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Meg Mangin R.N.
Research Team
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Posted: Sat Oct 30th, 2004 01:29 |
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Can children be treated with the Marshall Protocol?
Yes, children can be treated with the MP. There are more than a dozen in the study cohort who are doing well and, undoubtedly, many others who are not in our study.
Confirming the diagnosis
Tests to confirm Th1 inflammation in children are the same as an adult....the D-metabolites. 1,25-D is helpful to estimate the bacterial load. The MP may also be used as a therapeutic probe to confirm Th1 inflammation. Please see Is the Marshall Protocol an Applicable Treatment for my Disease?
Doctors readily prescribe minocycline for teenage acne so you should have no trouble convincing your family doctor to allow your children (over age 8) to try a therapeutic probe with pulsed minocycline. You will probably have to educate him/her regarding Th1 inflammation and the expected immunopathology. Then you can discuss future stategies for healing.
Safety
When considering any treatment plan, the patient and doctor should weigh the risks versus the benefits. The MP is safe for children. When compared to other protocols or medications that sick children have been given for their Th1 inflammatory disases, the choice should be easy. Doctors can find support for managing a child on the MP by posting in our Health Professionals Forum. Your child's doctor may also contact Dr. Marshall by phone.
Finding a supportive doctor
If your children are only mildly symptomatic and you are more concerned about preventing future health problems, It may be more difficult to find a supportive doctor. On the other hand, "kids caught early seem to respond well enough to mino alone, with a phase 2 antibiotic taken intermittently. But multiple abx alone don't have enough power to deal with clinically symptomatic patients - as the infection gets worse Benicar becomes essential, and they need the full MP.
.....kids who are showing early symptoms will probably not suffer much from photosensitivity, and most will not even generate enough herxheimer for it to become an issue." ..Trevor..
Benicar
Dr. Marshall wrote: "Benicar is a critical part of the MP. It both activates the immune system and it protects the body's organs. It is not optional if a patient is symptomatic. I know it is difficult for Doc to prescribe Benicar to a child, unless you carefully set out the alternatives to him/her."
The amount of Benicar needed to provide a satisfactory inflammatory blockade may vary slightly depending on the bacterial load, the rate at which 1,25-D is manufactured in the macrophages, the rate of Benicar metabolism by the liver or location of the inflammation. Doc will consider symptoms, lab work and the level of 1,25-D when deciding the correct dose for a child.
The Benicar dosage for a child should be considered on an individual basis, case by case. Dr. Marshall writes:
"The conservative way to do it is by weight, multiplying kg/kg from an average adult at 40mg q6h. But the amount needed is actually dependent on the bacterial load, so the dose is more complex. But Doc can start off with the weight/weight and see how it works out by allowing the parents to dose, say q4h, if that helps. Too low a dose and they can suffer greatly."
Doctor should be encouraged to call Dr. Marshall if there are any questions. Please see Benicar dosage and schedules
Minocycline
Minocycline is the backbone of the MP antibiotic protocol. Children should begin taking 25mg of minocycline every other day as per the Phase One Guideline, just as adults do. Dr. Marshall has determined that this is the optimum starting dose for both children and adults. Children already on the MP have been successful with this dose.
Minocycline can discolor developing teeth in children. It is generally avoided in children under age eight for that reason. In some situations, the benefits of using minocycline may outweight the risk of cosmetic changes in the teeth. http://www.nlm.nih.gov/medlineplus/druginfo/uspdi/500309.html
The risk is probably less when the doses are low, and it does not appear that all children develop tooth staining. http://tinyurl.com/5elyt
"There is a possibility that children (under about 9) might get teeth discoloration from the minocycline. The only report we have of coloration is from Guss, an adult, so we really have no confirmation that it is a problem at the doses we use (which do seem effective against acne, by the way). In any case, I would always choose a dental bonding/polishing procedure over Th1 disease." ..Trevor..
