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Meg Mangin R.N.
Research Team
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Posted: Fri Dec 17th, 2004 04:02 |
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Dear Dark,
You brought back memories of burning eyes even with NoIRs when at the computer. Now, I'm on it for hours a day without any eye protection (although it's turned way down) and my eyes feel fine.
The bright lights affect your eyes, not your skin. The cells in your skin produce 1,25-D from any sunlight that is bright enough to grow a plant. So I think you can put that welder's mask away but I applaud your commitment.
Thanks for sharing your hard-learned experiences with sun/lights exposure.
Best,
Meg
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GeorgeinRollaMO
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Posted: Sat Dec 18th, 2004 23:52 |
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Day 107 on Benicar, q6h, Dec 17, Day 73 since start of Mino
Good day, no flare, no herx, kept out of light.
Day 108 on Benicar, q6h, Dec 18, Day 74 since start of Mino
3:15PM 90/51/87 right after rushing around house doing chores; too soon.
8:30PM 119/57/62 Took 12.5 mg of Mino at 3:05PM
Arose at noon, felt relatively good, no flare, no herx by 3:OOPM. Keeping out of light. Bedroom is very dark, with special padding over windows, and even foam-insulation tape in door cracks to keep light out. Decided that a lot of my trouble in thinking that I was herxing real bad in the past was as some of you indicated to me, that I was combining a herx of some intensity with lots of hormonal flare. So, what with keeping my light exposure to a minimum now, I doubled my mino today at 3:05PM. Around 8:30PM, I felt a little bit different, like maybe I am experiencing a very mild herx. Too subtle to really tell what is going on. Will wait for more time passage to see if I can discern what it is that I am experiencing. 
I am still experiencing the leg spasms at night. About every one and a half hours. I can almost set my clock by the regularity. But they do NOT seem to be as severe as some time back. Will be happy when I can sleep the night through without them!
The best to all!
Dark Vader
You know that you are getting old, when everything either dries up, or leaks.
____________________
Borreliosis:7/14/04--125D=57,25D=61. Ben 9/1/04. Mino 10/5/04. 4/13/05--125D=58,25D=43. 8/17/05--125D=52,25D=36. April 06=125D=38,25D=29. 8/29/06--125D=37,25D=29. June 07 25D=23. Oct31'07,25D=19.
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Reenie
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Posted: Sun Dec 19th, 2004 15:59 |
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Hi Dark,
I'm so glad you're finally "seeing the light," about the light! 
You will definitely do much better by decreasing your light/sun exposure.
PS - Although at the time, it seems like it takes forever for the sensitivity to go away, your tolerance to the light WILL gradually improve as you're able to progress thru the MP. First things first.
I'm finally beginning to experience less sensitivity, at times. 
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GeorgeinRollaMO
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Posted: Mon Jan 3rd, 2005 01:56 |
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Happy New Year! to all!
Day 109 on Benicar, q6h, Dec 19, Day 75 since start of Mino
11:10PM 111/59/78
Arose at 11:45AM. Felt good, but a little dizzy like maybe I am having to deal with some toxin. But only very mildly.
Day 110 on Benicar, q6h, Dec 20, Day 76 since start of Mino
7:15PM 107/54/67 Took 12.5 mg Mino at 7:05PM
Arose at 8:30AM. Felt the best that I have felt in a long while. No flare, no herx. Eyes only very little bit affected by 11:00AM.... staying out of light. Felt relatively good all day, up until 7:00PM, at least. No flare, no herx.
Day 111 on Benicar, q6h, Dec 21, Day 77 since start of Mino
Arose at 5:30AM to drive two hours to appointment with LLMD. Had no discernible flare, nor herx. No eye buring.
Day 112 on Benicar, q6h, Dec 22, Day 78 since start of Nino
Took 19 mg Mino at 4:15PM
Arose at noon. Felt good. However, last night was a hell night of severe leg muscle spasms. Legs still hurt upon arising. I wonder if my having a few glasses of white wine last night had anything to do with the spasms.
Day 113 on Benicar, q6h, Dec 23, Day 79 since start of Mino
12:20PM 118/53/71
Arose at 8:45AM, feeling a little sluggish. By noon, felt like I could be herxing, something definitely going on with my body. I felt rather lousy, like I wanted to be left alone. I did not want to deal with any problems. Somewhat dizzy. Felt as though I could go to sleep, but felt too excited. Legs spasms were reduced from the previous night's experience of severe ones.
Day 114 on Benicar, q6h, Dec 24, Day 80 since start of Mino
7:25PM 131/65/66
Arose at 10:30AM, feeling good but energy petered out. Dragged through out the day. Might be still herxing? Got ready to go out for the evening, but while waiting for DW to get ready, fell asleep in a lounge chair. Did not go out for the evening. Instead, slept from about 8:30PM until about 11:30PM, when I had a very strong hot flash, without the sweats. I then had insomnia until 4:30AM.
Day 115 on Benicar, q6h, Dec 25, Day 81 since start of Mino
12:20PM 112/62/79 Took 20 mg Mino at 3:30PM
Arose about 10:30, feeling fairly good.
