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Vicki SA
Member in Phase 3
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Posted: Sat Apr 8th, 2006 04:46 |
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MP day 102 (07/04/06)
Benicar 40mg q8hr started 27/12/05
Minocycline qod - 100mg 16/3/06, (75mg 21/02/06, 50mg 9/2/06, 25mg 13/1/06)
G'day all,
Good news! I am ready to start Phase 2 next Thursday and will give myself 2 x 3 day cycles of Mino to line up with the starting day for the 2nd abx. I have also stopped the magnesium and zinc I was taking and have dropped the DHEA to 5mg/day. I am feeling better after lots lots of resting (after taking my Benicar late on Thursday afternoon), back on track 
cheerio Vicki
6/4/06 100mg Minocycline 2nd day in 9th cycle, Day 2 of reduced DHEA 5mg
Slept well (10¾ in 2 bits)
Recovery day and spent the morning in bed and later used the laptop to read email etc. Then after lunch I tidied for the cleaner and took my Benicar an hour late - oops!
The area around my eye is still bruised and swollen but not sore – quite a good shiner really LOL, I must have needed a trophy LOL, better than the skin cancer anyway.
I rested while until after the cleaner left and then had quite good energy when I got up. I played my guitar and then popped out to get some empty capsules to make lowering my DHEA easier. I don’t feel that I am getting much herxing at this level now, which is just as well with my other health things happening! I get the stitches out tomorrow so things should start to return to normal soon. Today I didn’t feel the need for my usual early afternoon pain relief and didn’t even think about it until it was time for the teatime ones. This is becoming a pattern on recovery days! Pre MP this happened only very occasionally. It is a very good sign! Took the dogs for a little walk after dark.
7/4/06 100mg Minocycline 1st day in 10th cycle, Day 3 of reduced DHEA 5mg
Slept well (8 hours in 2 bits)
Workday and managed pretty well. I finished early and called in to the GP on the way home. The GP gave me the prescription I need to get the 2nd abx made up into capsules and the RN took my stitches out. My eye is still very swollen. I came home ready to head to bed for a rest and visitors arrived as I did. I made them a cuppa and chatted ‘til Hubby came and then lingered talking less and less (for about an hour and a half in total). That seemed to do me in completely and I went to bed both needing to eat and wondering if I would be able to eat as I felt so awful. I think it was mostly due to the late Benicar yesterday. I was able to eat later, although I stayed in bed and went to sleep soon after. In hindsight, I perhaps should have taken 4 hourly Benicar today after yesterday’s slip up but I felt quite good earlier in the day.
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ME/CFS 2000, Splenectomy, 8/05 - 1,25D51,25D16.5, Ph1 12/05, Ph3 1/07, Zoton 40mg, 2008 - cover with light r/t Work 3/7, NoIRs, hat, cover well, invis. zinc for outside, low lux home, Sept08 25D - 8
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alayne
Member in Phase 3
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Posted: Sat Apr 8th, 2006 04:56 |
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Dear Vicki,
Maybe it's because I'm herxing or something and I've missed it...did you post anywhere what happened to your eye? 
I hope it gets better ASAP and you get your needed rest.  Cheers, Alayne
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ME/CFS/FM 6/05:25D-34 1,25D-69, 11/07:25D-8 1,25-37, Sick 6-11 mos/yr x20+yrs. NoIRs/Avoid Sun/D/Use Zinc oxide. 11/17/05-Ph1, 5/06-MPh2, 12/06-MPh2#2, 6/07-MPh2#3,1/08-Ph2, 4/08-Ph3, NonMP Meds:Sleep:1-2mgLoraz or OTC q2d/MThistle/Calc&Mag/Lysine
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Vicki SA
Member in Phase 3
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Posted: Sat Apr 8th, 2006 22:40 |
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G'day Alayne,
I had a small skin cancer removed from just under my eye, sort halfway down (next to) my nose. I guess because the skin is so sensitive around your eye, it all puffed up. The RN implied that it was from the local anaesthetic and perhaps some bleeding. It is still quite puffy 5 days later and I am very happy to hide it behind my NoIRs
It isn't really sore, just feels weird and I will pleased when it goes down!
cheerio Vicki
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ME/CFS 2000, Splenectomy, 8/05 - 1,25D51,25D16.5, Ph1 12/05, Ph3 1/07, Zoton 40mg, 2008 - cover with light r/t Work 3/7, NoIRs, hat, cover well, invis. zinc for outside, low lux home, Sept08 25D - 8
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Vicki SA
Member in Phase 3
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Posted: Sat Apr 22nd, 2006 06:05 |
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MP day 117 (22/04/06)
Benicar 40mg q8hr started 27/12/05, Minocycline qod - 100mg 16/3/06
1st cycle of 2nd abx 13/4/06
G’day all,
Total is day 10 of my first cycle of 2nd abx so thought I would post how I went. I had time off over Easter so it was a good time to start. I was glad that I wasn't working until Day 7 of this first cycle. I noticed the increase in symptoms especially on the 3rd to 6th days. Symptoms on days 7 and 8 were lighter and so on day 9 I increased the Mino from 50 to 75. It was a workday and the ‘run over by the bus’ feeling crept back in as the day wore on and I finished work 1½ hours early and went home to bed (and took extra Benicar). I will go back down to 50mg Mino for the next cycle, which I will probably start tomorrow. So far so good and all tolerable.
