant revelations that day he was standing in the sunlight and figured out this puzzle.
PS. I wanted you to also know taht i have been able to work throughout the entire MP process. With exception of just a few days. I would have normally been off work more without the protocol actually. And The glasses are a minor inconvenience, don't even worry about that part. They actually give me some form of comfort.
Best to all of you. --Terry
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Sarcoidosis/lung &cutanious biopsy. uveitis Ph1,Jan07 ModPh2,Apr07 Ph2, Dec07 Ph3,Feb08 NoIRs avoid lite exposure, 25 D 6/08 = 5, 25D 3-09 4.
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BARNEY
Moderator
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Posted: Thu Nov 26th, 2009 17:23 |
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Hello Terry
Hope you are having a great Thanksgiving.
Your report was very nice.
I, too, have improved including my hips that never stopped hurting all my life until last year on MP (4 1/2yrs). I can actually tell I have hips now, not just pain. If I never got totally cured, I would stay on MP forever, it is that good. But, I really believe I will reach cure within 2 more years, I am that improved, and you also got to remember I have been a sarcie for 40+ yrs and have lost a kidney preMP.
Congrats, Terry, on all of your recoveries.
HANG IN THERE, WE WILL MAKE IT!!!BARNEY
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar40/20mg&xtra
as needed,stage5,
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