Day 116 on Benicar, q6h, Dec 26, Day 82 since start of Mino
1:35PM 137/56/67
Arose at 10:00ishAM, feeling good until 12:15PM, when the herx arrived. Had to lay down, but fifteen minutes later when I had the chance to take it, the Bp was good. Felt like someone had passed me a "mickey" or a sleeping pill of some type. Went to bed early in the evening for two and a half hours, but then had insomnia for four hours.
Day 117 on Benicar, q6h, Dec 27, Day 83 since start of Mino
Took 20 mg Mino at 4:00PM
Arose about 10:00AM, feeling decent. But then my leg neuropathy seemed to be worse today.... legs felt very heavy. Dragged from about supper until 9:00PM when I gave up and went to bed.
Day 118 on Benicar, q6h, Dec 28, Day 84 since start of Mino
Arose at 7:00AM. Had errands to do until 12:30PM. Felt as though I was herxing somewhat. Slept for two hours in late afternoon. Herx ended with end of nap. Felt ok after.
Day 119 on Benicar, q6h, Dec 29, Day 85 since start of Mino
2:50PM 114/50/67 Took 25 mg Mino at 9:00PM
Arose at 7:00AM. Did errands but mostly of an inside nature. Felt good, but not well. Then, was outside from 3:00PM until dark. Was tired at end of day, but no herx or hormone flare. Lower legs did feel rather heavier than usual.
Day 120 on Benicar, q6h, Dec 30, Day 86 since start of Mino
Felt as though I was both herxing and having a hormone flare together. But is hard to dodge things that need to be done.
Day 121 on Benicar, q6h, Dec 31, Day 87 since start of Mino
Felt as though still herxing mildly but by noonish, definitely could tell that I had hormonal flare. Had to be on errands from 9:00AM until 1:30PM, which were mostly outside. I had to take a nap from 2:30PM until 3:30. Then went to supper at a restaurant with friends from 5:30 until 8:30PM. By 7:30 PM, my lower legs were very heavy feeling. I was asleep by 9:15PM. Woke by alarm at midnight for Benicar. Could not get back to sleep until 4:00AM, then slept until 9:15AM. Felt as though I had a good night's sleep upon awakening. Only one very mild tendency to leg spasm, all of night.
Day 122 on Benicar, q6h, Jan 1, Day 88 since start of Mino
5:00PM 123/50/85 Took 25 mg Mino at 4:30PM
No real leg spasm last night, only one tendency to spasm which did not materialize. Had an OK day today.
Day 123 on Benicar, q6h, Jan 2, Day 89 since start of Mino
7:25PM 131/63/69
Arose at 10:30AM, with a good night's sleep. No lower leg spasm again. Only one tendency to spasm which did not materialize. Felt like I was herxing mildly. Napped from 2:00PM until 4:30PM. No hormone flare.
It does seem that my nocturnal lower leg spasms are easing up somewhat since my severe night of Dec 21. And while I still have my neuropathy in my feet, I do not seem to have the feeling of walking on hot charcoals that I had before starting the MP. I am getting some small encouraging signs that the MP is starting to work. Generally speaking, this last week has been a moderately good one. I can take this until I am better. I have made a New Year's resolution of getting less light. Hormone flares are no fun!!! I hope that I can succeed with that resolution. Life seems to keep throwing curves that slows my progress! As Reenie said, "Hormone flares make me very moody and grouchy!!!" and that is me when I get much light.
Good herxes, and, no flares, to all!!!
Dark Vader
____________________
Borreliosis:7/14/04--125D=57,25D=61. Ben 9/1/04. Mino 10/5/04. 4/13/05--125D=58,25D=43. 8/17/05--125D=52,25D=36. April 06=125D=38,25D=29. 8/29/06--125D=37,25D=29. June 07 25D=23. Oct31'07,25D=19.
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GeorgeinRollaMO
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Posted: Wed Jan 5th, 2005 00:04 |
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Day 124 on Benicar, q6h, Jan 3, Day 90 since start of Mino
6:20PM 128/65/62 Took 25 mg Mino at 5:20PM
Awoke at 9:35AM. Good sleep! No leg muscle spasms -- only one tendency to a spasm that did not materialize. Could stretch legs while laying in bed after awakening... a first in a long while!  Arose and felt fairly good. Not well though. Took mino at 5:20PM. By 9:00PMish had turned into Mr Hyde from Dr Jekyl (or is it the other way round?). The herx that snuck up on me changed my personality rather big time!!! I became real grouchy!!!!  Feel sorry for DW!  Took a nap from 10:00 until the alarm at midnight for Benicar. Then, could not sleep until close to 4:00AM.
Day 125 on Benicar, q6h, Jan 4, Day 91 since start of Mino
9:05PM 114/58/80
Awoke around 9:00AMish. Arose about an hour later. Had two sets of leg muscle spasms of light to moderate intensity near the end of my sleeping. Rest of day was uneventful. Did not feel any herx. Stayed in the dark, or, near dark. Was a little sluggish, not really energetic throughout the day. But I felt no herxing, nor, hormone flare.
