Do CFS patients react differently to the Marshall Protocol?
Some of the members with CFS in the early days of MP.com, the summer of 2004, had a difficult time with symptoms which was very puzzling to us. They insisted they needed to reduce the starting dose of mino to miniscule amounts because they were so symptomatic. Then we discovered that they didn't understand the need for all people with Th1 inflammation to avoid the sun and bright lights.
We have speculated that previous heavy nutritional supplementation (which is especially common with CFS) or continued supplementation may have increased the symptoms or delayed the resolution of symptoms of some CFSers on the MP. Some, for example, had extremely high levels of 25-D. The species of intracellular bacteria involved may be a factor in any differences in symptoms but that isn't something that can be determined.
It's too soon to know if CFS members in general will take longer to recover on the MP compared to the initial cohort of sarcoidosis patients.
Dr Marshall wrote: I think that some of the CFS folks who are recovering on the MP were terribly disabled before they came here, and many have had a pretty rough time getting to the "light at the end of the tunnel" point...
You are suffering from a deadly, terminal, disease. The full effect of that disease has been kept from you because your immune system has been unable to recognize, and react to, the extent of the threat.
Benicar allows your immune system to 'see' and eliminate the underlying cause which is intracellular bacteria.
Recovery from these diseases is tough, especially from the idiopathic conditions (without cause) like CFS, that usually don't get diagnosed until folk are really ill."
Keep in mind that it isn't possible to separate CFS members from all other members on the MP. Many others will report fatigue as a major component of their diagnosis whether or not they have an official CFS diagnosis. This complicates the picture when you are trying to determine if CFS patients respond differently.
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