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Cricket
Member in Phase 3
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Posted: Tue Jun 20th, 2006 04:46 |
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DH and I are both on MP. After talking with Dr. Marshall at the conference, we decided to start both of our girls on the MP. Today they took 25 mg of mino. Dr. Marshall told me that we should not add Benicar to their meds. DH has RA, I have asthma with RA herzing. My younger daughter (almost 10 (Briar)) has asthma and my older daughter (almost 12 (Brigand)) has some kind of learning disability that we are now thinking is ADD.
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Asthma(no attacks more than a year) RA IP, also insulin resistant(gone), light sensitivity; NoIr2%; light avoidance; phase 3 started April 2007.
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Dr Trevor Marshall
Research Team
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Posted: Tue Jun 20th, 2006 05:56 |
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Cricket,
I think there has been a misunderstanding. I would never have advised you what drugs or strengths to take, only your doctor is licensed to do that. I might have said that with children there doesn't seem to be as much need for Benicar, as their illness is often not as advanced, but that was not supposed to be an inducement for you to start kids on the protocol without your physician making that decision, and guiding their therapy.
Please understand that the Medical Board of California has already received one complaint that I am usurping the role of a licensed physician, and it is very important in public postings that we accurately report any conversations, as otherwise we are just making it easier for TPTB to cause trouble for us all
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Cricket
Member in Phase 3
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Posted: Tue Jun 20th, 2006 19:29 |
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I didn't express myself correctly. It was after the conference that our physician, husband and myself decided to put our children on the MP. I didn't mean to imply or state that you had advised me on dossages or drugs or even encouraged me to put the children on MP, you did not. In my excitement of actually getting to talk to you about my experiences with the MP, I muddled the post. I can't edit my initial post any more  . Maybe this thread should just be deleted.
Our reasoning (our physician's reasoning) for putting my girls on MP is that 1)both DH and I have TH1 diseases, 2)Our girls both have things going on that could be a result of TH1 diseases. On advice from our physician (who had talked to us about this before) is to do a test cycle of MP.
Yesterday we gave them their first dose. Today our youngest is herzing with runny nose, head ache and stomach ache. Our older daughter is extremely tired which we are suspecting is also a herz. Very interesting!
Now our youngest is dizzy too. Interesting!
CricketLast edited on Tue Jun 20th, 2006 21:36 by Cricket
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Asthma(no attacks more than a year) RA IP, also insulin resistant(gone), light sensitivity; NoIr2%; light avoidance; phase 3 started April 2007.
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Dr Trevor Marshall
Research Team
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Posted: Tue Jun 20th, 2006 19:43 |
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Cricket,
There is no doubt that the science indicates that Th1 disease spreads within families. I urge all families to assume that all their members will be ill until proven otherwise. At least some of these bugs seem communicable, both Lida Mattman and Alan Cantwell have confirmed that. Greg highlighted that the rate of Th1 diseases in health care workers is much higher than in the general community - why? perhaps because they catch the bugs from their patients?
Test/probe the whole family - why take chances...
ps: thanks for the clarification. It is so frustrating for me to have to be so darn careful these days
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19545 |
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Posted: Tue Jun 20th, 2006 20:00 |
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Cricket
Welcome to MP.com and thank you for your clarification. The thread is good Information for others reading, so all is well. thank you..
see also Information Posts at the top of the forum.
see the FAQs Will re-infection occur if my partner or family members are not treated?
Some of my family members appear to have Th1 inflammatory symptoms. What should they do?
The Essential Information is in ABOUT THE MARSHALL PROTOCOL and all links alphabetised in the ABC of MP
The aim or the key is to achieve and maintain tolerable symptoms (physically, mentally, and emotionally) by adjustment of meds dosing and schedule as suited individually to you within the guidelines and combined with the Essential aspects of diligently avoiding Light and vitamin D... Tools to check: << if having problems please check if you need to make adjustments in any area, and feel free to ask on the Board. thank you.
If you are concerned do not hesitate to contact your Dr.
I see by your signature line that you are in Phase 2, please see this FAQ Where can I find phase two and three? for information re sending for the Questionnaire to fill and return, and you will be given feedback and access to the Phase 2 Information, after which we encourage Phase 2 Members to begin a progress report in the Phase 2 forum.
