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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Sun Jan 1st, 2006 15:36 |
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Thank you All .... Happy New Year!!!
Monday January 2nd 4.40am / level .5 / day 3 / mino > 50mg Daily / Benicar 40mg Q6H as required, day and night / MT / Quercetin TID / PBX BID/ Phase 2 Aug05
The herxing and overall aura and heaviness seem to be lifting a little for at least some of the time. going more toward tolerable. it is easier to know what tolerable is when you get there.
most of the time now, due to less heavy herx, walking around the house is a little easier than it was. that helps.
I was able to read a couple of pages of a book the other day.
I havent read any more but that was an improvement.
Feet swollen
shoulder: patch of parasthesia
hot spot on top of each foot.
eyes
rib muscles still grab and cramp
seat drawing is ouch
subcutaneous ouch
BO again
cough, and antbite cramps on ribs start sneaking up when meds are due.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Mon Jan 2nd, 2006 05:44 |
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Mino 50mg changed to Q12H today.
There is an interesting change happening.
I have less overall body heaviness/herx.. and so I am feeling the gut herx harder.. making me feel sick. I increased the mino to Q12H today.
I am still overall sick and slow and can feel it when I try to do anything yet, BUT I can feel a little spring, a sort of tiny wellness in me today.. this is very amazing..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Mon Jan 2nd, 2006 19:44 |
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Thank you All ....
Tuesday January 3rd 8.40am / level .5 / day 4 / mino > 75mg 4am / Benicar 40mg Q4-6H as required, day and night / MT / Quercetin TID / PBX BID/ Phase 2 Aug05
some pressure building, more cramps, bone pain, tells me it is time to increase the abx.
11am yest: took Q12H dose of 50 mino to assess effect .
building again last night. slept on it..
3am cough will not be settled by Benicar alone
mino increased to 75mg took 4am
even after Q etc coughing requires Benicar @ Q4H. settled.
other symptoms unchanged. doughy again today.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Tue Jan 3rd, 2006 16:41 |
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Wednesday January 4th 5.40am / level .5 / day 5 / mino > 75mg 4am yest / Benicar 40mg Q4-6H as required, day and night / MT / Quercetin TID / PBX BID/ Phase 2 Aug05
gut and full body herxing yest, so I was doughy.
wheezy and cough niggly. voice is often hoarse.
Benicar 4 to 6H as required
Feet swollen
shoulder: patch of parasthesia
eyes
rib muscles grab and cramp
seat drawing is ouch
subcutaneous ouch
oily face and hands
itchy face and scalp.
very small bits of 'sand' come off me anywhere
BO chemical
I have been asked are my Family excited yet.. not a bit. my herxing symptoms are still scary enough for them. They will be able to see when I am able to be physically active and etc. The improvements I have noted so far are more obvious to me personally as I take stock..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Wed Jan 4th, 2006 16:53 |
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Thursday January 5th 5.55am / level .5 / day 6 / mino > 75mg 9pm yest @ 40H / Benicar 40mg Q4-6H as required, day and night / MT / Quercetin TID / PBX BID/ Phase 2 Aug05
Yest herx was high but managable with meds and rest. doughy.
went to Dr 5pm. had to wait only half hour. I was so uncomfortable it seemed forever. Dr is wonderful. good to be home again.
wheezy and cough.
body herx.
Benicar 4 to 6H as required
took mino dose @ 40H after all other meds tried.
slept well till woken at 2am (5H post Beni) with bad leg cramps. ARB relief. so it was from the light exp.
other symptoms continue same.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Thu Jan 5th, 2006 20:45 |
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Friday January 6th 9.55am / level .5 / day 7 / mino > 75mg Q24H / Benicar 40mg Q4-6H as required, day and night / MT / Quercetin TID / PBX BID/ Phase 2 Aug05
Yest herx was high but managable with meds. doughy.
legs sore from the cramps, and ready to cramp again when needing Benicar.
wheezy and cough clearer today. is noticable when meds are due.
body herx.
Benicar 4 to 6H as required
took mino dose @ 24H as required.
slept well woke only for Benicar
some dizziness when walking
gut herx was more pelvic some of the time
some diaphragmic pain at times
other symptoms continue same.
