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paulalbert
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Posted: Mon Aug 9th, 2004 14:23 |
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I would like to happily report that more than a month into the MP (I'm on my second cycle of ZIthromax) I have been able to eat a much wider range of foods including vegetables. Also my need for sugary foods has been absent the last week.
I never thought I would say this (and I pray I won't have to later recant this post), but maybe I'm getting better. Allow me to point out that this is happening in the absence of any evidence of herx. Sometimes, I feel a tingle in my legs but other than that, "nada."
Paula pointed out that an absence of herx may be a function of the liver's ability to effectively handle the bacteria die-off. Whatever the case may be, things are looking up.
For the record, I have been taking milk thistle and alpha lipoic acid for the last 14 months, and guaifenesin for the last two, all of which I believe helps my body to "clear out the bad stuff."
Paul
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CFS for 2 years
Primary symptoms: food intolerance, exercise intolerance, sleep problems
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Diag CFS 6.03 / sympt since 9.02 / exercise, food intol, sleep prob / 1,25D: 16, 4.06; 1,25D:27, 25D:26 7.04; 1,25D:43, 25D:6 6.05; 1,25D:17, 25D:8 8.05; / MP: 7.04 / Ph. 3 / Bacteriality
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Admin
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Posted: Mon Aug 9th, 2004 21:42 |
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Paul:
This is excellent progress! Your delight is palpable! Please do keep us posted.
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*We can help you understand chronic disease, but only your physician is licensed to give you medical care *
Always consult your physician before commencing or changing any treatment he/she has prescribed for you
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Reenie
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| Joined: | Wed Jul 21st, 2004 |
| Location: | Phoenix, Arizona USA |
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Posted: Mon Aug 9th, 2004 23:11 |
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Hi Paul,
Did you happen to read my posting about Guai? I just bumped it up hoping Dr Marshall would be familiar with how this med works. It seems to me that it may be having a similar effect on helping to reduce the inflammation by carrying out some of the bad stuff thru the kidneys. Here's my post:
http://www.marshallprotocol.com/forum27/176.html
"For the record, I have been taking milk thistle and alpha lipoic acid for the last 14 months, and guaifenesin for the last two, all of which I believe helps my body to "clear out the bad stuff."
Are you still taking these things? I thought that it was suggested not to take any herbals while on the MP, to safeguard against hidden Vit D...?
Milk Thistle is listed as a sal-full product and is supposed to block the ability for Guai to work via the kidneys, so if you're taking both the milk thistle and Guai, you may not need to take either! 
http://www.psha-inc.com/guai-support/sf/Sal-Full.htm
BTW, how were you able to move ahead so quickly on the MP??? Are you already in Phase 2?
Last edited on Mon Aug 9th, 2004 23:13 by Reenie
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paulalbert
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Posted: Tue Aug 10th, 2004 00:17 |
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Reenie,
I agree. I think Dr. Marshall and/or others should consider the possibility that Milk Thistle and Guaifenesin may help reduce herx. Even among those with CFS, I consider myself rather unique, so I'm not exactly in a position to state categorically these added supplements will work for everyone as it APPEARS to have worked thus far for me. On the other hand, whenever I take either of these things, my pee is darker. Take that for what it's worth.
As for your question about taking herbal supplements while on the MP, I did a lot of reading at sarcinfo and the yahoo group before I was able to determine with SOME degree of certainty that neither of these herbs contain Vitamin D. My understanding is that the vitamins and oils are the ones to worry about.
Also, you may be interested to know that even though I've been taking milk thistle without fail, I can feel the guaifenesin working in the form of an occassional backache. Weird, huh?
Paul
Last edited on Tue Aug 10th, 2004 00:18 by paulalbert
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Diag CFS 6.03 / sympt since 9.02 / exercise, food intol, sleep prob / 1,25D: 16, 4.06; 1,25D:27, 25D:26 7.04; 1,25D:43, 25D:6 6.05; 1,25D:17, 25D:8 8.05; / MP: 7.04 / Ph. 3 / Bacteriality
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Posted: Tue Aug 10th, 2004 04:31 |
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Paul,
I'm confused about your statement that you've been on the MP one month and are in your second cycle of Zithromax. This is not recommended. Are you taking minocycline also?
