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mebauer
Health Professional
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Posted: Fri Mar 7th, 2008 00:01 |
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Benicar posts
MP meds: Benicar 40mg q6h; 6am, 12 noon, 6pm, 12 midnight. Day 12 Beni (3-6-08) Day 2 Mino (3-6-08).
Non-MP palliative med use: None
Natural Light Exposure: Covered-up, Noirs on outdoors & in. Inside all week. House not fully 30 Lux (live with family).
Symptoms: Usual symptoms as described in signature line...Full body neuropathy-7(+2) tinnitus-5-6(+2) joint stiffness-4(+2), muscle tightness-3, GI intolerance's-3, etc. (-is what I currently feel and ( ) is how much it has gone up or down from normal).
Comments: I started with Mino on Tuesday...I felt a little different....my front teeth got cool feeling and I felt my neuropathy heighten but not to the extreme it was on Monday. It was tolerable. Yesterday I felt ok...did dishes, cleaned, etc. more than normal and manged well. Today I took dose #2 of Mino. I took it at 10am like Tue. When I took my 12 noon dose of Beni I noticed the coolness in my teeth, and neuropathy heighten. I also noticed I felt very cold. I tried at 3pm to do a 20mg dose of Beni sub-lingual and now symptoms have heightened a little more. I think Beni causes my symptoms to progress????? Should I try next time to use more Mino??? I'm a little uncomfortable....but tolerating well.
Thanks, Mel!
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CFS peripheral neuropathy 125D54 25D18(Feb08) Ph1Feb08 Ph2April08 25D17(April08) Ph3Sept08 25D10(Nov08)mag ox NoIRs covered up low lux room
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Meg Mangin R.N.
Former Team Member
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Posted: Fri Mar 7th, 2008 00:29 |
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Thanks for letting us know you have started minocycline. You are reacting as expected.  
Please review the information threads pinned to the top of this forum so you will be able to independently locate answers to frequently asked questions.
During Phase One you will learn to identify your immune response symptoms and manage all aspects of the MP....avoiding natural light and vitamin D, getting adequate rest, pacing activities, eating well, using palliative meds appropriately and managing the immune response by adjusting Benicar and minocycline.
An increase in any symptom that correlates with MP therapy is due to immunopathology. These symptoms can be controlled by adjusting MP medications and using palliative meds as needed.
Increased Benicar dosing may be helping your immune system to function too effectively. You could try 20mg every three hours which might provide more palliation and less activation of the VDR. See Benicar dosage and schedules
You could also try taking 25mg mino daily to keep the level consistent so it has more of an anti-inflammatory effect. See When to take low-dose, high-frequency minocycline
If you have palliative meds that work, you can use them to relieve symptoms too.
Hang in there..........
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Nothing contained in this site is or should be considered, or used as a substitute for, medical advice, diagnosis or treatment by your physician.
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mebauer
Health Professional
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Posted: Sat Mar 8th, 2008 02:47 |
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Prior to starting the MP i noticed my left leg has purple/red zig-zag lines *upper thigh....not spider veins as they are bigger & not vericose as they dont stick out. I walk short walks daily and notice my toes on that leg go numb...is this due to a problem with circulation????
I don't think this is my neuropathy as it feels different than in my right leg....which my toes don't go numb. Any suggestions???? Should I ask my doctor???? This is new and hasn't happened to me before...this is really the first visual sign I've ever seen....the rest was all about how I felt.
Any suggestions??? I'm just a little scared...this has been this way for at least 3 wks now...
Thanks for your time!
Mel!
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CFS peripheral neuropathy 125D54 25D18(Feb08) Ph1Feb08 Ph2April08 25D17(April08) Ph3Sept08 25D10(Nov08)mag ox NoIRs covered up low lux room
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Meg Mangin R.N.
Former Team Member
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Posted: Sat Mar 8th, 2008 05:20 |
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Mel, if this is bruising, you can ask Doc to check your CBC. But it may just be a cutaneous manifestation of immunopathology. See Cutaneous manifestations of Th1 inflammation.
