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P.Bear R.N.
Inactive Staff
| Joined: | Fri Dec 3rd, 2004 |
| Location: | USA |
| Posts: | 2125 |
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Posted: Thu Aug 21st, 2008 22:24 |
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Ross, Great news about your 25-D coming down! After you are on 100mg of Mino for a few weeks you may be ready for phase 2 if your reactions are not intolerable.
suggest to send for the questionnaire for phase 2 Q asap so you will be able to discuss the next antibiotic with your doctor.Send an email to marshallprotocol2@yahoo.com with 'request Phase 2 Q' in the subject line.
Before you commence the next phase, please post in the Phases Two and Three forum so we can discuss the details of your next antibiotic. We look forward to welcoming you there when you have received a response to your completed questionnaire.
Where is the Phase 2/3 forum?
This link at the top Left of each page The Marshall Protocol Study Site - will take you to the main page.
Scroll down that page till you find the Phases Two and Three Forum - click to to get the page where you can post a new topic. We look forward to welcoming you there when you have received a response to your completed questionnaire.
best, P.B.
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natalie17
Moderator
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Posted: Fri Aug 22nd, 2008 05:24 |
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Ross - 1,25-D fluctuates on the MP and doesn't need to be tested 
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CFS/ME| Inderal Clonazepam OC | Sept06 1,25D=75 Feb10 25D=17.5| avoid D, sunscreen when out | Ph?? |MP Knowledge Base
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CFS South Africa
Member in Phase 3
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Posted: Wed Aug 27th, 2008 19:03 |
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Hi there
I'd like to post a new topic on the phase 2 and 3 forum, however I can't seem to find the right page - please advise as to where I can find it.
Regards,
Ross
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CFS 2 Years - Swollen Glands - Chest Pain - Flu like symptoms - Sleep problems - Sinus congestion - Headaches. 25D 18.4 ng/ml (Dec 09), 25D 37.2 ng/ml (July 09)25D 29.7ng/ml (25 Nov 08) 25D 21.7 ng/ml(15 Aug 08) - 25D 52.4 ng/ml(30 March 08) - Non MP meds
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Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
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Posted: Wed Aug 27th, 2008 20:02 |
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| Have you, as PB suggested, "send for the questionnaire for phase 2 Q asap so you will be able to discuss the next antibiotic with your doctor. Send an email to marshallprotocol2@yahoo.com with ' Your ID username, request Phase 2 Q' in the subject line."? thanks, Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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CFS South Africa
Member in Phase 3
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Posted: Thu Sep 4th, 2008 21:45 |
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Hi there
I have had minimal IP in the last week on 75mg mino. Next week I'll be starting 100mg mino and when my IP is tolerable I will move onto phase 2, which should be in the next few weeks. Feeling pretty good and excited to start phase 2 soon. Got a cold/flu 3 weeks ago - it was the first time I had to take a few days off work in over a year. Put it down to the changing of seasons and the temperature change. Otherwise my immune system seems to be getting stronger and more resiliant to colds and flu.
Started MP 21 May
Started Mino 25mg every 48 hours 28 May
Started Mino 50mg every 48 hours 6 June
Dropped back to 25mg every 48 hours 3 July
Ramped back to 50mg mino every 48 hours 29 July
Started Mino 75mg every 48 hours 13 August
MP meds: Benicar(votum 40mg) - every 1 hours, four times a day. Mino 75mg every 48 hours.
Palliative non-MP meds: 1mg dormanoct before a go to sleep
Light exposure: 1 hours sun exposure since last post
Symptoms:
Brain Fog - 4
Insomnia - 4
Flu like symphoms - 4
Fatigue - 4
Post exercise fatigue - 4
Swollen/sore glands neck/shoulders - 4
Pain in chest - 4
Pain in ears - 3
Sinus congestion - 4
Red/sore eyes - 3
Head aches - 3
Regards,
Ross
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CFS 2 Years - Swollen Glands - Chest Pain - Flu like symptoms - Sleep problems - Sinus congestion - Headaches. 25D 18.4 ng/ml (Dec 09), 25D 37.2 ng/ml (July 09)25D 29.7ng/ml (25 Nov 08) 25D 21.7 ng/ml(15 Aug 08) - 25D 52.4 ng/ml(30 March 08) - Non MP meds
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CFS South Africa
Member in Phase 3
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Posted: Thu Sep 11th, 2008 18:57 |
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Hi there
I started 100mg mino two days ago with little herx so far. However alot more fatigued. I'd like to stay on 100mg mino until the end of next week and then progress to phase 2.
