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LeAnne
Member in Phase 3
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Posted: Fri Jan 6th, 2006 15:41 |
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from previous LeAnne does the Benicar Boogie..
and LeAnne plunges into full protocol..
Being on the MP has truly been a test of faith for me and I know for everyone who has decided to use the MP for their healing. It has always been easier to go along with the crowd or to follow everyone else, but sometimes it could mean taking the wrong way. I am so glad that I chose to follow my heart and not listen to the skeptics. Everything that I have tested by faith has been valid!!! So if you newbies are concerned or have doubts, I am here to tell you, you will not be sorry. The trial of having sarcoidosis and being on the protocol does bring about patience and self discipline in a person. It is not for cowards. If you do not think you can make the sacrifice, think about the small price you will have to pay compared to a lifetime of suffering.
I was diagnosed one year ago in January 2005. I chose not to follow mainstream medicine. I found the protocol in March 2005 and became a member in April. July I started Benicar, and the end of September I started Minocycline. I began phase II at the end of November. I feel so much better than I did last year at this time. I was extremely fatigued, I could barely walk or lift anything. Muscle twitching was constant throughout my body. Now I only experience these symptoms and a few new symptoms when I am having herxheimer reactions. I can feel myself getting back to my normal self. It is a very, very, very slow process. The healing almost seems to sneak up on you, but once it does, there is no regression. The herxheimer seems to become a little confusing with the disease, but once the herxheimer passes, you will feel that you are truly getting better. I am able to cook, clean, shop, and even go back to work part time. I couldn't do this a year ago. This has been my journey to healing over the past year. Best wishes of healing to everyone who has taken this road to recovery.
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Neuro-Sarcoidosis/lungs, spleen, nervous system, skin lesions, 125D66, MP 8/05, Ph1 3/06, Ph3 7/06, NoIRs, low lux home, cover up, 25D9 Sep07
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LeAnne
Member in Phase 3
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Posted: Mon Jul 17th, 2006 16:31 |
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Hello. Today is exactly one year of starting Benicar. I will probably start phase III next week!! I have come a long way in just one year of being on the MP. I believe most all of my disease symptoms have gone away. I believe almost all of the symptoms that I have now are herxheimer reactions. I still have more herxheimer days than I do good days, but when I am not having these reactions, I truly feel almost normal, with energy and virtually no pain. I haven't had anymore MRI's yet. My neurologist doesn't see the need at this point and is optimistically waiting to see how much better I will get within the next year. He seems very optimistic and encouraged about my progress.
LeAnne
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Neuro-Sarcoidosis/lungs, spleen, nervous system, skin lesions, 125D66, MP 8/05, Ph1 3/06, Ph3 7/06, NoIRs, low lux home, cover up, 25D9 Sep07
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jrfoutin
Research Team
| Joined: | Tue Aug 9th, 2005 |
| Location: | Oregon USA |
| Posts: | 3877 |
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Posted: Mon Jul 17th, 2006 17:04 |
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I knew Robert was close to the same time I started but I didn't realized you had started close to the same time too. I just thought everyone was ahead of me for the longest time (LOL).
I'm so glad to see your list of improvements. It was good to see you and hear your perspectives at breakfast the first morning of the conference. Thank you so much again!
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Sarcoidosis 125D61, MP10/05 ModP2 12/05 Ph2 6/06 Ph3 10/06, NoIRs limited outings covered, 2/08 25D6.2
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LeAnne
Member in Phase 3
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Posted: Mon Jul 17th, 2006 17:19 |
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Thank you, Janet. It truly is something to celebrate. I am so looking forward to see what the next year holds and to see how much more improvement I will have. I know the phase II and III antibiotics are not the easiest to cope with, but I am ready!!! Wish me well. I just dread having to go back to work in the fall. (School starts back) I really hope I will keep the herxheimer under control....at least enouph to be able to teach my first period class without too much trouble.
LeAnne
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Neuro-Sarcoidosis/lungs, spleen, nervous system, skin lesions, 125D66, MP 8/05, Ph1 3/06, Ph3 7/06, NoIRs, low lux home, cover up, 25D9 Sep07
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Dr Trevor Marshall
Research Team
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Posted: Mon Jul 17th, 2006 17:49 |
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LeAnne,
You will be fine at work. We still have a couple of tricks up our sleeve, and they should be useful for you by then.
