| Author | Post |
|---|
Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19385 |
| Status: |
Offline
|
|
Posted: Fri Nov 11th, 2005 06:03 |
|
Friday November 11th 8pm / cycle 11 of PHASE 2 / cycle 1 level 1 / Day 9 / mino > 25mg Q6H / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/
sleep deeply between some wakes.
full body herx continues. all tolerable while not pushing. while taking all meds frequently as above.
burning continues.
transient bone pain
eyes not as sticky, still blurry.
face itches, no rash.
face and hands oily.
mild numbness in nose, teeth, jaw.
subcutaneous ouch
head: areas sore to touch
transient times of emotional sensitivity
Drawing sensation where seated continues.
pulsing in body.
symptoms rising as the day wore on. time to begin next cycle.
chlorine BO.
taking care, more rest.
swollen ankles feet etcc..
Noting Level of ability: yet unable to do anything that requires physical effort or sustained standing.
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
|
Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19385 |
| Status: |
Offline
|
|
Posted: Sat Nov 12th, 2005 13:54 |
|
Sunday November 13th 4am / cycle 11 of PHASE 2 / cycle 2 level 1 / Day 2 / mino > 25mg Q6H / Benicar 40mg -Q4H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/
sleep deeply between some wakes.
herx continues.
deep painful antbite cramps if I try to extend the meds dosing.
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
|
Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19385 |
| Status: |
Offline
|
|
Posted: Sun Nov 13th, 2005 23:06 |
|
Monday November 14th 1pm / cycle 11 of PHASE 2 / cycle 1 level 1 / Day 3 / mino > 25mg Q6H / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/
Have had to keep all meds on a tight schedule. some relief this morning and I let the meds out a bit and up it came again.. tightened meds up again.
I sleep deeply between wakes.. take meds.
full body herx continues. gut herx up again. right upper quadrant.
burning continues.
eyes some sticky, still blurry.
transient times of emotional sensitivity
Drawing sensation where seated continues.
pulsing in body.
symptoms as above.
chlorine BO may be more sweet with tighter meds schedule..
taking care, tired. resting.
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
|
dga5000
Guest
|
Posted: Mon Nov 14th, 2005 20:45 |
|
Blimey Barb - all those symptoms and yet you answer all those posts with so much grace and enthusiasm. You're a star! 
Thanks for everything,
Dan
____________________
CFS dx 1995; FMS 2000; Memory Loss; + Chlamydia Pnemoniae; + LMW Rnase L Protein; Alk Phos 131; MP: 14/01/05: Bolle Swisher w/ 100 lenses + NOIR 707; Betahistine Hrydrochloride 16mg (vertigo); Benicar stopped; Minocycline stopped; Added Quercetin 7/8/5; P
|
Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19385 |
| Status: |
Offline
|
|
Posted: Mon Nov 14th, 2005 21:38 |
|
Thank you Dan..
Tuesday November 15th 12MD / cycle 11 of PHASE 2 / cycle 1 level 1 / Day 4 / mino > 25mg Q6H / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/
mild coughy wheezy. is more than was.
Keeping all meds on a tight schedule to hold all.
I sleep deeply between wakes.. take meds. up from 2 am..
full body herx continues. full gut herx up today. gut is out, tight.
eyes. hands numb while sleep.
transient times of emotional sensitivity
Drawing sensation where seated continues. sometimes quite quite.
pulsing in body.
symptoms as above.
taking care, tired. resting.
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
|
Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19385 |
| Status: |
Offline
|
|
Posted: Tue Nov 15th, 2005 22:15 |
|
Wednesday November 16th 12.15pm / cycle 11 of PHASE 2 / cycle 1 level 1 / Day 5 / mino > 25mg Q6H / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/
cough wheeze settleder today
Keeping all meds on a tight schedule to hold all.
I sleep deeply between wakes.. take meds. up for a while middle of night.
full body herx continues high enough to keep me quiet. lighter than yesterday.
eyes.
transient times of emotional sensitivity
Drawing sensation where seated continues. sometimes quite quite.
pulsing in body.
symptoms as above.
taking care, very tired. resting.
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
|
Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19385 |
| Status: |
Offline
|
|
Posted: Wed Nov 16th, 2005 22:06 |
|
Thursday November 17th 12.05pm / cycle 11 of PHASE 2 / cycle 1 level 1 / Day 6 / mino > 25mg Q6H / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/
cough wheeze rises when meds due
Keeping all meds on a tight schedule to hold all.
I sleep deeply between wakes.. take meds. up for a while middle of night.
full body herx continues high enough to keep me quiet.
eyes.
transient times of emotional sensitivity
Drawing sensation where seated continues. sometimes quite quite.
pulsing in body.
symptoms as above.
taking care, very tired. resting.
I always forget to report on the transient mostly thoracic muscle catches / spasms that often occur when I move.. (and under the chin... the muscle will ball up with a yawn.. painful.. has to be patted out..)
