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Aussie Barb
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Posted: Mon Oct 17th, 2005 00:38 |
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Monday October 17th 12.40pm cycle 9 of PHASE 2 / cycle 8 at level .5 / Day 2 / mino QOD > 100mg / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID
sleeping more deeply..
cough, clearing throat, calling for Q2H Beni today.
Left foot arch as previously mentioned is still niggling constantly.
Gut herx has changed some.. there are jabs and flutterings in muscles. body odor, very chlorine-ish.
legs and seat and back and neck discomfort continues. feel pulsing. ouch factor.
strong herxing in bones in upper arms... Benicar Q2H relieves
teeth, face, throat ache. oily face and hands.
eyes blurry gritty. I cant see the turned down computer and tv if I wear even the 40% NoIRs at the moment.
Noting Improvements: Off Thyroxine med completely. No Depression or desolation. Can eat fruit straight from the refrigerator! Voice sounds stronger. Skin healing happened earlier..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Mon Oct 17th, 2005 17:36 |
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Tuesday October 18th 5.40am cycle 9 of PHASE 2 / cycle 8 at level .5 / Day 3 / mino QOD > 100mg today / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID
slept deeply.. woke a few times.
cough, clearing throat, settled so far today.
Left foot arch as previously mentioned is still niggling constantly.
Legs really aching 3 am so got out of bed to computer to distract / relieve.
legs and seat and back and neck discomfort continues. feel pulsing. ouch factor.
face, throat ache. oily face and hands.
eyes sticky blurry gritty. difficulty seeing anything really clearly.
Others talking about cramping / muscle spasms.. I stretched and yawned last night and a muscle under my chin all balled up in a lump.. had to pat it out.. ouch! and same happens with abdo and rib and back and leg muscles.. Julia says it has passed for her. I look forward to the day!
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Tue Oct 18th, 2005 18:55 |
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Wednesday October 19th 7am cycle 9 of PHASE 2 / cycle 8 at level .5 / Day 4 / mino QOD > 100mg yesterday / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID
slept deeply.. woke only for Beni.
woke with cough more intense this morning. can feel it in my chest.
Left foot arch still niggling constantly.
Very hard antbite cramp in left breast and arm last night. took Benicar and applied heatbags.. Beni still sometimes Q2H.
legs and seat and back and neck discomfort continues. feel pulsing. ouch factor.
face, throat ache. oily face and hands.
eyes sticky.
gut herx.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Wed Oct 19th, 2005 18:16 |
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Thursday October 20th 6.15am cycle 9 of PHASE 2 / cycle 8 at level .5 / Day 5 / mino QOD > 100mg today / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID
slept deeply.. woke only for Beni.
woke less symptomatic, not racing for the mino and meds.. a nice change.
Left foot arch.
some transient antbite cramps. Beni still sometimes Q2H.
legs and seat and back and neck discomfort continues. feel pulsing throb. subcutaneous ouch factor.
face itch, throat ache. oily face and hands.
eyes very sticky at times.
gut herx. feels like something pressing against me. pressure. cant stand for long.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Thu Oct 20th, 2005 18:21 |
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Friday October 21st 6.15am cycle 9 of PHASE 2 / cycle 8 at level .5 / Day 6 / mino 100mg QOD > took 50mg last night @ 12H / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID
Blood Test results from a month ago: finally arranged to get them. would explain why I have been feeling under the weather.
25D coming down slowly. see sig line.
Kidney function tests: says renal impairment with associated hyperuricaemia is present.
see FAQ My kidney function tests are worse since I started the MP. What should I do?
says in part It is not uncommon for subclinical kidney inflammation to be exacerbated due to the Herxheimer reaction. This is reflected in a temporary increase in creatinine and BUN.
