 |
| Author | Post |
|---|
thelymelight
Member in Phase 1
| Joined: | Fri Nov 4th, 2005 |
| Location: | Ontario Canada |
| Posts: | 186 |
| Status: |
Offline
|
|
Posted: Sun Apr 5th, 2009 02:07 |
|
Claire,
Have you ever tried taking benicar 20mg every 2-3 hrs instead of the 40mg every 4-6 hrs?
When I first started on Olmesartan 40mg in Feb '08..I found about an hour after taking it I got more pain, fatigue and can't remember right now, but did get some other troubling sxs...oh I think Shortness of Breath as well...I perioodically consult with Dr. B a very experienced MP Dr. in Vancouver...he suggested I use the 20mg every 2-3 hrs....
I can't remember now, but he did explain to me why I was having difficulty with the 40mg and I believe it was something to do with my kidneys...I only take 40mg at bedtime, then again 4-6 hrs later in the nite, to allow me to sleep longer..but seem to do better in the day with taking 20mg.
Also I get my Olmesartan compounded with Avicel filler, not lactose filler...
Sorry I am a bit woozy/dizzy right now as I am responding to your post...(actually I took a 20mg Olmesartan w/lactose in it a few hrs ago and feel all confused right now) I may remember more on another day...Next time I speak with Dr. B. I am going to ask him again why it was I didn't tolerate the 40mg so well and if I remember, I will let you know the answer..
Is it possible that this is also an issue for you?
____________________
Lyme, Babesia,19+ yrs, neuro-psych-cogni|Sept08-125D/30.42; 25D/8.40; Feb09/10.40; Jul09/5.60 Olmesartan/Feb08; Ph1/Feb09. Low lux-some areas of home. MEDS: Thyroid 7.5mg, Cipralex 10mg, weaned Hydrocortisone. Cal/Mag 150mg each.
|
eClaire
Member in Phase 2
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 763 |
| Status: |
Offline
|
|
Posted: Sun Apr 5th, 2009 03:39 |
|
I've tried that before and it did not help, but that doesn't mean it wouldn't help now. I'm going to stick with my plan through the next set of labs (on the 17th), and then I'll probably give that a try. Thanks for reminding me of that dosing option.
Claire
____________________
34mo on MP; CFS FMS MCS COPD hypermob. IBS/GERD osteopor.; 125D48 25D<4;
NoIRs during most daylight outings & covered up; home w/o NoIRs
Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08 * Ph2.Oct-Nov08 * Ph1.Jan2009
|
eClaire
Member in Phase 2
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 763 |
| Status: |
Offline
|
|
Posted: Fri May 8th, 2009 05:01 |
|
I've been on the MP since 12/06/2006
Because I was very very sick in the beginning, my progress has been slow, but I have progressed. Prior to starting the protocol I had difficulty reclining in my recliner for more than 20 minutes and could only walk about for a couple of hours a couple days a week (if I had not overdone it and found myself bedridden for days, weeks, or months in a row). Walking I could do, but sitting and standing were next to impossible. Plus when I walked, I felt like walking death. Essentially I was mostly bedridden...even unable to recline in bed without getting short of breath and overly exhausted (imagine getting exhausted just by lying at a slight elevation).
While my energy is still very low (unless I take a break from the MP and then my energy is greatly and consistently improved), I can now stand long enough to make meals, sit long enough to eat at the dining room table without a problem, and recline in my recliner for hours on end (8 to 12 hours or more). I can also do my own laundry and run a couple of errands a week. Mostly when I walk about now, I no longer feel like walking death. That is, when I have energy--the little bit that I have--, I feel good. The grim reaper no longer feels like he is breathing down my neck.
Also, the peripheral neuropathy I developed in my feet and hands in the year before the MP is gone, as well as a nerve symptom I've had in one foot for over 30 years. Besides vision improvement (OMG, I can see the numbers and the hands of the small clock next to my bed and I have been unable to make that out for over eight years now), my bladder is stronger and I no longer suffer from urinary incontinence (sp).
The MP road is not easy--not the magic bullet so many people long for. I'm still sick and tired of being sick and tired--only now I can now see the light shining at the end of the tunnel when before I was doing the MP on faith alone. So my outlook is much improved, hopeful. (So hopeful that I've purchased the new suitcases I plan to use when I take a wellness vacation a few years from now.) Also, the immunopathology I get keeps getting better over time, which makes the protocol less difficult.
I lost 30 pounds in the first few months eating exactly what I had been eating for years (some people don't lose weight right away--it may take them a number of years; perhaps because they had been taking steroids or consuming a lot of "vitamin" D prior to starting the MP). I attribute my quick weight loss to the balancing out of my hormones and my metabolism getting back on track. I've since lost another 10 pounds--I'm back to my perfect weight for me and eating like a champ.