Congratulations on remembering the 12 month point. I am not sure I remembered mine I think I know vaguely what month I started minocycline in (had been on Benicar 3 mos or so by then), and all I remember was getting to the end of the first week and realizing we had hit the jackpot. I had to go to Disneyland with my family, and some friends. This was the first time I had ever 'lasted' to see the fireworks display
But I guess I stopped counting then
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Carole
Board Staff
| Joined: | Tue Jul 20th, 2004 |
| Location: | Indiana USA |
| Posts: | 631 |
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Posted: Mon Jul 17th, 2006 21:03 |
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Congratulations, LeAnne, on your MP Anniversary! You are very dedicated and determined, so I know you "have only just begun" to enjoy the rewards from which there will be many!
You have the knowledge and inspiration, so herxing should not be a detrimental factor with your job! Take care and best wishes! . . . Carole
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PWC 50+ yrs| 20+ CFS FM Pituitary Thyroid IBS Cardiac OA Migraines +ANA Osteoporosis 2/04 Mediastinoscopy ~Sarc Story |1/04 1/06: 125D=85,34; 25D=41,14| ACE=68,43|
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LeAnne
Member in Phase 3
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Posted: Wed Nov 15th, 2006 09:50 |
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Well, I know I haven't posted since July. I will tell you that I am working everyday part time. In the last four months, I have only had to miss work maybe 3 times due to herxheimer reactions. I am also going to school at night, three nights a week. Some of you may not know, but I am currently sharing the MP with several churches and a few businesses. Janet was wonderful about helping me with my powerpoint and other details. A few days ago, I had a man who lives in Indiana and is a medical doctor, call me to ask questions about the protocol. He had heard about me from a man who lives in Montana! I live in Ga. so, I know that the word is getting out. I am please so far with this treatment. Alot of you may not know, but I was barely walking or moving my arms and hands, due to sarcoidosis that has attacked my central nervous system. My doctor warned me about the possibility of being paraplegic. I have not taken one standard drug for this disease, (steroids, methotrexate, ect...) Only the Marshall Protocol drugs! Look at me now!! I know I still have a way to go. I am still fatigued at times and have pain and other herxheimer reactions, but I am getting back to a normal life.
LeAnne
Last edited on Wed Nov 15th, 2006 09:55 by LeAnne
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Neuro-Sarcoidosis/lungs, spleen, nervous system, skin lesions, 125D66, MP 8/05, Ph1 3/06, Ph3 7/06, NoIRs, low lux home, cover up, 25D9 Sep07
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LeAnne
Member in Phase 3
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Posted: Mon Apr 16th, 2007 09:17 |
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Hello, everyone. I am still sloooooowly improving. For all of you newbies, remember that the healing is a slow process. You may not even start to notice improvements for months. Healing will creep up on you in a very subtle manner. The immunopathological symptoms at the beginning of treatment will make it difficult to see the improvement. Give it time. The MP really works.
I went to my neurologist a few weeks ago. He said that the neuropathy in my legs was gone! I asked him if he would consider treating me with the MP. (I had been traveling 2 and 1/2 hours to see an MP doctor.) My neurologist said that there was no need for me to travel that far anymore. He said that he sees that the Benicar and antibiotics were not hurting me, and I am not getting worse but better and to keep doing what I am doing. He said that he would read over the phase II and III documents again and that he would treat me!!!! I am still working part time and going to school at night. I hope to work full time next fall. (This is a girl that applied for disability) That is how bad I was before the MP.
LeAnne
Last edited on Mon Apr 16th, 2007 09:20 by LeAnne
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Neuro-Sarcoidosis/lungs, spleen, nervous system, skin lesions, 125D66, MP 8/05, Ph1 3/06, Ph3 7/06, NoIRs, low lux home, cover up, 25D9 Sep07
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LeAnne
Member in Phase 3
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Posted: Mon Apr 16th, 2007 18:03 |
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I forgot to tell you that I have taken up piano again. I haven't even played the piano in about three years. The neuropathy was really bad in my right hand. I could not even use my pinky finger to reach on an octave scale, let alone press down on the key. It is still weak, but I am playing again. I will be playing about 8 songs for the kindergarten graduation at our school. I may even start giving piano lessons.
