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Aunt Diana
Moderator
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Posted: Sun Feb 19th, 2006 08:16 |
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The more I read and learn about these illnesses, the more I think mankind has been suffering from them for a long time. I am convinced my poor mother, who died at 69 after 30 years of nighmarish and unexplainable health problems...we all thought she was a hypochondriac.... must have been suffering from one of these illnesses. They eluded the best doctors and hospitals in the country.
All of her symptoms could come right off of these pages, but they were so "all over the sand lot" no one ever came up with a common denominator which would have been a start at least and quite possibly a solution for her. I regret that she didn't live long enough to do the Marshall Protocol, Sadly she had to fight the medical establishment to take her seriously because she didn't fit into any ot their neat categories. Even I thought she was a hypochondriac and if she could just use the "power of positive thinking" she could help herself. We had many arguments.
Sad to say she ended up in a mental institution for a while.....the poor woman I believe had a Th1 inflammatory disease. At the end of her life she was taking dozens of different medications and inhalers, was housebound and had very little life at all.
As a young woman she had been a super star tennis player, a costume designer and a fascinating woman....one of the funniest people (quick witted_ I've ever know.). It really breaks my heart to think that she suffered from all that we are suffering from and was literally cast aside as an untreatable patient. We all know what it's like battling the medical establishment....it is truly the unkindest cut of all, when you are truly sick and you know it...but they are "laughing at you as if you are a nut"
I have heard several people say that they feel much younger, not just better, upon completion of the protocol... and that's where my question of the fountain of youth comes in.
I would think that it's not so much that we're getting younger....we're feeling better for the first time in a long time....and these illnesses tend to make you feel old....the loss of muscle and coordination, the stiffness, the lack of good energy....of course it is a fountain of youth if it can bring these things back.
Halleluja....I only wish my poor mother had lived long enough to experience this. And all the others who suffered from these hard to diagnose illnesses, with no help at all.
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Lyme 1987, neuro cardio fatigue achiness brain fog depression, anxiety. Pacemaker, D.1,25 32; D <5; 12/07 <6, hydrocodone, lorazapam, benedryl, zantac, colase, Noirs, cover-up or avoid sun, house <30lux. Feb 08 Phase 3. 6/08 D <4, D1,25
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Dr Trevor Marshall
Foundation Staff
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Posted: Sun Feb 19th, 2006 14:30 |
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Hmm. Nobody has picked up the thread, Diana, so I guess I am the one in the hot seat
The first contact I had from a CFS physician was after whispered talk about the MP at which was going around a conference on 'diseases of the aging' in 2003.
It is still an imponderable to try and figure out whether killing the chronic bacterial load will extend longevity. A recent study by Dr Alvin Brown, et al, found that about 60% of its 'controls' had CWD bacteria in their blood, detected using Lida Mattman's methods. Their reaction was to recoil in horror, and assume that what was being detected was not bacteria, but something else (unknown). So the CWD infections do seem to be pretty widespread in the 'healthy' population. Do they account for why some folks die at 65 and some die at 95?
I don't know yet. But I am certain that atherosclerosis and stroke are Th1 diseases, and when these have gone away it certainly reduces premature death (under 65). A physician in Germany is treating his Dementia patients (including a few with ALS and Alzheimers) with variations of the MP (the straight MP is not much use in folks who are incapable of adjusting the dose). He reports some success.
So we have a work in progress. It will be interesting to see what the future brings.
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paulalbert
Board Staff
| Joined: | Fri Jul 16th, 2004 |
| Location: | USA |
| Posts: | 879 |
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Posted: Sun Feb 19th, 2006 14:31 |
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Diana,
I feel as you do. Sometimes though I'm hesitant to use terms like "fountain of youth" lest this here outfit be accused of quackery, but then what better way is there to put it? For many people, it holds that exact potential.
Paul
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Diag CFS 6.03 / sympt since 9.02 / exercise, food intol, sleep prob / 1,25D: 16, 4.06; 1,25D:27, 25D:26 7.04; 1,25D:43, 25D:6 6.05; 1,25D:17, 25D:8 8.05; / MP: 7.04 / Ph. 3 / Bacteriality
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GeorgeinRollaMO
Member in Phase 3
| Joined: | Tue Aug 10th, 2004 |
| Location: | Rolla, Missouri USA |
| Posts: | 492 |
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Posted: Mon Feb 20th, 2006 04:34 |
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Diana,
"Great minds flock together!" is an old saying, is it not? 
