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Cynthia Schnitz
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| Joined: | Thu Dec 25th, 2008 |
| Location: | N., USA |
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Posted: Thu Oct 28th, 2010 04:57 |
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Started MP Oct.27, 2008, after 4 months of D/light avoidance.
Cynthia's first anniversary on MP
IMPROVEMENTS Starting at the top and working my way down.
Hair growing faster, with split ends occurring further down my back.
Dreaming occasionally now, no dreaming pre MP (and I don't care what the experts say).
Early Macular Degeneration, discovered at start of MP, no change.
Ears, near lifelong extreme sensitivity to drafts (ear aches), gone.
Ears, extreme pain from sleeping on ears pre MP gone.
Sinus pressure at top left of nose, no longer an annoyance.
Sense of smell poor, 5-10%, but not flat line zero as pre MP, occasionally fantastic.
Griping dry throat would send me into a severe coughing fit until I got a drink of water, gone.
Cold sores common pre MP, rare on MP and abort early.
Facial and neck skin itching when lying on my hair pre MP, gone.
Finger ulcers (Raynaud's?) very common & painful pre MP, only a few aborted ones on MP.
Under arm hair is now evident, where it was unperceivable before.
Calcium problem, gone. Dairy intake limited to 1/2 c dairy/day pre MP, now 2 to 3 cups OK.
Can now wear very tight fitting elastic waist bands in clothing, nothing even loose pre MP.
Intestinal Candida and another fungal problem, a constant battle pre-MP, gone near start of MP.
Back pain from sitting in poorly shaped chairs gone.
Nerves in hip joints, non functional pre MP, work well now. 
Hip range of motion limited pre MP to 20-30%, now is 50-80%.
Bladder very sensitive pre MP, potty stops every 1.5 to 2 hours, now about 4-6 hours.
Frequent night leg cramps, cramps in calves and feet during the night pre MP, gone..
Toenail fungus of many years duration began to go away with D reduction.
CONDITIONS YET TO BE ADDRESSED BY THE MP
- Marginal Incontinence
- Body chilling resulting from sitting, tho only during winter. Something about the sitting position.
- Stamina and general energy level low, including waking unrefreshed in the morning. (Worse during MP)
- Over weight. (Worse during MP)
- Poor sense of balance.
- Total lack of ear wax.
- Plaque on teeth. (Much worse on MP)
- Low thyroid.
- Malformed small toenails. *
- Floaters. *
- Astigmatism in left eye. *
- Poor near vision (Presbyopia). *
- Cellulite. *
* Well, I can hope, can't I?
AND A FEW THINGS BROUGHT ON BY THE MP, AND NOT YET RESOLVED
- Stamina and general energy level, worse while on MP, but much closer to pre MP level now.
- Tinnitus, continuous for the last year, but only occurred occasionally pre MP.
- Plaque on teeth, heavy pre-MP, but extremely heavy since starting the MP.
- Ghost smell, sensing something that is not real, a frequent reminder of the MP working.
- A form of seborrhea, with sandy, unshedding bumps on my scalp, present since the start of the MP.
- Lethargy, very bad for the first 6 months, mostly gone now, but occasionally shows up.
- Weakness in leg muscles and aches in joints, starting this month.
- (Previous weakness in hand/arm muscles at ~ 6 months, lasted a couple of months.)
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MP start 10/08 (no breaks) | Spondylitis 97, early Diverticulosis 98, early AMD 08, Calcium anomaly 95, TypeII Diabetes(?) 02 | 25D=9.1ng/ml 1/12, (preMP 125D/25D=47/43) | My progress
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Cynthia Schnitz
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| Joined: | Thu Dec 25th, 2008 |
| Location: | N., USA |
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Posted: Thu Oct 28th, 2010 05:07 |
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Cynthia's 2nd anniversary on MP
IMPROVEMENTS Starting at the top and working my way down.
Hair: cross sectional area of hair bundle has increased by 140 % in 16 months.
Hair: growth has been 1/2 inch/month since day one, am now able to grow much longer hair.
Dreaming again regularly, no dreaming pre MP (and I don't care what the experts say).
Early Macular Degeneration, discovered at start of MP, no change.
Ears, near lifelong extreme sensitivity to drafts (ear aches), still gone.
Ears, extreme pain from sleeping on ears pre MP, gone, right, slight discomfort occasionally, left.
Sinus pressure at top left of nose, still gone.
Most always had one nostril blocked, occasionally both briefly, may have cleared during 1st year.
Sense of smell returning, currently 20-30% functional, pre MP was a flat line, no sense of smell.
Sense of smell related, I can now sense air temperature and humidity with nose, nothing pre MP.
Griping dry throat causing severe coughing fit without water, still gone.
Cold sores common pre MP, still rare on MP and abort early.