Before I started the MP, my feet felt like they were walking on hot charcoals if I were on them for anything over twenty minutes. That is gone today! I still have neuropathy in my feet and lower legs, but it is not as bad in my feet as previous. I think that I am making slow headway on the MP. I had endured two spine operations in September '02 to relieve compression on my spinal column that the learned docs thought was causing the "hot charcoals", etc. But after one and a half years of waiting for it and the nocturnal leg spasms to go away, they hadn't. Now, roughly six months (from start of getting off of vitamin D and light) of doing the MP, I am seeing progress.
Oh, the dizziness that I use to experience when coming up from a bending over position to the upright after starting Benicar is not as pronounced now. Not totally gone, but much better.
I hope that I have not talked too fast on these good matters!
First time in my life that I like "being in the dark"!
This New Year is off to a good start! Hope that it is for you, too.
Dark Vader
____________________
Borreliosis:7/14/04--125D=57,25D=61. Ben 9/1/04. Mino 10/5/04. 4/13/05--125D=58,25D=43. 8/17/05--125D=52,25D=36. April 06=125D=38,25D=29. 8/29/06--125D=37,25D=29. June 07 25D=23. Oct31'07,25D=19.
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GeorgeinRollaMO
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Posted: Fri Jan 7th, 2005 04:15 |
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Day 126 on Benicar, q6h, Jan 5, Day 92 since start of Mino
Took 37.5 mg of Mino at 5:20PM
Awoke at 8:00AMish. Had one set of leg spasms during sleep and then another at awakening, which is what awoke me. Then had the legs wanting to go into spasms while laying on back in bed. Arose about 9:15AM. Not bad feeling, and as day went on, I seemed to pick up energy. About 5:15PM, I seemed to start feeling affects of not sleeping enough last night. Legs are somewhat heavy feeling and achy. Feel clear headed, not foggy-brained. Went to bed around 9PMish, slept until 11:30PMish. Took midnight Benicar, then stayed awake until 2:30AMish. I felt like a herx was starting when I went to bed at 9PMish.
Day 127 on Benicar, q6h, Jan 6, Day 93 since start of Mino
Awoke initialling at around 8AM. Napped off & on until I arose at 10:15AM. Had numerous BAD leg spasms until I finally got up. Dragged during the day. Felt like I was experiencing a good herx. Napped from 4PM until 6:30PM, but had a number of leg muscle spasms. Legs calves hurt during the day... achy, from being too tight during the spasms. Still felt that I was herxing until about 10:30PMish. I became somewhat "wired" after that until now at about 2:00AM.
I was having good luck with the leg muscle spasms at night from Dec 22 thru Jan 3's night. Even had three nights of no spasms. But knew that if I reported that, the spasms would return, and they did the last two nights. I feel that everything was held the same during that time. No big "light" excursions. But I did increase my mino during that time.
Today's herx was a somewhat strong one, but nothing that I could not stand knowing that those buggers were dying off. It did interfere with my wanting to do anything. I just mooped around the house, until nap time. But the temperature outside was around twenty, and light snowing, so was a great day for staying inside anyway.
Dark Vader
____________________
Borreliosis:7/14/04--125D=57,25D=61. Ben 9/1/04. Mino 10/5/04. 4/13/05--125D=58,25D=43. 8/17/05--125D=52,25D=36. April 06=125D=38,25D=29. 8/29/06--125D=37,25D=29. June 07 25D=23. Oct31'07,25D=19.
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lab99
inactive member
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Posted: Fri Jan 7th, 2005 05:51 |
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Hi Dark,
I wanted to tell you about some exercises that my Rheumatologist gave me to do before bed when I mentioned to him that I was having feelings of imminent calve and foot spasms hitting. I have had luck ever since then with pretty much no sign of impending spasms (hope I didn't just jinx myself). Anyway, not sure if it all just subsided, or if these exercises have been the main cause. Perhaps you are already doing something like this, but just in case....
I hope I can explain this so that it makes sense. Directly before getting in bed for the night, I do the following. Facing wall, place forearms flat against wall, feet flat on ground with rear end/thighs pushing outward. If you do this right, you should be feeling a stretching in your calve muscles. Hold for 15 seconds. The second half of the exercise is to remain in the same position except now lean inward twoard the wall to where the weight is off your heels and more on the balls of your feet and forearms. Don't really roll onto the balls of your feet, try to keep your feet fairly flat, just shift weight forward off heels. Hold for 15 seconds. Again, you should feel the stretch in your calves. It also apparently helps for the feet too. My doc referred to these as 'passive' stretches that are designed to help with this particular situation.
Again, if I haven't just jinxed myself  these have apparently worked quite well for me. I continue to do them every night even though I don't seem to have problems anymore. My muscle tension never reached the full spasm level, but hopefully these give you some relief.