5.30pm add:
taking the mino 75mg Q24H helps
herx is gut / pelvic
pain under left and right ribs when meds are due.
some butterfly kicks in diaphragm
body herx > dizziness on standing
legs improving
other symptoms same as previous posts.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Sat Jan 7th, 2006 05:22 |
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Saturday January 7th 6.25pm / level .5 / day 8 / mino > 75mg Q24H decrease to 50mg / Benicar 40mg Q4-6H as required, day and night / MT / Quercetin TID / PBX BID/ Phase 2 Aug05
Benicar 4 to 6H as required
took mino dose @ 24H as required.
slept well woke only for Benicar
dry cough
body herx, transient dizziness on standing.
Sometimes I am sad, discouraged. I know it is herx.. if I lose focus on the now. so I decreased the daily mino. refocus and taking the meds turns it around.
eyes remain bloodshot, glazed and deep set. have black circles. sticky blurry.
gut / pelvic herx milder.
pain under left and right ribs when meds are due.
muscles grab and spasm
other symptoms same as previous posts.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Sat Jan 7th, 2006 22:53 |
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Sunday January 8th 12MD / level .5 / day 1 / mino > 75mg / Benicar 40mg Q4-6H as required, day and night / MT / Quercetin TID / PBX BID/ Phase 2 Aug05
slept well woke only for Benicar
needed a boost. began new cycle.
cough
body herx, transient dizziness on standing.
pain under left and right ribs when meds are due.
muscles grab and spasm
recently the gut herx feels more *in* the GI than previously.
other symptoms same as previous posts.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Val R.N.
Health Professional
| Joined: | Wed Dec 7th, 2005 |
| Location: | Miami, Florida USA |
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Posted: Sun Jan 8th, 2006 03:44 |
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hi Barb, sounds like you're having a rough go round, but also sounds like those nasty symtoms are getting a wee bit more manageable.We will be thinking of you and hope things keep gtting better .
thanks for the support xxooxx Val & Bill
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Res MP| bad discs neck anal ca, degen T & L, lymph nodes| Valium propanolol Percocet Elavil 50 Soma K supp| D25-12.5 1,25D-11| BeniQ8H 4Sept06|
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Mon Jan 9th, 2006 00:31 |
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Thank you ...
Monday January 9th 1.30pm / level .5 / day 2 / mino > 75mg 24H ago / Benicar 40mg Q4-6H as required, day and night / MT / Quercetin TID / PBX BID/ Phase 2 Aug05
slept well woke only for Benicar x 2
wanted to lie-in, but thinking, fragile. get up to distract self.
catchy cough is transient
body herx tolerable
quiet. am ok if distracted.
other symptoms same as previous posts.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Mon Jan 9th, 2006 21:42 |
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Thank you ...
Tuesday January 10th 11am / level .5 / day 3 / mino > 75mg Q24H / Benicar 40mg Q4-6H as required, day and night / MT / Quercetin TID / PBX BID/ Phase 2 Aug05
mood lifted last night.
slept well woke only for Benicar
catchy cough wheeze is transient
body herx tolerable. best to sit.
gut herx.
other symptoms same as previous posts.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Tue Jan 10th, 2006 17:21 |
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Wednesday January 11th 6.15am / level .5 / day 4 / mino > 75mg 4am / Benicar 40mg Q4-6H as required, day and night / MT / Quercetin TID / PBX BID/ Phase 2 Aug05
wheeze in throat. if I had a puffer I'd have a puff. may be exacerbated by the housecleaning - not me of course. took Beni and mino 25mg last night and mino 75mg this am.
slept well woke only for Benicar
catchy cough and wheeze
body herx tolerable. best to sit.
gut herx. gut herx.
other symptoms same as previous posts.
ADD: 4.30pm mino 50mg for wheeziness. some relief.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Wed Jan 11th, 2006 17:45 |
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Thursday January 12th 7am / level .5 / day 5 / mino > 75mg 7am/ Benicar 20mg Q4H, day and night / MT / Quercetin TID / PBX BID/ Phase 2 Aug05
wheeze sob continued so I have decreased Benicar to 20mg Q4H and there may be some relief. exploring assessing effects.
slept well woke once.
catchy cough and wheeze in throat
body herx tolerable. best to sit.
gut herx.
other symptoms same as previous posts.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Thu Jan 12th, 2006 17:38 |
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Friday January 13th 7am / level .5 / day 5 / mino > 50mg 10pm/ Benicar 20mg Q6H, day and night / MT / Quercetin TID / PBX BID/ Phase 2 Aug05
wheeze sob chest tight. feels mild enough. cannot speak without coughing.
