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Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
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Posted: Tue Aug 3rd, 2004 00:40 |
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Sun / light protection in hot weather. a Cape? exploring how to dress for success MP style 
I am trying to think how I (a woman) might dress for the times that I must venture out into the world of sun or artificial light...... - when it will be the very hot weather.
I thought of the full head to toe covering worn by some cultures.... ?
and then I thought that a black cape may be the go.....
that would cover me and yet not be suffocatingly hot.
(& I'll not put a big red Z on it.... what about the mask? (sorry Antonio)
the cape is sounding good at the moment. 
Barb
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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madwolf
Health Professional
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Posted: Tue Aug 3rd, 2004 01:25 |
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THe arab native costume comes to mind. Think of Lawrence of Arabia!
Practical, too. Long and flowing to keep the sun off you, while allowing plenty of circulation.
I've worn in on treks to the desert.
madwolf
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Dx: Psoriatic Arthritis, FMS/CFIDS, Raynaud's Restarted Phase 1 in Noremember 2007 Current 25-D is 35, Non-MP meds: Armour thyroid, 60mg qd. Cymbalta, 60mg qd. CoReg CR 40mg hs. (BP still stable) Januvia 100mg qd, Byetta 10 mcg sub-q bid.
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Bek
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| Joined: | Thu Jul 29th, 2004 |
| Location: | Texas USA |
| Posts: | 27 |
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Posted: Tue Aug 3rd, 2004 02:11 |
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Hi ! I am new to the board and still reading, but I was thinking this same thing today.
I live in Texas where the sun shines all the time. I also still try to work a few days a week. I use sun screen and wear hats, as I have done for several years now for the obvious reasons. . . the sun ages us and the skin cancer reality.
Short of staying home with the blinds drawn, anyone have any suggestions? Remember, it is very hot here this time of year, and I am heat intolerant like it is. How to be practical here?
Winter will make all of this easier. I imagine I will wait a while to start the protocol for this reason.
Thanks !
Bek
Last edited on Tue Aug 3rd, 2004 02:14 by Bek
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Symptoms since 1990, rapid progression in 2002, diagnosed in Oct. 2003. CFS, Celiac Disease, MCS, environmental allergies. History of superficial blood clots.
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Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
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Posted: Tue Aug 3rd, 2004 03:01 |
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no need to wait to begin cutting D levels.. if you want to..
Dr Marshall says> to get D levels to half, can take 2 - 3 months - without any added.
and I think the info is that sunscreen doesnt help protect from D.
best wishes, B
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Reenie
inactive member
| Joined: | Wed Jul 21st, 2004 |
| Location: | Phoenix, Arizona USA |
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Posted: Tue Aug 3rd, 2004 03:13 |
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I KNOW we're supposed to avoid Vit D as much as possible, but we have to live the best we can while trying to get well... right?
I live in SUNNY Phoenix, AZ... 
Fortunately, (or unfortunately depending on which way you look at it) I'm too sick to work, so for now, while starting the MP, I'm remaining indoors as much as possible, with all of the blinds drawn, and dark glasses on.
I would imagine that IF you're able to stay inside as much as possible, and cut back on all intake of D, like I have, (didn't have any idea how much I was taking until I checked!) that an occasional venture outside wouldn't "KILL" me now, would it??? I'm not one to cover up when going outside... I think I'll prob continue to wear summer clothes like shorts, just try to drastically limit my time outside, which btw, is easier for some than others.
I was also wondering about depression  caused by a decrease in serotonin due to this "mushroom protocol." Any thoughts on that?
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Admin
Administrator
| Joined: | Sat Jul 10th, 2004 |
| Location: | USA |
| Posts: | 644 |
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Posted: Tue Aug 3rd, 2004 03:18 |
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Please read this thread about the causal relationship between inflammation and depression: http://www.marshallprotocol.com/forum11/267.html
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*We can help you understand chronic disease, but only your physician is licensed to give you medical care *
Always consult your physician before commencing or changing any treatment he/she has prescribed for you
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Lottie
Board Staff
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Posted: Tue Aug 3rd, 2004 05:49 |
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It might not "KILL" you. However, it may make you very sick for several days.
Before I discovered the MP, I was pretty much covered up anyway. I didn't always wear my hat, which also has a flap that covers the back of my neck and ears or my sunglasses, but I wore a light jacket with 3/4 length sleeves, and long pants. Generally, I only go out twice a week, to the doctor and shopping, and really wasn't outside in the sun for long periods. And, I would always plan on not doing anything for a few days, because I was exhausted and usually slept for days. I thought it was from the physical exertion.
Then, after I discovered the MP, I started wearing a long sleeve jacket, I wear my hat whenever I'm outside, no matter how short the time, and I wear my NoIR glasses. I’m a little more tired than usual when I get home, but not real bad at all, and it just took a day to get over it.
