| Author | Post |
|---|
Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
|
|
Posted: Thu Oct 28th, 2004 07:49 |
|
Thursday October 28th 5.30 pm ish
Benicar: now 11 weeks 20mg now Q4h Day; 40mg @ 9pm
wore NoIR glasses Aug 31st to Oct 3rd till broken.
 Day 10 NoIRs after 16 days of no NoIRs .
Mino Sept 10th to Oct 3rd: from initial dose of 1.5mg up to 12.5 mg & stop due to no NoIRs: then continuing on Benicar Only.
I have been so frustrated about feeling so physically yukk.. for so long.. feeling like it would never end..
I have just had to hold on & wait & trust that things would change.
Looking back & having observed the role of hormones in others on MP, I think this *may be what happened.. I was taking the mino, & having terrible paralytic IBS. (as herx) I found that the NPOS stopped the IBS nicely; so of course I increased the NPOS to be comfortable. I think now that the NPOS may have suppressed the herx & I cont'd to take the mino & the NPOS. till the NoIRs broke & stopped the cycle. & I have continued to herx on Benicar only and to feel terrible ever since. till today. * further thoughts on this next post......
I will quote Skyler here with his "Law of Unintended Consequences."
My body had a *need* for Benicar during quite some of this time, as 20mg q2h; & q3h as the least it would tolerate.
I went off the NPOS entirely for 2 days & now am taking it sparingly to uphold me emotionally.. and some with the *dead* fatigue.
Today I am feeling a little better than I have done... I never thought the day was coming!!! & I've been able to stretch the Benicar 20mg to q4h easily today for the first time.
I am thinking now that perhaps I needed to take even less than the small dose of mino & less often? so that I would not have the high need for the NPOS.
also I will have the Pure Quercetin from USA next time to experiment with. It is not available in Australia. (as far as I have been able to find out yet)
The inflammation in the gut & the congested rib muscles are still with me but not as bad. I put hotpacks on one night. The toxicity now on MP seems to reveal itself as sickness and tiredness instead of the week long headaches I used to have..
I am still not ready yet to resume the mino, but can definitely see it sometime, whereas I have not been able to see thru the fog for a long time..
Improvements since being on MP are.... no headaches ever.. not even when toxic!!! Insulin Resistance may be improved, & I am less hungry less often.
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
|
|
Posted: Thu Oct 28th, 2004 19:57 |
|
Friday October 29th 6 am ish
Benicar: 20mg now Q4h Day; 40mg @ 9pm
Day 11 NoIRs after 16 days of no NoIRs .
I am doing some more thinking...
When I was herxing on the mino it was not *dramatic, as I had expected. The paralytic IBS was certainly dramatically uncomfortable. Because it had been a previous toxicity symptom for me I took it at the time to be that.
Last night I posted this>
"Looking back & having observed the role of hormones in others on MP, I think this *may be what happened.. I was taking the mino, & having terrible paralytic IBS. (as herx) I found that the NPOS stopped the IBS nicely; so of course I increased the NPOS to be comfortable. I think now that the NPOS may have suppressed the herx & I cont'd to take the mino & the NPOS. till the NoIRs broke & stopped the cycle. & I have continued to herx on Benicar only and to feel terrible ever since. till today. " <
& this morning I have remembered also, that pre MP when I had hormone testing done, that my progesterone had been almost nil, & estrogen, testosterone, cortisol were all high. my thoughts are that at least some of these hormones have been suppressive to my herx.
so I am thinking that from what I am seeing that there is an enormous amount of hormonal shifting that has to go on in me as a person with inflammatory disease. acknowledging that each person is unique. I try to trust & do what my body is telling me. & sometimes it is so subtle I may still have barged ahead when I didn't think I was.
Personally, I know I am highly inflammatory.. My 1,25D is high but not as high as some... but I have been able to feel this inflammation in me for a long time.. It IS IN me yet.