Facial skin itching when lying on my hair pre MP, gone, but neck skin itching again..
Skin of neck no longer rigidly attached to under lying tissue.
Neck no longer aches if pillow edge is under the main forward pivoting joint while sleeping.
Thyroid now near normal.
Finger ulcers (Raynaud's?) very common & painful pre MP, none in 2nd yr.
Underarm hair, imperceptible pre MP, now perceptible, but not much.
Underarm perspiration, none for years, is functioning again.
Calcium problem still gone.
Back pain is pretty much gone when the pads in my back swell due to immuno pathology (IP).
Can still wear very tight fitting elastic waist bands in clothing, nothing even loose pre MP.
Intestinal Candida and other fungal problem, a constant battle, gone near start of MP, still gone.
Low back pain due to pulling knees up beyond hip's maximum range of motion, gone.
Bladder very sensitive pre MP, potty stops every 1.5 to 2 hours, now about 5-7 hours.
Nerves in hip joints still work well, unfortunately. Non-functional pre MP.
Hip range of motion limited pre MP (20-30%), improved on most of MP (50-80%), an IP now.
Frequent night leg cramps, still gone.
Toenail fungus of many years duration began to go away with D reduction, still gone.
Malformed small toenails, improved.
CONDITIONS YET TO BE ADDRESSED BY THE MP
- Marginal Incontinence
- Body chilling resulting from sitting, tho only during winter. Something about the sitting position.
- Hair around periphery of face still not growing well.
- Hair still wavy, was straight most of life.
- Over weight. (Worse during MP)
- Poor sense of balance.
- Total lack of ear wax.
- Plaque on teeth. (Much worse on MP)
- Floaters. *
- Astigmatism in left eye. *
- Poor near vision (Presbyopia). *
- Cellulite. *
* Still hoping
AND A FEW THINGS BROUGHT ON BY THE MP, AND NOT YET RESOLVED
- Tinnitus, continuous for the last 2 years, but only occurred occasionally pre MP.
- Plaque on teeth, heavy pre MP, but extremely heavy since starting the MP
- Current immune activity in right hip joint is causing disability for a few minutes after sitting for some time.
Update in Blue 10-28,31-10, 11-2-10
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MP start 10/08 (no breaks) | Spondylitis 97, early Diverticulosis 98, early AMD 08, Calcium anomaly 95, TypeII Diabetes(?) 02 | 25D=9.1ng/ml 1/12, (preMP 125D/25D=47/43) | My progress
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Glenda09
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| Joined: | Sun Dec 20th, 2009 |
| Location: | Sydney, Australia |
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Posted: Thu Oct 28th, 2010 06:29 |
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Hi Cynthia
Thanks for the update glad that you have seen so many improvements it gives those who are at the beginning of the MP like me a lot of encouragement
Glenda
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RA | Ph1 Sept09 Ph 2 May10 Ph 3 Mar 11 | NoIRs outside | 25D14(Sept10)
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Barney
Support Team
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Posted: Thu Oct 28th, 2010 17:58 |
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HAPPY ANNIVERSARY CYNTHIA!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
HANG IN THERE, WE WILL MAKE IT!!!!BARNEY
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Sarcoidosis, asthma, fibromyalga, diabetes, left kidney only. Started MP 1/1/05. Benicar only since 9/2007.
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Cynthia Schnitz
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| Joined: | Thu Dec 25th, 2008 |
| Location: | N., USA |
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Posted: Thu Oct 28th, 2010 18:31 |
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| Glenda, I found myself truly amazed at how sick I really was when all these things started to go away on the MP, where previously I had considered myself pretty healthy. I had work arounds for everything: Avoid milk products, don't sleep on ears, baffle the vents in my car, keep a bottle of water with me always, carry around a lumbar support pillow every where I go, tie my hair behind my head so I wouldn't have to look at that tiny wisp of nothing. Even now it just doesn't sink in how much I have achieved, because of all the work arounds that made it possible to live without thinking of these things constantly, except for my hair. That was a constant reminder. There just wasn't anything there. Now I have oodles of hair, and can feel it draped over my shoulders and back. I will try to get a new picture up on the forums soon to show what I mean. Cynthia
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MP start 10/08 (no breaks) | Spondylitis 97, early Diverticulosis 98, early AMD 08, Calcium anomaly 95, TypeII Diabetes(?) 02 | 25D=9.1ng/ml 1/12, (preMP 125D/25D=47/43) | My progress
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cbay
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| Joined: | Tue Sep 21st, 2010 |
| Location: | Austin, Texas USA |
| Posts: | 141 |
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Posted: Thu Oct 28th, 2010 19:47 |
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Congrats on the progress Cynthia! Great summaries too 
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MP July'10 | OCD`94, GERD`03, IBS`04, ADHD`05, Depression`07, Anxiety `10 | 125D45 | 25D12.7 Jan11 | My Progress
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Cynthia Schnitz
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Posted: Sat Dec 11th, 2010 19:05 |
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I think an update on one item is appropriate here just to emphasize the fact that progress is not a straight line. The finger ulcers that have been almost non-existent for the first 2 winters (started MP in October and saw immediate improvement) have had a resurgence this winter with activity on 2 fingers, and one finger just doesn't want to heal. Every slight chilling of body or finger sets back any progress in healing. I think I am going to chock this up to IP, with my immune system working particularly hard on the tip of my right index finger. Makes typing kind o difficult.