Started MP 21 May
Started Mino 25mg every 48 hours 28 May
Started Mino 50mg every 48 hours 6 June
Dropped back to 25mg every 48 hours 3 July
Ramped back to 50mg mino every 48 hours 29 July
Started Mino 75mg every 48 hours 13 August
Started Mino 100mg every 48 hours 9 Sep
MP meds: Benicar(votum 40mg) - every 6 hours, four times a day. Mino 100mg every 48 hours.
Palliative non-MP meds: 1mg dormanoct before a go to sleep
Light exposure: 3 hours sun exposure since last post
Symptoms:
Brain Fog - 4
Insomnia - 4
Flu like symphoms - 4
Fatigue - 6
Post exercise fatigue - 4
Swollen/sore glands neck/shoulders - 4
Pain in chest - 4
Pain in ears - 3
Sinus congestion - 4
Red/sore eyes - 3
Head aches - 3
Question - I'd like to progress to phase 2 in the next 10 days - I have been given approval to start the next stage. Is there anything I need to be aware of before I start the next stage - and should I post a new topic in stage 2 and 3 before I start?
Regards,
Ross
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CFS 2 Years - Swollen Glands - Chest Pain - Flu like symptoms - Sleep problems - Sinus congestion - Headaches. 25D 18.4 ng/ml (Dec 09), 25D 37.2 ng/ml (July 09)25D 29.7ng/ml (25 Nov 08) 25D 21.7 ng/ml(15 Aug 08) - 25D 52.4 ng/ml(30 March 08) - Non MP meds
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VEZ R.N.
Health Professional
| Joined: | Fri May 19th, 2006 |
| Location: | USA |
| Posts: | 2471 |
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Posted: Fri Sep 12th, 2008 02:45 |
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Thanks for the update C.
Plan looks good, you will be posting in the Phase II section. Please read over the phase II guidelines to prepare.
Keep up the nice work.
Best, VEZ
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CFS South Africa
Member in Phase 3
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Posted: Mon Sep 15th, 2008 14:37 |
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Hi There
I'm about to start Phase 2 on MP and I'd like to give a recap on the past few months on MP.
I started staying off all foods with Vitamin D in March 2008 which really helped me feel better before I started MP in May 2008. As a whole I have definately felt better then pre MP. I couldn't go out and socialise pre MP as I would get tired and moody with every move I made - not great as I used to be extremely social and excerise frequently.
I would feel fatigued all the time and couldn't sleep without waking up about 20-30 time a night - no jokes. However since starting MP I have been sleeping great albeit with 1mg dormanoct a night which I'll slowly wean myself off. The pain I used to feel in my neck has pretty much gone which is such I relief and only flares up if I exert myself to much and stay in the sun for quite a while. I'm able to do a 30 mins of exercise twice a week with no adverse or after effects of feeling fatigued and having swollen glands. I am however taking it very easy and my progress is slow and ready and I'll keep it that way.
I really have found that there are moments where I have had more energy then I have had in years which is awesome - however I have to use it constructively and make sure I don't overdo things. I have had quite a bit of herx in the four months on MP - it usually comes when I increase the mino - then after a week or two on that specific dose it goes away and I increase the dosage. I must however say that the herx I have had has never been as severe as the symptoms I felt before MP - maybe my mind reminds me that it's only temporary and that it won't last for long which really helps. My whole mindset has been great through MP - I have always believed in the literature and that it would make me better and that's exactly what is happening. The mind is extremely powerful and I believe that and MP have helped to make me feel better quicker.
My D25 was 54.1 when I had it tested pre MP and after 3 and a half months it's gone down to 21,7. I aim to decrease that further and know I can do it by being extremely disciplined.