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Nothing contained in this site is or should be considered, or used as a substitute for, medical advice, diagnosis or treatment by your physician.
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mebauer
Health Professional
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Posted: Mon Mar 10th, 2008 20:40 |
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MP meds: Benicar 40mg q6h; 6am, 12 noon, 6pm, 12 midnight. Mino 25 mg q48h. Day 16 Beni (3-10-08) Day 4 Mino (3-10-08).
Non-MP palliative med use: None
Natural Light Exposure: Covered-up, Noirs on outdoors & in (usually). Inside all week except yesterday. House not fully 30 Lux (live with family).
Symptoms: Usual symptoms as described in signature line...Full body neuropathy-5(-2) tinnitus-3-4(-2) joint stiffness-4(0), muscle tightness-3, GI intolerance's-3(-4), etc. (-is what I currently feel and ( ) is how much it has gone up or down from normal).
Comments: I have now taken my 4th dose of Mino...I noticed after the 3rd dose my IP was very lessened and today it is as well. I intend to increase to 50mg on Wed. I went out to a full day V-ball tourney yesterday. I was covered with my Noirs on...the 10%! I was inside a gym all day...I had to remove my Noirs to see...I did during my sisters games and mainly all day....no problems! I actually felt pretty good (minus my L) Leg) yesterday. I notice GI problems (constipation) is gone, teeth chattering gone, sugar/carb cravings decreased, "raining vision" lessening, feel a little more up beat, my family was like "Wow, you're in a really good mood!" I also find that I'm more motivated and doing more around the house! These are HUGE improvements for me, as they have been around for awhile now! I'm happy seeing the small steps!
Thank you to all of you!
Mel!
Last edited on Tue Mar 11th, 2008 02:24 by mebauer
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CFS peripheral neuropathy 125D54 25D18(Feb08) Ph1Feb08 Ph2April08 25D17(April08) Ph3Sept08 25D10(Nov08)mag ox NoIRs covered up low lux room
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Meg Mangin R.N.
Former Team Member
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Posted: Mon Mar 10th, 2008 22:29 |
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Mel, based on your report, you could increase mino to 50mg. See How To Identify Immunopathology (Herx) and How to assess symptoms. Finding the pace of therapy that works for you is part of the experience gained throughout the MP journey. Ramping too quickly is not advised but there is no need to tarry.
You will gain confidence in your knowledge of the actions of your immune response and when to increase as you get more experience in independently adjusting the MP meds.
Good to see your improvements........
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Nothing contained in this site is or should be considered, or used as a substitute for, medical advice, diagnosis or treatment by your physician.
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mebauer
Health Professional
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Posted: Tue Mar 18th, 2008 20:30 |
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MP meds: Benicar 40mg q6h; 6am, 12 noon, 6pm, 12 midnight. Mino 50 mg q48h. Day 24 Beni (3-18-08) Day 4 Mino 50mg (3-18-08).
Non-MP palliative med use: Mg. Oxide for constipation...
Natural Light Exposure: Covered-up, Noirs on outdoors & in (usually). Inside all week except Sunday (Car ride 1 hr x2). House not fully 30 Lux (live with family).
Symptoms: Usual symptoms as described in signature line...
Full body neuropathy- 7(+2)
tinnitus- 5(+2)
joint stiffness-4(0)
muscle tightness-3 (0)
GI intolerance's- 9(+5) (Constipation)
Fullness in ears- 8(+3)
Urge to void- 4(0)
Dental pain/coolness of teeth- 8(+4)
Vision specks- 8(+2)
(-is what I currently feel and ( ) is how much it has gone up or down from normal).
Comments: Today I will take my 4th dose of Mino 50 mg...I felt really awful all last week...more so on Wednesday after I introduced my first 50mg dose. I really didn't see a change between the dose to the next. All week I was very tired and my neuropathy was bad. The coolness in my mouth was greatly increased. I wake with strong pain in my teeth, but wonder if I clench my teeth at night. My stomach has been very bad since adding the Mino...I was able to have BM's all during the Beni, but now have not. I stopped Calcium sups and added Mag. Oxide for this. I donno that it's helping as much as I'd hoped. After dose 3 of 50mg Mino, I felt a little better, but still feel worse then prior to MP. This past week has confused me as before I saw a direct IP pattern.