Just yesterday, 2/18/06 at 7:42am, I said to Sharon (ShrnHml), "I do hope that you do return to the MP. It will be nice to have a real "old folks" reunion when we turn 120, or 130, or 140 because we have cleaned out those CWD bacteria.  "
I am with you on this thought!!!
Dark Vader (aka, George)
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Borreliosis:7/14/04--125D=57,25D=61. Ben 9/1/04. Mino 10/5/04. 4/13/05--125D=58,25D=43. 8/17/05--125D=52,25D=36. April 06=125D=38,25D=29. 8/29/06--125D=37,25D=29. June 07 25D=23. Oct31'07,25D=19.
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scooker48
Member in Phase 3
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Posted: Mon Feb 27th, 2006 02:04 |
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Thanks to everyone for their posts and it mirrors some thoughts I have had about increasing our longevity.
I also raise a question about this country's Social Security System. Obviously, they do not want the population of those collecting the government annuityto increase.
There might be some danger to government fiscal policy.
Am I paranoid?
Sherry
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Necrotizing granulomas biopsy 10/88; Dx 12/04 Sarcoid liver spleen. 2/2/05: VitD 25/VitD125 62. 11/7/09 D25 at 6, Liver function normal 4/08; Wear NoIRs outside. No K creme used. 5/09 Liver and kidneys normal. ACE still high at 113 on 11/7/09.
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jrfoutin
Research Team
| Joined: | Tue Aug 9th, 2005 |
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Posted: Mon Feb 27th, 2006 02:19 |
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My husband's favorite comment of late is "you think everyone has Th1!" Well, of course that is a bit of an exaggeration. I really only think about one out of every two do (roughtly 40-60%?). (smile)
I've always wanted to live to 100. Seemed like a nice round number. If I live that long or longer because of the MP, that is a bonus. Right now, I'm just trying to skip the 2 decade curse of Sarcoidosis.
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Sarcoidosis 125D61, MP10/05 ModP2 12/05 Ph2 6/06 Ph3 10/06, NoIRs limited outings covered, 2/08 25D6.2, 10/08 25D6.9
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paulalbert
Board Staff
| Joined: | Fri Jul 16th, 2004 |
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Posted: Mon Feb 27th, 2006 02:27 |
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Janet,
I suffer from the same problem. I'm completely burning all my street cred gently suggesting (OK, more like pushing) the MP as a treatment course for various family members. Apparently, my strongest assurances that what we have here is a genuine paradigm shift is not enough. The only thing that holds me back, aside from my natural sense of decorum, is the fact that I'm not 100% well. When I am, watch out!
Paul
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Diag CFS 6.03 / sympt since 9.02 / exercise, food intol, sleep prob / 1,25D: 16, 4.06; 1,25D:27, 25D:26 7.04; 1,25D:43, 25D:6 6.05; 1,25D:17, 25D:8 8.05; / MP: 7.04 / Ph. 3 / Bacteriality
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Tobi
Member
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Posted: Mon Feb 27th, 2006 02:54 |
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It would be great to get a few bonus healthy years. They may balance out the years lost to illness, the "living death" years (not wishing to sound too meldramatic). I'm keepiing an inventory and I'm "owed" 8 at this point.
Tobi
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CFS,Rickettsia Conoori-,HHV6,Ureaplasma(all 3 culture,PCR) 25D 16.4ng/ml,1.25D 26pg/ml.Ratio 1,3 Blood probably NOT frozen Benicar 9/18/04 Mino 100mg 10/18/04 Phase 2 01/26/05
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jrfoutin
Research Team
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Posted: Mon Feb 27th, 2006 03:08 |
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Sherry,
Retirement and SSecurity wouldn't be that hard to legislate corrected age ranges to new average lifespans (I think Tony Blair just had a sound bite recently about moving the age up already), and eliminating chronic disease would mean --adding-- to workforce as opposed to paying out to the disabled. Most countries have done the math and are looking for some sort of way to deal with aging populations. Getting/keeping populations well is a welcome idea.
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Sarcoidosis 125D61, MP10/05 ModP2 12/05 Ph2 6/06 Ph3 10/06, NoIRs limited outings covered, 2/08 25D6.2, 10/08 25D6.9
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