Thank you. Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Cricket
Member in Phase 3
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Posted: Tue Jun 20th, 2006 20:44 |
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There is no doubt that the science indicates that Th1 disease spreads within families.
This is so interesting. Here is our family:
DH; has RA
Me; asthma and insulin resistance, also constant low grade sinus infection, I am herzing bilateral joint pain
older daughter; some undiagnosed learning disability, we are currently suspecting ADD
younger daughter; asthma, frequent head aches and stomach aches, pain in her legs
my mother;scleraderma
my step father; just diagnosed with prostate cancer
DH's mother; fibromyalgia
DH's sister; fibromyalgia
Cricket
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Asthma(no attacks more than a year) RA IP, also insulin resistant(gone), light sensitivity; NoIr2%; light avoidance; phase 3 started April 2007.
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Cricket
Member in Phase 3
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Posted: Sat Feb 10th, 2007 17:56 |
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Since that last post, we have confirmation that our older daughter has ADD. It is nice to actually have a diagnosis.
Over the summer we started our girls on the MP. Now that we are in the school year, our physician has us only dosing them with antibiotic on Fridays. Weekends are for immuno pathology.
Our older daughter is on Strattera every school day and off on weekends. Now that we have an official diagnosis of ADD, her teachers are much more accomodating. She had her first finals a few weeks ago and the private school she attends, gave her an extra hour to complete the finals. That makes a huge difference. We see an improvement in the ADD. One step at a time, but she is getting better.
Our younger daughter has asthma. We took her off the steroids and put her on the MP (again, only on Fridays). Her last actual asthma attack was about 6 months ago. Her soccer coaches have asked us what we are doing that has stopped her asthma. An interesting immuno pathology with her is ADD.
Cricket
phase 2
Asthma, chronic sinus infection, bilatteral joint pain
see also: Cute Things They Say
and ADD and medication
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Asthma(no attacks more than a year) RA IP, also insulin resistant(gone), light sensitivity; NoIr2%; light avoidance; phase 3 started April 2007.
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jrfoutin
Research Team
| Joined: | Tue Aug 9th, 2005 |
| Location: | Oregon USA |
| Posts: | 3924 |
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Posted: Sun Feb 11th, 2007 03:16 |
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Cricket,
How fortunate for your daughters to have the opportunity to clear pathogens now!--Janet
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Sarcoidosis 125D61, MP10/05 ModP2 12/05 Ph2 6/06 Ph3 10/06, NoIRs limited outings covered, 2/08 25D6.2, 10/08 25D6.9
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Cricket
Member in Phase 3
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Posted: Mon Aug 11th, 2008 02:13 |
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We have been on vaction since June 21. We went everywhere . Actually I took Brigand and Briar through Canada to Alaska. We all were on the MP while on the trip. Find out about the travels on this blog: http://travelswithriva.blogspot.com It was a bit difficult to follow the MP while on the road because time got away from us and I kept forgetting to give them and take the benicar. Never-the-less we have good news.
Briar and I have been on the MP for asthma. Both of us have been symptom free for more than a year. Yesterday we had a TEST of whether we still had asthma. We are in northern California apparently near the fires. For several hours we were in thick, horrid smoke. 2 years ago this smoke would have sent me to the emergency room. Other than the anxiety borne of rememberances of past attacks, I had no symptoms. Briar also had no problems. Hurray!
I continue on the protocol to try to get rid of a chronic sinus infection and I still sometimes have bilateral joint pain and I am still overweight. It looks like we will not have to continue Briar on the MP. Brigand has made some headway aqgainst ADD but it is REALLY hard to measure progress in a brain issue. This is doubly hard because she is a teenager so what is "normal" teenage angst and what are brain issues caused by TH1 disease. Will the MP cure cranky-in-the-morning-late-risers? <VBG>
Brigand goes to cross country training camp next week so it will be doubly hard to keep her on the MP while she is away. *sigh*
I do think that I have seen improvement in her ADD but there are good and bad days. It is really hard to measure.
Cricket in Redding
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Asthma(no attacks more than a year) RA IP, also insulin resistant(gone), light sensitivity; NoIr2%; light avoidance; phase 3 started April 2007.
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