Best of luck,
Lisa
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Sjogren's/Hashimoto's/CFIDS/Hypoglycemia/PCOS/C Pneum
Unithroid 50mcg/Cytomel 5mcg
9/27/04: 1,25D-78.9/25D-24.6 10/30: Ben 6hr 12/13: 1,25D-43/25D-14 1/24: P2 3/14: 1,25D-39/25D-9 6/27: 1,25D-31/25D-5 P3 11/22: 1,25D-17/25D-5.9
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GeorgeinRollaMO
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Posted: Fri Jan 7th, 2005 14:22 |
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Hi, Lisa,
I am an old jogger, having jogged for about eleven years. I used the jogger's variation of that... pushing against the wall at a sixty degree angle with the feet flat. I got inconsistent results. It felt good while doing it, but did not always stop the spasms. I still do them almost every day just to make the tired muscles feel better. I really believe it is caused by the imbalance in the calcium/magnesium due to resorption due to the high 125D. You might see my explanation at the link question by Mark (mtl ?) about using magnesium with the MP. I have even used the bar of soap under the bedsheets as suggested by Dr. Peter Gott, MD, in his syndicated column trying to alleviate them. I might just try your variation!
Thanks for your thought of wanting to help me! Hope that you have not put the jinx on yourself now by talking.
Dark Vader
____________________
Borreliosis:7/14/04--125D=57,25D=61. Ben 9/1/04. Mino 10/5/04. 4/13/05--125D=58,25D=43. 8/17/05--125D=52,25D=36. April 06=125D=38,25D=29. 8/29/06--125D=37,25D=29. June 07 25D=23. Oct31'07,25D=19.
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GeorgeinRollaMO
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Posted: Sat Jan 8th, 2005 01:14 |
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Day 128 on Benicar, q6h, Jan 7, Day 94 since start of Mino
10:45PM 124/59/80
Awoke at 9:15AM, arose at 10:15AM. Leg spasms diminished for this night's sleep, but still there. Seemed to be mildly herxing all day today. Had no interest in doing anything. Napped from 4:30PM until 6:30PM. Stayed indoors with little light all day, as is usual now that I have made my New Year's resolution.
Life is nicely quiet!
Dark Vader
____________________
Borreliosis:7/14/04--125D=57,25D=61. Ben 9/1/04. Mino 10/5/04. 4/13/05--125D=58,25D=43. 8/17/05--125D=52,25D=36. April 06=125D=38,25D=29. 8/29/06--125D=37,25D=29. June 07 25D=23. Oct31'07,25D=19.
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GeorgeinRollaMO
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Posted: Sun Jan 9th, 2005 20:12 |
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Day 129 on Benicar, q6h, Jan 8, Day 95 since start of Mino
9:10AM 103/58/66 10:05AM 110/61/67
9:25PM 138/67/80
Awoke & arose at 8:30AM. Felt unusually dizzy in morning. I wrote the following for another string:
To drive the point home even more about light, I will relate to you that I had to be on the highway today driving one and a half hours one one way to my destination with snow covering all areas around me, except the highway itself. The sky was thick overcast, but light was still coming through, and reflecting off all of that snow. I wore NoIRs on top of my regular RX sunglasses, and covered up with a thick, black turleneck to the chin, plus my black Aussie cowboy's hat, and wore leather gloves. There was very little skin exposed. About four hours after I had started driving, and was in my meeting, I was definitely having a hormone flare, and was both miserable feeling and very grouchy. I would never have been able to compete physically in anything. I was almost not able to handle myself in that meeting with the decorum that was needed. Anticipating going to that meeting, I had taken my last mino sixty-six hours previously, so that I know it was not a herx.
I napped on the way home with my DW driving. I definitely had a hormone flare. Wow! I made myself stay up unitl the midnight Benicar, then crashed.
Day 130 on Benicar, q6h, Jan 9, Day 96 since start of Mino
12:50PM 92/51/72
Awoke and arose at noon time. Had very little trouble with leg spams, thankfully, last night. Did try some of Lisa's stretching. Might have helped! Will continue, and report. Did not want to get up, but thought of my parrots that needed to be fed, and forced myself to get up. Dragged the first few hours, but then found some energy. Doing ok at 6:00PM. Will delay Mino until tomorrow to allow my 125D hormone to stabilize from yesterday.
Dark Vader
____________________
Borreliosis:7/14/04--125D=57,25D=61. Ben 9/1/04. Mino 10/5/04. 4/13/05--125D=58,25D=43. 8/17/05--125D=52,25D=36. April 06=125D=38,25D=29. 8/29/06--125D=37,25D=29. June 07 25D=23. Oct31'07,25D=19.
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Aussie Barb
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Posted: Sun Jan 9th, 2005 20:17 |
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George
just checking on you... when you feed those Parrots? you are not exposed to light are you?
it doesnt take much.. keep up the good work...
wishing you all best wishes as always, Barb ....
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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Reenie
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Posted: Mon Jan 10th, 2005 23:41 |
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Hi Dark, or should I say "Light," this time? (after reading post)
Have you tried dosing Benicar q4h whenever you know you have to be out in the light such as Drs appts, driving, etc? I used to use that and it worked like a charm, for me. I haven't seemed to need to do this in awhile since I'm not quite as sensitive and I'm not out much anyway, although I would use it again, if need be.