LeAnne
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Neuro-Sarcoidosis/lungs, spleen, nervous system, skin lesions, 125D66, MP 8/05, Ph1 3/06, Ph3 7/06, NoIRs, low lux home, cover up, 25D9 Sep07
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Dr Trevor Marshall
Research Team
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Posted: Mon Apr 16th, 2007 18:15 |
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wytnez
Member Advocate
| Joined: | Mon Nov 29th, 2004 |
| Location: | Texas USA |
| Posts: | 614 |
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Posted: Mon Apr 16th, 2007 20:48 |
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LeAnne,
I am soooo happy to see you progressing very well. I love music also and I know what a joy it is to begin doing what you love with confidence!!! Congrats on getting the Neuro Doc to follow you! You may have opened the door for more patients to recover using the MP. It sounds like he is sharp and once he reads the Science behind the MP, that should tell him it works. He's seen proof, YOU!!
Saj
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sarc lymph nodes. ph1 1/05,125D 33,25D 10,ph2 5/05,ph3 12/05,125D 21, 25D less than 7
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LeAnne
Member in Phase 3
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Posted: Tue Apr 17th, 2007 01:12 |
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My neurologist and I have actually discussed the issue of him treating others with the MP. He did tell me that he has been testing his patient's vitamin d metabolites. He told me that there was only one other woman who has asked him about the MP. I told him the list of diseases that were being treated with this protocol. I told him of one ALS patient who lives here in Augusta, who is having very significant IP symptoms. I told him of two other MP physicians in the Augusta area, one a rheumatologist, the other a MD, who prescribed Benicar to a patient with MS. I assured him that he isn't alone. I also emphasized to him the importance of treating the neurological diseases such as ALS and MS in the early stages, would make the hope for cure more probable and easier on the patient due to the IP symptoms. I do not know how this neurologist could ignore the MP when faced with one of these patients or knowingly give them the alternative treatments. I hope a door has been opened for others too.
LeAnne
Last edited on Tue Apr 17th, 2007 01:19 by LeAnne
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Neuro-Sarcoidosis/lungs, spleen, nervous system, skin lesions, 125D66, MP 8/05, Ph1 3/06, Ph3 7/06, NoIRs, low lux home, cover up, 25D9 Sep07
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jrfoutin
Research Team
| Joined: | Tue Aug 9th, 2005 |
| Location: | Oregon USA |
| Posts: | 3877 |
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Posted: Tue Apr 17th, 2007 01:18 |
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| Thank you so much LeAnne. I hope to quote you to those that need the MP so much!--Janet
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Sarcoidosis 125D61, MP10/05 ModP2 12/05 Ph2 6/06 Ph3 10/06, NoIRs limited outings covered, 2/08 25D6.2
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Aunt Diana
Member Advocate
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Posted: Tue Apr 17th, 2007 02:14 |
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LeAnne,
Thank you so much for all you do to "spread the word" about the MP. I am so glad that you are seeing the benefits...you are an inspiration to me.
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Lyme 1987, neuro cardio fatigue achiness brain fog depression, anxiety. Pacemaker, D.1,25 32; D <5; 12/07 <6, Oxycodone, lorazapam, benedryl, zantac, colase, Noirs, cover-up or avoid sun, house <30lux. Feb 08 Phase 3. 6/08 D <4, D1,25 21
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Paulafay
Member in Phase 3
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Posted: Wed May 9th, 2007 15:26 |
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Hello there,
I've been on the MP since March of 05 for pulm sarc and things are progressing - I'm currently in phase 2 - and herxing nicely  My family just recieved some sad news regarding my step father - he has been diagnosed with ALS and is only at 65% on his breathing test, he has slurred speech and all the usual muscle pain/fatigue associated with this disease - these symptoms have been present now for a year or so. I'm wanting to get him as much information about the Marshall Protocol in regards to ALS specifically and I was just reading this thread from you about the guy in Augusta, GA - if there is anyway to get in touch with this person so that my step father could communicate with him regarding any signs that the MP has helped him in any way I would be so grateful. My Step Father has refused any standard forms of treatment or medication for this Lou Gherigs disease and they are now trying to talk to him about putting tubes down his throat, etc... any guidance here is appreciated - I know the MP is the answer for so many illnesses out there and firmly believe that ALS is another disease that could be defeated by this treatment...
