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jrfoutin
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Posted: Thu Dec 29th, 2005 06:19 |
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For the sake of those not in Phase II or III forum, I'll post a summary note here from time to time.
Today's note is a summary of herxes from Modified Phase II that may be of value to those wondering what a modified phase II might bring. Your herxes will be your own, but you might find some similarity, that's all. Started Modified Phase II on Thursday October 6, 2005 (link to my PhII thread only works for those in phase II or III). Ending December 28, 2005. Will start reg. Phase II tomorrow or Saturday, whenever I can get my PhII prescription filled.
My ModPhII General Overview
I considered all my ModPhII herxes tolerable and wouldn't move from one dosing tier to the other until herxing waned. Toward the end of ModPhII, I did 3 days between ModPhII ABx dosing instead of standard 2 and did get some herxing on 3rd day, often neuro. Also experimented with dropping standard 40mg/Q8h benicar to 20mg every 5-6h during day with one 40mg for a solid 8h block of sleep at night for increased herx at the end of a tier or step up when herxing had waned on full 40mg/Q8h (goal: kill all possible bacteria at each level before moving on).
Never felt the need to take pain meds but we have them in the house just in case. Only added plain yogurt probiotic every morning. Followed light & food guidelines with some human error, no doubt. Tried to do 8hrs unbroken sleep every night unless I had sleep disturbance herxing. Rested & napped during the day when I felt like it. Valued visits with my doctor.
From a list of herxes posted every other day to every third day, I totalled the number of times a herx was listed. Then sorted all herxes into body system categories, for types of herxes and number of events posted:
- head/sensory/nerves: 17 different herxes, 113 events
- pulm (lung/heart): 3 types of herxes, 19 events
- muscle cramping: 6 types, 18 events
- skeletal/bone pain: 8 types, 76 events (31 were R-hip)
- skin: I didn't differentiate well, but from memory, 3 different types and 8 noted events. However, my broken skin never has stopped so not noted much other than a reminder my skin is not yet whole.
- (No gastro/digestive herxes since early phase I, so that was a relief so far. But I've noticed the regular phase II folks note this enough so this isn't a statement about it won't happen as much as it didn't happen for me in Modified Phase II, that's all.)
Meg M. said modified Phase II generally would work on the neuro herxing and clearing more, and from the looks of above list and my summary statement (below), she was right on target. (Again, the science behind the MP appears to offer a rather predictable set of outcomes.)
Most frequent herxes:
- R-Hip (31 posts): Though they didn't hurt all the time, it seems I referenced aching Right hip the most. Phase I both sides of my hip hurt bad for several days. ModPhII never noted the left side hurting, so that is a good thing
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- Asthenia (23 posts): I was tired a lot off and on during mod PhII. (Asthenia is feeling tired for long periods of time, where fatigue is more of an abrupt event of feeling very tired... only got 9 posts).
- L-Elbow Joint Pain (19 posts): This was usually fleeting and didn't last for more than an afternoon. Interesting that the right never hurt.
- Chest pressure/heart events (14 posts): Usually general pressure, occasionally thumping. Always fleeting and infrequent.
- Numb/stiff Thumb(s) (13 posts): Mostly left hand. Once, several L-fingers too.
Weird/Surprising herxes:
- L-Eye lid twitching that spanned days
- Organ or muscle jumping/spasm in lower R rib cage area
- Skin redness in a large area at groin with a couple of small patches of skin that just fell off or disolved
Thinking over my Phase I and Modified Phase II herxing, I made this post on December 20, 2005. It's a good summary statement to this point:
"One major paradigm shift from earliest assessment of my pre-MP health: Initially, I thought I wasn't so sick. Now, I'm OK with ample evidence that pretty much everything was infected and much of it still needs repair (smile). I'm also quite grateful for the rather constant mental clarity at this time and little bursts of energy I get between herxing."
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P.S. Don't be fooled by above list of herxes into thinking they last all the time or they happened all at once. This isn't the case. It has been VERY reasonably paced.
Also, the MarshallProtocol works. (Feel free to quote me.) I can tell I'm getting well because my brain function is better and I feel better between the herxes. I have no doubts.
