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Aussie Barb
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Posted: Tue Sep 21st, 2004 23:38

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Day 13 Mino Wednesday September 22nd 8.30am ish

Benicar: 20mg Q3h Day; 40mg @ 9pm = 3 ½ to 4 tabs per day:
Q for herx only. Probiotics BD

symptoms: stiffness soreness in tailbone persists

when I get up from computer

had a quick stab in 1 breast then the other. then gone.

I feel slightly *better*.... ? had to ponder how......
it is that I feel *less poison* than for a while... perhaps that is less inflammation? so that has to be a good thing

Probiotics BD are good

slept well. sleeping well generally. only a couple of wakes.

mino 9mg due 10am today.
last mino dose (6mg) made me more dizzy for longer... but was all managable by going steady..
===============================

We have Family visiting. I feel better this morning than last night.

Last night ... tired... too much sensory overload.. I manage it all but essentially was not coping within me.
I so love seeing them, having them here... I love to be able to let the kids have this opportunity to have a holiday......
by the end of the day whether I liked it or not I was overloaded..
I wait till they've eaten and are away from the table.. keep separate to help myself as much as I can.

The sick one coughed thru the night... I am so thankful it's not me seeing to sick kids anymore ... phew!!!
they will all be going out for the day soon. :cool:

this made it clear to me why I moved to here and why I need to live a quiet life yet.

I can't even bear to play my favourite music for years now..
=============================

I found a website to calculate my # of days for me
http://www.timeanddate.com/date/duration.html

So far: I have been alive 19733 days

for some of them I think I have been half alive

cut D exp 72 days
Noir 22 days :cool:

Benicar 41 days
ABx 12 days
==================

Aussie Barb
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Posted: Thu Sep 23rd, 2004 22:41

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Thanks

that reminds me that enjoying Music is another part of Good Health that I shall be looking forward to. I have really lost all comprehension of what good health may even entail. I have learned so well to live & enjoy My Life within my abilities.

Day 15 Mino Thursday September 24th 7.40am ish

Benicar: 20mg Q3h Day; 40mg @ 9pm = 3 ½ to 4 tabs per day:
Q for herx only. Probiotics BD are good

symptoms: stiffness soreness in tailbone persists

when I get up from computer

no more sniffy nose lately

slept well.

last mino dose (9mg) I felt nothing really that day,

and then the 2nd day I had mild transient Herx of scalp is sore to touch.(like when having the flu), being fragile (different to usual), a little nauseous, shaky inside (again, different to usual), nose membranes heat, >sore palate/throat, face itch, feeling inflamed diaphragm area; was all managable & bearable.

all herx symptoms resolved now so >>

mino 9mg due 10am today.

Aussie Barb
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Posted: Thu Sep 23rd, 2004 22:58

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Link to my Benicar only Reports

http://www.marshallprotocol.com/forum19/379.html

Aussie Barb
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Posted: Fri Sep 24th, 2004 21:04

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Day 16 Mino Saturday September 25th 6am ish (oops named yesterday Thursday.. not Friday... well it was Thursday in the US I suppose

Benicar: 20mg Q3h Day; 40mg @ 9pm = 3 ½ to 4 tabs per day:
Q for herx only. Probiotics BD + prn are good

symptoms: stiffness soreness in tailbone persists

when I get up from computer

sniffy nose (transient) again after mino yest. otherwise no other symptoms. able to do some cleaning (after holiday visitors gone).

Probiotics x 3!! yest for IBS (with good relief each time)

slept well. woke this morning 3.40am.... surprise ! <dizzy. took my Benicar 20mg. was mild enough & didn't last long. also mildly itchy face & scalp.

very tired. going back to bed. :cool:

Last edited on Fri Sep 24th, 2004 22:09 by Aussie Barb

Aussie Barb
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Posted: Sat Sep 25th, 2004 11:03

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Day 16 Mino Saturday September 25th continued.... 8pm ish

After a week of visitors and then the tidy after, today I've been very tired. then this afternoon Payback (post exertional malaise) came to visit.

It was interesting to observe my first experience of payback within the new MP circumstances.

Symptoms, came as usual, after a rest... inner fragile feeling and brink of depression feeling were much milder & passed more quickly than usual. My NPS, usual Benicar 20mg dose, probiotics, and something to eat all helped..

and then came some nausea.. and not so mild diaphragmic inflammation.... and I took the next Benicar 20mg an hour sooner, and lay down flat to ease the pressure ... all helped some in time.

