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Mary
Member
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Posted: Tue Mar 15th, 2005 01:46 |
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I was hoping someone who attended the conference would post their thoughts on this exciting event!! I just wish I could have attended...thought about it all weekend and just knew I was missing an amazing experience.
Will information on ordering the DVDs from the conference be posted here? Can't wait to get one.
Hope it was a great time for all of you.
Mary
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Not MP: Chronic Lyme RA. Been ill for 22+ years 8/04 tests D25 47,1,25D 39,CRP 3.3 high.. Benicar for BP only.
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marlae
inactive member
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Posted: Tue Mar 15th, 2005 03:24 |
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Hello.
I attended the conference and found the trip very worthwhile. My purpose was investigational in regards to the MP. My wife has been sick since 1987. Diagnosed with CFS/FM in 1991. Her health has decline futher after 1998 (candida infections) and in 2004 a Lyme Disease diagnosis.
All the speakers were good but most notably in my opinon were Dr. Mattman, Dr. Wright and of course, Dr. Trevor. Most of all, the patient testimonial was the most moving.
I been looking at MP and hyperbaric medicine for a while and decided the science behind the MP makes the most sense to me. Conventional treatment therpaies have failed for us for the treatment of Lyme Disease.
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Mark Leavitt
Caregiver for wife ~ 1987-2006
CFS/FM,Lyme,candida,anemia,depression,thyroiditis,mycoplasma 5/12/05:25D=8,125D=35,ACE=36,RF=20,ESR=40,CH50=63
6/5/05:Benicar 40mg 6/19/05:Mino 11/5/05: MP stopped due to 116 day hospital admission.
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jsandman001
Member in Phase 2
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Posted: Tue Mar 15th, 2005 04:25 |
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Hello Mary,
I was hoping someone would post this very topic. I thought the conference was like the snowball rolling down the hill.......started out slow but gained huge momentum. When me and my wife first walked in we met a great person that goes by the name of Barney on here. What a sweetheart she helped us out a lot and had an amazing story to tell.
When we went in to hear the speakers we heard from the NIH and more or less the politics of medicine i wasnt very moved except for the fact that comming to the conference maybe some money may be spent on Th1 diseases. Then Dr. Leonard Jasons .......he used 10 year old data to on his study of CFS and talk about the reclassification of CFS.....I really dont like the name CFS either since i have it but please get some new data.
The real excitement was when Dr. Marshall, Dr. Andrew Wright and Dr Lida Mattman took to the stage. Dr Lida Mattman has found L-Form bacteria in a multitude of diseases and had the slides to prove it. Dr. Andrew Wright had some nice slides and movies on the L-Form bacteria he has been finding in 98 percent of patients and 100 percent if they get retested. He was gracious enough to give me and my wife time during his breakfast to answer some of our questions and showed us some really neat pictures of the bacterias comming out of the cells .........just got right to the heart of what Dr. Marshall talks about. I also heard Lida mattman lean over to her daughter and say this Marshall Protocol is a miracle........i think that sums it all up.
The panel sessions were just awesome ........very touching stories of very sick people getting better. I would have liked to have seen more question and answer on my wish list to have made it perfect.
Me and my wife got to meet some of the people who give of there time to answer our questions on this board. We spent a good deal of time with Reenie since she represented CFS and had a couple of great discussions with her and i want to thank her for some great talk and taking time out .....in a very sunny area i might add to reassure me and my wife of what to expect.....she also gave me a pair of NOIR glasses and i plan on using them this week.
We also talked with Paula Carnes and TXLM ..........They are straight shooters and a wealth of knowledge, I think they contributed a lot to the conference and im so happy i got to meet them since they take a lot of time to answer my questions.
I didnt get to talk to Meg and Belinda but looking at them they sure look healthy and i dont think they got to sit very much on Sunday at all.
Dr. Marshall gave two great talks that sent all the messages home for me personally. I wish i would have got to talk to him but i dont think the man had an empty moment the whole time.
I talked to most of the doctors who have implemented the MP and there patients are doing as expected and most dont even post on this board. Im sure i missed a lot in this post but it was a great deal to take in.........dont miss the DVD when its made available.
Thank You to all who took part,
James Sanders
Last edited on Tue Mar 15th, 2005 13:43 by
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CFS, Lyme, Colitis,25D=12,6/30/2008, MP1/07, MPh2 10/07, restart Ph1 01/08, klonipin, Zyrtec, Asacol, NoIRs, cover up, low lux home
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Reenie
inactive member
| Joined: | Wed Jul 21st, 2004 |
| Location: | Phoenix, Arizona USA |
| Posts: | 3373 |
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Posted: Tue Mar 15th, 2005 05:04 |
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James,
Thanks for posting your shared info. Hopefully others will share their conference stories on this thread as well.
I want to say, taking Benicar q4h, "saved me" from the light during the conference. I was so grateful to get back into my cave. I slept 11 hrs last night, but had a pretty good day today, with no CFIDS crash and NO nap. 
