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TickTock
inactive member
| Joined: | Tue Sep 28th, 2004 |
| Location: | New Jersey |
| Posts: | 706 |
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Posted: Sun Dec 25th, 2005 03:38 |
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Hi Barb,
Just wanted to wish you and your family a very Merry Christmas! May this year bring you lots of Good Health and Happiness! I'm sure Santa knows you've been especially good and generous this year helping so many people
XXXOOO
Tick Tock
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Dx: Lyme Disease,Bartonella 25yrs/ 9/26 25D=9 1.25D=79 4/05 25D=8 1,25D=44/ 10mg Lexapro,.5 Xanax / 9/04 start MP/ 5/21 Benicar40mgQ6H Q
8/7/05 Phase 2 10/24 Benicar 20mgQ6H
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EllenD
Member in Phase 2
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Posted: Sun Dec 25th, 2005 14:45 |
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Happy Christmas Barb,
It's nice to be read that the candles Christmas Tree is used
Just a litte bit light in the darkness
Thanks again for all your support this year
and take care
DIKKE KNUFFEL !!!
Frans en Ellen
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CRPS/RSD Reflex Sympathetic Dystrophy 25+years Endometriosis for 15+years 1-1-2006 mino; march 5th: mino 12.5MG/24hrs; aug benicar ; no light, D; NOIRs: 2%, 10% and 40%; full MP lifestyle; k-creme; Endo 15+ years; dyslectic
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19444 |
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Posted: Sun Dec 25th, 2005 16:16 |
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Your Christmas Day.. Happy Christmas to All
Thank you All my Dear Friends for your messages
Monday December 26th 5am / level .5 / day 6 / Phase 2 Aug05 mino > 50mg 24H / Benicar 40mg Q4-6H as required, day and night / MT / Quercetin TID / PBX BID/
Well, we had a Happy Family Christmas. The best they'd had in years to have Mum home they said. It was so nice to see my grown Children together and the happy lovely people they are, and to be with them. It was a very hot day as is usual for Christmas day in Australia, but I was in the darkened air con room.
The computer conditions were too tough to work with so I gave up and had the day off.
we had a simple salad lunch.. lovely.
The trip and getting thru a whole day was a big effort, and it is so comfortable to be back at my own home again now. I am too sick to be away from home for any amount of time.
Getting thru one day was all I could manage and I was pleased that my husband could see that we needed to come back to our home last night after 24H away and not try to get thru another day till the next night. He always takes good care of me. we travelled home thru a very heavy rain storm with some hail, and had to stop the car at some stages as we couldnt see.
I learnt of another new improvement by going. Pre MP I couldnt sit in the car for a trip, because of pain and sickness. I used to have to lie the seat down flat to bear it.. my bones must have been ready to crumble. This time I was able to sit up for the trip and it felt lighter to be able to sit comfortably.
I am feeling sick and exhausted but will take my meds as needed and recover and it was worth it.
That will do for now. all best wishes, Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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BARNEY
Member in Phase 3
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Posted: Sun Dec 25th, 2005 21:20 |
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Barb,
Words are not enough to explain the joy I feel for you. Congratulations and may you continue to improve in leaps and bounds.
Am so glad you could spend Christmas with your children.
HANG IN THERE, WE WILL MAKE IT!!!! BARNEY
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar20mg@3hrs, xtra as needed, Mino25mg @other day
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ShrnHml
Guest
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Posted: Mon Dec 26th, 2005 00:30 |
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Barb......I hope you find your reward here on earth and soon.....well, another year or so.
Having access to all posts has enabled me to read up on your progress. I started with your having company, then to Target, then to the farm with the family. In spite of your difficulties, it seems you are upwardly bound.......like sitting in the car for three hours.
I am amazed how you can be "coach" to so many of us with all you need to do to take care of yourself.......AND you seem to keep your meds straight. That takes cognitive power.
When you are well, maybe you can be Head Coach for a network of Assistant Coaches around the world. Maybe there will be a whole new field here for Physician Assistants who are able to to MP coaching.
May the coming year be the best ever for you and yours.
Sharon
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Neuroborreliosis, MP 3/05, 1,25D 62; 3/06 25D<4, ModPh2 12/05, Premarin, Effexor, stopped Benicar 1/07....no longer in study
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19444 |
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Posted: Mon Dec 26th, 2005 15:42 |
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Thank you All ....
Tuesday December 27th 5am / level .5 / day 7 / Phase 2 Aug05 mino > 75mg / Benicar 40mg Q4-6H as required, day and night / MT / Quercetin TID / PBX BID/
Stiff and sore muscles and still recovering.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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CLefelt
Member in Phase 3
| Joined: | Sun Oct 24th, 2004 |
| Location: | New Jersey, USA |
| Posts: | 318 |
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Posted: Tue Dec 27th, 2005 18:53 |
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I've been away and it's SO NICE to return and read your latest posts! I loved the description of your return to the farm, and I rejoice with your family.