Many Th1 patients are surprised when they find out how much their kidneys have been affected by the disease.<<
This shows lots of herxing, therefore healing happening. I have to be aware not to be pushing myself thru too hard.. As a reaction or a response to the news I took mino 50mg going to bed last night to slow the herxing some to take some of the pressure off, to go a bit slower for a while.
slept deeply between wakes.. woke many times.
woke coughing as usual etc this morning.
Left foot arch.
legs and seat and back and neck discomfort continues. feel pulsing throb.
subcutaneous ouch factor
face itch, throat ache. oily face and hands.
eyes very sticky at times.
feet and ankles swollen
gut herx. feels like something pressing against me. pressure.
cant stand for long.
I always forget the black rings around eyes.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Sat Oct 22nd, 2005 00:55 |
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Saturday October 22nd 1.15pm cycle 9 of PHASE 2 / cycle 8 at level .5 / Day 7 / mino > 50mg Q12H / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID
Decided to take the mino 50mg Q12H to slow down for awhile, and till I feel better than I have.
Pinching in Heart area.
sleepy and fragile.
cough when meds due.
pulsing thru body still.
other herxing symptoms slowed.. gut, foot, eyes..
legs and seat and back and neck discomfort continues.
subcutaneous ouch factor is less.
face and throat ache. helped by frequent mino.
oily face and hands.
face itch
cant stand for long.
I have a sore to touch spot right side of my head. causes a headache at night.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Sat Oct 22nd, 2005 17:43 |
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Sunday October 23rd 5.45am cycle 9 of PHASE 2 / cycle 8 at level .5 / Day 8 / mino > decrease to 25mg Q6H now / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID
Felt awful all day yesterday so decided to decrease the mino 25mg Q12H to see if better for the slow down for awhile, and till I feel better than I have.
Woke feeling relieved in comparison to yesterday. took first mino 25mg.
Pinching in Heart area has gone today.
Cough, none noticable this morning.
Pulsing thru body still.
Other herxing symptoms slowed.. gut, foot.
Legs and seat and back and neck discomfort continues.
Subcutaneous ouch factor is ouch.
Face and throat ache. helped by frequent mino.
Oily face and hands.
Face itch
Eyes sticky blurry again.
Cant stand for long.
I have a sore to touch any spot right side of my head. causes a headache at night. Took Panadol. settled. when I touch even the hair there is a shock like pain jab which spreads like an aura down to base of skull. lessens with massage. could be from the site of an old scar on top of head. (40yrs ago) headachey again now.
will continue Q6H mino 25mg for this.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Sun Oct 23rd, 2005 16:17 |
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Monday October 24th 4.15am cycle 9 of PHASE 2 / cycle 8 at level .5 / Day 9 / mino > 25mg Q6H / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID
I am going to describe how I am feeling, for others who may have similar experience.
There is me experiencing the herx and doing it rough. and me knowing it is a herx and that all is ok.
My head, on the Right side, feels like it is bruised.
At the slightest touch, beginning with the hair, there is physical > psychological shock and a spreading out hurt.
I have had many hits on the head in my Life, and my head has been very sensitive to being bumped. physically and psychologically.
So I guess that is why this experience is physical and psychological in nature.
There have been a couple of hot flashes and panic type anxiety.
and thankfully I can be outside of it at the same time. reassuring myself that it is herx and it will pass..
Making sure I am fed and rested and medicated. All MP meds as listed above + Tylenol prn are helping.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Mon Oct 24th, 2005 16:17 |
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Tuesday October 25th 4.15am cycle 9 of PHASE 2 / cycle 8 at level .5 / Day 10 / mino > 25mg Q6H / Benicar 20mg Q3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/ tylenol prn to settle
I have been trying to define what this hair pain and head pain actually feel like.
Just barely touching the hair gives the same sensation as a blow to the head.. so it is shocking and disconcerting.. scalp has some itch as well, so the touching is more careful now..
Physically and Psychologically hanging in by my meds.. taking all regularly as per above..
