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LH1953
Member in Phase 3
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Posted: Sat Dec 9th, 2006 21:28 |
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neuro immunopathology and sensation returning:
I had intense skin pain yesterday. Much burning, pricking sensation. Took extra M 25, this calmed it down. Getting more electric shock sensation along my left side of my left thigh. This has been numb since 2002, after hysterectomy.
My finger tips have more sensation as well. I have a less tolerance to pain in general all over all of my body. I am feeling sensation more everywhere. Almost as if I had been numb before.
This whole process is just absolutely amazing. After 4 years of getting NO WHERE with Lyme treatment except ill, then drug induced hepatitis, this is saving my life. I know I have a long way to go yet, but at least I know that for everyday I do the MP, it is another day towards better health. This is for something, it is for the Brass ring on the merry go round. Only this case, a golden ring.
The MP has given me a second chance in life, with hopes of seeing my last child grow up. My health took a nasty turn during her pregnancy. She no longer has the fear of me dying. She slept wth me for so long of fear from this. My husband used to hate going into the bedroom to check on me of fear what he would find.
I had been ill for 14 years before the MP. The last 4, with 4 near death experiences before I started the MP. Now, we all know that as sick as I can get, it is under control and tolerable, and I am not going to die from the MP. The MP has improved my quality of life in just 16 months. I still may have to stay in the house, but there is a sense of quality that I have not had in years.
The better I feel, the more I see and understand just how ill my husband is getting. He of course, is in deniel. My 14 year old daughter has always had signs of the TH1. I suppose I gave her through pregnancy. Since Aug. of this year alone, she got a cold when started school. Then 5/6 weeks later, another cold with ear infection, 5/6 weeks later strep throat then a cold. This June, she went to the beach with friends for 3 hours, it took her 3 weeks to recover from the sun exposure.
For so many years I had to prove to my family that I was REALLY sick. That it was not just "in my head". Now I struggle to show them what is going on with their health. At least I know when the time comes that they accept it, the MP will be there for them. I have a 29 year old who suffers from migraine. She is always not feeling well. Last year, she had 8 kidney stones, 5 on one side and 3 on the other. My 26 year old has constant colds, now she is on her 3rd ABX for a sinus infection. This is all fustrating for me to watch, but this is all I can do. They thought I was crazy for years, now, I preach to them about what the MP can do for them. I suppose all in time.
Wishing everyone a VERY HEALTHY YEAR ahead. I know I have a long way to go on my journey through the MP, but it is SO WORTH it. As I have said before, I no longer feel like I am going to die, but, I am still far from "normal". The quality of life I have in my house is refreshing!
Take Care, Lori
January 2007:
I just had a wonderful night. I left the house and drove by myself to the mall. We live 5 minutes away. I was there for 2 hours!!!!! My lungs are burning, but I did not loose my voice!!!!! My MCS was in check tonight. My light issues were good as well. This is a first for me since I started the MP in Aug of 2005. I feel like baby steps, and growing up all over again. Forever grateful.
see also
LH1953/Lori:
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Lyme, MCS, IC, asthma, reflux, UC, osteopenia, hypothy, EBV, 1,25D48, MP 8/05, alupent inhaler, PBX, diazepam, fioricet, Ph3 7/06, NoIRs, limited outings covered up, low lux home, 25D4, 1,25D24
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LH1953
Member in Phase 3
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Posted: Tue Aug 28th, 2007 05:32 |
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I have been on the MP for 2 years. In this short time, I have seen so many changes. The MP site is constantly improving and growing to help our needs.
I for one am not able to do too much reading on the computer, as this is a trigger for me. In the past week, I have tolerated reading more so then usual, due to my need of adjusting ABX dosing.
It is AMAZING how much MORE specific info. there is, and "directions" to simplify the use of this MP site. The efforts of ALL involved with this continuous updated MP site is greatly appreciated.
I could not let ALL your hard work go unrecognized!
Forever grateful, Lori
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Lyme, MCS, IC, asthma, reflux, UC, osteopenia, hypothy, EBV, 1,25D48, MP 8/05, alupent inhaler, PBX, diazepam, fioricet, Ph3 7/06, NoIRs, limited outings covered up, low lux home, 25D4, 1,25D24
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LH1953
Member in Phase 3
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Posted: Thu Jan 17th, 2008 09:43 |
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Every month when something else is off, there is TOO much stress put on abnormal labs, and not how I have made progress. I am going to go by HOW I FEEL for the next few months. With all the new documents you have about kidney, etc. I will bring to my doc which will make her feel better.
BTW, is the best I have felt in 7 years. I know I am headed in the best direction then ever before. I have come a long way in the 2 1/2 years on the MP, with no success with any other treatments, the for the 4 years before the MP.
BTW, this has been the SAFEST TREATMENT I have been on.
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Lyme, MCS, IC, asthma, reflux, UC, osteopenia, hypothy, EBV, 1,25D48, MP 8/05, alupent inhaler, PBX, diazepam, fioricet, Ph3 7/06, NoIRs, limited outings covered up, low lux home, 25D4, 1,25D24
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Joyful
Board Staff
| Joined: | Sat Jun 9th, 2007 |
| Location: | Rest-Ville |
| Posts: | 1049 |
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Offline
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Posted: Fri Jan 18th, 2008 05:26 |
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Right on Lori.
