| Author | Post |
|---|
Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
|
|
Posted: Mon Oct 11th, 2004 20:13 |
|
Thanks Reenie... 
I follow my body's needs.. I could not bear the Symptoms if going over that timing.
that is the reason I am *needing* to take it as such.. thanks for asking Barb
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
|
|
Posted: Tue Oct 12th, 2004 09:11 |
|
Tuesday October 12th 7pm
Benicar 20mg Q2 to 3h Day; 40mg @ 9pm then prn
Today has been a better day. there've been less & milder symptoms. I needed the Benicar 20mg .. easily out to q3h this morning, and coming in closer again to q2h this afternoon.
the diaphragmic inflammation is there but not as acute. the hotspot on the left side was there again, but not as acutely. The paralytic IBS was not a problem till this afternoon  so then had to step up the NPOS again.. had let it slip feeling better.
I've been tired... but not as tired.. Thanks to all   
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
|
|
Posted: Tue Oct 12th, 2004 19:57 |
|
Wednesday October 13th 6am
Benicar 20mg Q3 to 2h Day; 40mg @ 9pm then prn.. has been 5hrs.
slept well... woke after 5 hrs for Benicar 40mg. this is helping me to wake feeling improved again aaahhh.... and then I can do the 20mg x q3h again this morning anyway.
that keeps the inflammation managable. and may have a little bearing on the IBS but not enough yet.
also have mild congestion burning in upper back muscles..
I'm needing to keep the NPOS up to keep paralytic IBS & emotional stress managed. (read hormones)
so yes, I do feel a little brighter this morning... is a relief
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
|
|
Posted: Wed Oct 13th, 2004 18:32 |
|
Thursday October 14th 4.30am
Benicar 20mg Q3 to 2h Day; 40mg @ 9pm then prn.. has been 5hrs.
I went to the Dr just for a script yesterday. BP 121/72 I was only gone from the house half an hour! (quickest Dr visit ever/shortest wait )........ To protect from the light, I lifted my cape up from my shoulders to cover my head / face and did the velcro so I had a peephole... ..... & either because of the NoIRs or Ds, I was slightly dizzy unbalanced, & nauseated. I was over this after half an hour of being home. & I noticed I could get in & out of the car more easily than in the past
I slept well... woke after 5 hrs for Benicar 40mg. this is helping me to wake feeling improved again aaahhh.... and then I can do the 20mg x q3h again this morning anyway. & q2h when / if nec usually afternoons..
Benicar keeps the inflammation managable. and may have a little bearing on the IBS but not enough yet.
also have mild congestion burning in upper back muscles..
I'm needing to keep the NPOS up to keep paralytic IBS & emotional stress managed. (read hormones)
a good feeling!! : >> in upper respiratory... feels warm dry vibrant aura healing feeling... unable to articulate any better than that. (sound like an evangelist? 
so yes, I do feel a little brighter again this morning... is a relief to be notching up even just a little each day
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
|
|
Posted: Wed Oct 13th, 2004 21:24 |
|
Hormones I am taking: thyroxine + Natural Progesterone oral spray.
my thoughts: my experience:
my own right now present experience of MP is that my body has not had the capacity hormonally by itself, to handle the detox from minimum herx...
I have had to stop the mino @ 12.5mg after a month on mino... & go back to & drastically increase my (Benicar only & ) natural progesterone ....for the last 11 days, so far... to relieve my paralytic IBS... to be comfortable within herx. & note am still herxing on the Benicar only...
I'm told that Natural Progesterone is different to the other hormones in that I cannot overdose on it, as it dissipates. & I have had no trouble with selfmanaging it whatsoever..
Barb...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
|
|
Posted: Thu Oct 14th, 2004 07:15 |
|
Thursday October 14th 5.15pm
Benicar 20mg Q3h Day; 40mg @ 9pm then prn.. has been 5hrs.
Today has been a very different day! 
The Benicar 20mg q3h has been easily adequate today, with no time of needing it more often..
The diaphragmic inflammation nor the IBS are a problem today!!!
there have been a couple of times of hotspots on right & left diaphragmic areas.
Chest & URT area feels pressure, flattening me... but feeling somehow warm, dry, good.
I've had overwhelming fatigue. sleeping a lot today. 
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
|
|
Posted: Thu Oct 14th, 2004 20:31 |
|
Friday October 15th 6.30am
Benicar 9 weeks: Mino Sept 10th to Oct 3rd: from initial dose of 1.5mg up to 12.5 mg & stop: now continuing to herx on Benicar Only. wore NoIR glasses Aug 31st to Oct 3rd till broken. replacements not yet received in mail
Benicar 20mg Q3h Day; 40mg @ 9pm then prn.. 6hrs.
last night had small *antbite sensation on ribs.. & diaphragmic inflammation flared with exertion of shifting sprinkler. back & shoulders still *prickly.
slept well. ready for another day
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
|
|
Posted: Sun Oct 17th, 2004 22:52 |
|
Monday October 18th 9am ish
Benicar 20mg Q3h Day; 40mg @ 9pm then prn.. last night 7hrs.