You would time your Benicar dosing so that you've taken it within the first hour of exposure, then take it q4h until 12 hrs AFTER your last sun/light exposure. It really helps to minimize the hormonal flare/fluctuation.
You can also try increasing your Benicar after the fact, but it takes a couple of days to get over it once it's already flared, I'm afraid. 
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GeorgeinRollaMO
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Posted: Tue Jan 11th, 2005 23:41 |
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Day 131 on Benicar, q6h, Jan 10, Day 97 since start of Mino
2:10PM 114/58/77 Took 37.5 mg Mino at 4:20PM
Had insomnia until about 3:30AM. Slept until noon time. Very little trouble with leg spasms. Hope that it continues. Feeling good after arising. Hormone flare seems to have passed. Got real sleepy around 9:30PM but fought giving in until midnight Benicar.
Day 132 on Benicar, q6h, Jan 11, Day 98 since start of Mino
In spite of fighting the urge to go to sleep, I had insomnia until around 2AM. But then slept until noon when DW telephoned me. Dragged remainder of day. Definitely herxing!!! Not so bad that I cannot take it. Just do not want to do much of any thing. Leg spasms were moderately bad last night, but that might have been influenced by the two glasses of French red wine that I had around 8PM. I guess that I should have drunk California wine! I napped in early evening for a half hour--- just couldn't keep my eyes open any longer. No wine today, for sure!!!
Oh, Barb! The parrots have their own room inside of the house, but which we share with them for TV and naps on the sofa. While waking up from a nap recently, just as it was getting dark, I heard the male, Jake, say, "Goodnight, Elm" and "Goodnight, Clyde" to the two females. They all ruffled their feathers, then were quiet, until I go up. They are really like having two or three year old children around.
Reenie, thanks for the suggestion about taking extra Benicar. I did take extra some time previously but not as much as you suggested. I will try that next time I have to venture out. Thanks!
Dark Vader
____________________
Borreliosis:7/14/04--125D=57,25D=61. Ben 9/1/04. Mino 10/5/04. 4/13/05--125D=58,25D=43. 8/17/05--125D=52,25D=36. April 06=125D=38,25D=29. 8/29/06--125D=37,25D=29. June 07 25D=23. Oct31'07,25D=19.
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GeorgeinRollaMO
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Posted: Fri Jan 14th, 2005 15:37 |
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Day 133 on Benicar, q6h, Jan 12, Day 99 since starting Mino
11:45PM 101/57/68
Went to bed right after midnight Benicar, but layed awake until after 1:00AM. Awoke at 7:00AM for Benicar. Did not go back to sleep after. Arose about 9:00AM. Wanted to stay in bed, in the darkness. Felt fairly good. I think the herx might have started to dissipate around 10:00PM last night. Alerted to deep cold weather coming, and the animal water trough heater was not working during the last deep freeze. I had to break cave-dwelling to take care of the problem. Was exposed somewhat for about three and a half hours... face and hands, and whatever came through my clothes. Had a very, very strong "going to faint" feeling once when arising from a squatted position while working on the heater element. Had to hold onto the fence right there. I had already been exposed to light something over an hour or more by that time. Also, had two other same type, but not as strong, such episodes. Forget which came first.
At 9:00PM started to experience a hormone flare, or just tired from busier day than most and lack of sleep last night... hard to tell. But did go to q4h with the Benicar, counting from noon, to help offset the light problem. My best guess is that it IS helping the situation... but not totalling. (Thanks, Reenie!) Midnight Benicar and then to bed. Went to sleep fairly soon.
I decided to skip mino today as to not have a two-fer... herx and flare at the same time. Wise decision in hindsight!
Day 134 on Benicar, q6h, Jan 13, Day 100 since starting Mino
10:15AM 115/54/71 Took 37.5 mg MINO at 8:45PM
Took an extra Benicar at 4:20AM when awakened by a moderate strength leg spasm. Did have a number. six or less, of moderate leg spasms during the night and when awakening. Awoke & arose at 8:00AM for a Benicar. (Did a noon Benicar and six PM to get back on track with q6h.) Sluggish, felt like I was still having a hormone flare most of early day. Kept feeling like I wanted to nap, but didn't, most of day. Flare was clearing by early afternoon. Decided to take mino this evening. Feeling tired by 10:00PM. Took midnight Benicar and went to bed.
Day 135 on Benicar, q6h, Jan 14, Day 101 since start of Mino
12:35PM 105/52/70
Awoke by alarm for Benicar at 7:00AM, and finally arose at 9:00AM. Had a better night's sleep last night. Only two sets of light-to-moderate leg spasms during the night and none upon laying in bed and stretching my legs. Felt good this morning! Thought that I would be herxing, but up until 1:00PM no real hint of a herx. At that time, I am getting a little bit of that "poisoned", nerves on edge, feeling that I associate with a herx. I wish this was what I felt always for a herx, and could tell always. Maybe, I should not speak too soon.