This is just further proof to me of how the MP works. I used to think I would crash from doing too much, but the proof has been that it's the light, which so many of the others at the conference also shared.
I had a chance to talk to Lowelle while I was waiting for the airport shuttle. This is the woman who's training and riding horses once again. Ms Dale is such a gem, too. I'm so glad I was finally able to meet her and hear her story. I may start reading again over at sarcinfo.com, now that I've met several ppl from that site.
What was truly amazing is to see how much improvement is possible by those that have been on the MP a little over 2 yrs now, which is where alot of the sarc patients are, like Meg and Belinda. They really are getting their lives back.
Mark, it was nice to meet you too. Now I can say I've actually met someone from Lyme, CT!
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Tobi
Member
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Posted: Tue Mar 15th, 2005 05:26 |
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Thanks to Barb who's been holding things together while everyone's been having fun at the conference!
Tobi
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CFS,Rickettsia Conoori-,HHV6,Ureaplasma(all 3 culture,PCR) 25D 16.4ng/ml,1.25D 26pg/ml.Ratio 1,3 Blood probably NOT frozen Benicar 9/18/04 Mino 100mg 10/18/04 Phase 2 01/26/05
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marlae
inactive member
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Posted: Tue Mar 15th, 2005 06:12 |
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Reenie, thanks for all your help at the conference. It was great meeting you.
And to all the other ARF moderators I meant, ditto. Special thanks to Dr. Marshall (if you happen to read this) for his work and putting the whole event together.
I am encouraged and again hopeful for a possible cure to get my wife back. I put a request in for the doctors list earlier today. I learned of one doctor a couple hours from us from the conference. If nobody closer, we can use that MD.
I am giving an informal presentation at our LD support group next month on what i learned from the conference. This will give other people with LD another treatment option. In addition, I learned today that Dr. Mattman is coming to the LD group in May to speak. Be good to see her again.
As the lyrics go in the hit song "Beginnings", from one of my favorite bands, Chicago;
"...Only just the beginning...only just the start...what I want to feel forever.."
The MP will be a new beginning once started and hopefully, good health is what my wife will feel again--- forever.
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Mark Leavitt
Caregiver for wife ~ 1987-2006
CFS/FM,Lyme,candida,anemia,depression,thyroiditis,mycoplasma 5/12/05:25D=8,125D=35,ACE=36,RF=20,ESR=40,CH50=63
6/5/05:Benicar 40mg 6/19/05:Mino 11/5/05: MP stopped due to 116 day hospital admission.
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thaiboxer
Guests visiting Phase 1/2/3
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Posted: Tue Mar 15th, 2005 07:43 |
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| Anyone with CFS and not Sarc share their story of success or outlook to recovery?
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Thai: CFS 7yrs Pneumonia Rickettsia FeverUO exercise intol, musc twitch fatigue/ Testost subling Jan: 1,25-D 65, 25-D 32/NOIR/Beni Comm Jan05 20mg 3hrs/2abx May05/Q Mar05/probiotics
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jsandman001
Member in Phase 2
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Posted: Tue Mar 15th, 2005 14:55 |
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Hello Thaiboxer ..........Reenie shared her story as the only panel member with CFS. It was very encouraging to hear her. I was hoping to hear a little from Paula Carnes also with CFS but that didnt happen. Its still pretty early for CFS on MP. But its the only game in town for treatment in my opinion.
Thanks,
James Sanders
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CFS, Lyme, Colitis,25D=12,6/30/2008, MP1/07, MPh2 10/07, restart Ph1 01/08, klonipin, Zyrtec, Asacol, NoIRs, cover up, low lux home
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Betty G.
Member
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Posted: Tue Mar 15th, 2005 17:20 |
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Yes, a big heartfelt THANK YOU to AUSSIE BARB for keeping this board running smoothly during the absence of the board monitors as they had their Chicago conference last weekend. She sent folks the links to areas they were inquiring about. Well done Barb!
I have enjoyed the feedback comments on the conference from you all.
To Trevor/staff, were there any handouts? Reason I'm asking is that I've had contact with the Iowa Health Dept. this past month; they didn't attend but said they would be interested in any handouts "I" brought back from the conference. I didn't attend; I was in bed majority of last weekend.
Thank you for your response as time permits for any of you!
Betty G., Iowa
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res MP; dx 7-12-04 lyme(34yrs); 1-2-04 diabetes2, FMS-CFS34 yrs; IBS; OA; osteop, gerd; 12/04 sleep apnea/restless leg; D,25=21; 1-05 D,125=20. CRP 3.1 Meds: diflucan,biaxin & doxy + benecar 40 mg/day, synthroid, zoloft, baclofen, NOIR ambers 2-10%outside
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Reenie
inactive member
| Joined: | Wed Jul 21st, 2004 |
| Location: | Phoenix, Arizona USA |
| Posts: | 3373 |
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Offline
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Posted: Tue Mar 15th, 2005 17:55 |
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Betty,
There were very little handouts, since the Board is our primary source of information and communication.