The Benicar 20mg q3h has been adequate.
The diaphragmic inflammation & the IBS are much settled.
still a couple of times of hotspots on right & left diaphragmic areas, fatigue, milder diaphragmic inflammation & the IBS . some slight chest herx aura feel, some herxish aura feel in sinuses, dizziness if I am walking further than A to B in the house. (am reminding MySelf & Others that is a disease sx I had a long time ago.... & is not a side effect of the Benicar..)
Had visitors over weekend, so very draining..
I am feeling much less herxish times / sx, and still do not have my NoIRs
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
|
|
Posted: Tue Oct 19th, 2004 02:41 |
|
Tuesday October 19th 12.40pm ish
Benicar 20mg Q3h Day; 40mg @ 9pm then prn.. last night 7hrs.
Slept totally soundly.
Symptoms: slightly sticky eye; hotspots on right & left diaphragmic areas, fatigue, some diaphragmic inflammation. some slight chest herx aura feel, some herxish aura feel in sinuses, some times of anxiety.
US NoIRs arrived in mail so Day 1 after 16 days of no NoIRs
I'm quiet
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Big John
Guests visiting Phase 1/2/3
|
Posted: Tue Oct 19th, 2004 05:47 |
|
| Barb is back to the "undercover" look!
____________________
Reiters Syndrome, Benicar 9/23/04. Mdx: Sotolol, atenolol, spironolactone, amlodipine,alprazolam, lexapro, Benicar q8. Ph2 12/05. Ph3 5/06
|
Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
|
|
Posted: Wed Oct 20th, 2004 02:20 |
|
Hi John nice to see you
Wednesday October 20th 12.20pm ish
Benicar 20mg Q3h Day; 40mg @ 9pm then prn.. last night 7hrs.
Day 2 NoIRs after 16 days of no NoIRs
Slept soundly.
Symptoms: slightly sticky eye; heat & congestion in rib muscles. fatigue. *sick* in gut not nauseous (is inflammation).
Maybe Plan: to wait a few days to assess symptoms in readjusting to the NoIRs.. then consider recommence small mino dose. 
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
|
|
Posted: Wed Oct 20th, 2004 12:23 |
|
Later Edit: Please Note small doses of antibiotics were not helpful and are no longer used.
Wednesday October 20th 10.30pm ish
Benicar 20mg Q2to3h Day; 40mg @ 9pm then prn.. last night 7hrs.
Day 2 NoIRs after 16 days of no NoIRs
Benicar 10 weeks. Mino 10th Sept-3rd October to 12.5mg. was 17days ago. herxing on Benicar since.
wearing NoIRs has caused gassy belly back.. killing more bacteria.
What it is beginning to look like to me is that for Me, the Benicar & the cutting D are doing the job for now.. when I was taking the mino I was needing extra NPOS to keep me comfortable..
I may not need ABx to kick my Immune System yet. The MP is working well.
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
|
|
Posted: Wed Oct 20th, 2004 23:10 |
|
Thursday October 21st 9.15am ish
Benicar 20mg Q2to3h Day; 40mg @ 9pm then prn.. last night 7hrs.
Day 3 NoIRs after 16 days of no NoIRs
slept well.
Symptoms all bearable, coming in now! chills, drawing in my hips, knees, sore all over. hotspot @ left mid diaphragm. fatigue.
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
|
|
Posted: Thu Oct 21st, 2004 19:59 |
|
I'm doing a lot of thinking about my hormone meds..... I am on thyroxine & Natural Progesterone Spray (NPOS).
I had believed felt that there was *no way* I could come off these meds *yet*... but that yes, I would be able to further into MP.
My own experience has been that while I was on mino for 20 days up to 12.5 mg. the herx symptoms themselves seemed quite mild / non dramatic. but... I suffer/ed paralytic IBS from endotoxins, & I found that increasing the NPOS would eliminate that discomfort. (now I think / wonder, perhaps suppressing the herx?)
at 12.5mg... October 3rd..... my NoIRs broke irretrievably & I was forced to wait for replacements. I discontinued the mino immediately.
The surprise was that I have continued to herx on Benicar alone ever since. My body has *called for* *needed* the Benicar 20mg q2h by day most of that time. ie. the symptoms were relieved by the Benicar dose.
I've noticed the many *experiences* of ppl taking hormones. being on hormones or going off, increasing or decreasing hormones..... the hormones do seem to be affecting herxing.
Getting my NoIRs back on ... & being on Benicar only, I notice I'm more emotionally settled again. (not relying on the NPOS) I continue to be very fatigued, very sludgey...
