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Aussie Barb
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Joined: Thu Jul 22nd, 2004
Location: Australia
Posts: 19134
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 Posted: Fri Aug 12th, 2005 05:26

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Aussie Barb's Progress Report  Benicar

Aussie Barb  Full Protocol 

From Previous Progress Report Aussie Barb Page: 1 2 3 4 5 6 ... 14  15  16  17  18  ... 27 < last page

Aussie Barb Ds:
July04: cut light & D 
Aug04:1,25D=55.83
then start Benicar
Sept04:1,25D=36.66 & 25D=35.2
Dec04:25D=32
May05:25D=28
Sept05 25D=21
Mar06 25D=14
too pufft up to have further blood tests at this time. too difficult to find a vein.

I am beginning a new Report because the last report is becoming too large.. Barb ..

ADD Dec 8th 2005: Aussie Barb Post

ADD Jan 20th 2005: Aussie Barb Parade of Memories
change of combo begins same page


What is my gut herx? ;)

List of progress so far February 11th 2007

August 27th 2007 process

Management of meds 

more

Dream

The Marshall Protocol Blessing
 
To us Each & All: 
May your immune response be big enough
 
for you to be making good progress  
and not too big   
that you may still be able to rise to the challenge!!!

 
Barb :cool:


Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx CFS| Cut D/exp July04| NoIR Aug04 Comm Beni|Q| Sept05 25D=21 off Thyroxine| Mar06 25D=14| CLICK on the ABC of MP Link to Alphabetised list of Essential Information.

Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| Cut D/exp July04| NoIR Aug04 Comm Beni| Sept05 off Thyroxine| CLICK ABCofMP



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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
Aussie Barb
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Joined: Thu Jul 22nd, 2004
Location: Australia
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 Posted: Fri Aug 12th, 2005 09:00

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Friday August 12th 10pm. PHASE 2 / level .5 / cycle 2 / Day 3 /  mino is 50mg QOD > today /  Benicar 20mg Q3H / Quercetin TID

The change to Phase 2 brought me misery of memory herxing in the first week.. and then has lightened off this week.

harder gut herxing this afternoon. uncomfortable but bearable with meds doses bringing relief each time .. the rest of me is having a good break from heavy full body involvement.



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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
Aussie Barb
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 Posted: Sat Aug 13th, 2005 18:42

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Sunday August 14th 7.45am. PHASE 2 / level .5 / cycle 2 / Day 5 /  mino is 50mg QOD > today /  Benicar 20mg Q3H & 40mg 9pm / Quercetin TID

The chest pressure when I first lie down is a continuing symptom that I dont mention every time.. The gut herx is there all the time, kept down quiet by the meds, and begins rising when the meds are due.. tired, and eyes sludgey this morning.. runny nose. nothing much.. one day at a time.



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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
Aussie Barb
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 Posted: Sun Aug 14th, 2005 04:52

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Sunday August 14th 6pm. PHASE 2 / level .5 / cycle 2 / Day 5 /  mino is 50mg QOD > today /  Benicar 20mg Q2H / Quercetin TID

depression. extra Benicar. NPS. rest.



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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
BARNEY
Member in Phase 3


Joined: Tue Dec 21st, 2004
Location: Deming, New Mexico USA
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 Posted: Sun Aug 14th, 2005 17:39

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HANG IN THERE, AUSSIE BARB, WE WILL MAKE IT!!!! DON'T LET THE DEPRESSION GET YOU DOWN TO FAR, REMEMBER YOU HAVE ALL OF US MPers BEHIND YOU.

YOU ARE ALWAYS THERE FOR US AND WE WILL BE THERE FOR YOU.

BARNEY



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64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,04D's(53/25)05(52/
22),(32/10), Benicar (only) @3hrs + extra as needed. no abx since 9/15/07
Aussie Barb
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Joined: Thu Jul 22nd, 2004
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 Posted: Mon Aug 15th, 2005 03:25

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Thank you Barney.. and to All who have sent private messages..