Minocycline is safely being used in a study of autistic children.
-I have contacted the researchers doing the minocycline NIMH study with ASD children in America and they advise the following methods are being used to give mino to the study children:
Capsules for children that can swallow; and for those that can't:
-an oral suspension - a compounded syrup of 50 mg of mino in 5 ml of syrup; or
-mino powder emptied from the capsule and sprinkled on food.
The children will be given mino at a dose of 1.4 mg/kg and no more than 100 mg per day. This is one-half of the dose considered to be safe in the long-term treatment of acne in adolescents and young adults. The mino will be given for 6 months with a further 3 months for responders. ~John (healingjason)
Note: Minocycline alone is inadequate to induce recovery from the Th1 inflammatory diseases (including ASD). You need to make the VDR do its job properly by using the agonist 'Benicar.' ..Trevor..
Blood pressure
"There are no standards for what is a low blood pressure, nor is there any proof that the values normally used to indicate low blood pressure in healthy patients have any relevance to Th1 inflammatory disease patients.
An assessment is complicated by the malaise which is caused as the bacteria die. The endotoxins totally upset the body's hormonal balances and the readjustment can often give symptoms such as vertigo and dizzyness which are from the disease, not from BP. Some folks see their BP low at the same time as their hormones are out-of-whack and incorrectly assume that the BP is a cause of problems. But they are wrong. The BP is a sign of problems. Your BP will stabilize back towards 'healthy normal' as the MP progresses, and the disease is removed." ..Trevor..
Tests to monitoring progress
Doc will probably want to monitor a child closely. Please see What tests do I need to monitor my progress on the MP?
Avoiding light
A child will need to take the same precautions as an adult. This may be problematic for the school-aged younster who is not home schooled. Teenagers who are concerned about appearance can now purchase attractive sunglassses from the recommended manufacturers. Opportunities for socialization and family fun will need to be scheduled indoors or between dusk and dawn. Please see Light Sensitivity-basic information
Nutrition
If will be important to reduce 25-D to a therapeutic 12ng/ml while ensuring an adequate intake of calcium for growing bones. Children will need 24/7 supervision regarding their diet to ensure compliance. Please see Food-Basic Information and Calcium requirements for children.
Immunopathology
Children can develop the same immunopathology symptoms as adults and need to take the same precautions and use the same management techniques to keep symptoms tolerable. Please see Immunopathology (Herx)-Basic Information
Other medications
The same rules for adults regarding contraindicated medications and supplements apply to children. Please see Medications to Avoid While on the Marshall Protocol
See also:
Checklist when Starting MP
Some of my family members appear to have Th1 inflammatory symptoms. What should they do?
How will the Marshall Protocol affect my life? Can I continue to go to school?
Personal, Family, Relationship Tips
Children in the study cohort
Is the MP an applicable treatment for my disease?
Last edited on Thu Aug 14th, 2008 03:56 by Meg Mangin R.N.
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Meg Mangin R.N.
Research Team
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Posted: Thu Aug 14th, 2008 03:38 |
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[filelink]
Calcium requirements for children
Children need calcium for growing bones. Calcium requirements vary by age. This website lists daily calcium requirements for children. Dr. Marshall advises people with Th1 inflammatory disease to get no more than their recommended daily allowance with a combination of both food intake and supplements. See Calcium Fact Sheet
Sources of calcium
Milk is an excellent source of calcium but it is problematic because in many countries it is hard to find milk that is not supplemented with vitamin D. And all milk naturally has some vitamin D. The amount will vary depending on the fat content of the milk and what the animal who gave the milk was eating. As a result, any milk product will also have some level of vitamin D, although it may be low.
Drinking small amounts of milk not supplemented with vitamin is okay but no one can say exactly how much. It's a good idea to recheck the level of 25-D at six month intervals to make sure too much Vitamin D isn't being ingested.