This last week I added a neckerchief around my neck, and gloves, and the next day, I didn’t notice being more tired than usual!
Actually, I like the idea of a cape. Occasionally in Hawaii for demostrations, I rode my Arabian stallion with robes on. It was usally on very hot days, and later I would keep them on, and exercise my horse. They really helped me stay cool! My friends would tell me to take them off because they thought they looked warm... I'd just laugh, and keep riding.
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Dx- Sarc 1999 Cardiac, Neuro, Joints, Myalgia, Skin, SOB, Fatigue (Apr 04-1,25 D 48, 25D 17) (May 05-1,25D 35, 25D < 5) Pred x5yrs-now off! 5/19/04 beg Benicar 10/11 beg Mino, 1/24/05 mod P2, 2/2/06 P2, 1/6/07 P3 - Worked as RN until back injury
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TX Lyme Mom
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| Joined: | Mon Jul 12th, 2004 |
| Location: | Texas USA |
| Posts: | 476 |
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Posted: Tue Aug 3rd, 2004 17:40 |
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Long dresses with loose over blouses are in style now. You'd be surprised how cool and comfortable they can be in the summer. They look quite fashionable.
In the winter, you can add an under blouse for added warmth plus other extra undergarments. This style is very comfortable all year around.
Believe it or not, dressing this way is even cooler than wearing shorts because there's not anything binding you at the waistline to stop the air flow.
It's my "uniform" nowadays and I consider it stylish and attractive. It covers up my sagging figure and makes me look 15 years younger, I think. I even feel "dressed up" when I go out in the evenings for special occasions, too.
If you like to sew, these clothes are fairly easy to make, too, because they don't require special fitting. Just a couple of basic patterns will do.
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Care-Giver & Lyme/CFIDS/MCS Support Group Leader; healthy (not a patient) so no D-level data for me
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FeatherRiver
Guests visiting Phase 1/2/3
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Posted: Tue Aug 3rd, 2004 20:06 |
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| Will the light from the bulbs used for growing plants affect us? They are using these bulbs for people with SAD, to help depression - I was thinking of getting a lamp for my office.
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DianaF:CFS,Fibro,RA since childhood, Dysautonomia
VitD 22/33, 7-04,Started Ben.MP 5-04 Ben 40mg q6h + Mino 100mg q48h + Quer as needed, Phase II Started Jan 15, 05 Ben 40mg q4h stopped mino and Z temp 2/22/05
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Foundation Staff
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| Joined: | Sat Jul 10th, 2004 |
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Posted: Wed Aug 4th, 2004 07:52 |
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In general, if the available light is sufficient to grow plant life, it is sufficient to generate 1,25-D in the skin. Please don't sit under any bright lights. If you are depressed, it may be due to a hormonal imbalance caused by Th1 inflammation. This resolves with the Marshall Protocol.
Meg
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Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
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Posted: Thu Aug 5th, 2004 01:58 |
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I have bought a *sleeping mask* to wear when I am resting sleeping
to give me more protection from any sneaky light exposure when I cannot be wearing the glasses to bed
B
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
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Posted: Sat Aug 7th, 2004 03:56 |
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I have been wondering all the time, about not wanting to be exposing my face either.. (I am really serious about this )
Everywhere we go...... seems to be full of light!!!! inside or outside. so I have been staying home unless it cannot be avoided.
but of course there are the blood tests and the Dr. and etccc and.......
>> the decision to be made; Am I going to go out & get my haircut etc while this goes on or will I stay here and just get hairy??? 
Well! I bought a piece of Black Material 2 x 2 metres (= approx 2+yards)
& I was going to get *someone*? to make me a cape. 
but I've decided, truly to wear it as a Bhurka. That way I will be completely covered.
Nooooo, I won't be driving.... no my husband does the driving and he can lead me around if necessary and keep the security guards at bay.. 
I don't actually know at this point whether my husband would even want to be seen with me like this but this is My Plan at least. I should be able to do what *I* want heyy??
best wishes to all, what do you reckon? B
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Foundation Staff
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Posted: Sat Aug 7th, 2004 05:52 |
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Barb,
Before you don that bhurka, you might like to ask your doctor for a prescription for Ketoconazole 2% cream. It inhibits the action of sunlight on the skin to prevent production of 1,25-D. A few patients have trialed it recently and concur that is seems to reduce sarcoidosis symptoms such as achiness, fatigue and skin lesions when you MUST venture outside. It isn't practical to apply it to more than the face and neck as it comes in pretty small tubes. It is best to reapply later in the day, if you go out again. We suspect that OTC Nixoral may also be of benefit but have not yet had a chance to try it.
Meg
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Lottie
Board Staff
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Posted: Sat Aug 7th, 2004 06:42 |
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Aussie Barb,
One day while I was out shopping early last year, and my hair "frizzed" because it was humid. A very dear Muslim, friend who I met where she works, and I were talking. She wears the traditional head covering, and I mentioned how lucky she was that she didn't have to worry about her hair doing strange things when she went out.