I have known that I would have to go slowly... but I don't think I had realised how long I was going to need to be just on the *runway* alone, before I'd be ready for *takeoff. I have needed to go very slowly while I do the hormone reshuffle (the MP dance) just to get started!!
what I feel to have observed in me then.... is that the mino (with Benicar) was very potent in me. that my body was *hiding* that somehow....it was suppressed, not *out there*..
that because I couldn't feel any herx dramatically I continued to take mino and to ramp, even though it was seemingly slowly, I think it was like I was building a bomb inside me...... because when I did stop the mino....... I still reacted on on Benicar alone for 2 weeks +.
I have always had so called out of the ordinary reactions to medications. similarly.
These are my thoughts only.. and may have no basis in reality. yes that is what I said. My thoughts are all process. they are not destination; they are journey for me personally to find *my way.... to be seen as different to finding *the way. .... exploration.
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
|
|
Posted: Thu Oct 28th, 2004 23:35 |
|
Friday October 29th 9.30 am ish
Re the IBS.
The paralytic IBS which I experienced pre MP & when taking mino has only subsided in this last 2 days!! I am comfortable again, as I was on Benicar only at the start of MP.
It is 26 days since I took my last mino dose, and I've had the NoIRs back on for 10 days.
so my new measures when taking mino again will be:
* trying quercetin. * watching doses and ramping as related to IBS. * have Milk of Magnesia on hand.
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Big John
Guests visiting Phase 1/2/3
|
Posted: Fri Oct 29th, 2004 05:41 |
|
Aussie says "I have known that I would have to go slowly... but I don't think I had realised how long I was going to need to be just on the *runway* alone, before I'd be ready for *takeoff."
I didn't like your choice of words here... You are not alone, we all "love ya" !
John
____________________
Reiters Syndrome, Benicar 9/23/04. Mdx: Sotolol, atenolol, spironolactone, amlodipine,alprazolam, lexapro, Benicar q8. Ph2 12/05. Ph3 5/06
|
Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
|
|
Posted: Fri Oct 29th, 2004 06:08 |
|
awww John  thank you so much xox
You know what I mean? not alone by MySelf.... but on the runway..... not moving for so long ..... maybe I talkin' Aussie here?? sure looks like I got good company too... Thanks... Barb...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
|
|
Posted: Fri Oct 29th, 2004 06:12 |
|
Friday October 29th 6 am ish
Benicar: 20mg now Q4h Day; 40mg @ 9pm
Day 11 NoIRs after 16 days of no NoIRs .
more change today: more relaxed today. sleeping resting.
sticky eye  . not as much inflammatory discomfort, altho it is still present.
getting *some where* Barb....
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
|
|
Posted: Sat Oct 30th, 2004 03:09 |
|
Saturday October 30th (already!!!) 1.10 pm ish
Benicar: 20mg now Q3h Day; 40mg @ 9pm
Day 12 NoIRs after 16 days of no NoIRs .
Today I am chilly sometimes.
or feel like I am full of pepper (not pep ) especially my throat & the congested rib muscles are burning a little. an experience I have never had before.
not as *sick* during today... was not at all *well* last night. still using hotpacks on ribs at nightime so feels like probably some toxicity from that yet. ribs are improving daily.
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
angela
Member
|
Posted: Sat Oct 30th, 2004 03:59 |
|
Barb,
You are funny! I'm sorry but you're sticky eye made me laugh. (I think I can relate though, so you are not alone on that one either..)
Just wanted to let you know I've got rib stuff going on too. The area between my ribs is sore. It's the ribs right in front of my heart and they became sore \after\ my latest heart episode that I already told you about.
Hope you have a good day (and night)..
~angela
____________________
Previous Diagnoses~ Depression, ADD, Fatigue, Otitis, Chronic Neurotoxin Mediated Illness,
Started the Marshall Protocol~ Sep.23, 2004
Benicar 40mg + Quercetin 400mg q6hrs
Added 50mg Minocycline~ Oct.25, 2004
No D's, ACE normal~ Therapeutic Probe
|
Big John
Guests visiting Phase 1/2/3
|
Posted: Sat Oct 30th, 2004 04:53 |
|
Hi Barb!