Sometimes it just seems like all the testing causes more trouble.
I'm trying to decide if I should point out my significant hair loss to my HMO doctor in a couple of weeks. It would help him to justify more tests, but then I will have to live with his response to the test results. Quite the dilemma.
Good thing he does understand that this protocol is very safe. He didn't even get ruffled when the blood pressure went low. (He must have actually read the guidelines!)
Before the MP, I just couldn't justify trying any of the other Lyme protocols. Not only because of the cost and relapse rates, but because the high doses just didn't seem safe to me.
 I think we are in the right place to get well, my friend.
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Lyme?1980 Lyme/Babs/Bart?05 CFS?06 | Start 125D(50) 25D(32) Jun07 | Ph1Jul07 ModPh2Sep07 Ph2Feb08 Ph3Aug08 | Latest 25D(9) Apr09 | ABC of MP
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LH1953
Member in Phase 3
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Posted: Wed Sep 17th, 2008 07:25 |
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Posted: Mon Sep 15th, 2008 00:43
MUCH JOY!!!!!
My journey on the MP has been a long hard road, with rewards beyond my imagination. I have not been able to up my ABX very well in the past 3 years doing the MP. BUT I have progressed in a forward direction. My marathon is a work in progress. I am home most of the time, going out about once a week. I have a quality of life in the house.
Yesterday was my youngest daughters 16th birthday. We celebrated with a party for her. NEVER in my wildest dreams did I ever think I could have done what I experience last night. I took Benicar 40 mg every 4 hours and 20mg twice in between. I needed a total of about 10mg diazepam and 1 full fioricet (taking 1.25 diazepam as needed with 1/4 fioricet) for the duration. I am very medication sensitive, so I kept taking small doses as needed.
The party was at night, a plus for me! There was LOUD music, flashing lights, etc. I DANCED, room was dim so, no hat or Noirs. I felt like a real person for the first time in 10 years!!!!!
I adjusted my ABX, which helped, along with the diazepam and fioricet. For all of you doing the MP, HANG in THERE. I cannot tell you the joy I feel in my heart to have had such a memorable night with my family. I slept most of today, but am doing OK tonight.
It was just 2 1/2 years ago that she had her Bat Mitzvah. I was able to attend that, but was barely able to function, ( it took a week to recover). I am not that person any longer, nor the bed ridden one who first started the MP. As I have said in the past, for me I am superwomen, but still very far from normal. Never expecting to still be here at all. I was waking up each day waiting to die, now knowing I am going to live.
Words are not enough to express what I feel the MP has given to me. All my love to all of you who have made this possible, OX, LoriLast edited on Wed Sep 17th, 2008 07:27 by LH1953
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Lyme, MCS, IC, asthma, reflux, UC, osteopenia, hypothy, EBV, 1,25D48, MP 8/05, alupent inhaler, PBX, diazepam, fioricet, Ph3 7/06, NoIRs, limited outings covered up, low lux home, 25D4, 1,25D24
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LH1953
Member in Phase 3
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Posted: Sun Oct 12th, 2008 03:21 |
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Posted: Sat Oct 11th, 2008 20:18
Thanks MP!!!!!
I have spent this past week being the care giver for my husband. This is a switch. He developed severe swelling and intense pain in his right knee, leaving him unable to care for himself. I have been taking him to ER, several doctors and labs for tests.
It has been hard, BUT I have had the ability to do this!!!!! I have been driving every day, doing the food shopping etc. I almost feel like a "normal" person, doing everyday activities. EXCEPT, my MCS, Asthma has been a challenge. Brain fog does set in upon exposures, BUT nothing as intense as the old days. I stop and rest, and recover within 10 minutes.
The supermarkets here all have fragrant decorations for the holidays, this is very offensive for my MCS. OH well, it is that time of year.
Six months ago I could have NEVER done what needed to be accomplished this past week. I still am able to tolerate only TINY doses of ABX, so if you think only high ABX doses are need for MP progress, think again.
Always forever grateful, LoriLast edited on Sun Oct 12th, 2008 03:23 by LH1953
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Lyme, MCS, IC, asthma, reflux, UC, osteopenia, hypothy, EBV, 1,25D48, MP 8/05, alupent inhaler, PBX, diazepam, fioricet, Ph3 7/06, NoIRs, limited outings covered up, low lux home, 25D4, 1,25D24
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Dr Trevor Marshall
Research Team
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Posted: Sun Oct 12th, 2008 03:23 |
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LH1953
Member in Phase 3
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Posted: Fri Feb 6th, 2009 22:14 |
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The MP has changed my life in ways that I never thought could be possible.
My second chance, my "do over" is still a long hard journey.
To all of you who think you can't do another step on the MP, let me remind you that I was bed ridden, sleeping 18 hours a day, unable to have any quality of life before the MP.
It has been 3 quick years of only being able to tolerate tiny doses of ABX, but my strides have been incredible!!!!!
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Lyme, MCS, IC, asthma, reflux, UC, osteopenia, hypothy, EBV, 1,25D48, MP 8/05, alupent inhaler, PBX, diazepam, fioricet, Ph3 7/06, NoIRs, limited outings covered up, low lux home, 25D4, 1,25D24
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