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rc45guy
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Posted: Wed Sep 7th, 2005 21:02 |
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When I was diagnosed with sarc, I was put on Prednisone for 2yrs (!) before I said "no more" and quit cold turkey. It wasn't much (5mg-10mg), but over the course of those two years, my diabetic retinopathy went from non-existent/mild to high. As a result, I had laser treatment done, and even more so because I told my doc that I was going on the MP which will cause more inflammation to occur. Of course, before I was diagnosed with sarc, my eyes were fine. It seems to me and the doc that the Prednisone increased my BP, my HbA1c, and as a result my eyes got inflamed and started leaking.
My question is that I was wondering if there was a way to decrease the inflammation in my eyes while on the MP with different antibiotics and/or ??? - especially going into Phase 2. Thanks!
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Dx - Sarc Mar03, CFS, DM1 Jan89, insulin pump, 6.8 HbA1c; No add'l meds; D tests May05:1,25D=55 & 25D<=5, avoiding light & D, NoIR 207s, Bolle100s, Phase 2
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Posted: Wed Sep 7th, 2005 22:00 |
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rc45guy,
Bolle sunglasses are nice, but they do not offer as much protection as the NoIR 2% for outdoors. The Bolle 100 lens are equivalent to the lighter NoIR 10% lens. Those who are sickest will need the dark 2% NoIRs for outside use.
You will still want/need to get a pair of NoIR 2% for outdoor use and adequate protection of eyes from bright sunlight. You can find more information in PROTECTING YOUR EYES.
Belinda
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DNStog
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Posted: Thu Sep 8th, 2005 08:25 |
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rc45guy,
I have had an eye disease called uveitis (+ the start of cataracts) for several years. Before MP my symptoms included occular pressure changes, occular migraines, severe dryness and occasionally heavy tearing - with no hope of a cure. Since being on the MP, my eyes have improved dramatically, but I never go outside without wearing my 2% NoIRs and I never watch tv or work on the computer without my indoor NoIRs. The NoIRs have made a huge difference in my eye comfort level.
Wishing you well.
Donna, Phase II still cruising ~~~~~
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Sarcoidosis/skin, joints, lungs, nerves, Raynauld's, uveitis, hypothyroid, sinus, wt. gain, Peradontal disease, GERD-hiatal hernia, breast ca 11/06, 25D7, Synthroid, Lexapro, eye vits, Milk Thistle, Quercetin, Rx glacier, cover up, 05/09 25D5, 125D11
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Aussie Barb
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Posted: Thu Sep 8th, 2005 08:39 |
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RC
This Post Teen on MP may be helpful to you.. and Phase 2 Teen hoping to begin new antibiotic ....
Barb ...
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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rc45guy
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Posted: Fri Sep 9th, 2005 19:00 |
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| Thanks for the responses, real informative. I would also like to know more about possible different antibiotics or other medications I can/should take to ease swelling on Phase 2. I think Meg may have posted about this, too.
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Dx - Sarc Mar03, CFS, DM1 Jan89, insulin pump, 6.8 HbA1c; No add'l meds; D tests May05:1,25D=55 & 25D<=5, avoiding light & D, NoIR 207s, Bolle100s, Phase 2
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rc45guy
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Posted: Mon Sep 12th, 2005 22:32 |
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| DNStog, when you say "comfort level", did your eyes hurt? Where did they hurt, in the front, the muscles? Can you be more descriptive? Thanks!
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Dx - Sarc Mar03, CFS, DM1 Jan89, insulin pump, 6.8 HbA1c; No add'l meds; D tests May05:1,25D=55 & 25D<=5, avoiding light & D, NoIR 207s, Bolle100s, Phase 2
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DNStog
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Posted: Tue Sep 13th, 2005 06:04 |
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RC45guy
By "comfort level" I mean, my eyes burned, ached and felt like they were being pushed out of my head. The ache was in the actual eyeball, not muscle and the burning was on the eye surface. In addition, I could not focus both eyes at the same time to read or watch TV. The occular pressure increases felt like my sinuses were swollen which I assumed was the reason for this discomfort because of my long history of seasonal nasal allergies.
It is my understanding that not all ophthalmologists can afford to have the machine needed to diagnose uveitis. I don't remember the name of the machine, but will find out for you. Uveitis is fairly common in Sarcoidosis patients, but I don't know if this is the case in patients with other inflammatory diseases.
During the MP my eyes have dramatically improved...no longer painful, no longer ache and no feeling of pressure. My left eye, the worst, is occasionally sensitive but continues to get better as I progress on the MP; however, if I am not wearing the appropriate NoIRs, my eyes will start to burn and dry out after a few hours...not as much as before MP, but they definitely react negatively. And, of course, if I forget to wear the 2% NoIRs when I go outside, the brain fog and dizziness starts up and has even caused a full frontal fall. Needless to say, I learned to wear my NoIRs during all light exposure.
Wishing you well!
Donna, Phase II
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Sarcoidosis/skin, joints, lungs, nerves, Raynauld's, uveitis, hypothyroid, sinus, wt. gain, Peradontal disease, GERD-hiatal hernia, breast ca 11/06, 25D7, Synthroid, Lexapro, eye vits, Milk Thistle, Quercetin, Rx glacier, cover up, 05/09 25D5, 125D11
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rc45guy
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Posted: Tue Sep 13th, 2005 17:03 |
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I've had "swelling/inflammation" spots in my eyes recently, mostly after going off of Prednisone before starting the MP. Bright spots as if a car's headlights still left an impression on your eye, but it doesn't go away. I was only wearing my Bolle 100s when I went outside and nothing inside. I work in front of a computer LCD monitor during the day and watch TV on a plasma screen. My guess is the plasma puts out more "light" than an ordinary tv, and it's much bigger than a regular tv, so that in itself is two strikes against me.