*the Tooth* as well as gum area, top upper left feels *different..don't know how to articulate

and strange with pressure (so don't do pressure

nasal membranes become drier hotter feel from Benicar. is all good.

Mino due tomorrow. will take 9mg again.

Aussie Barb
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Posted: Sat Sep 25th, 2004 21:21

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Day 17 Mino Sunday September 26th 6.30am ish

Benicar: 20mg Q3h Day; 40mg @ 9pm = 3 ½ to 4 tabs per day:
Q for herx only. Probiotics BD + prn are good

Probiotics x 3 yesterday again. I found it best to take it as soon as belly rumbles before it gets any worse. & it helps me overall as well.

Disease symptom: stiffness soreness in tailbone persists

when I get up from computer

slept well.

woke this morning anxiety(still from *catchup*), very weak, can feel gum & tooth, nasal / palate dry & heat (good) took my meds. Symptoms are mild enough or at least bearable & didn't last long.

sense of smell & taste is acuter at times :shock:

Mino 9mg today

CelticLadee
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Posted: Sat Sep 25th, 2004 23:28

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Hello there Aussie Barb,

Glad you are recooping from all the excitement in your household.

That tooth pressure is the darndest thing isn't it. I was almost ready to go to the dentist cause I could not chew on my right side. One of the crowned molars felt like a spike in my jaw and when I chewed on it hurt. It is getting better now so I am hoping the MP takes care of it.

Noted you are also on 9 mg. I had more trouble starting 6 mg. than 9 mg. isn't that interesting? Hoping your time on 9 goes well for ya.

Just wondering if you ever take epsom salt baths too help your sore tailbone, etc.? It seems to help my soreness so I take one every other day. I put 8 oz. of epsom salt in the garden tub and soak for 1/2 hour while reading a good book. It is my special time! :cool:

CelticLadee, your fellow itd MP :dude:

ette

____________________
FM Dx 9/2002| Pericarditis Dx 7/2002| CF migraines MCS IBS food sens <Shingles 2001| NoIRs/ZO 25% cream| MP8/04| PH2 1/05| PH3 7/06| 25D/1,25D: 27.9/63.9 (07/04) 25D: <4 (02/08)

Aussie Barb
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Posted: Sun Sep 26th, 2004 22:06

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Thank You CelticLady :dude:

This is Day 18 Mino Monday September 27th 7am ish

Benicar: 20mg Q3h Day; 40mg @ 9pm = 3 ½ to 4 tabs per day:
Quercetin for herx only. Probiotics TDS are good

On 9mg mino I am definitely needing the Probiotics TDS. is good to know things are happening.
Sticky eye, mucus cough, Gum & Tooth relieved by mino dose yesterday.

I can feel a small upward trend

I have no headaches anymore either!!! I can have the feel of one coming and take my Benicar dose and it disappears.

I have a *hotspot* just left of mid upper abdo...
ears feel *wet* inside most of the time.

I am tired, so I rest, sleep.

Slept well.

Mino n/a today

So far for Me MP is bearable and managable with ease.

part of managing MySelf, is first taking care of me

re rest and avoiding light etcc... taking my meds. making the commitment.

I absolutely believe in the science of MP, and there is plenty of proof of it working all around the Board. There is no way anyone could stop me from choosing MP .

I am 110% all the way for doing this.

Even though, at present, I have no comprehension whatsoever what good health is..... I am doing this as much for my kids, and for those ppl who will be coming after me.. & I am probably doing it because somewhere deep inside of me knows I can have better than I have.

In this last 2 months gaining knowledge of MP, I am coming out of the denial that I didn't know I was in, that I have been in, - of trying to squash down the reality of how unwell I am..

I was in a type of positive attitude that saw me accepting and living what I had because I had no other options...... minimising my symptoms because I could not name them or fix them...... and now I can name them and I have Hope!!!...

I have ppl ahead of me on MP who are showing me day by day that they are improving and they are getting a Life!!!

I have learnt so much..... about MySelf as well.

Thank You All

zzzzzzzzzzzzzzzzzzzzzzzzzzzzz

Last edited on Mon Sep 27th, 2004 04:10 by Aussie Barb

Aussie Barb
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Posted: Mon Sep 27th, 2004 23:31

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This is Day 19 Mino Tuesday September 28th 8.45am ish

Benicar: 20mg Q3h Day; 40mg @ 9pm = 3 ½ to 4 tabs per day:
Quercetin for herx only. Probiotics TDS. lemon drink.