Dark Vader
I was swinging my parrot, Jake, on an old leather slipper, when about a foot off the floor, he took a swipe at biting my finger (I think that this is a parrot's way to say thanks!), so I dropped the slipper and him. He landed on his back, with the slipper on top of him. He scrambled into an upright position, looked at me, and said, "Ow! that hurt!", as distinctly as you would have said it.
Last edited on Fri Jan 14th, 2005 15:42 by GeorgeinRollaMO
____________________
Borreliosis:7/14/04--125D=57,25D=61. Ben 9/1/04. Mino 10/5/04. 4/13/05--125D=58,25D=43. 8/17/05--125D=52,25D=36. April 06=125D=38,25D=29. 8/29/06--125D=37,25D=29. June 07 25D=23. Oct31'07,25D=19.
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GeorgeinRollaMO
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Posted: Sun Jan 23rd, 2005 01:43 |
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Day 136 on Benicar, q6h, Jan 15, Day 102 since start of Mino
8:30PM 103/55/66 Took 37.5 mg of Mino at 8:15PM
Fairly easy night with the leg spasms. Slept until noon when awoke by alarm for noon Benicar. Was very sluggish for the first hour. Then, ok, for rest of day. Was able to get some to-do's done the rest of the day. Felt stabilized, so took 37.5 mg of mino. Feft like I wanted to go to bed at 10:45PM but stayed up to midnight Benicar.
Day 137 on Benicar, q6h, Jan 16, Day 103 since start of Mino
3:55PM 130/58/63
Went to sleep about 00:30AM. Slept sound until 4:20 when I had to go pee. Fell right back to sound sleep until alarm for Benicar at 7:00AM. Then, layed awake until about 9:00AM, when I fell asleep again until 10:15AM when awakened by the FIRST lower leg spasm of short duration and light to moderate intensity. Fell asleep after this until alarm at noon. While still laying in bed, I stretched my feet and triggered a light spasm which went away as soon as I got up. This is an improvement! Feeling like something is going on within my body....slightly groggy and slightly dizzy.... still at 2:00PM. I will wager it is a mild herz! Feeling continued through evening. Felt like going to bed around 10:30, but dawdled, and woke up. Got to bed about 1:00AM.
Day 138 on Benicar, q6h, Jan 17, Day 104 since start of Mino
Did not fall asleep to about 3:00AM. Drank three very large glasses of liquid for supper, and that had its bad affect... up often to go to john. Awoke at 5:55AM with a mild to moderate lower leg spasm, but it left as soon as I stood up. Went back to sleep until about 10:00AM. No more spasms! Is this a new day dawning? Two days and nights in a row. Also seems as though my neuropathy in my feet is less. Feeling somewhat energetic at 1:40PM. Will pass on mino this evening due to house guests coming tomorrow afternoon for a spell.
Day 139 on Benicar, q6h, Jan 18, Day 105 since start of Mino
Leg spasms were reduced again.
Day 140 on Benicar, q6h, Jan 19, Day 106 since start of Mino
Leg spasms were reduced again. Was exposed to some light entertaining house guests. Took an extra Benicar. Might have helped to keep hormone flare down.
Day 141 on Benicar, q6h, Jan 20, Day 107 since start of Mino
9:25AM 98/54/84 Took 50.0 mg of Mino at 10:30PM
Leg spasms increased slightly last night, but not bad. Guests left this morning.
Day 142 on Benicar, q6h, Jan 21, Day 108 since start of Mino
Expected to herx today but didn't. Leg spasms were reduced and mild last night.
Day 143 on Benicar, q6h, Jan 22, Day 109 since start of Mino
8:05PM 130/64/69
Leg spasms were again reduced and mild. Slept until almost 1:00PM.... sign of herxing. And sure felt as though I was herxing today. Felt lousy like I was poisoned. Sluggish. Mind was groggy! Grouchy! Not very energetic, even though I had slept long. Not interested in doing anything. Took a nap around 8:00PM for about an hour. Luckily for me, my herxes have not, so far, involved pain. Just lousy, groggy feeling and need to sleep more, mostly.
I can see the following improvements as compared to last May, before I knew nothing about the MP:
1.) I can now clench a good fist, like to hold a hammer, that I could not do previously. Had felt like arthritis in my hand.
2.) I no longer have a feeling in my feet that I am walking on a bed of hot charcoals after being on them for 15-20 minutes. I still have neuropathy -- tingling and numbness.
3.) Since Dec 22, I have definitely noticed an improvement in my lower leg muscle spasms at night. The spasms are milder and less often. I am now starting to get some periods of sleep that are four hours in length or more, instead of from forty-five minutes to an hour and a half in length. Oh! boy! what I wonderful feeling!
I think the herx that I am experiencing today is my hardest herx since starting the MP. But not impossible to live with! Just, not comfortable! This would be my every-other-day to take mino, but I am going to pass to see what tomorrow brings.
My DW told me today that my parrot, Jake, said, "Going night-night. George not feeling well today." That is something I did not teach him, but said softly as I laid on the couch in their room.
Dark Vader
One of the many things NO one tells you about aging is that it is such a nice change from being young.