I think it may take me another 3 to 4 years to be functional (i.e., to return to work), and I may be on the protocol in some modified fashion for one or more years after that (and also do yearly tune ups no doubt). However, I was headed for death in the short term before starting the MP. Also, I want to see just how well I can get, as I've been sick since I was a child and I really have no idea what it feels like to feel well. So I'm going to ride out this therapy until I get a sense of what normal good health is all about.
I truly do not believe I'd be alive today if not for the MP.
Just thought you'd appreciate an update.
Claire
____________________
34mo on MP; CFS FMS MCS COPD hypermob. IBS/GERD osteopor.; 125D48 25D<4;
NoIRs during most daylight outings & covered up; home w/o NoIRs
Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08 * Ph2.Oct-Nov08 * Ph1.Jan2009
|
Vicki SA
Member in Phase 3
|
Posted: Fri May 8th, 2009 09:02 |
|
Claire,
Good to hear of your progress. I think this is a very encouraging post for the more severely affected with CFS!
Cheerio Vicki
____________________
ME/CFS 2000, Splenectomy, 8/05 - 1,25D51,25D16.5, Ph1 12/05, Ph3 1/07, Zoton 30mg, 2008 - cover with light r/t Work 3/7, NoIRs, hat, cover well, invis. zinc for outside, low lux home, Sept08 25D - 8
|
Sunbeam
Member in Phase 2
| Joined: | Thu Dec 14th, 2006 |
| Location: | Perth, Australia |
| Posts: | 343 |
| Status: |
Offline
|
|
Posted: Fri May 8th, 2009 09:50 |
|
Hi Claire,
Right at the moment your post is exactly what I needed to hear. Keep on the right track,
Take care, Lynn
____________________
CFS. gen neuro. muscular tightening whole body pulsates|ADL's limited| 125D 30 MP 4/07 Panadol Mersyndol Noirs. Low lux home homebound. ph 2 1/2/08 25D <6 8/08
|
Aunt Diana
Moderator
|
Posted: Sat May 9th, 2009 05:06 |
|
Great news, Claire. Attitude is everything.
Your comment about being sick since childhood has rung a note with me. The more I go through this protocol and experience the never ending variety of IP, the more I realize how sick I was as a child. I was the oldest of four..my sister, who came 4 years behind me, always seemed to have boundless energy. It so happens she has too much energy (she's manic, frequently). but , oh how I have envied her that energy.
But I always seemed to be energetic and driven....I overcame many obstacles in my life that would have been difficult for even the healthiest. (my husband's nickname for me is "crabgrass".)
I wonder what I could have accomplished if I had not been ill?
I guess I'll never know.
But, I can see the illness in my niece...she's very capable and blessed with many great attributes, but I can see the struggle and how hard she works to overcome the lack of energy. I wish her parents could see it, but they don't, and they think I'm a hypochondriac.
____________________
Lyme 1987, neuro cardio fatigue achiness brain fog depression, anxiety. Pacemaker, D.1,25 32; D <5; 12/07 <6, hydrocodone, lorazapam, benedryl, zantac, colase, Noirs, cover-up or avoid sun, house <30lux. Feb 08 Phase 3. 6/08 D <4, D1,25
|
eClaire
Member in Phase 2
| Joined: | Mon Sep 25th, 2006 |
| Location: | Virginia USA |
| Posts: | 763 |
| Status: |
Offline
|
|
Posted: Sat May 9th, 2009 05:52 |
|
Diana,
What you say sounds so very familar.
I had great tenacity, perserverance, and smarts (if I do say so myself). And despite looking like a person of energy, my energy was limited. I just always thought it was allergies or I was out of shape or I had over extended myself. But no matter how much I got into shape, the fatigue would hit, I'd have to slow down for some time, and then the energy dance would begin all over again, which doesn't even begin to address all the other symptoms I had over the years.
Not only did my energy limit me (and make my traditional husband upset over my haphazard housekeeping skills--I actually love to keep a clean house and did whenever I had enough energy...and so for now, I have a housekeeper), the chemical sensitivities I developed threw a major wrench into my life dreams and career hopes and cost me much in the way of income over the years. Although I wanted them, I didn't have children because I thought my illness could be inherited.
I didn't even know that I enjoyed cooking until I became disabled and could finally stand long enough to cook again (just recently). Seems I was always too tired to cook even though I would drag myself through the process.
I wonder what percentage of us grew up with the label "hypochrondric" or "lazy"?
Sorry to hear about your niece. At least she will have you when she is ready and able to address her health.
Claire
Last edited on Sat May 9th, 2009 05:56 by eClaire
____________________
34mo on MP; CFS FMS MCS COPD hypermob. IBS/GERD osteopor.; 125D48 25D<4;
NoIRs during most daylight outings & covered up; home w/o NoIRs
Ph1.Dec06 * ModPh2.Jun07 * AbxBrk.Mar-May08 * Ph2.Oct-Nov08 * Ph1.Jan2009
|
Current time is 07:06 | Page:   1 2 3 |
|
|
|
|
