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drvikki
Health Professional
| Joined: | Fri Jun 24th, 2005 |
| Location: | California USA |
| Posts: | 295 |
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Posted: Sat Dec 2nd, 2006 00:38 |
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Fri - Dec 1 - I have meant to get on the web board all week, but have been trying to calm system down from the holidays. Travelled to southern California to see my best friend for Thanksgiving - it's been 2 years.
I think I wore 3 layers of clothing in the car, hat, 2 pairs of 2% Noirs, K cream (have realized that I don't feel well even using zinc oxide in a VERY natural lotion), so didn't use that. I feel okay using K cream on my face and neck and hands, but using Nizoral shampoo I don't feel as well either. So I used the standard covering up routine. Did okay on drive and was able to enjoy the holiday with some ups and down.
My friend had very heavy duty wood blinds, and heavy drapery, and I kept covered. She stuck with the Vit D diet in her baking, but some things still had sugar in them. I didn't feel as well with that, but figured it was worth it for the long weekend. I am sticking to a low fat protein, veggie diet this week, but am still craving carbs. Getting less every day though.
Noticing improvements is still being able to have the energy to socialize - energy to play cards, talk, go to a movie, laugh, talk for hours (although sometimes that caused my symptoms to ramp up), and sit up at a table for hours (with a back cushion). All things I couldn't do even in July.
I was able to eat different foods without gas and bloating and looking 4 months pregnant. I also had clearer thinking, so I could play cards and mostly follow what was going on (I've never been big on strategy or keeping tabs on what's been played), and keep track of what people were talking about and ask intelligent questions.
Sometimes in the past, all I could do was nod my head and one time I swear my doctor was talking in Greek. I'm also not sure, but I think my photosensitivity is lowering. I really am having a harder time seeing with these glasses, but still today was very sunny and I needed 2 pairs of 2%, but it was a little hard to see. Definitely don't have the severe photosensitivity that I did at one point.
So overall, I definitely noticed the progress even with continuing symptoms, and am so very grateful to be on the MP. I absolutely know that I would have gotten sicker and sicker if I had not found the MP.
Thank you for letting me share. Thinking good thoughts for everyone on the MP. Take care,
Vikki
February 2007:
Going slow and steady and enjoying my life more now is so much nicer.
Friday I had another very good day (day 8), so feel like maybe I'm going to have more of those from time to time. Today I could tell I really needed to take my meds. I need to start paying more attention around the end of the cycle instead of defaulting. I'm still kind of a "tell me what to do" kind of person, but am learning to listen to my body better.
Most symptoms are at lower levels lately - back pain under control, tinnitis lets me know when I'm having IP reactions, tension in body, skin burning, prickly, itchy, head pressure, eyes burning, irritable, tense, lethargy - but as I said, lower levels. When they start increasing is usually on a mino day, or as I said toward end of cycle. So know I'm needing more meds, but not as hard to handle symptoms.
Two milestones - two weekends ago I vacuumed without back pain!!! And last Friday I weeded in my backyard for 1 hour at dusk and had some back pain from bending over, but by mid afternoon Sat was pretty much gone. Those are huge!!
Also wearing 40%s in house instead of 10%s, and sometimes not wearing any, sometimes 10%s for tv (sometimes add 40%, but 2%s I can't see screen), also had my husband turn up brightness on tv because it was getting so hard to see, and don't even take 2 pairs of 2%s outside anymore.
So all, in all, feeling pretty good about where I am at 19 months on MP. This time last year I was on the couch, and any sounds or even talking set off my nervous system vibrating and I felt pretty darn sick. I can't imagine where I will be next February!
Some days of moodiness. But also not having repetitive obsessive thinking as much either. Much nicer.
Sorry for going on and on, but can see the light at the end of the tunnel. I pray for everyone on the MP that they will keep progressing also.
Take care,
Vikki
March 2007:
I noticed I was losing skin pigment (vitiligo) in just little spots here and there, in the summer of 2004 on the beach in Destin (as I said pre MP) I was noticing even more loss of pigment. This has continued, but late last year I noticed the original spot from 2003 was not there anymore, so I'm hoping to regain pigment in all the other areas I've lost it in.
more: Mar 22:
Well I've been to Wisconsin and Minnesota and back and every trip continues to be easier than the one before.
As my husband says, family trips are NOT vacations - they are family visits. That's so true. It was pretty much non stop, and I was calling around to find a good doctor for my mom who will need surgery soon and I went to different hospitals to gather her medical records for the new doctor. The other good news is that I was able to do so much. A year ago, I was planted on the couch.
The first day was a 15 hour travel day, and I tolerated it pretty well, but what's interesting is that after a week of heavy visiting, and running around, I did even better on the return long travel day. Go figure!
I figure the symptoms have to come out as we stir things up and when it subsides, I will be that much healthier. Thinking good thoughts for everyone on the MP,
Vikki
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Lyme 19 yrs/back neck pain diges headaches fatigue tachycard tinnitis| Nov04 D1,25=65 D25=26/Jun07 D25 = 4 light avoid NOIRS/K cream/PH2 11/7/05/ PH3 6/8/06/probiotics/milk thistle/progesterone cream - 1/8 tsp bid/ambien/benadryl/quer prn
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drvikki
Health Professional
| Joined: | Fri Jun 24th, 2005 |
| Location: | California USA |
| Posts: | 295 |
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Posted: Thu Aug 30th, 2007 04:26 |
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Wed - Aug 29 - Well my sister came and went, and we had a great time. I used the 1/2 to 1 vicodin/ valium/ and 25 mg mino whenever I would feel my symptoms start to flare - burning skin, hot flashes, chills, back pain, chest pressure and burn, nausea, feeling stressed, anxious or overall pressure buildup, pins and needles especially in legs or upper lip, earache, or neck pain. I used more then I do on a regular day, but knew it would only be for 3-4 days. I'm grateful that it worked so well.
We did some shopping, I drove and she crated things to donate to a women's shelter, the library, returned Reddi Shades that I bought last year and bought too many, organized my closet, potted plants and trimmed trees, and cleaned up the "side yard" (does everyone have an area they throw everything that we don't see but know is there?) She was amazing. It was also amazing to me to know I once had that kind of energy and stamina. I will again. We also had some very nice talks. Sometimes in the past, I felt so sick I could barely talk, let alone visit for hours.
The hardest part of our visit was discussing my mother's health situation, etc. I found myself shaking with the emotion and stress. I did better out in the sun or shopping. I keep remembering what Dr. Marshall said that the MP helps us to deal with stress better. It's not just that stress flares our symptoms - it's one of the REASONS for our not handling stress well. I must be in the midst of that part of clearing the MP now, because I'm not doing well with stress lately. As a matter of fact I'm going to go breathe right now.
Overall, managing tolerably. I'm so grateful that I was able to have company, and do so many things. It definitely shows progress. A year ago I couldn't have imagined having anyone in my house. As they say - progress, not perfection.
Thanks for letting me share,
Vikki
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Lyme 19 yrs/back neck pain diges headaches fatigue tachycard tinnitis| Nov04 D1,25=65 D25=26/Jun07 D25 = 4 light avoid NOIRS/K cream/PH2 11/7/05/ PH3 6/8/06/probiotics/milk thistle/progesterone cream - 1/8 tsp bid/ambien/benadryl/quer prn
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