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Ike
Guests visiting Phase 1/2/3
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Posted: Sun Oct 31st, 2004 01:32 |
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| Perhaps someone has a thought on this. Is it wise for us to donate blood? I just read an article that says many of us have too much iron and donating is a good thing. I have been donating occasionally. Might whatever is causing our inflammation be present in our blood? Thanks -- Ike
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1,25 D 42 25 D 18 ArmourThyroid150 mg,Selegilene5mg,Neurontin600mg3x,L-Serine,PercocetAmbienPRN,vitE&C&minerals,CoQ10,NeuroPS,Benicar 4x40,Quercetin, Mino 11-15-04 25mg.
FMS,MCS,CFS, Pelvic pain
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Admin
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Posted: Sun Oct 31st, 2004 02:34 |
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People who are ill should not donate blood. I wonder how many people I might have infected with Lyme disease during the nearly three decades I was sick before knowing that I had an infectious disease.
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*We can help you understand chronic disease, but only your physician is licensed to give you medical care *
Always consult your physician before commencing or changing any treatment he/she has prescribed for you
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Betty G.
Member
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Posted: Sun Oct 31st, 2004 18:55 |
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Hi Ike!
I too donated blood for 20+ years frequently ... also before I knew I had lyme dx this July 04!
As Suzanne, do NOT donate blood. After I was dx, I called our local blood lab to tell them of my lyme dx, and that I was a past donor; they did not seem to care.
Our hospital CEO told me, they follow CDC'S rules given to Defense Dept. If a lyme patient has been CURED FOR ONE YEAR, they will allow you to be a blood donor. This info is also in the new Aug. 04 paperback book just published.
Also, I recently found out form Iowa's donor/organ assn. that those of us with lyme disease should NOT donate our bodies/organs/tissues! They can accept our CORNEAS only! Nothing else!
So I contacted them back tearing up my donor approval app that I was very specific on what they could/not use.
I'll just have to remember this the next time I renew my driver's license to show NO...body donor!
Edited: We are NOT to be bone marrow donors either! Betty G., Iowa
Last edited on Sun Oct 31st, 2004 18:57 by Betty G.
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res MP; dx 7-12-04 lyme(34yrs); 1-2-04 diabetes2, FMS-CFS34 yrs; IBS; OA; osteop, gerd; 12/04 sleep apnea/restless leg; D,25=21; 1-05 D,125=20. CRP 3.1 Meds: diflucan,biaxin & doxy + benecar 40 mg/day, synthroid, zoloft, baclofen, NOIR ambers 2-10%outside
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hrts4me
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Posted: Sun Oct 31st, 2004 19:09 |
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Hi Ike,
A resounding NO from here, too. We are fighting these diseases and disorders with antibiotics, meaning there are pathogen(s) involved.
hrts
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LYME COPD Arterioscl Seiz FM CFS Hypertens NASH HiChol/ 4.2cmKidneyMass&Stones HyperCaPhUria Angina Arryth SOB RadNeurop BiPolarI| 1/05 25D-14 1,25D-13 2/07 25-D14| Nitro Verapamil Hydrocodone Baclofen Dicyclomine promethazine clonazepam
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Posted: Tue Nov 2nd, 2004 19:25 |
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Ike,
Organs and tissue (Kveim test) from sarcoidosis patients have caused sarcoidosis in the transplanted recipients. This is proof that the bacterial pathogens can be transferred and trigger the same abnormal immune system response in susceptible people.
Theoretically, the bacteria can also be transferred via blood. Blood banks may not have strict regulations against donations from people with so-called autoimmune diseases or Th1 inflammation but now that we know the bacterial etiology, we advise people not to donate.
Best,
Meg
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hodologica
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Posted: Wed Nov 3rd, 2004 00:59 |
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| I donated lots of blood when i was well. Given what i know, i would never consider doing it again even if i get well and stay well for 50 years. Taking the example of Lyme, its not at all clear that Bb is ever totally eliminated from anyone, whether asymptomatic for one year or ten. Even if it is eliminated, a chronic lymie's body is obviously a hospitable place for Bb and they could always have a new developing or latent re-infection. The medical authorities may think a Lymie's blood is safe after one asymptomatic year, but again then the medical authorities in Britain are spending VAST heaps of money to set up inpatient centers to treat CFS thru cognitive-behavioral therapy, which just goes to show that you gotta think for yourself when it comes to Th1 disease.
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Male, 23, ill 1 yr plus, slow-onset CFIDS, lyme-equivocal. Not on MP; on conventional LLMD tx. Pelvic pain
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Betty G.
Member
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Posted: Wed Nov 3rd, 2004 21:00 |
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Suzanne, may I suggest that you edit the topic line to "donating blood, organ, tissues, or bone marrow" to better reflect the content of this post. Thanks. Betty G., Iowa
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res MP; dx 7-12-04 lyme(34yrs); 1-2-04 diabetes2, FMS-CFS34 yrs; IBS; OA; osteop, gerd; 12/04 sleep apnea/restless leg; D,25=21; 1-05 D,125=20. CRP 3.1 Meds: diflucan,biaxin & doxy + benecar 40 mg/day, synthroid, zoloft, baclofen, NOIR ambers 2-10%outside
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Aussie Barb
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Posted: Mon Nov 15th, 2004 02:31 |
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| from Trevor Marshall: Sarcoidosis patients are not allowed to give blood by the USA Red Cross. They are allowed to give organ transplants, and Dr Moller noted that during transplants involving patients with sarcoidosis, patients who receive a donor organ from a sarcoidosis patients develop the disease, and clean organs transplanted into sarc patients become infected.(see full text of this paper: http://tinyurl.com/6xx46 )
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Posted: Mon Nov 15th, 2004 05:43 |
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Here is a report indicating sarcoidosis occurs following stem cell transplants:
http://tinyurl.com/6q7vb
Pulmonary sarcoidosis following stem cell transplantation: is it more than a chance occurrence?
Chest. 2004 Aug;126(2):642-4.
PMID: 15302757 [PubMed - indexed for MEDLINE]
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