Last edited on Sun Jan 23rd, 2005 01:45 by GeorgeinRollaMO
____________________
Borreliosis:7/14/04--125D=57,25D=61. Ben 9/1/04. Mino 10/5/04. 4/13/05--125D=58,25D=43. 8/17/05--125D=52,25D=36. April 06=125D=38,25D=29. 8/29/06--125D=37,25D=29. June 07 25D=23. Oct31'07,25D=19.
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GeorgeinRollaMO
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Posted: Sun Jan 23rd, 2005 16:38 |
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Day 144 on Benicar, q6h, Jan 23, Day 110 since start of Mino
Slept from 1:30AM until 11:30 this morning, with only two and a half sets of spasms last night.... slightly increase in spasm "stuff". However, I am feeling fairly good today.... not like yesterday!!!!! UGH! That was definitely a herx! But no real localized pain anywhere. I will be waiting to increase my mino from 50 mg, that is for sure.
Dark Vader
____________________
Borreliosis:7/14/04--125D=57,25D=61. Ben 9/1/04. Mino 10/5/04. 4/13/05--125D=58,25D=43. 8/17/05--125D=52,25D=36. April 06=125D=38,25D=29. 8/29/06--125D=37,25D=29. June 07 25D=23. Oct31'07,25D=19.
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GeorgeinRollaMO
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Posted: Mon Jan 24th, 2005 14:28 |
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Day 144, cont'd
8:05PM 130/64/69 Took 50 mg Mino at 7:45PM
Felt good the rest of the day. Decided to do some more killing of the Body Snatchers... took mino in the evening. To bed after the midnight Benicar. Layed fully awake for at least an hour and a half. Did feel some quick transit pains... in head, side and elsewhere. Strange! First time that I really noticed them. So quick, that if I were busy doing something else, I might not even have paid attention to them.
Day 145 on Benicar, q6h, Jan 24, Day 111 since start of Mino
Once asleep, slept fairly soundly. Had a couple of leg spasm attacks but would still say that I have improved from what was happening last May. But have been herxing this morning!!! Feel much like a remembered occasional old Navy binge from my young days. UgH! No pain! But I would not attempt to put together a computer, or go fly an airplane. Body feels "different". Very groggy! Want to go back to bed and sleep. I did have to be "exposed" somewhat for forty-five minutes or so yesterday to move some file cabinets for DW. But this does not feel like a hormone flare.
Edit: I have noticed that whenever I up my dosage of mino, it is the second batch of the upped dosage that hits me with a good herx, not the first. I do wait to determine that I am not herxing from the first before taking the second. There might just be some of the first leftover in the body, so that I am actually reacting to more mino than I think. I intend to wait an extra day the next time I ramp. George
Last edited on Mon Jan 24th, 2005 16:05 by GeorgeinRollaMO
____________________
Borreliosis:7/14/04--125D=57,25D=61. Ben 9/1/04. Mino 10/5/04. 4/13/05--125D=58,25D=43. 8/17/05--125D=52,25D=36. April 06=125D=38,25D=29. 8/29/06--125D=37,25D=29. June 07 25D=23. Oct31'07,25D=19.
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GeorgeinRollaMO
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Posted: Thu Feb 3rd, 2005 19:52 |
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Day 145 cont'd
5:05PM 106/57/62
Herxed all of today. Took nap for two hours in the late afternoon. Groggy. Felt just lousy!
Day 146 on Benicar, q6h, Jan 25, Day 112 since start of Mino
Awoke and felt ok for awhile, but had to take a nap from 10:00AM until 2:30PM. I would call that still herxing. OK after awakening. Started to build a computer for DW under the bright breakfast table light (without thinking about the light-- nine 25 to 35 watt bulbs--great for seeing small dark areas inside the case) from around 5:00PMish to about 11:30PM. No NoIRs! The leg spasms really reared its ugly head(s) after I got to bed. A very definite swing to the bad side for the spasms, but still not as bad as my worse nights before MP. I felt tired. Was due for mino but skipped it.
Day 147 on Benicar, q6h, Jan 26, Day 113 since start of Mino
Took 50 mg of Mino at 10:15PM
Good night sleep last night. Spasm problem low. Good day today. Worked on the computer again from 5ish to near midnight. No NoIRs again! Took mino.
Day 148 on Benicar, q6h, Jan 27, Day 114 since start of Mino
Some increase in spasms during the night (over the good decrease of recent time). Herxing today was not as hard as expected but there was some. Continued work on computer without NoIRs. Exposed to light again! Dumm, Dummer and dummest!!! Just did not think about being exposed.
Day 149 on Benicar, q6h, Jan 28, Day 115 since start of Mino
Very definite increase in leg spasms during last night/this morning, and upon stretching upon awakening. Still working on computer this evening. (Found glitchs in instructions of some equipment.) Skipped mino on account of how lousy I was feeling! Mind was on computer not body and what was going on around me -- being exposed to light. Looking back, I can see why I felt so lousy, and had my sleep pattern so screwed up --- 125D hormone flare from all of the light. Talk about brain fog! When I realized what was going on, I increased my Benicar to every 4 hours for two days. I think it helped. I started to feel better after that.