Thanks! Mel!
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CFS peripheral neuropathy 125D54 25D18(Feb08) Ph1Feb08 Ph2April08 25D17(April08) Ph3Sept08 25D10(Nov08)mag ox NoIRs covered up low lux room
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VEZ R.N.
Health Professional
| Joined: | Fri May 19th, 2006 |
| Location: | USA |
| Posts: | 2471 |
| Status: |
Offline
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Posted: Tue Mar 18th, 2008 23:23 |
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Mel, thank you for the update.
You will see symptoms change in many ways while you are on the MP as you body works to become healthy by ridding you of the L-forms causing your disease. The beauty of the treatment is the way it works with your own immune system.
Reading and more reading of everything you can on this site, the links we give you and other's threads will help prepare you on your journey to good health.
Th1 inflammatory disease affects every organ in the body and pain as well as dysfunction occurs over time unless something is done to eliminate the cause. This protocol helps turn the immune system back on so it can do the job it was intended to do, keep us healthy.
You can expect that your sxs will elevate as your body struggles to heal. This is a long commitment and journey back to health and requires diligence, as well as constant assessment of symptoms and interventions to palliate and keep them tolerable. Expectations that you should feel better than before the MP are not realistic.
I will place some links into your thread so you will have them on hand for reference.
I'm constipated. What should I do?
DENTAL PROBLEMS and Th1 inflammation
Should I delay fixing dental problems?
DENTAL questions & suggestions
PAIN CONTROL
Personal, Family, Relationship Tips
Family adjustments to MP
Family responsibilities
Living Life on the MP &
Take good care of yourself Mel and hang in there.
Warm Regards, VEZ
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mebauer
Health Professional
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Posted: Wed Mar 26th, 2008 20:10 |
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MP meds: Benicar 40mg q6h; 6am, 12 noon, 6pm, 12 midnight. Mino 75mg q48h. Day 32 Beni (3-26-08) Day 7 Mino 50mg (3-24-08), Day 1 Mino 75mg (3-26-08).
Non-MP palliative med use: Mg. Oxide for constipation...
Natural Light Exposure: Covered-up, Noirs on outdoors & in (usually). Inside all week except 20 min. walks 2x/day covered up w/noirs on. House not fully 30 Lux (live with family).
Symptoms: Usual symptoms as described in signature line...
Full body neuropathy- 5(-2)
tinnitus- 3(-2)
joint stiffness-2(-2)
muscle tightness-3 (0)
GI intolerance's- 5(-4) (Constipation)
Fullness in ears- 6(-2)
Urge to void-2(-2)
Dental pain/coolness of teeth- 4(-4)
Vision specks- 8(0)
(-is what I currently feel and ( ) is how much it has gone up or down from normal).
Comments: Today I took my first dose of 75mg Mino. I did 7 doses of 50mg and last week my symptoms were way more tolerable then the week prior. I stayed on the 50mg dose through Easter and managed well. I made the entire Easter meal for my family and was up and about all day. My symptoms had heightened with the 50mg dose the first 3 doses and it was a bad week, but after doses 4-7 it was all manageable. I'm gearing up for another rough week with the med upping, but hopefully I'll figure out how to manage. I took my dose today at 10am and already I can feel the cold rushing through me and my teeth getting cold as well...this is my normal IP. I'll update you as I go along!
I hope your Easter was wonderful! Thanks for all the help!
Mel!
P.S. I had a telephone hearing with a judge yesterday about the need for high dosed Benicar...I hope my appeal was approved! I'm crossing my fingers! Now, I just need to appeal my disability claim...ugh, I need more nrg to do these things!!! 
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CFS peripheral neuropathy 125D54 25D18(Feb08) Ph1Feb08 Ph2April08 25D17(April08) Ph3Sept08 25D10(Nov08)mag ox NoIRs covered up low lux room
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Meg Mangin R.N.