May this new year bring you and your family continued strength and good health!!
I send a big hug,
Carol
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Lyme Bartonella CFS FM Chly Pneu; Klonopin Florinef Lexapro TriEst Prog 10/04: 25D=9 1,25D=70 4/05 4/06: 25D=6.2 1,25D=20.9 8/06:25D=<7 1,25=13; Mino 11/36/04 2Abx 3/19/05 3Abx 4/27/06
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19444 |
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Posted: Tue Dec 27th, 2005 20:53 |
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Thank you All ....
Wednesday December 28th 10am / level .5 / day 8 / Phase 2 Aug05 mino > 25mg Q12H / Benicar 40mg Q4-6H as required, day and night / MT / Quercetin TID / PBX BID/
Last night, I had taken the 25mg 3H before when I woke MN all hot and high gut herx. had to get up till it settled. 2H.
Feeling quiet and unwell but taking care and recovering some.. Meds needs jumping all over the place to maintain tolerable. aspirin relieves achey chest and down left arm.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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kathleen
inactive member
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Posted: Tue Dec 27th, 2005 23:07 |
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Dear Barb,
I'm so happy to read your Christmas post!!! How great to notice such a specific and big gain - being able to sit up in the car for so long. I know that you need some time to recover now, but it's still wonderful.
I'm hoping for a better year ahead for all of us. No giving up, Love XXOO Kathleen
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CFS '86, LTD '86 (50 yrs old)pacemaker - total heart block '99 fatigue, cognitive, sleep, digestion, dysautonomia, weakness, headache, tinnitus, IC, new anemia 9/9/04 D,25 44 - D,125 76 4/05 D,25 24 4/05 Ben 40mg/6hrs, Mod Ph 2
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19444 |
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Posted: Wed Dec 28th, 2005 19:01 |
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Thank you All ....
Thursday December 29th 8am / level .5 / day 9 / Phase 2 Aug05 mino > 25mg Q12H / Benicar 40mg Q4-6H as required, day and night / MT / Quercetin TID / PBX BID/
Still fragile and unwell. taking care, taking meds, resting.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19444 |
| Status: |
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Posted: Thu Dec 29th, 2005 23:20 |
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Thank you All .... Happy New Year!!!
Friday December 30th 12md / level .5 / day 10 / Phase 2 Aug05 mino > 25mg Q6H / Benicar 40mg Q4-6H as required, day and night / MT / Quercetin TID / PBX BID/
Full body and gut herxing / aura. quiet. one moment at a time .. 
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19444 |
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Online
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Posted: Fri Dec 30th, 2005 20:01 |
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Thank you All .... Happy New Year!!!
Saturday December 31st 9am / level .5 / day 1 / Phase 2 Aug05 mino > 50mg / Benicar 40mg Q6H as required, day and night / MT / Quercetin TID / PBX BID/
Some improvement with beginning of new abx cycle.
I have spent this year of my Life on MP. That is a year working towards a Future that I had been warned I would not see.
and as the year has unfolded I have been able to see what I could not see, tiny step by tiny step to come out of the denial I had been surviving behind. I now understand why I felt so sick for so long, and why there were no answers to my problems - till MP. my body function is being restored gradually.
These are some of the more obvious improvements:
minor skin lesions have disappeared.
I am off thyroxine.
No migraines (they used to last 7 to 8 days)
anxiety/ depression/ stress meds and social and psychological issues all a thing of the past. peace reigns. gaining confidence. can see the re-building in many ways.
I can eat cold fruit from the fridge. couldnt bear to before. Used to have it room temp.
problem teeth for years. fractures, uncomfortable. not a problem now.
I can sit in the car to travel. (had to lie down before)
Overall I dont need as much rest and bed time.
I may think of more yet
Dr Marshalls words ring true for me: ... "the biggest issue, IMO, is trying to micromanage the healing process. If you are typical of the folks who come looking to the MP for relief, then you have a body which is very ill. It is systemically ill, there will be no part of it that has totally escaped damage. That's the problem with micromanaging - when you get too much data it becomes not easy to analyse what is happening.
Healing takes place on a yearly scale..... " <<<<
Here's to a Happy Healthy 2006 to All !!!...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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jrfoutin
Research Team
| Joined: | Tue Aug 9th, 2005 |
| Location: | Oregon USA |
| Posts: | 3877 |
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Posted: Fri Dec 30th, 2005 20:25 |
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| Your post today is so wonderful. What a fantastic way to wrap up a great year!