On 9mg mino I am definitely needing the Probiotics TDS.

and then I remembered the lemon drink to open up the detox pathway!! ahh... so I had that... with relief of persistent IBS!! yes..

I have a *hotspot* just left of mid upper abdo... comes and goes.
ears feel *wet* inside most of the time.

all is well....

I am tired, so I rest, sleep........ inbetween my activity here on the Board

Slept well.

Mino 12.5mg today!! a milestone for me :dude:

YAYY!

Aussie Barb
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Posted: Wed Sep 29th, 2004 21:16

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This is Day 21 Mino Thursday September 30th 6.15am ish

Benicar: 20mg Q3h Day; 40mg @ 9pm = 3 ½ to 4 tabs per day:
Quercetin for herx only. Probiotics BD. +lemon drink qod.

lemon drink to open up the detox pathway!! keeps IBS at bay!! yes..

I have a *hotspot* just left of mid upper abdo... comes and goes. ? pancreas... I take it as all good work happening

ears feel *wet* inside most of the time.

I don't know how to describe this herx symptom. it comes and goes. I am not *sick* but I'm not *well*. I'm not in pain, I'm uncomfortable in the abdo, feels like big inflammation; like a hive of bees in there? but is all bearable. if anyone healthy had it they'd think they were really sick

but I know it is all good work happening

my hands still go to sleep when I'm sleeping, resting. I feel like there's an *aura* about my head / sinuses at times

all is well....

I am tired, so I rest, sleep........

Slept well. I woke this morning and I could actually *do* something

so I knew that I could take my mino again.

Mino 12.5mg today plan to stay at 12.5mg for this week or assess re herxing.

Aussie Barb
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Posted: Thu Sep 30th, 2004 22:28

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How I've taken the Mino so far: every other day. increasing dose unless still herxing on that amount. and staying at what I shall call the *significant* or herxing levels for 3 doses before moving on.

Friday September 10th: Day 30 Benicar:  Day 1 Mino:

Day 1 Friday September 10th: 1.5mg

Day 3 Sunday September 12th 2.-mg

Day 5  Tuesday September 14th 3.- mg

Day 7 Thursday September 16th 3.- mg

Day 9  Saturday September 18th 5mg

Day 11  Monday September 20th 6.25mg

Day 13 Wednesday September 22nd 9mg

Day 15 Friday September 24th 9mg

Day 17 Sunday September 26th 9mg

Day 19 Tuesday September 28th 12.5mg

Day 21 Thursday September 30th 12.5mg

Aussie Barb
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Posted: Fri Oct 1st, 2004 23:19

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This is Day 23 Mino Saturday October 2nd 8.15am ish

Benicar: 20mg Q3h Day; 40mg @ 9pm = 3 ½ to 4 tabs per day:
Quercetin for herx only. Probiotics BD+lemon drink qod.

lemon drink to open up the detox pathway!! yes..

Slept well.
Mino day today -skipping today :shock:

plan to stay at 12.5mg for this week or assess re herxing.

yesterday I had some chest/Heart herxing come & go. I had some congestion feeling in rib muscles. rubbed them and pressure hot water in shower... this would, pre MP, have usually given me a headache from the toxicity released...... but what it did this time was bring forth another symptom of toxicity for me..... a feeling of being plugged up in my bottom. :shock:

probiotics>

no use. lemon drink

relief.

My body has felt to be working at full capacity every day.................. and with what is happening for me.................... today I still have congestion in neck & rib muscles in particular................. am very tired all the time........ skin itching mild, eyes mild transient itching irritable, I have the *stress bumps* on my elbow, and the discussion about hormones (wanting to manage them steadily)> Impact of MP on Hormones

Despite my being so impatient to keep on with the Mino

I decided to give myself another day for my body to *catchup*.

all is well....

I am bright enough otherwise

Last edited on Fri Oct 1st, 2004 23:52 by Aussie Barb

Aussie Barb
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Posted: Fri Oct 1st, 2004 23:42

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Note:

I am less prone to depression and fragility than I was.

no headaches!!!! No Headaches!.

< My Insulin Resistance does seem to be less symptomatic.

I am still too tired and stufft, and completely disinterested in going anywhere yet.

but on the other hand, I am quite happy here in the circumstances as they are, at the moment.