I am now experimenting to see if I can come off my hormone meds while I am on the healing Benicar only, so as to not mix experiences with the mino..
because I am seeing, feeling, that the hormone meds do change the MP experience.
This will unfold for me bit by bit, but this is where my experience / thinking is up to at this time. Barb....
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
|
|
Posted: Thu Oct 21st, 2004 22:03 |
|
Friday October 22nd 7.45 am ish
Benicar 20mg Q3h Day; 40mg @ 9pm then prn.. last night 7+hrs.
Day 4 NoIRs after 16 days of no NoIRs
I've been feeling fatigued, sludgey... wanting better.. waiting for the glasses, then for the readjustment to them..
Last night I realised that I am more settled emotionally now that I have the NoIRs x days, that I had been able to cut the NPOS yesterday .... & even possibly may cut the thyroxine eventually.. all very slowly & checking of course...
I am finding that by cutting back on the Natural Progesterone... so far.... usually my body desperately needs it..
that the requirement for Benicar has then decreased also.
is all interlinked..
simply it went like this: No NoIRs > fragility > NPOS is lifeline > increased need Benicar..
NoIRs back> emotional health > NPOS not req > normal requirement Benicar. ....... & I believe I will begin to feel a bit better with MP & less & less NPOS.
This is all very interesting intriguing..
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
|
|
Posted: Fri Oct 22nd, 2004 07:43 |
|
Friday October 22nd 5.45 pm ish
Benicar 20mg Q3-4h Day; 40mg @ 9pm then prn.. last night 7+hrs.
Day 4 NoIRs after 16 days of no NoIRs . the readjustment to wearing them is now more than good. see below.
Today I have not had any NPOS. nor needed any.. unheard of till now. will see what happens.
if I was feeling close to fragile, it was because it was close to Benicar due time.
I have been able to extend the Benicar 20mg over the Q3h
I still have right side diaphragmic inflammation when Benicar due, and some time after taking.. sticky eye.
I've been a bit more awake today
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
|
|
Posted: Sat Oct 23rd, 2004 20:53 |
|
Sunday October 24th 6.55 am ish
Benicar 20mg Q3h Day; 40mg @ 9pm then prn.. last night 7+hrs.
Day 6 NoIRs after 16 days of no NoIRs .
I am picking up a little since having my NoIRs back. I've been a bit more alive... able to actually lift a finger to do a little bit. but still feeling blehhh
I want to see how I am for a couple more days. to see if there is a direction I am heading.. my body does not feel very *well* to be hitting me up with mino yet.. still some inflammation & hotspot & sticky eye coming & going is all.
I am so frustrated.. & of course we are all sick of being sick. I keep in my mind that Trevor & Others have come thru & are coming thru & that I will be too.. & that we seem to go thru these stages.. I am so lucky to have wonderful home support & care, & the Board... thank you all
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
|
|
Posted: Sun Oct 24th, 2004 10:24 |
|
Sunday October 24th 8.25 pm ish
Thank you to All who sent me encouraging messages xoxox you are wonderful People...
I am better than that this afternoon, although physically my body feels erk.... Pre MP I have felt *sick* (as opposed to nausea) in gut.. ie inflammation... is same now but more so..
Diaphragmic & rib muscle Inflammation is the main contender again still.. massaged the congestion from the area... & expecting a toxic spinoff from that.... & the antbite thing on right breast and down right arm (milder this time) for very short time this afternoon. very mild chest pressure was transient too.
If feeling bad means I am doing good.... gee I'm doing good I am Ok & managing. all is well.. the head is screwed on a bit better tonight.. always a good thing. << I have gone back to using the NPOS sparingly to *hold me*..
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
|
|
Posted: Sun Oct 24th, 2004 22:04 |
|
Monday October 25th 8.05 am ish
Benicar 20mg Q3h Day; 40mg @ 9pm
Day 7 NoIRs after 16 days of no NoIRs .
went to bed & legs drawing keep me awake. took Quercetin & slept well!
woke sore all over but no usual toxic symptoms! tired but fine. Barb....
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
|
|
Posted: Mon Oct 25th, 2004 20:47 |
|
Tuesday October 26th 6.45 am ish
Benicar 20mg Q3h Day; 40mg @ 9pm
Day 8 NoIRs after 16 days of no NoIRs .
I have been expecting thinking that the readjustment to the NoIRs would be thru... & wondering why I am still so physically yukk..
Last night I had a cranky moment..... ooops... made me realise I must be still readjusting!!
still sore all over (didn't get into a fight! ) inflammation up & down, Benicar must be also helping in the no usual toxicity headache symptoms after massaging congested rib muscles.. so the yuk will pass in time.. lot of big good work happening obviously...
when I told Dave about going with the flow & that we'll know what when to do next, it reaffirmed that for MySelf..... ahhh sighhh... taps foot impatiently waiting
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Current time is 04:31 | Page:   1 2 3 4 5 6   |
|