As always, deepest gratitude to Dr & Mrs Marshall for your discovery and for sharing it. Big thank you's to moderators Aussie Barb (mwa!), Meg, Belinda and Lottie. Thank you muchly to all others on the MP for sharing your thoughts and feelings in posts and PMs. I am learning from all of you.Last edited on Thu Dec 29th, 2005 07:00 by jrfoutin
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Sarcoidosis 125D61, MP10/05 ModP2 12/05 Ph2 6/06 Ph3 10/06, NoIRs limited outings covered, 2/08 25D6.2, 10/08 25D6.9
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sunflower
Guests visiting Phase 1/2/3
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Posted: Thu Dec 29th, 2005 21:58 |
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janet,
love your new avatar , and thank you so much for keeping us up to speed with your progress. so happy you are coming along so well, and the encouragement is always welcome. God's blessing for the new year...sun
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lyme,fibro,candida,allergies,gerd,osteopenia/ pain,fatigue,dizzy,memoryloss20+yrs/ celexa,vicodin,cal-mag/beni 40mg q6h 11-05/phase 3,8-06/1,25d=34 25d=36,18,17,10,13,5,7
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Alayne
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Posted: Fri Dec 30th, 2005 23:31 |
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Thanks so much for your update, Janet! I'm thrilled that you're doing so well and truly progressing! Just hearing you say that your brain's clearing up gives me renewed hope, seeing as how that's turned into my main "grumble". 
Funny though, isn't it, that your posts always sound clear, concise, and coherent? And those of others here. I doubt "outside readers" easily believe that our brains are even remotely compromised.
All the best for continued strength and progress in 2006! -Alayne
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CFS/ME/FM 6/05:25D-34 1,25D-69, 11/07:25D-8 1,25-37, Sick 6-11 mos/yr x30+yrs. NoIRs/Avoid Sun/D/Use Zinc oxide. 11/17/05-Ph1, 5/06-MPh2, 12/06-MPh2#2, 6/07-MPh2#3,1/08-Ph2, 4/08-Ph3, 10/09-No ABX, NonMP Meds: Calc&Mag/Lysine
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jrfoutin
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Posted: Sat Dec 31st, 2005 02:58 |
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| Ah yes, that's the modern miracle of editing on a computer. You'll see edit notations on my posts a lot because I come back and edit often. My biggest problem is I doubt the MP will cure my long winded-ness (smile). Last edited on Sat Dec 31st, 2005 02:59 by jrfoutin
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Sarcoidosis 125D61, MP10/05 ModP2 12/05 Ph2 6/06 Ph3 10/06, NoIRs limited outings covered, 2/08 25D6.2, 10/08 25D6.9
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jrfoutin
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Posted: Sun Feb 4th, 2007 05:01 |
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I have been slothful about this little forum and my dear friend suggested today I leave the meds to Ph2-3 forum and post in both forums as others do.
My big goal was to post summary statements here per Ph2, and then Ph3, but I got busy with a few life challenges beyond the MP in Ph2 and have not focused on a summary statement kind of thing here as I had planned. Please pardon. That said, here's some from my Ph2-3 thread today:
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Ate 2 small brownies yesterday and within a very short time it crashed me out. I ended up taking a nap because I couldn't keep my eyes open (something I've not done for quite some time). Hmmm. Won't do that again!
Betweener 20mg precautionary for light exposure today. For the most part, I've noticed I'm starting to feel better more of the time.
Some right groin itch off an on. Little aches in R-kidney or R-hip are so fleeting/intermittant and low, they are barely worth mentioning.
Good news!
I was rushing about getting last minute tasks taken care of this morning and about 1/2 way RUNNING UP the stairs I realized what I was doing and noticed also I was not winded or exhausted. I just sort of said "woohoo!" to myself and kept on going. This is huge for me, so far away from where I started the MP.
I sat in well lit environment for most of the day -- bright overhead heat lamps it looked and felt like, and bright window in restaurant. Lots of driving around town, and then spending some time in well lit parent's home.
I also bustled about moving tables and chairs, serving and helping family, then sat on the floor with grandchild to feed him, and then got up with minimal problem (I haven't been able to sit on the floor for years -- pain and not being able to get back up by myself).
This was a big, big deal today for me. These are huge recent changes. Things I couldn't do before when it was all I could do to get to an event and just sit while others bustled about, just a year ago. This is huge for me.
Oh, after the party, I went shopping, and now I've got to finish up getting ready for a trade show this week that my work is going to. So you see, I still have energy to burn.