Cynthia
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MP start 10/08 (no breaks) | Spondylitis 97, early Diverticulosis 98, early AMD 08, Calcium anomaly 95, TypeII Diabetes(?) 02 | 25D=9.1ng/ml 1/12, (preMP 125D/25D=47/43) | My progress
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Dody
Support Team
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Posted: Sat Dec 11th, 2010 21:05 |
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Hi Cynthia,
Congratulations on your progress, and thanks for all you do for the MP!!
Isn't it weird how things wax and wane and wax again? I always TRY to say oh goodie, that's getting worked on now. But as it says in that great cartoon by A. Kofore (sp?), "Gret! I has a herxheimer reakshun!...Is not so gret akshually..."
All best,
Dody
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MP start Feb'07 (no breaks)| Lyme'98 Arrhythmia/Tachy/Vertigo'06 Appendicitis/ColonResection'89 Bipolar'83 Meningitis'47 | Dody's progress | first25D=21, last 25D=7 Jul'11
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Dr Trevor Marshall
Foundation Staff
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Posted: Sun Dec 12th, 2010 00:01 |
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Marysue
Foundation Staff
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Posted: Sun Dec 12th, 2010 03:02 |
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Congrats Cynthia!
I look forward to seeing the picture with your headful of hair.
Marysue
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MP Apr09 (no breaks)| CFS/FM,infert/endometriosis | hypotension, cardiac IP, chronic muscle/joint pain, neuro symptoms, severe light sensitivity | last 25D=12.5 Sep'11
Marysue on Benicar
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Aunt Diana
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| Location: | Boquette, Panama |
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Posted: Sun Dec 12th, 2010 03:20 |
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On a similar note, Cynthia.... I have had a numb are in my right thigh for 10 or more years. It has kinda worried me but it didn't seem to present any problems. Besides I have had so many bizarre symptoms over the past 20 odd years that I have given up trying to figure out what they mean.
Well, recently that has started to change. In that same area I have been experiencing electric shock like sensations, ant crawling and biting feelings...very intermittently. Fortunately they don't last long.
The other night I was lying in bed and pain awoke me...pain in this area. A dull but insistent and strong pain that overtook me. I added a painkiller to no effect.
It subsided on its own an hour or so later. I have had that recur a few times and I must admit it has me concerned. Although my brain tells me it is most likely for the good, my nervous system and the other me isn't convinced yet.
Three days have now gone by...I abandoned my Resumation of Clindy and have dropped the Mino. I prefer the slower approach and I think I may have achieved this.
So, to reiterate...this is not a straight line...we never know what surprise might be lurking.
This is why it is so important to keep reading these posts on this website and the other websites...to be prepared when something unusual starts to happen.
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Lyme 1987, neuro cardio fatigue achiness brain fog depression, anxiety. Pacemaker, D.1,25 32; D <5; 12/07 <6, hydrocodone, lorazapam, benedryl, zantac, colase, Noirs, cover-up or avoid sun, house <30lux. Feb 08 Phase 3. 6/08 D <4, D1,25
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y
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Posted: Sun Dec 12th, 2010 15:25 |
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Congratulations, Cynthia, and sorry about your finger. Even though you recognize progress isn't a straight line it is still disappointing for unwelcome guests to show back up - especially when they get in the way of typing.
Speaking of typing, thanks for the thoughtful comments and suggestions you provide. Very helpful.
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MP Benicar only Sep'10; lyme '06, cfs '89, hashimoto's '03; fatigue/weakness, brain hijinks, joint/muscle pain; 125D 77 (8/10), 25D 16-20 (04/12)
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Cynthia Schnitz
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Posted: Sun Dec 12th, 2010 17:34 |
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Diana, I would consider what you are experiencing as perfectly typical IP. I now recognize that I had non-functional nerves in my hips for well over 14 years. I would have the ball of my right femur pop out of the socket, and make me lame for a few minutes or more for years before a doctor 14 years ago noted the ball was out of the socket. No pain in my hips at all unless the ball popped out. I am sure it was the inflammation that made the ball pop out.