Cheerio Vicki
13/4/06 50mg Minocycline, 1st day in 1st cycle
Slept well (8 hrs in 2 bits
Day off and rested in morning and then went to my support group and they asked how I was going with the MP and I gave an overview of Phase 1. I saw my GP later and was very pleased my 2nd D Tests results! We went out for tea to celebrate and on the way bought a cheap Ukulele with instruction book. Not much to report in the way of extra symptoms after dropping the Mino to 50mg and only the first day of 2nd abx.
14/4/06 2nd day in 1st cycle
Slept well (7¼ hrs in 2 bits)
Felt a bit sore and ‘run over by the bus’ but put this down to overdoing it yesterday. I took the Benicar 6 hourly to help. Spent the morning in bed and then had a pretty quiet day in preparation for our campfire with friends in the evening. I love these autumn days! It gets dark about 6. Wonderful! We had a lovely time at the campfire and we chatted and I played my guitar. Later we had 3 guitarists (Hubby & 2 nephews) playing together and then my nephew played guitar while his wife played clarinet – absolutely brilliant! After midnight the new ukulele made an appearance and we played and laughed.
15/4/06 50mg Minocycline, 3rd day in 1st cycle
Slept well (7 hrs in 2 bits)
Noticing an increase in symptoms today with the ‘run over by the bus’ feeling, especially spine, arms and legs and around the joints.
We slept until after 10 and then I stayed in bed ‘til nearly 3pm to catch up after yesterday’s events. I had a shower and got moving and I was having a late lunch when some friends arrived and we had a cuppa and chatted. They stayed for an hour or so and then I went back to bed to rest for 1½ hours. I took some extra Benicar and the usual pain relief and got up later for tea and felt better. Later we visited some friends and had another social!
16/4/06 4th day in 1st cycle
Slept ok (6½ hrs)
Sx. Still got the ‘run over by the bus’ feeling but ok once I was moving.
Today definitely needed to be a catch up day. I stayed in bed ‘til about 12 and then got moving. Some friends came up later and we had a cuppa and a chat. Took some horizontal time about 3 and used the laptop.
17/4/06 50mg Minocycline, 5th day in 1st cycle
Slept well (8 hrs in 2 bits)
Sx. This morning it was more like a ‘run over by the train’ feeling with a headache as well! Later at the end of the day (in bed) my legs were sore (backs of my legs particularly and burning feet) and arms were similar.
I spent the morning in bed resting and then had a bath to get moving. It was generally a pretty quiet day with more resting in the afternoon.
18/4/06 6th day in 1st cycle
Slept well (10¾ hrs in 2 bits)
Sx ‘Run over by the bus’ still and a headache. In the evening I had burning pain in legs and feet.
I stayed in bed for the morning to catch up. After lunch I went to the Op shop and got some wonderful (& cheap) curtains with blockout lining for my bedroom. These ones will block out even more light than the current ones! Later in the afternoon I did the food shopping. I was dragging my feet by the time I got home but hadn’t taken the early afternoon pain meds and was fine just taking the tea time ones. Got the tea going and left it to cook itself (and Hubby wandered past and stirred it occasionally) and went to bed for a rest. I got up later for tea and then went to bed about 7.30. I used the laptop until about 9.
19/4/06 50mg Minocycline, 7th day in 1st cycle
Had a pretty ordinary sleep (6¼ hrs in 3+bits).
Sx. Pumping out heat in the night & sore muscles between ribs and down back.
I seemed to be pumping out heat half the night and put this down to yesterday’s sun exposure. I think I should have taken the Benicar 4 hourly! I FOGgot that bit.
Workday and a busy one after the Easter break. I finished an hour early and managed ok. My back and ribs (muscles) were quite sore by the time I got home but Hubby had the potbelly fire going and I sat with my back to it and that helped. Rested for half an hour before tea and then up for a couple of hours before bed at 8.30. Hubby put the curtains up and they are wonderful!
20/4/06 8thth day in 1st cycle
Slept well (10¼ hrs in 2 bits)
Sx. Stiff and sore muscles but not so ‘run over by the bus’.
Spent the morning in bed resting and then got up to tidy for the cleaner. Son had disappeared after having his mates over and the computer room was a mess and littered with empty bottles, packaging, glasses etc. Sheesh! Much walking back and forth! Got it sorted and had some lunch and then loaded the dishwasher (something I rarely did pre MP). Then rested while the cleaner was here. Got up later and played my guitar for a bit and then later we went out for tea and club meeting.  I love these early sunsets!
21/4/06 75mg Minocycline, 9th day in 1st cycle
Slept ok (6¼ hrs in 3 bits)
Sx. Stiff and sore muscles increasing to the ‘run over by the bus’ feeling.
It was a workday and I decided to up the Mino to 75mg to see how it would go and it definitely increased the symptoms today (plus yesterday’s activity!). I finished work 1½ hours early and came home to bed to rest. I went to bed at 4.15pm and stayed there.
22/4/06 10th day in 1st cycle
Slept ok (6¾ hrs in 3 bits)
Sx. Still feeling a bit ‘run over by the bus’
I stayed in bed ‘til lunchtime to catch up.
I got up but the mood was pretty ordinary and I had little inspiration for anything and went back to bed at 4pm. It didn’t hurt to rest as we planned to go out in the evening.Last edited on Sat Apr 22nd, 2006 06:09 by Vicki SA
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ME/CFS 2000, Splenectomy, 8/05 - 1,25D51,25D16.5, Ph1 12/05, Ph3 1/07, Zoton 40mg, 2008 - cover with light r/t Work 3/7, NoIRs, hat, cover well, invis. zinc for outside, low lux home, Sept08 25D - 8
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