As I sit here today I feel great - sure I have my tough days but they are getting fewer and fewer and there is a much bigger picture in site and that's altimate health. I believe I'll get there and I'm not in a huge rush. I'm looking forward to Phase 2 and believe I can handle anything it throws at me.
Regards,
Ross
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CFS 2 Years - Swollen Glands - Chest Pain - Flu like symptoms - Sleep problems - Sinus congestion - Headaches. 25D 18.4 ng/ml (Dec 09), 25D 37.2 ng/ml (July 09)25D 29.7ng/ml (25 Nov 08) 25D 21.7 ng/ml(15 Aug 08) - 25D 52.4 ng/ml(30 March 08) - Non MP meds
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CFS South Africa
Member in Phase 3
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Posted: Sun Nov 30th, 2008 21:06 |
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Phase 2 - almost 80 days
MP meds: Benicar(votum 40mg) - every 6 hours, four times a day. Phase 2 meds.
Palliative non-MP meds: 1mg dormanoct before a go to sleep
Light exposure: 1 an hour sun exposure in the in the last week
I had a good week this week. I really healed very quicky after having 4 wisdom teeth out. I was a bit nervous having them out and the time it may take to heal, but when I went to the doc for a checkup a week after the OP - he said it's one of the fastest he's seen anyone heal. I took great confidence out of this and believe it is because I'm getting better.
Yesterday I had more energy then I've had in a long time - I really got a lot done and was bubbling with energy - was great. herx is tolerable.
I had my 1.25D blood test taken on 24 Nov - I await those results.
Symptoms:
Brain Fog - 4
Insomnia - 4
Flu like symphoms - 5
Fatigue - 5
Post exercise fatigue - 5
Swollen/sore glands neck/shoulders - 5
Pain in chest - 5
Pain in ears - 4
Sinus congestion - 4
Red/sore eyes - 4
Head aches - 4
Regards,
Ross
December 21st:
Light exposure: 8 hours sun exposure in the in the last week
I have had a lot of sun this week for my job, however I have been able to handle better than expected. I have felt very fatigued when getting too much sun, however I have rested well and my energy has come back nicely.
I have had to do a lot of entertaining for my job this week and I've done it really well with a lot of energy - something I couldn't have done 6-8 months ago.
I go on holiday in a few days and look forward to some well deserved rest after a busy but very good year!
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CFS 2 Years - Swollen Glands - Chest Pain - Flu like symptoms - Sleep problems - Sinus congestion - Headaches. 25D 18.4 ng/ml (Dec 09), 25D 37.2 ng/ml (July 09)25D 29.7ng/ml (25 Nov 08) 25D 21.7 ng/ml(15 Aug 08) - 25D 52.4 ng/ml(30 March 08) - Non MP meds
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CFS South Africa
Member in Phase 3
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Posted: Tue Jan 6th, 2009 23:05 |
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Phase 2
MP meds: Benicar(votum 40mg) - every 6 hours, four times a day. Phase 2 meds
Palliative non-MP meds: 1mg dormanoct before a go to sleep
Light exposure: 10 hours sun exposure in the in the two weeks
I have been on holiday for the last two weeks with quite a lot of sun exposure which was unavoidable as I was travelling around the country. I also did quite a bit of exercise and socializing. I had bouts of great energy, better then anything in the last year, then also some times of fatigue due to the amoungt of sun, lack of sleep etc.
I was very happy with how my body coped as this is almost my last bit of time in the sun as I'm moving the UK in Feb. I have been pretty tired for the last few days as I'm back at work. But I'm feeling good and feel like I'm making good progress and I'll heal even quicker when I'm in the UK and out of the sun. Things are really looking up and I'm looking forward to a great 2009.