We do not recommend the use of herbals to try to reduce the Herxheimer response. If you are not getting a response, then you are probably not killing bacteria. If the Herx is too much to tolerate, we recommend increasing your Benicar and/or reducing the antibiotics.
Little is known about how herbals in the body or how they affect the immune system. It's very difficult to assess the efficacy of the MP when someone is clouding the picture with unecessary medications.
We all have our favorite supplements that we hate to give up but the MP should be followed exactly to ensure its safety and effectiveness.
Please confirm that you are not advancing too rapidly with the antibioitcs. Zithromax and minocycline pack a powerful and possibly dangerous 'punch'.
Meg
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paulalbert
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Posted: Thu Aug 12th, 2004 00:53 |
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Meg,
Points taken. I will stop with the herbal supplements while on the MP.
Yes, I continue to be on the minocycline. I know the Phase One documentation states that you are to start at 25 mg every other day; I started at 50 mg every other day. This decision was made in conjunction with my doctor, based on my medical history and the fact that my pharmacy didn't offer 25 mg increments of mino. (And if it did, the pharmacist I spoke with certainly didn't know it.) I am reluctant to share this given the fact that I don't want to be a poor example to other folks with different bacteria loads and different potential reactions who might take it as license to do the same.
I know how you good people who run this board regard any acceleration of the Marhsall Protocol and I respect your reasoning, especially given the fact that failure to follow the MP as explicitly detailed could entale anything from rendering the MP ineffective to visits to the ER, or worse. I do respect that. Thanks for looking out for me.
Paul
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Diag CFS 6.03 / sympt since 9.02 / exercise, food intol, sleep prob / 1,25D: 16, 4.06; 1,25D:27, 25D:26 7.04; 1,25D:43, 25D:6 6.05; 1,25D:17, 25D:8 8.05; / MP: 7.04 / Ph. 3 / Bacteriality
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Amy
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Posted: Thu Aug 12th, 2004 01:46 |
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You didn't answer about if you are taking Zithromax. Are you?
A Concerned Lymie,
Amy
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Lyme/CFS/FMS/Endocrine disorders/12 years
Doctor did NOT run pre-MP tests. Benicar 120mg.
Started the MP on June 21, '04
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paulalbert
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Posted: Thu Aug 12th, 2004 02:37 |
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Amy,
Sorry about the confusion; here's how it has worked for me:
--1 week of Benicar (4x/day)
--1 week of Benicar + 50 mg of minocycline every other day
--1 week of Benicar + 100 mg of minocycline every other day
--8 days of Benicar + 100 mg of minocycline every other day + 62 mg of Zithromax (Z taken on the first of the eight days)
--8 days of Benicar + 100 mg of minocycline every other day + 62 mg of Zithromax (Z taken on the first of the eight days)
Right now, I am 6 days into the second cycle of Zithromax.
Thanks for your concern. (seriously.)
Paul
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Diag CFS 6.03 / sympt since 9.02 / exercise, food intol, sleep prob / 1,25D: 16, 4.06; 1,25D:27, 25D:26 7.04; 1,25D:43, 25D:6 6.05; 1,25D:17, 25D:8 8.05; / MP: 7.04 / Ph. 3 / Bacteriality
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paulalbert
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Posted: Fri Aug 13th, 2004 07:26 |
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For anyone interested, here is my big ugly bloodshot eye, two hours after eating a salad.
PaulAttachment: eye.jpg (Downloaded 138 times) Last edited on Fri Aug 13th, 2004 07:28 by paulalbert
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Diag CFS 6.03 / sympt since 9.02 / exercise, food intol, sleep prob / 1,25D: 16, 4.06; 1,25D:27, 25D:26 7.04; 1,25D:43, 25D:6 6.05; 1,25D:17, 25D:8 8.05; / MP: 7.04 / Ph. 3 / Bacteriality
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