Thank you to ARF and good moderators who got me here! And hooray! another slam dunk showing the MP works!!!!
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Sarcoidosis 125D61, MP10/05 ModP2 12/05 Ph2 6/06 Ph3 10/06, NoIRs limited outings covered, 2/08 25D6.2, 10/08 25D6.9
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jrfoutin
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Posted: Tue Feb 6th, 2007 06:47 |
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(to question in Ph3 thread as where I was before MP...)
And yes, I was so wasted before the MP that I had to have my daughter come and help me clean house because I just couldn't do much more than sit. I couldn't lean over to do much cleaning, and there certainly wasn't any getting down on the floor unless a fork lift was nearby to help me get up. I crippled up from a chair and it had to take quite a few bent over steps before the pain would let me walk upright. I felt like my body was stuck in old age mode.
I couldn't go up and down stairs without a lot of work (had to plan around when I could get up stairs and I don't think I had been downstairs for a couple of years except for a rare, rare occasion). Any exertion left me wiped out. I had to take a nap just so I could go to a doctor appointment.
So sitting on the floor and running up a flight of stairs at 18 mos into the MP is a big deal. And I just --did-- them. They just were normal.
MP 1Y 189D | P3 206D ABx+Beni: Cycle 5, Day 1 ABx @ 7pm, Beni40mg Q8H.
- Some very intermittant R-groin itch.
- A wince (1) of chest tightness when I was late on Benicar mid day today (usually am good at time but today had large project due). 1/2 SL, 1/2 swallowed. It worked.
- Shade of puft feet from sitting long times without moving around much (this used to balloon them out, the low puft is a surprise).
I've not had time for treadmill must get back to it sometime. Been working long hours.
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Sarcoidosis 125D61, MP10/05 ModP2 12/05 Ph2 6/06 Ph3 10/06, NoIRs limited outings covered, 2/08 25D6.2, 10/08 25D6.9
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jrfoutin
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Posted: Thu Feb 8th, 2007 04:19 |
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MP 1Y 191D | P3 208D ABx+Beni: Cycle 5, Day 3 ABx @ 7pm, Beni40mg Q8H.
Sat in a not-so-good old wooden chair doing repetitive production tasks yesterday and by end of day my back around R-kidney hurt a lot (5-6) by end of production task. This morning felt like something was being mechanically re-arranged in the soft organ area of the R-kidney (not bones). Things literally moved around once or twice. Interesting. No pain by this evening and ran around town getting things mailed without a twinge of pain. Interesting again.
One little tweet of tinnitus this evening just after taking ABX. I'm really having to pay close attention to tinnitus as it is just so brief and fleeting and infrequent now.
Really felt good today even though I have been pushing things and staying up late for a couple of weeks now (work and family). A little discouraged at not making some deadlines, but realized it was a lot with recent family circumstances. Good son helped.
The other good son emailed and it sounded like he had been dodging exploding things in Bagdad (near as husband and I can tell from son not telling us where he's at or what he's doing). Kind of a horrid way to celebrate one's birthday.
._-~*~-_. ._-~*~-_. ._-~*~-_.._-~*~-_. ._-~*~-_. ._-~*~-_.
Feb 20th, 2007
I've been away from the board a few days in order to spend time with my guys. Today, we spent my husband's day off just hanging out, went to a few large dept stores and walked around looking at things, daydreaming about home improvements and looking at goofy things to buy, going out to eat, then to a movie.
This was the 3rd day in a row I've put in a full day of out and about. I was calm and we laughed and visited easily.
My son noticed. He said "this is the first day since I can remember that we have been like a normal family." He meant that as a sincere compliment. I realized how much me being sick and unble to do these little kind of things together had sucked the life out of our family. We all kind of nodded. I reminded them to notice I was getting well and that is why we could do these things now.
When we got home later, I pointed out the difference again to my DH, that it had been a very very long time now since I was so tired I had to sleep through most of the day. He had noticed.
The ability to keep on going and not be tired is wonderful.
Somehow, when one gets past that turning point moment then there isn't that constant question about how long any more. It turns into more: "this is sooooo incredible, I wonder what more time on the MP would net? I'm going to keep going, who cares how long it takes!!!!"
February 24th 07
I've been out playing today.
Problem with getting well and all is that one likes to enjoy it. (sigh)
Fixed breakfast for the guys, got my hair done, went shopping, ate out, unloaded groceries, mailed some stuff and just got back from the movies. Now that I've got zip-pop-and-go, the guys want to go play.