Last night going to bed, I noticed that walking around the bed to get to my side was some easier than it has been.. ie the overall herx effects have lessened.
woke at 5H for Beni and mino 25mg.
Feet ankles remain swollen.
gut herx at times
eyes blurry
seat and legs
face itch
oily face and hands
no cough
chlorine BO
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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BARNEY
Member in Phase 3
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Posted: Mon Oct 24th, 2005 18:14 |
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Barb,
I don't know if this is true or has anything to do with your hair feelings...but..I talked with a lady who is a cosmotologist (beautician) about my stepmom getting a perm since she has been on antibiotics so much. She explained that a lot of things like antibiotics go out thru the hair foliciles....don't know if this is fact but this was her explanation to me...could that be what the hair feelings are or could it be bugs are actually in our hair strands.
Who knows (probably Trevor) or maybe Barb?
Glad to hear your legs are doing somewhat better as you walk around your bed.
Thank you Barb for all of the tireless jobs you do to keep all of us going.
HANG IN THERE, WE WILL MAKE IT!!! BARNEY
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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar20mg@3hrs, xtra as needed, Mino25mg @other day
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Mon Oct 24th, 2005 20:37 |
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Thanks Barney,
Dr Marshall has said this.. >>
Dr Alan Cantwell told me that the CWD bacteria love sweat glands and hair follicles.
Take a look at Alan's paper at http://tinyurl.com/9yxxq
One of the "moments of healing" for me was one morning in 2002 when I woke up and couldn't feel my hair anymore. Prior to this Liz had to cut my hair, as I was too jumpy at the barber's shop, and couldn't handle the transient pain. But one morning I woke up and realized that I couldn't feel my hair anymore. Well, I could feel it, but it didn't hurt in any way to run my fingers through it, or bend, shape, and mangle it. After being assured that was 'normal,' I settled back to enjoy another of the pleasures I had been missing all my life 
..Trevor.. <<<
Barb ....
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Tue Oct 25th, 2005 06:30 |
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Tuesday October 25th 6.25pm cycle 9 of PHASE 2 / cycle 8 at level .5 / Day 10 / mino > 25mg Q6H / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/ tylenol prn to settle
Today has been a better day physically and psychologically..
I have kept the frequent mino dosing going despite, unusually for me, not feeling any obvious relief or effect for quite some time.. am looking forward to increased relief.
The hair / head pain and sensitivity is decreasing
and although still weak, physically I am in a bit better shape than I was.
my eyes are blurry. cannot see with NoIRs on.. gut herxing.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Tue Oct 25th, 2005 16:58 |
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Wednesday October 26th 5am cycle 10 of PHASE 2 / cycle 9 at level .5 / Day 1 / mino > 25mg Q6H / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/ tylenol or aspirin prn to settle
The head pain seems to be coming from the area around a scar I have on the Right top of my head. it seems to be in the nerves in particular. The sensation on touching, is felt down into the base of my skull, and into my ear, mouth and throat. The sensation is worst on first touch, and lessens with massage.
left foot arch hurts again
gut herx and discomfort rising again
feet ankles (all of me) swollen.
hard antbite cramp in upper left arm today. relieved with heat bag.
sore glands right side of throat.
chlorine BO.
pulsing in head and body.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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| Joined: | Thu Jul 22nd, 2004 |
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Posted: Wed Oct 26th, 2005 16:40 |
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Thursday October 27th 4.35am cycle 10 of PHASE 2 / cycle 9 at level .5 / Day 2 / mino > 25mg Q6H / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/
Head symptoms are settling slowly.
slept well, dreaming. not sure what.
woke coughing.. took meds and cough drops.. I think this occurs when the Benicar goes just past the 6H thru the night.
face and scalp itchy
full body subcutaneous ouch.