Former Team Member
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Posted: Wed Mar 26th, 2008 22:30 |
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Mel, congrats on ramping up to 75mg.
In phase one, it's a good idea to experiment with minocycline and Benicar to see how they work for you. Extend the mino dosing schedule to every 72 hours to see if symptoms are dampened or if more immunopathology is provoked. And conversely, when symptoms peak (not necessarily intolerable), reduce the mino dose to see if that dampens symptoms. You could also try taking lower dose minocycline every six or 12 hours to see if this dosing has an anti-flammatory effect for you.
When a symptom approaches intolerable try an extra Benicar, both oral and sublingual. If that is not effective, increase to every four hours around the clock (set an alarm) to see if that measure is effective to quell the symptom. The resulting information can be added to your personal tool kit.
You will gain experience adjusting MP meds to maintain tolerable immune system reactions. This skill will carry you smoothly through the protocol; when you have learned to manage on a day-to-day basis, you will be equipped to handle a crisis if it occurs.
Let us know how it goes...........
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Nothing contained in this site is or should be considered, or used as a substitute for, medical advice, diagnosis or treatment by your physician.
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mebauer
Health Professional
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Posted: Thu Apr 3rd, 2008 05:56 |
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MP meds: Benicar 40mg q6h; 6am, 12 noon, 6pm, 12 midnight. Mino 75mg q48h. Day 39 Beni (4-2-08) Day 7 Mino 50mg (3-24-08), Day 4 Mino 75mg (4-1-08).
Non-MP palliative med use: Mg. Oxide...
Natural Light Exposure: Covered-up, Noirs on outdoors & in (usually). Inside all week except 20 min. walks 2x/day covered up w/noirs on. House not fully 30 Lux (live with family). I usually have to lift Noirs to see most everything...very annoying...am I sensitive?????
Symptoms: Usual symptoms as described in signature line...
Full body neuropathy- 8(+3)
tinnitus- 5(=2)
joint stiffness-2(-2)
muscle tightness-3 (0)
GI intolerance's- 3(-5) (Constipation)
Fullness in ears- 5(-1)
Urge to void-2(-2)
Dental pain/coolness of teeth- 2(-6)
Vision specks- 9(+1)
(-is what I currently feel and ( ) is how much it has gone up or down from normal).
Comments: I have now had 4 doses of 75mg...I felt the normal coolness IP like I usually get, however less in my mouth now... I've noticed that the white coating on my tongue that I've had during my illness started to clear and now is almost gone and I see pink again! I noticed a greater amount of feeling tired upon upping to 75mg and the first 2 doses made me sleep longer at night, but overall I tolerated everything well. Lately I notice my neuropathy and vision specks are increasing, however, I am due for my menstrual cycle, so that may be what is occurring...I guess I'll see. I'm having a hard time with sugar cravings, and am trying hard to get that under control...
Thanks so much!!!!!
Mel!
P.S. Have a great day!
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CFS peripheral neuropathy 125D54 25D18(Feb08) Ph1Feb08 Ph2April08 25D17(April08) Ph3Sept08 25D10(Nov08)mag ox NoIRs covered up low lux room
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Meg Mangin R.N.
Former Team Member
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Posted: Fri Apr 4th, 2008 06:19 |
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Based on your report, it looks like you should ramp up to 100mg and be thinking about progressing to phase two. Please see How do I know if I'm ready for phase two? for information on how to request the questionnaire. Before you proceed to phase two, ask your doctor about the tests you need to monitor your progress on the MP.
You can use the lighter 40% NoIRs if your current pair are too dark to see.
Nice work......
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Nothing contained in this site is or should be considered, or used as a substitute for, medical advice, diagnosis or treatment by your physician.
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mebauer
Health Professional
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Posted: Wed Apr 9th, 2008 22:45 |
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MP meds: Benicar 40mg q6h; 6am, 12 noon, 6pm, 12 midnight. Mino 75mg q48h. Day 46 Beni (4-9-08) Day 7 Mino 50mg (3-24-08), Day 6 Mino 75mg (4-5-08), Day 1 Mino 100mg (4-8-08).