She laughed. She also mentioned that she was going to visit her family in New York and was going to purchase some new ones. I saw her about a month later, and after she finished ringing up my purchase, she asked me to wait.
When she had a break from her register, she brought out what looked like an embroidered satin jewelry travel case. Inside, was a set of the head gear. (I can't remember it's correct name) It's beautiful. I did try it on, and I treasure it as a gift from her heart. I've been thinking seriously of wearing it out in the sun, because it covers a lot more of my face than anything else I can think of besides your Burka, or a ski mask. 
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Dx- Sarc 1999 Cardiac, Neuro, Joints, Myalgia, Skin, SOB, Fatigue (Apr 04-1,25 D 48, 25D 17) (May 05-1,25D 35, 25D < 5) Pred x5yrs-now off! 5/19/04 beg Benicar 10/11 beg Mino, 1/24/05 mod P2, 2/2/06 P2, 1/6/07 P3 - Worked as RN until back injury
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Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
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Posted: Tue Aug 10th, 2004 06:01 |
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Heyyyy!  I made my own Cape!!!!!
I bought the Black Material last week; and I've been swathing MySelf in it if / when I do have to go out.
I am not a sewing Person and more especially not since, A) CFS and B) I am not familiar with / & have been *scared of* my new sewing machine (my old one died after 30 years family work ):
This morning I am pondering the *next move* about finding a seamstress.. hmmmmm? ......... and all of a sudden Inspiration hit! and I knew how to do this MySelf
This is what it was.
I folded the 2 yds of 54" wide Material in half (width ways)
I sewed up the sides 15" and left 23" unsewn fo armholes.
cut up the front to get into it. and hemmed it all and attached small velcro at the neckline.
When I have to go out, I can wear this as a cape and when travelling I can pull it up to be over my head, be *inside* it, and still have a peephole (the neckhole).
That my head was clear enough to handle doing this is miraculous
My eyesight seems worse since adjusting to the cutting D, so sewing black on black was a bit more challenging too
but it is done now! ready for my visit to the Dr this afternoon
best wishes, B
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Lottie
Board Staff
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Posted: Tue Aug 10th, 2004 09:37 |
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Congratulations on your accomplishment!
I'm impressed!! And, I'm pretty sure I can picture in my mind what you did.
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Dx- Sarc 1999 Cardiac, Neuro, Joints, Myalgia, Skin, SOB, Fatigue (Apr 04-1,25 D 48, 25D 17) (May 05-1,25D 35, 25D < 5) Pred x5yrs-now off! 5/19/04 beg Benicar 10/11 beg Mino, 1/24/05 mod P2, 2/2/06 P2, 1/6/07 P3 - Worked as RN until back injury
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Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
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Posted: Thu Aug 12th, 2004 03:51 |
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I have now bought another piece of this black material.
24" x 54" wide.
I intend to hem it and wear on my head & to wrap across my face - for face protection from the sun / light as some Eastern Women do.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Lottie
Board Staff
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Posted: Thu Aug 12th, 2004 10:06 |
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| Sounds like a great idea!
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Dx- Sarc 1999 Cardiac, Neuro, Joints, Myalgia, Skin, SOB, Fatigue (Apr 04-1,25 D 48, 25D 17) (May 05-1,25D 35, 25D < 5) Pred x5yrs-now off! 5/19/04 beg Benicar 10/11 beg Mino, 1/24/05 mod P2, 2/2/06 P2, 1/6/07 P3 - Worked as RN until back injury
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Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
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Posted: Tue Sep 7th, 2004 21:43 |
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Update:
When I go out I am wearing my Beautiful Black Cape proudly, over my long dress.
and I purchased another 1 metre (1 yard approx) of same material. and divided it.
1 piece I use as a *scarf* over around my head. see >> http://www.marshallprotocol.com/forum19/379-3.html
and the other piece (slightly the smaller) I put beside me wound up into the car passenger window to shade me. making sure it is only halfway along so my husb driving can still see.
I have gloves for my hands for driving if I do.
I have NoIr glasses #901 & #907 inside & outside.
and keep all light / s in house to a minimum.
and go outside only if fully protected & / or after dark, or before light in the morning.
I have drapes pulled, blinds down, to darken the house. my bathroom and laundry rooms have the most light, so I keep those doors shut off during the day. and make sure I have my NoIR on when I go there.
and Batman to support me go BatMan!!
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Admin
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Posted: Tue Sep 7th, 2004 21:50 |
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Aussie B:
You should start an MP mail order business with your capes...
____________________
*We can help you understand chronic disease, but only your physician is licensed to give you medical care *
Always consult your physician before commencing or changing any treatment he/she has prescribed for you
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