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
|
Aunt Diana
Advocate
|
Posted: Thu Nov 17th, 2005 15:40 |
|
| I don't know how you do it, Aussie Barb. But thank you, for the wonderul work you're doing. There are a lot of people depending on you. And rooting for you, too, to start feeling better.
____________________
Lyme 1987, neuro cardio fatigue achiness brain fog depression, anxiety. Pacemaker, D.1,25 32; D <5; 12/07 <6, Oxycodone, lorazapam, benedryl, zantac, colase, Noirs, cover-up or avoid sun, house <30lux. Feb 08 Phase 3. 6/08 D <4, D1,25 21
|
Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19385 |
| Status: |
Offline
|
|
Posted: Thu Nov 17th, 2005 16:21 |
|
Thank you Diana ... and All ..
Friday November 18th 6.20am / cycle 11 of PHASE 2 / cycle 1 level 1 / Day 7 / mino > 25mg Q6H / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/
cough wheeze more persistent esp when meds due.
Keeping all meds on a tight schedule to hold all.
I sleep deeply between wakes.. take meds. didnt need to get up.
full body herx continues high enough to keep me quiet.
eyes.
transient times of emotional sensitivity continue.
Drawing sensation where seated continues. sometimes quite quite.
pulsing in body.
symptoms as above.
taking care, very tired. resting.
transient muscle spasms.
face, scalp itchy.
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
|
jrfoutin
Research Team
| Joined: | Tue Aug 9th, 2005 |
| Location: | Oregon USA |
| Posts: | 3872 |
| Status: |
Offline
|
|
Posted: Thu Nov 17th, 2005 16:34 |
|
| Same here, Diana. Don't know how she does it. The human interaction thing is a nobby problem set with the MP often enough, yet Aussie Barb holds the ship steady -- Always. Amazing.
____________________
Sarcoidosis 125D61, MP10/05 ModP2 12/05 Ph2 6/06 Ph3 10/06, NoIRs limited outings covered, 2/08 25D6.2
|
Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19385 |
| Status: |
Offline
|
|
Posted: Fri Nov 18th, 2005 17:09 |
|
Thank you JRF and All ...
Saturday November 19th 7am / cycle 11 of PHASE 2 / cycle 1 level 1 / Day 8 / mino > 25mg last 11H ago / Benicar 20mg Q2-3H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/
suddenly this morning I can go longer between meds! I wont push too hard just the same. will prob do Q12H as I am clearing throat again now..
I slept deeply between wakes.. take meds. didnt need to get up.
full body herx continues high enough to keep me quiet.
eyes.
transient times of emotional sensitivity continue.
Drawing sensation where seated continues. sometimes quite quite.
pulsing in body.
symptoms as above.
taking care, very tired. resting.
transient muscle spasms.
face, scalp itchy.
Observations: through all these years of sickness my body has adjusted to help me to survive.. My blood tests for what I called my survival hormones.. ie those that helped me to carry on, were all high.. All those changes and more have to be reversed now as part of my healing process..
We were always told that if a wound etc was itchy that it was getting better.. so I feel that my itchy face and scalp are signs of my hormones getting better.
In the past I was always One to overdo whenever it was at all possible. I seem to be over that.. and also it isnt possible for me to do much at all..
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
|
Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19385 |
| Status: |
Offline
|
|
Posted: Sat Nov 19th, 2005 15:04 |
|
Sunday November 20th 5am / cycle 11 of PHASE 2 / cycle 1 level 1 / Day 9 / mino > 25mg lasts up to 11H / Benicar 40mg Q4-6H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/
Yesterday I managed about 11H between Mino 25mg. Gut herx hard.
full body herx lightened off some for some of the time. a change altogether.
I slept deeply between wakes.. take Beni only. didnt need to get up.
BO chlorine.
eyes. blink blink
Drawing sensation where seated continues. sometimes quite quite.
pulsing in body.
symptoms as above.
taking care, very tired. resting.
transient muscle spasms.
face, scalp itchy.
News: This morning my feet and ankles are slightly less swollen (right foot is always more swollen than left foot)
The Gut Herx: for those who want to know: For me, the gut herx is mostly like a hive of bees in my gut.. not biting me.. buzzing.. I have had this herx since I first began MP. it can feel like a hard wooden plank pressing against me.. pressure... also upper right quadrant pain can be there.. also there is the bloating and pressure that requires probiotics twice daily otherwise I die..
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
|
Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19385 |
| Status: |
Offline
|
|
Posted: Sun Nov 20th, 2005 15:42 |
|
Monday November 21st 5.45am / cycle 11 of PHASE 2 / cycle 1 level 1 / Day 10 / mino > 25mg Q12H / Benicar 40mg Q4-6H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/
Yesterday I managed Mino 25mg Q12H by taking the Benicar Q4-6H at times.
full body herx lightens off a little for some of the time. feels different.
Gut herx. feet ankles still very puffy.
I slept.. woke for Beni. got up 2 am.