Taking all meds as above and making sure I am fed and rest keeps all managable.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Thu Oct 27th, 2005 18:32 |
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Friday October 28th 6.30am cycle 10 of PHASE 2 / cycle 9 at level .5 / Day 3 / mino > 25mg Q6H / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/
Head symptoms are settling slowly. still a sore spot. continuing frequent mino.
slept well. woke 5H for Benicar
face and hands oily
face and scalp more itchy
left foot arch ache, eyes blur. coughing when meds are due. tired. R throat gland /ear mildly ache. chlorine BO.
full body subcutaneous ouch. full body debility continues.
Taking all meds as above and making sure I am fed and rest keeps all managable.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
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Posted: Fri Oct 28th, 2005 01:23 |
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1pm It is worth a special report to say that the sore spot on the R side head has resolved..
Headache, neck, glands all feel quite a fullness and ache. continuing mino 25mg Q6H and Q2-3H Beni and Q and MT and PBX to keep symptoms tolerable. will take some aspirin now to help.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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CJ
Member in Phase 3
| Joined: | Fri Apr 1st, 2005 |
| Location: | Byron, Michigan USA |
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Posted: Fri Oct 28th, 2005 13:56 |
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Hi Barb,
You sure help me hang on. I find it so hard to articulate my experiences most of the time all I can seem to do is manage my protocol and keep on keepin on.....Oh thinking about kilts helps some 
Loves ya!
CJ
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Saroidosis/lungs, 25D7 (8/07) Spireva,Ibuprofen, NoIRs, lite exp r/t work
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Aussie Barb
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Posted: Sat Oct 29th, 2005 00:39 |
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Saturday October 29th 12.40pm cycle 10 of PHASE 2 / level .5 / Day 4 / mino > 25mg Q6H / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/
Head symptoms: I still have one sore to touch spot (so dont touch it) continuing frequent mino. glands / R ear/ head thick, mildly ache.
slept well. woke 4H for Benicar. woke nauseous, chokey, coughing for some time. had to get up to manage.
face and hands oily
face and scalp itchy
left foot arch ache, eyes blur. coughing when meds are due. tired.
drawing sensation where seated. pulsing. subcutaneous ouch.
chlorine BO.
Taking all meds as above and making sure I am fed and rest keeps all managable.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
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Posted: Sat Oct 29th, 2005 17:33 |
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Sunday October 30th 5.30am cycle 10 of PHASE 2 / level .5 / Day 5 / mino > 25mg Q6H / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/
A lot of hip and leg pain last night in bed then eventually slept well.
Head symptoms: I woke @ Beni and mino 25mg 7H. head soreness coming back some. had some head jabs same area yesterday. glands / R ear/ head thick, less ache.
face and hands oily
face and scalp itchy
left foot arch ache, eyes blur. coughing when meds are due. tired.
drawing sensation where seated is much worse today. pulsing in body.
subcutaneous ouch. there is an ouch when legs touch eg.
transient pain in upper arms. hands numb when sleeping.
chlorine BO.
Taking all meds frequently as above and making sure I am fed and rest keeps all managable. anyone healthy would not think it managed..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
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Posted: Sun Oct 30th, 2005 16:23 |
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Monday October 31st 5.30am cycle 10 of PHASE 2 / level .5 / Day 6 / mino > 25mg Q6H / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/
Eventually slept well.
Head symptoms: I woke @ Beni and mino 25mg 7H. head soreness still present. head jabs, and transient pain down the back of the neck. I find this most disconcerting. I have had lots of trauma, and havent been able to bear my head being bumped in the slightest for years so I shouldnt be surprised knowing it is now healing.
Any delay in meds schedule increases symptoms. again I am surprised and then think I shouldnt be.
glands / R ear/ head thick, some ache.
face and hands oily
face and scalp itchy
left foot arch ache, eyes blur. coughing when meds are due. tired.
Drawing sensation where seated, continues. pulsing in body.
subcutaneous ouch all over.
transient pain in upper arms. hands numb when sleeping.
chlorine BO.
Taking all meds frequently as above and making sure I am fed and rest keeps all bearable to trudging along.
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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