After being on the MP for a short while, those joints, both, started to let me know that something was wrong there. Surprise, surprise. I should have known, as my range of motion in those joints was severely restricted by the time I started the MP.
Cynthia
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MP start 10/08 (no breaks) | Spondylitis 97, early Diverticulosis 98, early AMD 08, Calcium anomaly 95, TypeII Diabetes(?) 02 | 25D=9.1ng/ml 1/12, (preMP 125D/25D=47/43) | My progress
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Cynthia Schnitz
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Posted: Thu Dec 16th, 2010 03:54 |
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OK, my finger ulcer problem appears to be a non-issue with the idea of straight line progress. It was pointed out to me by one of the old timers that keeps up with the forums that I have been regularly applying the Benicar filled lotion to my toes, and previously to my face, and that the regular contact of my fingers and the Benicar lotion may be causing an immune system flare.
So I have avoided using my unprotected fingers to apply any of the lotion for the last 3 days, and the finger ulcer on my index finger is healing. So, I conclude that there is still work for my immune system to do on my fingers, but that if I don't prod it into a high rate if action, I will not have to suffer any particularly bad side effects while it does its job.
Cynthia
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MP start 10/08 (no breaks) | Spondylitis 97, early Diverticulosis 98, early AMD 08, Calcium anomaly 95, TypeII Diabetes(?) 02 | 25D=9.1ng/ml 1/12, (preMP 125D/25D=47/43) | My progress
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cbay
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Posted: Thu Dec 16th, 2010 12:49 |
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| Wow, great detective work!
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MP July'10 | OCD`94, GERD`03, IBS`04, ADHD`05, Depression`07, Anxiety `10 | 125D45 | 25D12.7 Jan11 | My Progress
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seanlane
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Posted: Thu Jan 20th, 2011 03:23 |
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Right there with you on the tinnitus...I had none before MP..every day since 9 months ago.....but my recovery has been great as of late....blowin and goin!
Soon I will try a new antibiotic as I have been on mino/clindy/zith for 1.5 years.
It's great to take a full MP dose of zith and not explode anymore...back in the day 1/8 th dose made me feel like fried s!%*!
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bipolar CFS neuropathy arrhythmia food sensitivities psoriasis MCS guillain-barre tinnitus 125D58 Ph1Jul/08 Ph2Oct/08 25D=17.8 Sept/08 25D=11.8 Jul/09 Ph3 Sept/09
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Debbie Booth
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Posted: Fri Jul 22nd, 2011 13:33 |
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Cynthia,
This was very interesting and encouraging. Looks like we have the same right hip issue. Mine is very tight and the chiropractors say my pelvic bones are not allowing any movement. They are working on that, but I do seem more tired since I started going to him.
I am wondering if I should be writing at this sight or on mine. I really don't understand this thread concept very well and feel very inept.
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MP start May'10 (no breaks) | Lupus, Sjogren's, Interstitial Cystitis, Reynaud's | memory loss, pelvic muscle tightness, cystitis | last 25D= 22 ng/mL Jan'11
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Cynthia Schnitz
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Posted: Fri Jul 22nd, 2011 16:27 |
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Debbie, this site is public, and is being used to give non-MP Study Site people, new or just starting, a view of what the more advanced members are doing. We more advanced members are generally reporting on that part of the Study Site that is closed to the public, and I am reporting there once a month. So this is just a summary for public consumption. You should be reporting on the closed part of the Study Site, which I see you have access to.
It is interesting that at about 2 years, my immune system has decided to work on my hips. My right hip ball pops out of the socket several times a day, so I limp for about 30 seconds while the hip ball seats itself. The joints are really tight, so I don't do a lot of walking. During the first couple of years, I actually did some 2 or 3 mile day hikes, but couldn't begin to do that now. My range of motion is still improved, 30% to 60%, but has been varying a lot. This protocol needs lots of patience.
Cynthia
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MP start 10/08 (no breaks) | Spondylitis 97, early Diverticulosis 98, early AMD 08, Calcium anomaly 95, TypeII Diabetes(?) 02 | 25D=9.1ng/ml 1/12, (preMP 125D/25D=47/43) | My progress
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jlunn247
Member
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Posted: Sun Jul 24th, 2011 19:49 |
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i used to get that before the protocol my left leg would collapse out from under me a discouraging symptom which let me think i had really bad arthritis as compared to the "normal aches".  now everything else aches but my left hip which stays together 99.99 % (wish it were 100 %) of the time when getting out of chairs and cars. I been doing the protocol consistently since taking a break for 2 months jan-feb.
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Living in the land of the lost. JUST OLMECIP 5 x a day.Sarcoidosis Dx.
Bone disintegration,lungs,joint/muscle/stomach pain, diarrhea,incontinence. Weakness on my left side sweats,fatigue,neuropathy,headaches,mood swings,cognitive diss.
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