WOW! 18 months ago was such a different scenario!
Thank you MP!!!!!--Janet
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Sarcoidosis 125D61, MP10/05 ModP2 12/05 Ph2 6/06 Ph3 10/06, NoIRs limited outings covered, 2/08 25D6.2, 10/08 25D6.9
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jrfoutin
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Posted: Tue Mar 20th, 2007 04:34 |
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MP 1Y 231D | P3 248D Ph3 antibiotics +Benicar, Crancaps and extra liquid continue.
The last 4 days have been long and very fullfilling, and I got busy and didn't post on my post. I just about declared myself totally well and past all disease symptoms... (I'm not that rash, but WOW have I felt good!).
Have prepped garden area in dark early mornings, trimmed hedges and rose bushes, pruned one of one fruit tree and started on another but the sun was coming up so that was the end of the weekend. Got housekeeping, laundry and kitchen worked on, as well as a few other really fun tasks I've quite enjoyed. Beautiful fun illustrations mostly.
Went to the mall Saturday with my son and walked all over the place. We sat down when his heel was sore (fencing injury.. and likely his Th1 future entry). Last time I went to this mall to go to the movies about 9 months ago it seemed so big, such a long way to walk. Now it seemed rather doable. We went early and walked around all the lower level and then all the upper level, No problem. Very interesting.
Did treadmill again for 3 of last 4 days. I'm not going as fast or as long as where I left off, but moderate moving around is all I'm really after so I'm not totally stuck to a chair all day.
I'm sure if someone punched me in the back I probably would register some kidney pain, but even pressing firmly results in no pain. I will continue the crancaps (D-mannose) for a while longer to make sure no extra happy little resistant rods are sticking to my kidney and waiting for an opportune moment to zap me again.
Of course I am still overweight and I still have lymph lumps, but all of that seems to be doing what it will in its own time, slowly but surely.
I still want my NoIRs on when driving in bright light. On bright Spring lighting on Saturday, I quickly sandwiched the clip ons under the darkest NoIRs for greater "ahhhhh" with eyes outdoors, but I just don't use NoIRs much in most indoor areas except for long stretches under hefty combined lights at church on Sundays.
Main Ph3 combo will continue even though I have minimal responses. It has been quite a while since I felt this healthy on a regular basis. A little achy pain here or there once in a while is plenty fine with me!
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Sarcoidosis 125D61, MP10/05 ModP2 12/05 Ph2 6/06 Ph3 10/06, NoIRs limited outings covered, 2/08 25D6.2, 10/08 25D6.9
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Aunt Diana
Moderator
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Posted: Tue Mar 20th, 2007 21:16 |
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That's wonderful news, Janet. Starting to live a normal life again must be almost unbelievable, I would imagine. In like, pinching oneself to make sure it's real.
You have no where to go but UP.. I'm so happy for you...and your family.
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Lyme 1987, neuro cardio fatigue achiness brain fog depression, anxiety. Pacemaker, D.1,25 32; D <5; 12/07 <6, hydrocodone, lorazapam, benedryl, zantac, colase, Noirs, cover-up or avoid sun, house <30lux. Feb 08 Phase 3. 6/08 D <4, D1,25
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Jeannine
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Posted: Tue Mar 20th, 2007 23:57 |
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Congrats on your progress!! It is so amazing to be getting our lives back!
Jeannine
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CFS FM Lyme Morgellon's Depression/Anxiety 125D49 Ph1Aug06 25D <4(april 08)Prozac Valium Aleve ModPh2May07 Ph2Apr08 NoIRs limited outings covered lo lux home
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vwitcher
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Posted: Wed Mar 21st, 2007 02:38 |
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Janet, reading your progress is really inspiring, and gives me (and 4wd) hope! To think you have come this far in 18 months is quite amazing. Although I am not officially diagnosed with anything, many of your symptoms (hip pain, in particular) sound familiar to me. I can think of several things I could do five years ago that I couldn't think of doing right now...but I plan to do them again!
Your sharing outings with your family makes me a little winsome. We also have two good sons, but we haven't done much of this since 4wd got sick a little over a year ago. He just doesn't feel like doing anything, even when the pain is under control. But we look forward to things getting better...we plan to walk off into the sunset together (pain free).