Benicar decreased to 20mg Q6H with no worse effect.
Mino 75mg is too much each time I try it.
took mino 50mg before bed.
slept well. woke once briefly
feet a little less swollen
body herx tolerable. best to sit.
gut herx.
other symptoms same as previous posts.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Fri Jan 13th, 2006 16:47 |
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Saturday January 14th 6am / level .5 / day 6 / mino > 50mg Daily/ Benicar 20mg Q5 to 6H, day and night / MT / Quercetin TID / PBX BID/ Phase 2 Aug05
wheeze sob chest milder.
decreased Benicar seemingly having no less good effect than full dose.
slept well. woke once briefly
feet swollen
body herx tolerable. best to sit.
gut herx.
eyes same
BO chemical
other symptoms same as previous posts.
add 3pm: took mino 50mg .. Benicar 20mg is holding 6H...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Sun Jan 15th, 2006 00:59 |
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Sunday January 15th 2pm / level .5 / day 7 / mino > 50mg Q12H + extra 25mg 9pm / Benicar 40mg Q6H, day and night / MT / Quercetin TID / PBX BID/ Phase 2 Aug05
the decreased Benicar dosing failed > inflammatory symptoms rising. uncomfortable. intolerable. less functional.
returned to full dose Benicar 9pm. with an extra mino 25mg and an aspirin to get me thru it.
slept well. woke once briefly
one day has made the difference again.
wheeze sob chest milder. more tolerable day with all meds still required to hold herx tolerable..
body herx tolerable. best to sit.
feet swollen
gut herx.
eyes same
BO chemical
other symptoms same as previous posts.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Sun Jan 15th, 2006 20:53 |
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Monday January 16th 9.55am / level .5 / day 8 / mino > 50mg Q12H / Benicar 40mg Q6H, day and night / MT / Quercetin TID / PBX BID/ Phase 2 Aug05
I am planning to change my abx. Although I am experiencing healing, I feel it is time for a change as I have been in phase 2 for 6 months and have been unable to make any increase in the lowest dose. The healing that is happening is more obvious mentally emotionally than is obvious physically at this point.
With the way my body responds, it would be intolerable for me to wait on mino only, and with the level of herxing I have with all meds adjusted, it is risky for me to add another antibiotic too soon, so it is a delicate balancing act to make the change.
My plan is that when my body calls for the next dose of 2nd abx on day 8 or 9 or 10 as it usually does, to instead take a very very small dose of the next antibiotic I am planning to add...and depending on the response, continue with the Mino as required (usually frequently) + it QOD and then decide where to from there.
Having a new plan is helpful. watching and waiting.. am at day 8 now.
slept well. woke once briefly
I can go from "aaaahh this a relief that the herx is milder" to needing to take the next med in no time at all..
wheeze cough sob chest still present. fluctuate with herx.
body herx tolerable. best to sit.
feet swollen
gut herx can rise high enough at times. showed itself this time with some otherwise unexplained pressure and unusual frequency.
eyes burning and blurry and same otherwise.
BO chemical
legs and seat more drawing again today.
other symptoms same as previous posts.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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ShrnHml
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Posted: Mon Jan 16th, 2006 04:08 |
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Barb.......good news about the change in abx. I hope it does great things for you. Did you ever consider ModPh2? From what little I know, it seems like a good plan for you. But at least you have a NEW plan to try, and I will be awaiting the results.
Sharon
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Neuroborreliosis, MP 3/05, 1,25D 62; 3/06 25D<4, ModPh2 12/05, Premarin, Effexor, stopped Benicar 1/07....no longer in study
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Aussie Barb
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Posted: Mon Jan 16th, 2006 04:10 |
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| Thanks Sharon, I have done Mod Phase1 from month 3 of MP till I began Ph 2. Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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sue from Indy
Member in Phase 3
| Joined: | Tue Jun 21st, 2005 |
| Location: | Indiana USA |
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Posted: Mon Jan 16th, 2006 08:59 |
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Good Luck Barb - I'll be watching your posts. Hope this works for you.
Your friend, Keeping on Sue
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Sarcoidosis/skin, lungs, joints, MPh1 7/05, Ph2 11/05, Mod Ph2 8/06, Ph312/06, NoIRs, 1.25D =8 Oct08
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