Thought I would add my information about rib pain, I have pain in the collar bone, the sturnum (over the heart) and ends of the ribs. my MP doc says that the cartilage is inflamed. he suggested that if I have problems with muscles and tendons where they connect to the bones or in the knees when they move, that too is cartilage connections. I think I mentioned that in my case I think maybe the little buggers are living in the cartilage. Just a theory of mine. anyway I find when I ramp up that those areas give me some pain, the ribs are especially painful when I move. I can tell when they stop hurting it is time to ramp up again. Thats one of the ways that I tell when it is time to move up!
John
____________________
Reiters Syndrome, Benicar 9/23/04. Mdx: Sotolol, atenolol, spironolactone, amlodipine,alprazolam, lexapro, Benicar q8. Ph2 12/05. Ph3 5/06
|
Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
|
|
Posted: Sat Oct 30th, 2004 05:16 |
|
Thank You John,
mine are in 2 *lumps* for want of a better word. and the *lump* on the left side is the sorest hottest. It is getting close to time to move up. I will wait till I have a couple more days of feeling physically better than I have been. ie. not so *sick*... Barb...
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
|
|
Posted: Sat Oct 30th, 2004 10:48 |
|
Benicar dosing
I have been experimenting with the Benicar dosing, seeing how easily I could extend it to Benicar 20mg Q4H.
I had 2 days of Q4H easily, no extra inflammatory tendencies, but moved to a more overall depressive feeling, so am back to Q3H now & can feel the difference.
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
|
|
Posted: Sun Oct 31st, 2004 08:25 |
|
Sunday October 31st 7.30 pm ish & today has been our 24th wedding anniversary
Benicar: 20mg now Q3h Day; 40mg @ 9pm q8h
Day 13 NoIRs after 16 days of no NoIRs .
I am a little better each day. good to have relief from paralytic IBS last 3 days. chilly feet and heat in nostrils throat and rib muscles today. very tired this afternoon. itchy face throat.
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
|
|
Posted: Sun Oct 31st, 2004 20:25 |
|
Monday November 1st 7.30 am ish
Benicar: 20mg now Q3h Day; 40mg @ 9pm q7h
Day 14 NoIRs after 16 days of no NoIRs .
Dr Marshall says>>
"I accept that there is an interdependence of the immune system upon 1,25-D and I accept empirical observations
that the antibiotics don't work properly with folks' whose 25-D and/or 1,25-D are high.
Most real science is like that - incomplete - plenty of opportunity for new discovery... "
..trevor.. HERE <<<
when I read this I thought it may explain what I have been trying to understand.... that my body seemed to be *hiding* the abx as I was taking them.. they seemed to be building up in me ....
it may be the reason I am needing to stay on the benicar only.... as both my 25D & 1,25D were high enough... I feel there is *work* going on, on B only.
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
|
|
Posted: Tue Nov 2nd, 2004 20:36 |
|
Wednesday November 3rd 7.30 am ish
Benicar: 20mg now Q3h Day; 40mg @ 9pm q6h
I am better to have the Benicar 20mg strictly Q3H or the inflammation increases, & I am depressed / my insulin resistance symptoms resurface. even if I take it a little over 3. interesting.
I am a serious cave dweller. My body is actively detoxing. I don't fully understand why actual detox, but it is all *work* that needs doing.. so I am not feeling well.The Benicar is a wonderful protector. am resting more to let it all *happen*.
I am feeling so yukk..(worse than pre MP) in a way it is like mild morning sickness (ie no vomiting) ..<< the hormones will still be adjusting.. will I be better to wait till I'm thru feeling yukk to start mino, & go into herxing...? or will I feel better by doing so? that is the question. I think I need to activate that Immune System! w the mino.
I haven't restarted the mino yet probably mostly because after waiting to adjust to NoIRs again, I am waiting to have the Q & MoM on hand when I do this time.. I thought the MoM may help get the detox out of my system too..
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
|
|
Posted: Wed Nov 3rd, 2004 18:48 |
|
Thursday November 4th 5.45 am ish
Benicar: now 12 weeks 20mg now Q3h Day; 40mg @ 9pm 7H
Mino Sept 10th to Oct 3rd: from initial dose of 1.5mg up to 12.5 mg & stop due to no NoIRs: then continuing on Benicar Only.