Sources of Calcium without Vitamin D
A good milk substitute (although rather sweet) is the packaged 'creamy vanilla' ready-to-drink high protein shake by Advantage. It goes well with cereal. You can find them in six-packs at your local Kroger or Wal-mart. Check the label periodically to make sure vitamin D has not been added.
Lots of foods are good sources of calcium and don't have added vitamin D or folic acid. Here are some:
Almonds
Beans - many types, including baked, limas, chickpeas, kidney
Brocolli & leafy greens
buttermilk if no D is added
cheeses (check the label for added Vitamin D)
cottage cheese (read the label)
cream - usually sold as whipping cream
half-n-half
orange (the real fruit, not the juice)
sesame seeds
sour cream
yogurt
When cooking, you can use half-n-half without D instead of milk.
Calcium supplements
Ideally, all of the daily calcium should come from food but if the food calcium intake falls short, it is okay to supplement with a calcium tablet that does not contain Vitamin D. These can be found at most stores that sell vitamins. See Do I need to take a calcium supplement?
See also:
Rickets(osteomalacia)
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Meg Mangin R.N.
Research Team
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Posted: Thu Aug 14th, 2008 03:44 |
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[filelink]
Children in the study cohort
Robyn Russell (mother of 12 yo w/Lyme, myoclonus) Interview
Doreen V. - autism, ADHD depression, severe anxiety, CFS Interview
Teen on MP MP start 12 years old: MP helps with sarcoidosis in teen
CEB success with MP: MP start Sept04 -Teen with Lyme
Matt progress: Alumni Forum: MP start Sept05 @ 13years old: Rickettsia + Lyme symptoms
Cricket's children on MP progress: MP start June 2006: younger daughter (@ almost 10) Briar has asthma and older daughter Brigand (@ almost 12) has some kind of learning disability that thinking is ADD.
see also: Cute Things They Say
and ADD and medication
Children on MP
Corey K. progress: MP start March07 @ almost 13 years old, son of Teri K: Lyme ADD w/cardiac symptoms: enjoying his new-found energy and health
Jason's progress: HealingJason: MP start April07 @ 11years old
AUTISM Topic of discussion
Lightomni progress: MP start June07 @ 17years old. Autism Aspergers PDD-NOS ODD
Twyf- Lymabean progress: MP start Aug 2007 @ 15years old. strep 2002-3, lyme 2003-4, recurring symptoms 2006, anti-gliadin positive.
twyf: Lymabean: success story. Her progress is amazing. It has enabled us to try to start to catch up in the other areas of our life.
Caitiegirl progress: MP start Nov07, Caitlin 17year old lyme, seizures, myoclonus, dystonia, digestive, chronic headache, mental fog
JAQ progress: MP start Nov07 @ 13years old. Lyme,Thrombophlebitis, High LPa, Hypercoagulation
Chris boy progress MP start March08 @ 12 year old with lyme
Chris boy's test results 11 years old
Stephen progress MP start Mar08 @16 years old with OCD, dyslexia
Elizabeth2 progress MP start April08 @ 18 years old with CFS, migraines
jeffrey boy progress: MP start April08 @ 23 years old OCD cluster headaches photosensitivity stigmatism arrythmia
Texlauras goalie in Phase 2 MP start May08
Lyme (child) 9 year old
Texlauras baja fan in Phase 2 MP start May 08
Lyme (child) 9 year old
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jessi girl's test results Pre MP Aug07 14 yo: Lyme, myalgia, arthralgia
Shelly's questions Pre MP Dec06: 6 yr old w/JRA/anterior uveitis
Maryduke's questions Pre MP Dec06: 14yo Complex Regional Pain Syndrome
Himmehill's questions Pre MP Oct06: Joy, 9 year old with JRA
twyf's questions Pre MP Sept06
Amigo's questions Pre MP June06
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Instructions on how to Search the study site.
How do I PM? to send private message
Last edited on Mon Sep 22nd, 2008 01:41 by
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