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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Wed Jul 28th, 2004 05:11 |
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The Beginning: My Update
I've been aware of and researching MP since July 1st.
I stopped taking my Vit etc supplements 12th July.
Reducing Vit D foods from my diet (eggs fish milk yogurt so far)
 cutting sun / light exposure; Drapes closed 19th July
began wearing Glasses from 21st July
I have Dr appointment this afternoon to arrange blood tests.
I will post them on here for assessment.
Do I need to wait for the results before sending for the Benicar? 
or am I a sure thing?
I will wait and see before faxing my script etc to Germany.
My husband is not sure he wants me sicker, but I'm determined to do this. 
best wishes to all,
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Posted: Wed Jul 28th, 2004 05:42 |
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Aussie Barb:
You are off to an excellent start! And you are a good record-keeper, too!
When you have the results of your tests, post them in the "Preliminary Test Results (For Comment)" forum so that Dr. Marshall and his staff can review them for you.
After all your years of illness, I bet your husband will put up with a little more illness when you tell him it is your best shot at wellness. Perhaps he will feel better about your doing the protocol if he spends some time reading this board?
Keep us posted!
____________________
*We can help you understand chronic disease, but only your physician is licensed to give you medical care *
Always consult your physician before commencing or changing any treatment he/she has prescribed for you
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pennyhoule
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Posted: Wed Jul 28th, 2004 06:33 |
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You don't really need to wait to start the MP, unless you're afraid they mess up on the tests and would need a do over.
You can always stop the protocol, if you decide the test results are not compelling enough.
penny
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Wed Jul 28th, 2004 07:19 |
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penny
thank you for the reply.
My question is then>
The results of my blood tests have nothing to do with whether the MP is for me?
Is it presumed that the MP is going to help me, no matter what the blood tests results?
please pardon my ignorance 
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Posted: Wed Jul 28th, 2004 07:50 |
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Hi Aussie B.:
If I understand your question correctly, you are asking if it is worth taking the financial risk of paying for the Benicar before you have the test results back.
It is difficult to answer your question without knowing more about your medical history, but if you have been diagnosed with CFS or Lyme or RA or sarcoidosis, it's a good bet that your tests will indicate the MP and that, even if they don't, Dr. Marshall would probably recommend a therapeutic probe to see what happens.
I guess the answer really depends on whether you would try the MP even if your tests are normal (which is doubtful) and how much it would hurt you financially (relative to your monthly budget) if you ordered the Benicar and decided not to try it. (Though you might be able to sell it at a pretty profit to another Aussie on this board... <G> )
I know that doesn't answer your question, but I don't think this is a question that someone else can answer for you.
____________________
*We can help you understand chronic disease, but only your physician is licensed to give you medical care *
Always consult your physician before commencing or changing any treatment he/she has prescribed for you
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Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
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Posted: Wed Jul 28th, 2004 09:03 |
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Thank you Suzanne for your reply
The question is: Do the blood tests tell the Dr something?
are they diagnostic? Are they more than just a baseline?
or are they a baseline?
I sure have plenty wrong with me that I want fixed and from what I have read here, I think this be the right track 
but I thought there was th1 and th2 (?) to be thinking about.
I am happy to do whatever is recommended.
I am using the phase 1 doc. as my guide.
it says #3 blood tests #4 report results
and then it says #5 benicar.
I am trying to ascertain whether #5 the taking of the benicar is dependant on the interpretation of the results of the tests #4.
I apologise, but this is the best I can do
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Posted: Wed Jul 28th, 2004 09:21 |
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Barb,
You wouldn't be the first person to start Benicar not knowing their D-levels. It's an important guideline for doctors who love to see numbers to gauge progress. But symptoms are just as important as numbers. If, for some reason, your D-levels do not reveal the classic picture of inflammatory disease, we would advise you to do a therapuetic probe because your reaction is a very important indicator of treatment efficacy.
Meg
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Aussie Barb
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Posted: Wed Jul 28th, 2004 09:41 |
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Meg, your saying>> if your D-levels do not reveal the classic picture of inflammatory disease<<<
Thank you, that is helpful. I believe that I do have inflammatory disease.
B
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
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Posted: Thu Jul 29th, 2004 02:42 |
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My other concerns are:
I expect my D levels to be very high from supplements, diet, sun, I live in a year round sunny climate.
and have history of high sensitivity to previous treatments.
I have not had a concrete "Dx of CFS"
I actually am not sure there is such a thing as a concrete Dx? I have the syndrome of symptoms.
I have hyperinsulinaemia, insulin resistance, estrogen dominance, high cortisols, and low progesterone, and all that goes with all of that etc etc >> all inflammatory from what I have read.
so I believe that MP will help all that
but when and how do I know for sure when to start Benicar and mino. and how much to take. The history of sensitivity which makes me more jumpy too I guess
I actually see the sensitivity as being my immune system keen to jump in and get to work
I have been to see my Dr. and he and I are learning at the same time. He's been going to the Dr site etc... very good.
I faxed the script & payment off to Germany and within minutes the Bank Fraud Detection ppl rang to check if all was AOk. amazing service on the Bank's part. I appreciated that.
and Germany has confirmed that the Benicar is on it's way.
I will go for my blood tests possibly today.
I am still working on keeping in the dark, and getting the house darker/keeping more of the natural light out. I go out at night to water the garden. and changing my diet. (again, - as we have tried *everything* to beat unwellness)
I have a sense of freedom: freedom from taking supplements: they are only crutches, and expensive ones as it turns out. my skin is better. I am a bit stronger this morning so far.
the belief that I am going to get better properly now!! is woow!
Thanks for all support.
I havent taken Drs Rx meds apart from some antidepressants twice, but I did try to find health thru using lots of alternative supplements and homeopathics.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Posted: Thu Jul 29th, 2004 18:42 |
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Barb,
You can start the Marshall Protocol right after you get the blood drawn for your D-tests, etc. But it sounds like you'd be more comfortable waiting until you get the results of the tests. The numbers may reassure you but you won't really know how you will react until you try it.
Meg
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Aussie Barb
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Posted: Sat Jul 31st, 2004 11:26 |
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I've been cutting the exposure to D sources since 12th -19th July.
I am not feeling any improvement yet. still weak. fatigued.
can it take longer if *stocked up* / overloaded with D?
taking no meds yet, benicar coming from o/s.
wondering why..
thanks
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Posted: Sun Aug 1st, 2004 05:09 |
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Barb:
I think I've read Dr. Marshall say that it takes two months to cut your D levels in half so, yes, if your D levels are high, it can take quite a while of "good behavior", so to speak, to bring them down.
Don't give up yet!
____________________
*We can help you understand chronic disease, but only your physician is licensed to give you medical care *
Always consult your physician before commencing or changing any treatment he/she has prescribed for you
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Dr Trevor Marshall
Foundation Staff
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Posted: Sun Aug 1st, 2004 05:34 |
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25-D is stored in body fat. It takes 2-3 months to halve the level, even if you take nothing more into your body.
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