Monday August 15th 4.30pm. PHASE 2 / level .5 / cycle 2 / Day 6 /  mino is 50mg QOD > not today /  Benicar 20mg Q2H prn / Quercetin TID

As the 2H comes around a headache and sore glands start to rise.

I know that I have a lot of healing to do..
I am ok thank you.. I am finding it too much of a push to talk to anyone today, so have had the day off. That is about as well as I can describe it.. and I will be back on deck as soon as I can be..



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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
Aussie Barb
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 Posted: Mon Aug 15th, 2005 11:58

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I realised that this felt like a panic attack.. so I took mino 25mg at 40H, with relief. headache continues, taking meds to relieve.



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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
Aussie Barb
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 Posted: Mon Aug 15th, 2005 17:44

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Tuesday August 16th 6.45am. PHASE 2 / level .5 / cycle 2 / Day 7 /  mino 25mg again @ 12H this am /  Benicar 20mg Q2H prn 40mg Q4H thru night.. / Quercetin TID

wakeful till 2am. had cuppa and headache med.. took Benicar 40mg Q4H thru night. slept well 3H. feeling panicky again this morning so mino 25mg @ 12H.



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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
Aussie Barb
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 Posted: Tue Aug 16th, 2005 08:03

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9pm: Benicar 20mg Q3H most of day. 40mg to go to bed.

gut herx some. am still some fragile.



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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
Aussie Barb
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Joined: Thu Jul 22nd, 2004
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 Posted: Tue Aug 16th, 2005 22:01

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Wednesday August 17th 11 am. PHASE 2 / level .5 / cycle 2 / Day 8 of 10/  mino QOD > not today /  Benicar 20mg Q3H & 40mg 9pm night  / Quercetin TID

slept well, woke for Benicar. NPS settles reflux too.

gut herx continues. otherwise quietly oker.. able to be on the Board again.



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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
kathleen
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Joined: Wed Jul 14th, 2004
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 Posted: Wed Aug 17th, 2005 01:39

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Dear Barb,
I'm so glad to read that you're feeling a bit better. Still not good I'm sure - it takes alot to keep you down, so you must have been feeling pretty awful. The Z is pretty scary, but then so is the mino. I'll keep looking forward to good days ahead for you - soon I hope. And all of us.

No giving up, Kathleen



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CFS '86, LTD '86 (50 yrs old)pacemaker - total heart block '99 fatigue, cognitive, sleep, digestion, dysautonomia, weakness, headache, tinnitus, IC, new anemia 9/9/04 D,25 44 - D,125 76 4/05 D,25 24 4/05 Ben 40mg/6hrs, Mod Ph 2
DNStog
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 Posted: Wed Aug 17th, 2005 01:50

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Barb,

@@@@@@@ing  over your having a better day.:D:D

Donna ~~~~ :cool:



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Sarcoidosis/skin, joints, lungs, nerves, Raynauld's, uveitis, hypothyroid, sinus, wt. gain, Peradontal disease, GERD-hiatal hernia, breast ca 11/06, 25D7, Synthroid, Wellbutrin, eye vits, melatonin, Milk Thistle, Quercetin, Rx glacier, cover up, low lux h
shegeek
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 Posted: Wed Aug 17th, 2005 03:49

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Barb,

You are mega tough. Your herxes seem really tough compared to mine, yet you keep posting. I am scared away by much less.

Take care, shegeek



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FMS,IBS,osteoarthritis,osteopenia, hypertension/ 1,25D/25D=45/44 (10/04), 44/13 (1/05), 36/8 (7/05)
25D<4 (6/06) 25-D=5 (4-08). Avoid light & D w/NoIRs 11/04 Benicar 40mg/q4h(since 1/27/05) Phase 3
Aussie Barb
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Joined: Thu Jul 22nd, 2004
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 Posted: Wed Aug 17th, 2005 17:03

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Thank you Kathleen, Donna, and Shegeek and All for supportive messages... very much appreciated.