Non-MP palliative med use: Mg. Oxide...daily.
Natural Light Exposure: Covered-up, Noirs on outdoors & in (usually). Inside all week except 20 min. walks 2x/day covered up w/noirs on. Also was in the car 1 hr Saturday on the way to a V-ball tourney. House not fully 30 Lux (live with family). I usually have to lift Noirs to see most everything...very annoying...am I sensitive?????
Symptoms: Usual symptoms as described in signature line...
Full body neuropathy- 8(+3)
tinnitus- 7(+2)
joint stiffness-4(+2)
muscle tightness-3 (0)
GI intolerance's- 3(-5) (Constipation)
Fullness in ears- 6(+1)
Urge to void-2(-2)
Dental pain/coolness of teeth- 5(+3)
Vision specks- 9(+1)
(-is what I currently feel and ( ) is how much it has gone up or down from normal).
Comments: I noticed last week my symptoms were increasing...along with my hormones increasing prior to my menstrual cycle starting yesterday. I had 3 blackouts Thursday morning and fainted each time. My mom helped me back to bed and I had to be very careful when going from sitting to standing...I told her I was sure my cycle was coming. I had to go to the Dr. and get an x-ray of my foot as I twisted my toe and it was swollen...nothing was broken....thank God!!! I also blacked out Sunday and the same happened with a more graceful landing. I now feel this coming on less and am positive after this week it'll be back to the normal...I will be seeing my MP doctor next Thursday the 17th to get my prescriptions for phase 2! I'll request the questionnaire today...My dose of 100mg went well yesterday...
Thanks so much!!!!!
Mel!
P.S. Have a great day!
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CFS peripheral neuropathy 125D54 25D18(Feb08) Ph1Feb08 Ph2April08 25D17(April08) Ph3Sept08 25D10(Nov08)mag ox NoIRs covered up low lux room
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Jeannine
Board Staff
| Joined: | Sun Aug 28th, 2005 |
| Location: | USA |
| Posts: | 939 |
| Status: |
Offline
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Posted: Thu Apr 10th, 2008 09:57 |
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Hi Mel,
Glad you are ok after your fainting episodes. Please be careful! See...Why am I dizzy and/or fainting?
Do take care when changing positions... getting up more slowly, holding firmly, etc, so that you do not fall and hurt yourself again
and do check with your Dr if necessary..
Based on your report, it looks like you are already planning to progress to phase two. Please see How do I know if I'm ready for phase two? for information on how to request the questionnaire. Before you proceed to phase two, ask your doctor about the tests you need to monitor your progress on the MP.
Please post your next report in the Phases Two and Three forum so we can discuss the details of your next antibiotic.
Check out the glasses link ...there is a 40% pair of NOIRs for indoors you might find helpful for indoors as they are not as dark as the 10%...Sensitivity in the eyes change and the sensitivity is differs member to member. ...though it is still very important to protect your eyes.
You have a good day too, Jeannine
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CFS FM Lyme Morgellon's Depression/Anxiety 125D49 Ph1Aug06 25D <4(april 08)Prozac Valium Aleve ModPh2May07 Ph2Apr08 NoIRs limited outings covered lo lux home
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mebauer
Health Professional
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Posted: Sat Apr 19th, 2008 19:05 |
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MP meds: Benicar 40mg q6h; 6am, 12 noon, 6pm, 12 midnight. Mino 100mg q48h. Day 56 Beni (4-19-08) Day 7 Mino 50mg (3-24-08), Day 6 Mino 75mg (4-5-08), Day 5 Mino 100mg (4-18-08).
Non-MP palliative med use: Mg. Oxide...daily.
Natural Light Exposure: Covered-up, Noirs on outdoors & in (usually). Inside all week except 20 min. walks 2x/day covered up w/noirs on. Also was in the car 1 hr Thur. on the way to and from Dr. apt. House not fully 30 Lux (live with family).