Aussie Barb
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Posted: Sun Oct 3rd, 2004 00:41

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This is Day 24 Mino Sunday October 3rd 9.30am ish

Benicar: 20mg Q3h Day; 40mg @ 9pm = 3 ½ to 4 tabs per day:
Quercetin for herx only. Probiotics BD+lemon drink qod.

My body has felt to be working at full capacity every day.................. Despite my being so impatient to keep on with the Mino

I decided to give myself an extra day for my body to *catchup*. so mino skipped yesterday

and I slept a great deal yesterday and felt very tired still last night.

Slept well. and woke feeling ready

to go to *work* at MP again this morning :cool:

took 3rd dose of 12.5mg Mino

It did me good to see Huey say this>>

"However, I try to keep in mind that feeling good is not the goal of Phase One. It seems to me that if I start focusing on feeling good during Phase One, that I am setting myself up for an expectations trap. I should not expect to feel good during Phase One…my goal is to stay on the tolerable edge of a herx…and that means feeling poorly, and as Dr. M has said, "when you feel you are able" increase the dosage. " <<<

ref: http://www.marshallprotocol.com/forum20/424-2.html

thanks Huey

& thanks ((All)) for input & support around the Board

another thing I'm conscious of is >>Dr Marshall on 25D level & Herxing:

"Yes, the half-life of 25-D is about 2-4 months, so it does take a long time to be used up, and as it drops, your immune system will be able to attack the bacteria more effectively."

ref: http://www.marshallprotocol.com/forum11/882.html

"we like to see folks understand what herx feels like before they progress to phase II.

Herx can be delayed by other drugs, and it can be suppressed by high levels of 25-D, such as you have. From your initial value of 50ng/ml it might take as many as 4-6 months for that level to drop into a therapeutic range. I would want to see your 25-D down around 20ng/ml or so, before starting the really strong antibiotics. Otherwise there is a chance you will have serious cardiac herx (for example) when it finally begins to hit."

..Trevor..

ref: http://www.marshallprotocol.com/forum11/880.html ] <<<

My 25D was 35 1 month ago. (I'm presuming it is this level because of a protein supplement drink I had been Rx pre MP) :shock:

all is well today

& it is 1 day at a time :cool:

Reenie
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Posted: Sun Oct 3rd, 2004 01:08

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Barb says, "(Dr M says,) ... I would want to see your 25-D down around 20ng/ml or so, before starting the really strong antibiotics. Otherwise there is a chance you will have serious cardiac herx (for example) when it finally begins to hit."

Wow Barb, thanks for that quote!!! :shock:

I TOTALLY needed that reminder about the 25-D, since I've been focusing on the 1,25-D for herxing sxs and my 25-D is still very elevated. So when ppl, including me, would wonder how long to stay on the mino alone, this would help determine that.

Another good reason NOT to proceed quickly in Phase 1. :cool:

Aussie Barb
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Posted: Sun Oct 3rd, 2004 22:25

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This is Day 25 Mino Monday October 4th 7.15am ish

Benicar: see below
Quercetin for herx only. Probiotics BD

BIG SORT OUT HERE!

My body has felt to be working at full capacity every day...... and although I say that......I wondered - has it been *real* herxing..? all bearable and all managable

seemed quite measly symptoms to me

I was not feeling *better*

and was needing the day off

which I then took..... Despite my being so impatient to keep on with the Mino

I decided to give myself an extra day for my body to *catchup*.

I had been working the MP too hard. and yet seemingly not hard at all really. but I needed a rest from the constancy of it. and it helped.

My main problem has been the Inflammation.... I can feel it particularly in my abdo... like a hive of bees on high alert.... not nice... +IBS ( with no relief by any means)

so felt quite awful, blehh

(PS later edit... having just written that

I could try the Q... but as I had thought I *wasn't really* herxing very badly I hadn't considered it.. hehe

On the extra day off mino but still on Benicar I slept very much and was very tired. and I did have relief by the next morning (yesterday)!! so it Was herx (toxicity) I was dealing with, as it did feel to be.

I have been aware that my Immune System was usually easily kicked into action..... but apart from the Inflammation being *stirred up* now, wondered / asked, what did that mean? with the 25D at 35 was not sure what would could be happening?

Then Thinking:

The last 2 days I have experimented with extending the Benicar to 20mg x 4 hrly instead of 3 hrly... that was no good.....