Thursday August 18th 6 am. PHASE 2 / level .5 / cycle 2 / Day 9 of 10/  mino QOD >  last night 25mg @ 40H /  Benicar 20mg Q3H & 40mg 9pm night and 2am  / Quercetin TID

gut herxing and some backache yesterday.  last night chest pressure, down left arm, and coming up neck, in glands, palate, nose, eyes.. keeping me awake so took mino 25mg @ 40H with relief and slept well then..

nose running this morning and some 'R' side back ache.. and nose ache..



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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
Aussie Barb
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Joined: Thu Jul 22nd, 2004
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 Posted: Thu Aug 18th, 2005 17:34

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Friday August 19th 6.30 am. PHASE 2 / level .5 / cycle 2 / Day 10 of 10/  mino QOD >  due tonight /  Benicar 20mg Q3H & 40mg 9pm night   / Quercetin TID

very little herx during the day yesterday..
gut herx,
mildly sore throat and glands,
became very tired.. slept well..
woke with a plugged ear... I hope this means that the constantly wet ear is healing..
tasting ability has increased again.
swallowing ability has decreased. have to take tablets more carefully than at any time in my life.
more tendency to be coughy chokey anytime
pulse in left upper lip continues frequently
all is well..



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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
jolbell69
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Joined: Sun Jul 18th, 2004
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 Posted: Thu Aug 18th, 2005 19:04

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Dear Barb,

Keep going my friend - we are all with you!!

Jo.xxxx



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DX:ChronicBorreliosis&Bartonella,ME/CFS,AutoimmuneThyroid&Hypoadrenia.
TX:Armour90mg,Cortef10mg,Florinef0.1mg,Prozac.StartedMP:25June04.
25,D=16.7ng/ml,(Jan05)No1,25Ddone.Benicar,20mg,q6h.Started Phase I:19May05.Started Phase II:16Sept05
Aussie Barb
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Joined: Thu Jul 22nd, 2004
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 Posted: Fri Aug 19th, 2005 18:37

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Saturday August 20th 7.40 am. PHASE 2 / level .5 / cycle 3 / Day 1 /  mino QOD >  25mg /  Benicar 20mg Q3H & 40mg Q4 to 6H night   / Quercetin TID

Beginning next cycle with mino 25mg: not wanting to redo the intolerable mental herx. and I had to take the 25mg sooner than 48H last cycle to keep all tolerable.
Phase 2 is different for me, in that I am generally better day to day than previously..
I can feel the gut herx rising to uncomfortable as the Mino, the Beni and or the Q are due.
less feeling of IBS now.
tired
some mild back ache
eyes quite sludgey this morning. ear has been inflamed. used ear drops.
I have a transient little pinch feeling around my Heart.
transient pulse in lips.
still cant stand and do anything for more than a couple of minutes.
still cant read a book or magazine.
all is well..



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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
CJ
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 Posted: Fri Aug 19th, 2005 19:00

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With you in Phase II. Mental Herxes are the worst MHO:? UGH.

Glad to see you moving foreward:)



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Saroidosis/lungs, 25D7 (8/07) Spireva,Ibuprofen, NoIRs, lite exp r/t work
Aussie Barb
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Joined: Thu Jul 22nd, 2004
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 Posted: Sat Aug 20th, 2005 04:20

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Thank you Jo and CJ....

Day 1. Today has been flu like.. actively herxing. head and neck pressure, heavy eyes, sore glands, tired. gut herx. 
when I said " I am generally better day to day than previously.. " I must have had memory loss.. from 1 or 2 better days after more freq mino.. at the end of the cycle.. make me smile..



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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
Aussie Barb
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Joined: Thu Jul 22nd, 2004
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 Posted: Sun Aug 21st, 2005 05:04

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Sunday August 21st  6pm  PHASE 2 / level .5 / cycle 3 / Day 2 /  mino QOD >  25mg /  Benicar 20mg Q3H & 40mg Q4 to 6H night   / Quercetin TID

I always forget to say that my hips ache very much at night. almost near to cramp and I have to move..

gut and full body herxing day. sore glands in neck, and face ache. all tolerable.



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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP

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