Symptoms: Usual symptoms as described in signature line...
Full body neuropathy- 8(+3)
tinnitus- 7(0)
joint stiffness-4(0)
muscle tightness-3 (0)
GI intolerance's- 3(0) (Constipation)
Fullness in ears- 6(0)
Urge to void-2(0)
Dental pain/coolness of teeth- 5(0)
Vision specks- 9(0)
(-is what I currently feel and ( ) is how much it has gone up or down from normal).
Comments: My symptoms have been up since a couple weeks ago...I am finally starting to see my attitude changing at the end of the 100mg dose. I went out last night just to get a coffee with a friend and I actually wanted to, so that was good. I've noticed that at the beginning of each dose upping my neck tightness is bad and by the end of it it's more loose and cracks a lot. I seem to think the my glands aren't as hard like rocks and move more when I feel them. I am ok to go to Phase 2 and will start that next week. My doctor checked my BP laying, sitting, standing at my apt. and I passed his lil test. He says my young body is tolerating the meds well....not to sure he's convinced about the MP yet, as I really don't have a lot of positives to tell him. I should receive lab results soon on what was ordered. I will post next in the phase 2 forum.
Thanks so much!!!!!
Mel!
P.S. Have a good weekend!
Noted
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CFS peripheral neuropathy 125D54 25D18(Feb08) Ph1Feb08 Ph2April08 25D17(April08) Ph3Sept08 25D10(Nov08)mag ox NoIRs covered up low lux room
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mebauer
Health Professional
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Posted: Tue Aug 26th, 2008 20:12 |
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Well, I thought I should write a bit about how the MP has been going for me.
I have made it through 6 months of the treatment as of Sunday! I am currently on level 4 of phase 2 and looking to start Phase 3 in about a month. A little history first...I became ill in Feb. of 2006...It was immediate and very sudden, or so I thought. It started with a huge urge to eat sugar and carbs...also overwhelming fatigue and so many issues with things I now see that were hormonal. Prior to that time I had went through a huge bit with depression after my boyfriend of 5 yrs cheated on me and we split up. I stopped eating...and lost about 20lbs before I went back to college that fall of 2005. When I returned to college the depression was better; however, my body was telling me I wasn't hungry. I started to run daily and work out, but I wasn't eating like someone who should be hungry would.
Thinking back on everything I realize now how much Vit. D I was consuming. A normal day was...breakfast, eating yogurt with Vit D...lunch was a bowl of Special K cereal with Vit D. in it, and of course milk with Vit D...Supper was always some sort of sandwich or something with fruit or veggies....and a snack would have been a fruit pop or fruit later that night. I also had a boyfriend at the time who worked at a Laundry/tanning place...so, I went tanning for free at least 1x every 1-2 weeks. Of course I realized I wasn't eating enough; however, I wasn't hungry, so I took a multi-vitamin daily as well...shock shock it was loaded with Vit D! :O
After about 2 months at school I lost about 15 more pounds...so, in a matter of 3-4 months I had lost 35 pounds and went from a size 12 to a size 4...yikes! I however felt great and loved the way I looked...I had a lot of new found confidence and energy...my roomies however were worried, but come Feb. I started eating and giving into the cravings I felt...
In March of 2006 I went to the doctor...they tested me for strep and Mono...they gave me Zithromax...for the bacterial infection...the following day my body felt weird...tingling started and since I have had a neuropathy throughout my whole body. It's like when your arm or leg falls asleep and it's just coming back from the numb feeling to normal...except it doesn't get to the normal feeling...ever! I've been to so many doctors...so many treatments...nothing has helped...but has usually made it worse. After about 3 months of being sick they found I had Mono along with the bacterial infection...so I had co-infections and they said it would just progressively get better...well, the Mayo Clinic doctor was wrong...it just got worse and worse. I went back to nursing school and finished in April of 2007, but practically killed myself trying to get through...when it was all said and done, I went home and crashed and haven't worked since.