Thanks and God bless,
Paula
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Sarcoidosis/lung biop thyroidectomy CA 125D74Feb05 25D30Mar05 25D12Oct06 25D9Feb07 Ph1Oct05 Ph2Feb07 Ph3Nov07 levothyrox Valium Tylenol PM Aleve Bolle100 limited outings covered
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LeAnne
Member in Phase 3
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Posted: Wed May 9th, 2007 17:10 |
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Hello, Paula. The man with ALS that is on the Marshall Protocol is BradW_inGA. You can look at his post by going to Members and then the appropriate letter. You can try to private message or email him. I will say that Brad has not been able to post due to the immunopathology. He has severe muscle weakness and cannot use his limbs; His speech is severely slurred. He has recently started phase two. I spoke with his mother- in- law, and she said he is responding to the protocol, but his immunopathology has made his symptoms worse. He has recently developed a rash. These are all good signs that the protocol is working. The treatment must be done slowly, and progress is slow and subtle. It will be a while before Brad sees improvement. He has not been on the protocol very long. There have only been a few ALS patients on the protocol, and as Brad put it, the immunopathology is "Brutal". As for your step father, no one wants to give him false hope. There are not enough case studys to see the end result. However, ALS is a severe bacterial infection, and the MP, in my opinion, is his only hope for recovery. You may wish to obtain the Chicago/LA. DVD. There is information with Lida Mattman on ALS and other chronic inflammatory diseases. Wishing you and your step father the best.
LeAnne
Last edited on Wed May 9th, 2007 17:14 by LeAnne
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Neuro-Sarcoidosis/lungs, spleen, nervous system, skin lesions, 125D66, MP 8/05, Ph1 3/06, Ph3 7/06, NoIRs, low lux home, cover up, 25D9 Sep07
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LeAnne
Member in Phase 3
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Posted: Mon Jul 30th, 2007 11:19 |
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Cycle 15, Full doses of phase III antibiotics, Benicar 40mg/6hrs
The Benicar has enabled my immune system to function despite the two week break from antibiotics. There were still immunopathological symptoms including one day which put me in bed all day.
I will post more on the health fair later. Lynney and I will host our first support group meeting in our area in a few weeks for any MP'rs who live close that would like to attend. We will have them every other month.
I am slowly progressing every day.
LeAnne
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Neuro-Sarcoidosis/lungs, spleen, nervous system, skin lesions, 125D66, MP 8/05, Ph1 3/06, Ph3 7/06, NoIRs, low lux home, cover up, 25D9 Sep07
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DEBRAGRAY
Member
| Joined: | Tue Aug 28th, 2007 |
| Location: | |
| Posts: | 4 |
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Posted: Wed Aug 29th, 2007 18:14 |
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LEANNE;
THANK YOU SO MUCH FOR YOUR CALL FROM THE SUPPORT GROUP MICHAEL HAS AN APPOINTMENT WITH DR. B AND WE WILL BE DOING THE TESTING PRIOR TO GOING TO EMORY TO EXPIDITE THINGS. YOU ARE TRULY SENT FROM GOD TO ANSWER OUR QUESTIONS AND FEARS OF LIFE NEVER BEING NORMAL AGAIN. THANKS, DEBBIE
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LeAnne
Member in Phase 3
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Posted: Sun Dec 23rd, 2007 17:52 |
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Well, It is exactly three years ago at this time, that I ended up in the emergency room with symptoms that were later diagnosed as sarcoidosis. I am so thankful for the MP and how it has allowed me to function normally again. I am still slowly improving. Merry Christmas MP family!
LeAnne
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Neuro-Sarcoidosis/lungs, spleen, nervous system, skin lesions, 125D66, MP 8/05, Ph1 3/06, Ph3 7/06, NoIRs, low lux home, cover up, 25D9 Sep07
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LeAnne
Member in Phase 3
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Posted: Thu Aug 7th, 2008 10:33 |
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Hello everyone. There are so many new people on this site. I think it must have doubled or even tripled from since I became part of the MP family.
Progress:
I am still in phase III. (One year now) The immunopathology is still present and still intense at times. I recently started Curves, an exercise program for woman. It has been three years since being able to work out. I am still an educator full time and excited about starting the new year. I already have around twenty middle school students enrolled in my class this year. I have one student with mild symptoms of Asperger's Syndrome.
I am still telling so many people about this treatment. I still find myself feeling so blessed to have found it.
LeAnne
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Neuro-Sarcoidosis/lungs, spleen, nervous system, skin lesions, 125D66, MP 8/05, Ph1 3/06, Ph3 7/06, NoIRs, low lux home, cover up, 25D9 Sep07
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