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Sarcoidosis 125D61, MP10/05 ModP2 12/05 Ph2 6/06 Ph3 10/06, NoIRs limited outings covered, 2/08 25D6.2
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BARNEY
Member in Phase 3
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Posted: Fri Dec 30th, 2005 20:52 |
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I second that, Barb!!!!!
What a fabulous year!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
My 1 year anniversary is 1/1/06. Thank God for MP for all of us.
HANG IN THERE, WE WILL MAKE IT!!!! BARNEY
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar20mg@3hrs, xtra as needed, Mino25mg @other day
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alayne
Member in Phase 3
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Posted: Fri Dec 30th, 2005 21:13 |
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The best words to hear just before the New Year!!!
Barb, your post brought tears to my eyes (and yes, my mood is fine!). Your fight has been such a royal one and to hear you talk of improvements now, well, it's more than marvelous!
Here's to a Happy and Wondrous 2006!!!
Alayne
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ME/CFS/FM 6/05:25D-34 1,25D-69, 11/07:25D-8 1,25-37, Sick 6-11 mos/yr x20+yrs. NoIRs/Avoid Sun/D/Use Zinc oxide. 11/17/05-Ph1, 5/06-MPh2, 12/06-MPh2#2, 6/07-MPh2#3,1/08-Ph2, 4/08-Ph3, NonMP Meds:Sleep:1-2mgLoraz or OTC q2d/MThistle/Calc&Mag/Lysine
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Jill T
inactive member
| Joined: | Mon Dec 27th, 2004 |
| Location: | New York USA |
| Posts: | 437 |
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Posted: Fri Dec 30th, 2005 22:24 |
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Barb,
I just read your post and I have to tell you that that's the best news I've seen in a very long time! Just an improvement in the social sxs is huge!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!
You are such a wonderful model of patience, fortitude, and faith!!!!!!! Just think of all of the improvements you'll be able to report at the next New Year!
Happy Happy New Year!!!!!!!!
xoxoxoxo Jill
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CFS/ChronicLyme Babesia headaches fatique aching chest pains arrhythmia sob paresthesia GERD dizziness depression years of amox for tonsils| 12/04 25D=23,1,25D=77, 8/05 25d=21.6, 10/05 25d=8| probiotics magnesium PH I 2/05, phase II 3/06
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DNStog
Member Advocate
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Posted: Sat Dec 31st, 2005 03:55 |
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Barb... @@@@@@@@@@@@@ 
2006 will hold more great healing for you and the rest of us MPers, no doubt! December 27 was my one year anniversary of MPing it...time flies whether you're having fun or NOT. 
Here's to the continued waning of your illness symtoms!!!
Hugs! Donna
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Sarcoidosis/skin, joints, lungs, nerves, Raynauld's, uveitis, hypothyroid, sinus, wt. gain, Peradontal disease, GERD-hiatal hernia, breast ca 11/06, 25D7, Synthroid, Wellbutrin, eye vits, melatonin, Milk Thistle, Quercetin, Rx glacier, cover up, low lux h
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Grace
Member Advocate
| Joined: | Tue Sep 14th, 2004 |
| Location: | Australia |
| Posts: | 396 |
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Posted: Sat Dec 31st, 2005 04:33 |
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Barb,
Good on ya
Grace
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CFS, oct04 Ds=26/48, 4/07=7/24 MP PHI 2/05, PhII 6/05, PhIII 6/06, beni Q6H, Noirs rarely inside no nature light low watt, outside 40%10%, Hat, all covered, no gloves, paracetamol
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ShrnHml
Guest
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Posted: Sun Jan 1st, 2006 03:21 |
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From Barb's post:
anxiety/ depression/ stress meds and social and psychological issues all a thing of the past. peace reigns. gaining confidence
.............PEACE REIGNS..............
Beautiful and inspiring.........thanks.........Sharon
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Neuroborreliosis, MP 3/05, 1,25D 62; 3/06 25D<4, ModPh2 12/05, Premarin, Effexor, stopped Benicar 1/07....no longer in study
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Aunt Diana
Member Advocate
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Posted: Sun Jan 1st, 2006 13:35 |
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| I have only known you for two months and yet you have been such a great role model for me...and so many others. May 2006 be one of the best years in your life with many more positive changes. Happy New Year
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Lyme 1987, neuro cardio fatigue achiness brain fog depression, anxiety. Pacemaker, D.1,25 32; D <5; 12/07 <6, Oxycodone, lorazapam, benedryl, zantac, colase, Noirs, cover-up or avoid sun, house <30lux. Feb 08 Phase 3. 6/08 D <4, D1,25 21
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