Thanks so much for your support and advice to me and hubby 4wd. "You ...light up my life...you give me hope...to carry on"!
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5 yrs. very high BP,fatigue,headache,hrt palp, IBS,joint/muscle pain,muscle wasting,neuro sx,deaf one ear.Start D/light avoid 1/21/07.Start MP 2/23/07; Re-started 4/18/07. Mod Ph2 6/27/07; Ph3 7/25/07 q24h.NoIr's when outside.
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jrfoutin
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Posted: Wed Mar 21st, 2007 03:19 |
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Thank you so much all.
Vwitcher, you and your 4WD are just starting. I see your struggles.
2 years ago, before I was on the MP, I was quite happy to not do anything I didn't absolutely have to. I had to have someone else help me with housekeeping because I just couldn't do that. I was really a mess physically, mentally, emotionally etc. and sleeping a lot of the time to deal with daily pain. I made excuses about not going upstairs or down unless I absolutely had to, and then I would be out of breath and worn for the workout (one flight of stairs!).
I was just so glad to find the MP. So glad that the science had been presented.
As you can imagine, I am quite grateful to have my life. I'm not all the way well so don't misunderstand, but I'm sooo getting there (and not moving in the other direction) and that is all that matters now.
I would say that my "worst" days now almost compare to my "best" days early in the MP. That is a huge change in a short period of time. Of course, my best days now make me feel wonderful.
I'm grateful to have this board to say it too. I know I sound like a broken record to family and friends, but I can't help but say WOW! At least on this board as people start and face difficult days, it might help. I remember leaning for strength from the posts of those who were just a couple of paces further down the MP road when it was tough for me.--JRF
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Sarcoidosis 125D61, MP10/05 ModP2 12/05 Ph2 6/06 Ph3 10/06, NoIRs limited outings covered, 2/08 25D6.2, 10/08 25D6.9
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ShrnHml
Guests visiting Phase 1/2/3
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Posted: Wed Mar 21st, 2007 06:04 |
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Janet.........that is one joyful report. I can feel your new found satisfaction and am joyful with you. One question: What are crancaps? ........Sharon
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Neuroborreliosis, MP 3/05, 1,25D 62; 3/06 25D<4, ModPh2 12/05, Premarin, Effexor, stopped Benicar 1/07....no longer in study
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jrfoutin
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Posted: Wed Mar 21st, 2007 20:45 |
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Sharon, thank you.
My recent E. coli kidney issue is currently being addressed with the MP and what I have referred to as "crancaps" but more accurately is D-mannose. D-Mannose is a simple sugar found in cranberries and some other plants. D-Mannose does not kill E. coli, but it is fairly quickly removed from the body and the D-mannose adheres to the E. coli lectins, making it more difficult for E. coli to stick to the body (E. coli as a flushable entity).
Those who do not have an E. coli problem do not need to use options to solve that problem (duh). My Dr did blood & urine tests, with kidney imaging to arrive at the E. coli conclusion.
I have not yet had a follow-up and that alone cannot determine just how much of the problem has been solved by D-Mannose or combined D-Mannose and my own body on the MP. The jury is still out on whether I am completely done with kidney Sx, how much longer D-mannose is required or if another option must be applied with D-mannose and the MP, but I appreciate at least trying the "flyswatter" options before "cannons" designed to kill E. coli bacteria directly (both flyswatter and cannon options can be used with the MP).
The fact I had such a boost is encouraging, but not all "for" or "against" D-mannose. The MP and extra benicar has been used as well. Those that can may see Ph3 posts.
Hope that helps--Janet
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Sarcoidosis 125D61, MP10/05 ModP2 12/05 Ph2 6/06 Ph3 10/06, NoIRs limited outings covered, 2/08 25D6.2, 10/08 25D6.9
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jrfoutin
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Posted: Tue Mar 27th, 2007 23:40 |
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MP 1Y 239D | P3 256D Ph3abx+Beni: Cycle 10, Day 1 of 10. ABx @ 7pm, Beni40mg Q8H. Crancaps continue.
Notes: Continuing D-mannose round the clock, but have reduced it to one instead of 2 about every 4 hours (except 8hr block sleep time). This cycle I'll be doing q72h MP abx dosing variation.
- Very slightly puffed feet today (barely), not yesterday.
- R-hip joint in the back intermittant (2) today, not yesterday.