Yesterday I did some small things that I haven't been able to do for awhile. I've been having difficulty going to sleep the last 3 nights but have then slept well. I am weak. physically, mentally. IMO this is not from the Benicar. I do believe the Benicar is so good to me. I am ready to restart mino when my pure Q arrives from US. take care & rest rest is what I must do.. I have asked to be removed from Board Staff category, because I am not capable at the moment. thanks for all support I have received.
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
|
|
Posted: Thu Nov 4th, 2004 06:27 |
|
Thursday November 4th continued.. 5.25 pm ish
Mino Sept 10th to Oct 3rd: from initial dose of 1.5mg up to 12.5 mg & stop due to no NoIRs: then continuing on Benicar Only.
Well, I'm feeling a lot brighter this afternoon
I've been feeling yukk for a month.. I have felt the herx or at least the toxins have been with me most of that time. I have needed to take the Benicar 20mg q2h a lot of the last month and now no longer than q3h to keep everything running ok...
Today hasn't been unbearable nor unmanagable... but I did feel to be in body shock & like my brain had left the building... I've been miserable. I wasn't sure what or why... I had the IBS symptoms (gas & pressure) again yesterday & today, after a few days off from almost the month of toxic symptoms..... and the thought "what on earth is this doing back again (with no mino since Oct 3rd)" & what did I need to do?
I know that if I just wait, write how I am feeling, have some feedback, follow my intuition, I will get there in the end.. & I did all that..
I've been waiting for the pure Quercetin from US, but I took my quercetin supplement that I have kept up my sleeve for emergency only & had almost instant relief!! whew!!
I assess MP as being about management.. to me this has been another exercise in, and an experience of, that management, for MySelf & perhaps others to learn from....
I'm looking forward to the pure Q coming & restarting the mino!!!
Thank You to All for Your Wonderful Support... Barb....
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
|
|
Posted: Thu Nov 4th, 2004 07:13 |
|
other thoughts:
I have been looking at my lemons and my intuition has been to not have the lemon drink..
& when the IBS had lifted I had been able to revert to having the Probiotics once daily in the last few days also.. (on Benicar only) as opposed to having them BD up till then. hmmm....
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
|
|
Posted: Thu Nov 4th, 2004 08:53 |
|
MP Preparation:
My advice to anyone is to have the Quercetin & Probiotics & maybe Milk of Magnesia on hand as part of the first preparations for bunkering down.
I had left the Quercetin & MoM, thinking I may not need it.... and then ironically, I have been too unwell to be bothered to do all the chasing up to import Q... ahh well, it is on it's way now.
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
| Status: |
Offline
|
|
Posted: Thu Nov 4th, 2004 18:50 |
|
Friday November 5th 5.50 am ish
Benicar: now 12 weeks 20mg now Q3h Day; 40mg @ 9pm 7H
Mino Sept 10th to Oct 3rd: from initial dose of 1.5mg up to 12.5 mg & stop due to no NoIRs: then continuing on Benicar Only.
Good News:
After that 1 dose of Q 250mg (supp ) yesterday, I have woken feeling more refreshed than I have for the whole Month since last taking the mino 12.5mg!!
* I have known I have very much inflammation.. I could feel far more than my D showed.
* I have always had a problem with the toxicity of attempted treatments. It has been what has stopped me / almost killed me every time!! The Benicar has been my Protector this time.... but....>>>>>>
Quercetin has been My Lifesaver.... a month after the last dose of mino it has saved me... Aussie Barb on the comeback trail ..
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
|
Big John
Guests visiting Phase 1/2/3
|
Posted: Thu Nov 4th, 2004 19:14 |
|
All Right Barb!!!
Now that you are feeling better, take a break and enjoy the Comfort, don't rush right in and start Mino! Take some time to smell the roses. (It is spring there right?)
John
Last edited on Thu Nov 4th, 2004 19:15 by Big John
____________________
Reiters Syndrome, Benicar 9/23/04. Mdx: Sotolol, atenolol, spironolactone, amlodipine,alprazolam, lexapro, Benicar q8. Ph2 12/05. Ph3 5/06
|
Current time is 13:07 | Page:   1 2 3 4 5 6   |
|