I became some depressed and more IBS...

My 1,25D had come down last test...from 51 to 34... I have always felt that I have more Inflammation than this Test actually denotes.. can feel MUCH Inflammation ........ ponder..... & then AHA! of course..... the 1,25D will be paracrine, in the tissues....(ie inflammation) not all shown in the Blood Tests.. yess..

& My 25D was 35 ... still plenty of fuel for the fire.

so, taking that info & the fact that this IS Inflammation I AM dealing with.. I decided to increase the Benicar to 40mg x 4 hrly.... ahhh relief

I do feel better! ahh. IBS relief and Inflammation relief

Slept well. except I was itching to get on here to write this all up

Having Mother & Sister to visit today, so it's good to have improved for that

Thanks to All on the Board (whose names are too numerous to mention

for Your Encouragement, input & Support

Best Wishes to Us All, Barb :cool:

Aussie Barb
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Posted: Mon Oct 4th, 2004 22:03

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This is Day 26 ABx Tuesday October 5th 7am ish

Benicar: see below
Quercetin for herx only. Probiotics BD

Yesterday was a big day for me, having Family visiting. so I am really exhausted today so will not take the Mino today, will wait till I feel better than this. by tomorrow?

Benicar: taking 20mg x 2 hrly was great.. helped IBS or inflammation probs

took 40mg B @ bedtime & the need for B woke me in 6 hrs for next dose. I'll see where it takes me today.

Aussie Barb
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Posted: Wed Oct 6th, 2004 00:23

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This is Day 27 of "QOD" Mino Wednesday October 6th 9.30am ish

Benicar: see below
Quercetin for herx only. Probiotics BD

Temporary Change of Plan:

1. Today being Wednesday; I am still so knocked flat from the day of Family visiting Monday (on which day I was taking my Benicar 20mg x 2hrly but was so distracted I could discern no other symptoms apart from tiredness

2. Due to a mishap with my indoor NoIRS, I am NoIRless till my next pair arrive.

I tried using the outdoor NoIRs >> but found them too dark to use and require my using lights which in itself is self defeating.

3. Yesterday I tried to see how far I could stretch the Benicar dosing....... and it would not be budged from the 20mg x 2 hrly.
> that dosing relieves the buzzing inflammation and my IBS (which is gas in a paralysed gut... most uncomfortable)

So.... due to all the above factors,

Today I am continuing Benicar dosing as my Body decrees the need. ie 20mg x 2hrly atm.

I am resting.

and... not taking more Mino till I receive my new NoIRs

and.... will then drop the mino dose back and ramp again....

This is the new plan ATM.

Aussie Barb
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Posted: Wed Oct 6th, 2004 22:07

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This is 8 weeks Benicar: 4 weeks / Day 28 on Mino Thursday October 7th 7 am ish

Benicar: see below.... Probiotics BD

No Mino till I have my replacement NoIRs

& am stable again.

Yesterday I was very exhausted still, & I needed the Benicar 20mg x 2 to 3 hrly during the day.

I feel improved today, but still doughy. needing to rest yet.

Aussie Barb
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Posted: Fri Oct 8th, 2004 09:48

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This is Day 28 on Mino Thursday October 7th
Benicar: see below.... Probiotics BD

My body seems to be doing what it has always done on any treatment...

it seems to have taken off on the killing spree... no need for any more catalytic mino at present..

ie. Give it the kick in the a** and away it goes........ I need the Benicar 20mg x 2hrly to keep inflammation in gut bearable.... otherwise the flare is unbearable... not pain but very inflammation / tight / discomfort

the difference this time to any other treatment before, is that I have the Benicar as my Protector...... is good....

I am going thru times in the day when I wonder if I can keep it up......in the short times of depression

and the fatigue and .... I do know rationally that I just have to do it *until*.......... it is not *all that bad*....

It is not anywhere near as bad as I have been thru before on other treatments ...... but neither do I want to ever do that again!!!!!

it is not easy that's for sure.... is very hard work.. but I am doing it!!! that is the thing!!!

The strange and Mysterious thing about this is that half the time I think it is nothing at all.. of course I am accustomed to bearing much..

The herxing is not dramatic... it is so subtle!! how can it be hard and easy at the same time.. ?

I have no pain....only discomfort... and I have been very tired this last week.... after the visitors.. and the NPOS alleviated the depression & the paralysed gut when I'm not too brainfogged to remember to keep it up...

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