- Tinnitus a little tiny toot about an hour after taking day 9 dose (not today's).
- Been attentive to going to bed at regular time.
Really feeling good, but stepped on a shard of broken plate yesterday and I can't find the little glass in my foot. I sure feel it when I step down. Ouch! No treadmill until I can find the shard.
Otherwise, really feeling good physical/mental/emotional.
Planning to do evening meeting tonight. Haven't been to an evening meeting in a long time as end of day I have been too exhausted for many years.
Life is good, thank you to those who have helped me get here!Last edited on Tue Mar 27th, 2007 23:41 by jrfoutin
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Sarcoidosis 125D61, MP10/05 ModP2 12/05 Ph2 6/06 Ph3 10/06, NoIRs limited outings covered, 2/08 25D6.2, 10/08 25D6.9
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jrfoutin
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Posted: Mon Jul 30th, 2007 21:15 |
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Someone suggested this might be of value to others to read from a recent dialog with Toni in my Ph2-3 progress report:
Thanks Toni,
The interesting comparison is that I did housekeeping at my house earlier in the day, then some hefty scrubbing for a couple of hours (involving some jumps from chair to floor and back again), then whisked about a large club store, ate with the guys, then loaded and unloaded car, put everything away and felt no significant fatigue following.
Before the MP, I would hang on the side of the cart DH was pushing (I really didn't have the energy to push), and complain if we were going too fast. Then I would get to the back of the store and wonder if I would have enough energy to get to the checkout alive. DH would want to look at other things but I would just say no, we had to get home because I was too tired. The store seemed so big and confusing to me then. Resting a little in the car on the way home, and then I would load only the perishables into the refrigerator and then go take a nap before I could put the rest away.
Also, for the first 6 months of the MP, it was enough for me to just make out a grocery list for others to go fill. I didn't have the energy to shop.
So doing what I did on Saturday was huge... Such a difference!
Per church, I've found a place I compromise and wear dark glasses for OK comfort and for DH/son's preferences too, but one room during one time frame there just aren't any dark corners and the low bays of fluorescents are intense. I used to wonder why family came home cranky and exhausted -- me mostly, I would have to take a nap after church all the time (not anymore). I used to think "how odd--all we did was sit most the time." Now I know it was sitting in bright lights (windows and other lighting) and that explained everything.
I actually was wearing NoIRs for about 5+ months pre-MP, and the time I started wearing NoIRs was about 2 months after starting my club store membership. So I was wearing NoIRs then, but not on the MP and still quite exhausted.
I don't wear NoIRs as I shop now. Haven't felt tired during or after, either. Outside, I definitely wear NoIRs still. Church still is too bright to go without eye protection most of the meeting time, and it is considerably brighter.
After the MP, the next big hurdle for mankind will be to develop a source of light that is MP compatible, energy efficient, doesn't need changing all the time, and won't ruin the environment (LOL). --JRF
August 2007:
I soooo remember not wanting to stand for any length of time. Last night I just did a round of indoor miniature golf with my guys and stood the whole time and thought about it and how easy it was to just stand and not worry I needed to sit all the time. That was a very long time to just stand -- waiting for my turn and laughing and playing with the guys. I didn't feel the urgent need to sit down once!
September 2007:
I had been doing a lot of standing lately... something I have avoided doing for several years even before the MP. But I was sort of standing in line someplace when it dawned on me that I had been up and walking around and doing a lot of standing but I was still feeling very steady and comfortable.
My hips/knees quit hurting a while ago so it wasn't so much the lack of pain but it was this other sense that I could stand for long periods of time and be quite solid/sure. Kind of like it was natural and right to be standing now, rather than just sitting all the time.
Just another one of those "ah-ha" moments via the MP. --Janet
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Sarcoidosis 125D61, MP10/05 ModP2 12/05 Ph2 6/06 Ph3 10/06, NoIRs limited outings covered, 2/08 25D6.2, 10/08 25D6.9
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jrfoutin
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| Joined: | Tue Aug 9th, 2005 |
| Location: | Oregon USA |
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Posted: Sun Sep 23rd, 2007 21:27 |
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My days have been quite busy but I think of you all as I'm tasking elsewhere during a family need time.
Responses:
Skin still broken, but center of activity moving around. Forehead is clearing but around mouth and left back hairline more now, as well as back of left thigh.
R-kidney (1) hints around the edges of something going on the last couple of days, but nothing very much or very constant.