BO chlorine.
eyes. blink blink rub blink
Drawing sensation where seated continues. sometimes quite quite.
pulsing in body.
symptoms as above.
taking care, very tired. resting.
transient muscle spasms in back and ribs.
face, scalp itchy.
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
|
Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19385 |
| Status: |
Offline
|
|
Posted: Mon Nov 21st, 2005 03:37 |
|
Monday November 21st 5.45pm / cycle 11 of PHASE 2 / cycle 1 level 1 / Day 10 / mino > 25mg back to Q6H / Benicar 40mg Q4-6H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/
The gut herxing has risen again and I had to go back to mino 25mg Q6H today and all meds to get back to tolerable.. I am more tired recently.
There are some small windows now that are different. I find it difficult to articulate exactly what.. In those times it is like I am separate from the herx.. perhaps it is that the herx is not as all-encompassing in those moments.. even though my gut may be herxing at that time. other symptoms same..
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
|
Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19385 |
| Status: |
Offline
|
|
Posted: Tue Nov 22nd, 2005 03:12 |
|
Tuesday November 22nd 5.10pm / cycle 11 of PHASE 2 / cycle 2 level 1 / Day 1 / mino > 25mg Q6H yesterday afternoon and to 24H today / Benicar 40mg Q4-6H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/
Yesterday I had to use Mino 25mg Q6H and taking the Benicar Q4-6H at times.
Today all herx lightened off .. then began to rise @ 18H.
Gut herx. feet slightly less puffy.
I just follow whatever I need to do at the time to achieve tolerable herxing..
I slept.. woke for Beni. got up 1am for a couple of hours and then back to bed till 6am.
Drawing sensation where seated continues. sometimes quite quite.
symptoms as above.
transient muscle spasms in back and ribs.
face, scalp itchy.
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
|
Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19385 |
| Status: |
Offline
|
|
Posted: Tue Nov 22nd, 2005 18:06 |
|
Wednesday November 23rd 8am / cycle 11 of PHASE 2 / cycle 2 level 1 / Day 2 / mino > 25mg Q12H / Benicar 40mg Q4-6H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/
Chest is on the verge of wheeze / cough most of the time.
transient collar bone herx.
Gut herx.
I slept.. woke for Beni and herx > mino 2am. got up.
Drawing sensation where seated continues. sometimes quite quite.
symptoms as above.
face, scalp itchy.
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
|
Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19385 |
| Status: |
Offline
|
|
Posted: Thu Nov 24th, 2005 06:02 |
|
Thursday November 24th 8pm / cycle 11 of PHASE 2 / cycle 2 level 1 / Day 3 / mino > 25mg Q6-12H / Benicar 40mg Q4-6H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/
I slept.. woke for Beni and herx > got up in the middle of the night and stayed up.
unexplained pain in the tummy today so took all meds earlier and had a rest. was ok.
Chest is on the verge of wheeze / cough most of the time. meds hold it down.
transient collar bone herx, muscle spasms and antbite cramps.
Gut herx milder day.
Drawing sensation where seated continues. sometimes quite quite.
symptoms as above.
face and hands oily, and itchy face and scalp. eyes.
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
|
Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19385 |
| Status: |
Offline
|
|
Posted: Thu Nov 24th, 2005 14:39 |
|
Thank You All and Happy Thanksgiving....
Friday November 25th 4.45am / cycle 11 of PHASE 2 / cycle 2 level 1 / Day 4 / mino > 25mg Q6-12H / Benicar 40mg Q4-6H & 40mg Q4 to 6H night (need wakes me) / MT / Quercetin TID / PBX BID/
I slept better.. woke for Beni only.
Chest is on the verge of wheeze / cough most of the time. meds hold it down.
all other symptoms continue as above.
I was thinking about the stomach pain. how I didnt 'expect' stomach pain. and then a thought shot back to when I was less than 20 and so called healthy - when I was dropped to the floor in the shops with it. hmmm... it was on it's way back this morn when I woke up so took milk thistle and probiotics and Q.
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
|
Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19385 |
| Status: |
Offline
|
|
Posted: Fri Nov 25th, 2005 06:07 |
|
8pm
I was told per phone today that I sound better than last time we spoke a few months ago.
I had some sleep thru the day. herx was able to do mino @ Q12H today.
some time of emotional sensitivity. mostly relieved by meds and make sure to eat helps.
other symptoms continue as above.
no more stomach pain.
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
|
Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19385 |
| Status: |
Offline
|
|
Posted: Sat Nov 26th, 2005 04:50 |
|
Saturday November 26th 7pm / cycle 11 of PHASE 2 / cycle 2 level 1 / Day 5 / mino > 25mg still Q12H / Benicar 40mg Q6H & 40mg Q6H night (need wakes me) / MT / Quercetin TID / PBX BID/
wakeful thru the night.
wheeze / cough / miserable/ moronic state. meds some help. eventually picked up.
all other symptoms continue as above.
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
|
|
|