Ok, so now to the present...I have been on the MP for 6 months now...I have tried many other things...shots of gamma globulin in my ass 2x/week for 6 weeks...which made my ass hurt, but did nothing to make me feel any better. I did 4 weeks of IV Rocephin for what they were thinking was Lyme Disease, which made me even sicker and eventually landed me in the ER and hospital...my liver enzymes were up and my WBC was chronically low. So, what was supposed to be 6 weeks on the IV abx ended at 4 weeks...thank gawd!!!! I also had many other drugs thrown at me...oral antibiotics, oral anti-virals, sleeping pills, vitamins, herbals, elimination diets (which only helped a little), etc.
When I started the MP it made a lot of sense to me...my symptoms were always heightened after I was put on hormone sups and enduced my period (which was non-existent for about 1 1/2 yrs)...so, symptoms were unbearable during that week and after they would settle down...my doc I saw was a specialist in Wisconsin...I drove 8 hrs to see him...he looked at me like I was a nuts Nurse when I told him I thought it had a lot to do with my hormones...I bet he laughed when I left the room too...haha! I'm the only one laughing now... 
So, when I started I noticed a lot of signs that it would work...I felt a cool/numb feeling where my neuropathy is...just like I had when I was given Zithromax in March of 2005...that was my sign! The first 3 months were rough...I was so cold, and tired...I sat with my space heater, blanket and Noirs on the couch a lot. By the end of phase 1 I was seeing changes though...my family noticed my ambition changing...I started cleaning, baking, and wanting to get out of the house.
Currently I am still dealing with all of my symptoms...they cycle however, and have ups and downs...which I see closely match my menstrual cycle and also the amount of Mino I'm taking. I am on a job hunt presently for a manageable RN job...I have interviews lined up! It's not easy finding a nursing job that isn't physically demanding though...so, hopefully something tolerable will work out soon!!! I walk daily...2x for about 20-30 minutes...my weight is staying about the same now...hopefully I'll be able to shed some pounds in phase 3...I'm willing to bet more changes will be coming in the next 6 months!
I'm currently posting in the health professionals section...so, if you want to see how I'm doing...just write me a note! I'm for sure still on the MP!!! Thanks all...never give up!!! Mwah!
Mel
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CFS peripheral neuropathy 125D54 25D18(Feb08) Ph1Feb08 Ph2April08 25D17(April08) Ph3Sept08 25D10(Nov08)mag ox NoIRs covered up low lux room
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mebauer
Health Professional
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Posted: Sun Sep 21st, 2008 20:50 |
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This week was interesting...I expect my symptoms to get real bad around the beginning of each month due to my hormones and cycle, but this time it was noticeable, but not like it usually is...it was as if my IP was more tolerable than past months.
The office lighting is working out fine now...I keep the florescent lights above me off and have lamps in that area and the other half of the office I have them on...it's been going fine and I really love my job.
I'll just keep going with my meds...I plan on phase 3 starting in about 10 days...I'm nervous, but excited as well...I have a lot of neuro symptoms with my neuropathy and I know phase 3 targets that the best...so, at 7 months on the MP I will start Phase 3! I have all the meds in line and will just stay at this level for a few more times!
On Friday I went outside covered but at dusk to go for a walk. I started walking and felt a lil more upbeat, so I tried jogging. I went from one electrical pole to the next walking and then jogging. I did this for an hour and felt fine during, after, and the following day!
I haven't been able to do that for 2 1/2 yrs, because my legs have felt so heavy (like cement was pasted on each foot) for so long. I did it again this morning...how wonderful! It's far from my marathon training days, but it's more than I've been able to do since I became ill!
It'll be 7 months on the MP on Wed, and I can't believe how things are changing! I have a long way to go, but I'm able to go and do so much more than I was before the MP! I just thought I'd share...I can't wait till my 1 yr anniversary to see just how many more improvements have occurred!!!
Mel
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CFS peripheral neuropathy 125D54 25D18(Feb08) Ph1Feb08 Ph2April08 25D17(April08) Ph3Sept08 25D10(Nov08)mag ox NoIRs covered up low lux room
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