Day 150 on Benicar, q6h, Jan 29, Day 116 since start of Mino
5:00PM 102/49/81
Continued bad leg spasms last night. I really dragged today. I finally figured out why I was feeling so bad these few days ---hormone flare from the overhead light fixture and with no NoIRs. I wound up being late for some dinner guests that we had in our own house. I just had to sleep! I could not stay awake and keep going! Luckily, the couple know the story. I napped for an hour and was late. I was somewhat sociable after that.
Day 151 on Benicar, q6h, Jan 30, Day 117 since start of Mino
Took 50 mg Mino at 5:30PM
Pulled out of the nose dive from the flares with the help of extra Benicar. Decided to do mino once again. Had refrained previously from mino because I did not want to do a two-fer.... herx and flare together.
Day 152 on Benicar, q6h, Jan 31, Day 118 since start of Mino
2:30PM 108/54/81
Had less spasms last night. But herxed today! Felt drugged, different than flare. Groggy! Fighting brain fog.... took effort to do any mental chore. Slept extra during the day.
Day 153 on Benicar, q6h, Feb 1, Day 119 since start of Mino
Took 50 mg of Mino at 10:15PM
Leg spasms were reduced last night from the worse of the previous few days. Only barely feeling any herx today, except for some brain fog. Decided to do the mino.
Day 154 on Benicar, q6h, Feb 2, Day 120 since start of Mino
Leg spasms last night were of a lesser caliber again. Felt like I had a herx in the late morning and early afternoon. But was energetic (for these days) in the late afternoon. so began building a second computer for DW.... but I sure kept the lights down very low and used a flashlight for seeing in all of the small and dark corners.
Day 155 on Benicar, q6h, Feb 3, Day 121 since start of Mino
5:15PM 120/63/56 Took 50 mg of Mino at 5:45PM
Had a decent night's sleep last night with only two (2) lower leg spasms. Got to keep that 125D hormone low!! To keep the resorption down, to keep the calcium/magnesium ratio good, to prevent spasms???? Feeling rather energetic today. Did take a fifteen minute "power" nap this early afternoon. Really feeling rather well! Could think I was cured. Ha! Ha!
So that folks can understand why it is that I am going so slow on the MP... my LLMD really does not want to be doing the MP. He is very scared of Benicar! I personlly think he needs to really study the MP very closely, but has not done so, and does not appear to want to do so... is more willing to go off on all kinds of side issues... symptoms, really. Since he is helping me to do the MP, I want to be especially sure that I do not have a bad herx that would put me in the hospital. I want very much to prove to him that this MP is safe, if done exactly like Trevor says. I want others behind me to get the chance to do the MP, also. There are many sufferers out there!
And why am I building computers for DW? She opened a one person real estate office in September, thinking that it might help because the national company that I had worked for for almost 34 years has been in bankruptsy court. She was foresighted! The company management announced about two weeks ago that if the employee groups do not agree to do so by May, they will ask the court to allow them to terminate all of the employees' retirement plans at that time. My retirement pension will take a BIG drop! This development is taking me into avenues that expose me to light more than I wish. Sie La Vie! It is a good thing that she had enjoyed the business so much, and learned lots! Who knows what lies around the corner when one goes down the avenue of life. As soon as we can get the new office set up, her one person office will be five, and I suspect, still growing. Thankfully, I am not as badly handicap with this DD as some folks. And I am seeing some small improvements since starting the MP!!!
I will take 50 mg of mino today. If that sits as well as the last 50, I will increase the next time.
Best of health to all!
Dark Vader
When a man has enough horse sense to treat his wife like a thoroughbred, she will never turn into an old nag.
____________________
Borreliosis:7/14/04--125D=57,25D=61. Ben 9/1/04. Mino 10/5/04. 4/13/05--125D=58,25D=43. 8/17/05--125D=52,25D=36. April 06=125D=38,25D=29. 8/29/06--125D=37,25D=29. June 07 25D=23. Oct31'07,25D=19.
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Aussie Barb
Research Team
| Joined: | Thu Jul 22nd, 2004 |
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Posted: Thu Feb 3rd, 2005 20:27 |
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Dear George
you are learning how to manage those flares.. just need to teach the parrots to say *get those NoIRs on George* and you'll be right.. best, Barb....
____________________
Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| 24+ years not Dx| ABCofMP
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GeorgeinRollaMO
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| Joined: | Tue Aug 10th, 2004 |
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Posted: Thu Feb 24th, 2005 02:14 |
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Hi, All,
Computer crashed immediately after I clicked on SEND. George survived, but the Update from Feb 4 through Feb 23 is lost. Unless the Administrator has a way to resusitate the PR back to life.
George
____________________
Borreliosis:7/14/04--125D=57,25D=61. Ben 9/1/04. Mino 10/5/04. 4/13/05--125D=58,25D=43. 8/17/05--125D=52,25D=36. April 06=125D=38,25D=29. 8/29/06--125D=37,25D=29. June 07 25D=23. Oct31'07,25D=19.
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