Really feeling quite healthy otherwise. Probably time to increase something next week if things are not too rocky with current family challenges.
My brother from out of state has noticed I am losing weight. He said I looked 10 years younger than the last time he saw me several months ago when he was up to help with my father's illness. He thought I looked younger than him (I'm oldest). Those who see me every day miss the subtle changes. I'm just glad I feel so good.
Feeling so much better helps currently with all the physical labor in two households (I was recently surprised how much I could do in a short period of time as I haven't been really exercising), driving freeways to get to a sibling's home... sometimes a two round trips in a day, working with a high needs child or two or three, and still working on work and helping with my family when I can.
Brother was still mulling over the whole good bacteria/bad bacteria thing... for me an extension of the probiotics discussion but I don't know if he's been reading it. I just said I quit probiotics a long while ago during ph2 of my MP journey. I don't miss them or the financial investment.
Deep gratitude for the Marshall Protocol.
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Sarcoidosis 125D61, MP10/05 ModP2 12/05 Ph2 6/06 Ph3 10/06, NoIRs limited outings covered, 2/08 25D6.2, 10/08 25D6.9
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jrfoutin
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Posted: Mon Dec 31st, 2007 19:05 |
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I'm still in Ph3 abx, and noticing some response still of course, but it has been a very, very long time since I had any edema in my legs, and my limp-along right kidney seems to be quietly humming along now without much complaint.
I work long days now. Sometimes with lots of running around town, jumping in and out of the car and moving from one location to another. All so much different from my arthritic hobble from years before. I don't even think about taking a nap or having to rest.
Posted: Mon Aug 15th, 2005 09:40, when I started the MP: http://tinyurl.com/22rp6v (look for long bullet list). It took me a long time to write that post too as you can see the "edited by" line. It used to take me hours to post. (LOL... so different now!)
In any case, I like to look back on that list and compare where I am at now.
I still have lumps and bumps, skin breaks here and there for immunopathology and I have to lose about half of my weight but I am confident those items that hang on for long periods of time will eventually fall away just like the others have.
In the mean time, I have slept peacefully without terrible dreams, I stand and walk without crippling around. I don't need naps and my brain is clear. Most of all, I really don't think about illness every day or whether I might die soon because I was going downhill so fast (I felt that way prior to the MP). Being free of that ominous feeling is a real gift.
Happy New Year to all.--Janet
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Sarcoidosis 125D61, MP10/05 ModP2 12/05 Ph2 6/06 Ph3 10/06, NoIRs limited outings covered, 2/08 25D6.2, 10/08 25D6.9
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Joyful
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Posted: Tue Jan 1st, 2008 03:38 |
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Janet, you have come such a long way... I am inspired by your persistance and willingness to embrace some temporary difficulties in order to live a longer, healthier life. Thanks.
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jrfoutin
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Posted: Mon Jan 7th, 2008 07:54 |
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Thank you Joyful,
I have to admit my initial motivation to get on the MP was more to stop the diseased downhill ride to a speedy death in my 50's, but now I'm starting to focus on all the possibilities of enjoying my life.
I wasn't expecting to be feeling so happy about most everything, but that has been a very pleasant added bonus. I've learned that a very good marker of wellness is fuller enjoyment of life.
Best to all--Janet
May 2008:
Before there was an MP to choose, my first big "U-is-VERY-broken" clue was non-stop bleeding, volume escalating over time. When I finally worked through medical standard processes to arrive at an OB/GYN specialist, the typical expectation was to remove the organ if bleeding didn't respond to hormone therapy (mine didn't) and without organ removal, expect the problem to escalate into hemorrhage, risking bleeding to death (by that time I was already accepting that possibility). That came just before the sales pitch that introduced a nice new same-day surgery to remove the endometrium lining with a blast of heat.
Later that same year my joints, other organs, lungs and lymph nodes gave their notice. Nobody in the OB/GYN office or Sarc/Pulm dx team connected details. Prepared at the time with the standard societal understanding of medicine, I accepted the compartmentalized paradigm. Only until I got to the MP, many years later, was there finally a moment of "ah-ha" about the systemic nature of Th1.
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Sarcoidosis 125D61, MP10/05 ModP2 12/05 Ph2 6/06 Ph3 10/06, NoIRs limited outings covered, 2/08 25D6.2, 10/08 25D6.9
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