So I started wearing my Bolle 100s around the house, and stayed inside until I get my 2% NoIRs 207s. WOW - just by wearing the Bolle's inside, the spots in my eyes went down about 80% in about 8hrs! After 4-5 days of wearing Bolle's inside, I'd say my spots are about 10%-20% of what they were (yay!). I just recv'd my 207s so now I can go outside. btw, Trevor said it was essential that I wear Bolle's inside and 2%'s outside, especially because of my retinopathy.
By not wearing eye protection in front of the LCD and plasma monitors be a cause for my high 1,25D? (of course, I'm not taking any supplements and I avoid all Vitamin D and Vitamin A and foods to avoid on the MP)?
And, is this reaction in my eyes to be expected just by wearing the sunglasses indoors?Last edited on Tue Sep 13th, 2005 17:27 by rc45guy
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Dx - Sarc Mar03, CFS, DM1 Jan89, insulin pump, 6.8 HbA1c; No add'l meds; D tests May05:1,25D=55 & 25D<=5, avoiding light & D, NoIR 207s, Bolle100s, Phase 2
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DNStog
Moderator
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Posted: Tue Sep 13th, 2005 19:36 |
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rc45guy wrote:
By not wearing eye protection in front of the LCD and plasma monitors be a cause for my high 1,25D? (of course, I'm not taking any supplements and I avoid all Vitamin D and Vitamin A and foods to avoid on the MP)?
And, is this reaction in my eyes to be expected just by wearing the sunglasses indoors?
That's been my experience. I started wearing my Del Mar amber prescription lensed sun glasses indoors, as well as, outside about four months before getting my NoIRs and starting the MP. While they substantially eased my eye symptoms, the 2% NoIRs made all the difference, especially when exposed to daylight. Just a few minutes in front of a computer monitor without my eyes covered can soon cause discomfort. My recent test results of 1,25D showed a reduction of one third which I wasn't expecting this early in MP... 1/2 way through Phase II.
Donna
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Sarcoidosis/skin, joints, lungs, nerves, Raynauld's, uveitis, hypothyroid, sinus, wt. gain, Peradontal disease, GERD-hiatal hernia, breast ca 11/06, 25D7, Synthroid, Lexapro, eye vits, Milk Thistle, Quercetin, Rx glacier, cover up, 05/09 25D5, 125D11
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Posted: Tue Sep 13th, 2005 23:01 |
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rc45guy,
The eyes have a complete renin-angiotensin system. Therefore, it's logical to assume that light falling on eyes without adequate protection from infrared rays will generate more production of 1,25-D.
The renin-angiotensin-aldosterone system and the eye in diabetes.
http://tinyurl.com/67ldp
Immuno-localization of the calcitriol receptor, calbindin-D28k and the plasma membrane calcium pump in the human eye.
http://tinyurl.com/552tv
Numerous anecdotal reports confirm the effects of increased and decreased light on the eyes of patients with Th1 inflammation.
You are doing the best thing to maintain eye comfort and to protect your vision.
Best,
Meg
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rc45guy
Member in Phase 3
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Posted: Wed Sep 14th, 2005 00:09 |
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Thanks, Meg. Great info and links! I feel much better physicall (and mentally) knowing I'm doing the proper things to protect my eyes.
My eyes never "hurt" without protection before, don't know if that means anything or not?
I also wanted to ask about full-spectrum fluorescent lighting. Am I correct to assume that it is considered to be "natural lighting" and thus protect the eyes accordingly?
Thanks!
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Dx - Sarc Mar03, CFS, DM1 Jan89, insulin pump, 6.8 HbA1c; No add'l meds; D tests May05:1,25D=55 & 25D<=5, avoiding light & D, NoIR 207s, Bolle100s, Phase 2
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Aussie Barb
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Posted: Wed Sep 14th, 2005 00:21 |
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rc
for Light Info see the 4th post down AVOIDING SUNLIGHT and BRIGHT LIGHTS How and why to protect skin and eyes while on the MP << for a post on full spectrum lighting there..
You may have / use Dimmer switches on your main lights or install lower watt bulbs to keep the lighting at 30 lux or below.
see also Will Herxing cause increased eye inflammation?
Barb ..
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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DaveW
Member
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Posted: Sun Sep 18th, 2005 19:16 |
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Hello,
I am a fibro patient with a history of unexplained iritis (also called anterior uveitis).
An opthamologist gave me both steroid and non-steroid anti-inflammatory drops when he first detected it (approx 12 years ago). Neither reduced the inflammation at all.
Before starting the MP (a little over a year ago), I either had a headache, or was on the verge of a headache - all of the time. I also used to get occasional severe headaches where the pain seemed to focus on the backs of my eyes.
Since I started using the NoIRs, I have had no problems with headaches (except on rare occasion, in response to other meds).
Regards,
- DaveW
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MP Aug14/04,Pre-MP D=19.6,1,25D=37 ratio 1.89 P2>12/27/04.Back to P1 fall/05.Back to P2 05/06. 21 yrs neuro-lyme not dx til 11/05. OlmesTR 40 mg/7hrs. Major: Weakness,IBS-C,pain,bad sleep,anxiety,depression,cognitive focus,memory,CMV,epilepsy & osteo
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