Symptoms:
Brain Fog - 4
Insomnia - 4
Flu like symphoms - 4
Fatigue - 5
Post exercise fatigue - 4
Swollen/sore glands neck/shoulders - 4
Pain in chest - 4
Pain in ears - 4
Sinus congestion - 4
Red/sore eyes - 4
Head aches - 4
Regards,
Ross
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CFS 2 Years - Swollen Glands - Chest Pain - Flu like symptoms - Sleep problems - Sinus congestion - Headaches. 25D 18.4 ng/ml (Dec 09), 25D 37.2 ng/ml (July 09)25D 29.7ng/ml (25 Nov 08) 25D 21.7 ng/ml(15 Aug 08) - 25D 52.4 ng/ml(30 March 08) - Non MP meds
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CFS South Africa
Member in Phase 3
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Posted: Wed Mar 18th, 2009 19:05 |
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Alumni Update
Phase 2 MP Meds - 40mg benicar every 6 hours
Palliative no MP-meds - 1mg dormanoct every night before I sleep
Light Exposure - 1/2 hours in the last week
I have been feeling pretty good of late - very positive and feeling really happy. The limited sun has really helped change my mood into a more stable and positive mood with less mood swings. I am less stressed as I have moved to London which I'm really happy about. One really good thing that has come out of me getting sick and finding a solultion to my illness, is my mind. Over the last two years my mind has really got so strong and because of this I feel I can do anything. I keep on getting people coming up to me commenting on how positive I am and how I'm really and inspiration to them. I'm glad to have the ability for people to now look at me and see what I've achieved since getting sick. I now don't take my health for granted and live life to the full. MP has really helped me achieve this mindset and I believe it will only get stronger as I get better.
I am progessing nicely on my treatment and I'm still feeling a little herx at the moment, but the good days are becoming more and the bad days less.
Symptoms:
Fatigue - 4
Brain Fog - 3
Head Aches - 4
Flu like symptoms - 4
Insomnia - 4
Swollen glands in neck/shoulers - 4
Pain in chest - 4
Pain in ears - 4
Sinus congestion - 3
Sore eyes - 3
Post exercise fatigue - 5
Regards,
Ross
January 2010:
Phase 3 - Level 1 - Cycle 10 - day 5
MP Meds - 40mg benicar every 6 hours, 75mg mino and 32mg clindy every 48 hours, 25 Zith every 10 days
Light Exposure - 0 in the last week
It was been quite a while since my last post. There should be no excuses, however I have been on holiday for the last month. I was in the sun in South Africa for three weeks. I tried to avoid the sun as much as possible, however it's pretty tough on a beach holiday. As a result I didn't feel too great, however I tried to minimize the effect of the sun as much as possible. I am back in London where there is no sun so I feel great again. I ramped down my meds from 75 mino to 25 mino and to 32 clindy and no Zith for three weeks in SA so that i could enjoy my time more and not have huge adverse effect.
I've ramped back up and I've been hit with some pretty touch herx over the last few days which I'm able to deal with.
One really great achievement is that I have now stopped taken any form of sleeping pill. I have taken some form of sleeping pill for the last 3 years while I had CFS. I can now report that I am sleep 7/8 hours consistently without waking up every night. I haven't been able to sleep like this unassisted for the last 12 years - great news! I am now only on MP meds.
Otherwise I have been doing great. I am walking a lot in London and play a bit of golf - that is about the extent of my physical activity and it works well for me. I believe that around September this year I will be able to increase my exercise slightly and be able to job (that's what I'm aiming for anyway). I am looking a lot better, healthier and I have tons of energy. My hair is also growing back a lot thicker. So I'm making steady progress and I believe this year I will get better and better and be able to live my live the way I want to.
Symptoms:
Fatigue - 4
Brain Fog - 3
Head Aches - 2
Flu like symptoms - 3
Insomnia - 1
Swollen glands in neck/shoulers - 3
Pain in chest - 3
Pain in ears - 3
Sinus congestion - 3
Sore eyes - 3
Post exercise fatigue - 8
Regards,
Ross
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CFS 2 Years - Swollen Glands - Chest Pain - Flu like symptoms - Sleep problems - Sinus congestion - Headaches. 25D 18.4 ng/ml (Dec 09), 25D 37.2 ng/ml (July 09)25D 29.7ng/ml (25 Nov 08) 25D 21.7 ng/ml(15 Aug 08) - 25D 52.4 ng/ml(30 March 08) - Non MP meds
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