The Phase One Instructions were printed out, Dr M's hormone slide, a NoIR catalog and a couple of other papers; nothing you can't find on the MP site.
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Dani
inactive member
| Joined: | Wed Mar 9th, 2005 |
| Location: | Flint, Michigan USA |
| Posts: | 4 |
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Offline
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Posted: Tue Mar 15th, 2005 17:58 |
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Hi Everyone,
I have been meaning to express my gratitude for the chance to get to attend the conference in Chicago this past weekend. To those that went to the hard work of putting it all together as well as Dr. Marshall and all the speakers.
It was truly informative as well as exciting for me. As well, a bit overwhelming, I must admit. I, being both a representative for others and on a fact finding mission, was wishing for a bit more time to cover things. However for those that missed going, it was a wonderful experience for me, personally.
The first day was a bit more of a general feeling of being lost, however, much like the gentleman who posted the "snowball effect"...it was indeed that, and much too soon, it was over and you wondered where you could get more.
Yesterday was spent recovering from the trip, today is spent answering emails from what I have learned and trying to catch up on with my own group of people and trying to read all their emails from while I was away.
And now I am faced with the question of what will I do. So my standard answer will remain as I told Barney at the conference, "I will continue to research it and will make an informed decision."
I want to again, Thank Dr. Marshall and his staff for all the great and hard work they put into the Conference, it was a wonderful informative event. Thank you to all of you who took time to speak with me personally, share your stories and your time.
Words are not enough when facing a rare disease and having the courage to share your life with others is never easy. Thank you all for your courage and your strength to do so.
Dani
____________________
Daneen Eller
Dx: CNSV Aug.2003
Central Nervous System Vasculitis Foundation,Inc.
"Improving Life through Treatment, Education and Research."
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Frans
Member in Phase 2
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Posted: Tue Mar 15th, 2005 19:03 |
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I also heard Lida mattman lean over to her daughter and say this Marshall Protocol is a miracle........i think that sums it all up.
The moment I read this, I again thought that Trevor deserves a medal ! It gives me goosebumps, really.
I am so, so, very hopeful that CRPS/RSD will be treatable with the Marshall Protocol !!!
Has someone perhaps a link to articles where CWD/L-form-bacteria are found in CRPS/RSD? I have been searching with google, but if someone knows off hand, I would be very greatful.
I am very interested in the DVD and maybe Trevor will post a report, like he did for another conference?
Sincerely, Frans
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Burn-out/nervous breakdown Jan01 125D 48 25D8.48 Ph1Nov06 ModPh2Jan07 Ph2Apr08 Cipramil Seroquel NoIRs lite exp r/t work cover up 25D3.9(Oct07)
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marlae
inactive member
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Posted: Tue Mar 15th, 2005 20:04 |
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As an alternative to web links:
Dr. Lida Mattman, one of the speakers at the Chicago conference published a book named: Cell Wall Deficient Forms: Stealth Pathogens, 3rd Edition.
It’s available on Amazon. This is the book you want on CWD.
Last edited on Tue Mar 15th, 2005 20:10 by marlae
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Mark Leavitt
Caregiver for wife ~ 1987-2006
CFS/FM,Lyme,candida,anemia,depression,thyroiditis,mycoplasma 5/12/05:25D=8,125D=35,ACE=36,RF=20,ESR=40,CH50=63
6/5/05:Benicar 40mg 6/19/05:Mino 11/5/05: MP stopped due to 116 day hospital admission.
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Aussie Barb
Member in Phase 3
| Joined: | Thu Jul 22nd, 2004 |
| Location: | Australia |
| Posts: | 19553 |
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Posted: Tue Mar 15th, 2005 20:13 |
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| Thanks Mark.. LINK TO LIDAS BOOK
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Barb: Dx Inflammatory Disease Endocrine Imbalance 2003| Depression| 24+ years not Dx| MP Aug04| ABC of MP| MP Search|
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Foundation Staff.
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| Joined: | Sun Jul 11th, 2004 |
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| Posts: | 1178 |
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Posted: Tue Mar 15th, 2005 20:31 |
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Frans,
Complex regional pain syndromes are another example of diseases with "unknown etiology." Controversy about their etiology has been longstanding and ongoing, http://tinyurl.com/3l82p similar to sarcoidosis and rheumatoid arthritis.
The disease is characterized by symptoms of acute inflammatory states as well as by chronic neuropathic changes. Pain is associated with changes generated by the autonomic nervous system. Current treatments are not satisfactory. http://tinyurl.com/3un8r
Long-term treatment focuses on pain relief. http://tinyurl.com/6nqbp Given how debilitating CRPS/RSD can be, and the low risk of the medications on the MP, it would seem that the MP should be considered as a treatment option.
Perhaps you can approach your physicians about attempting a therapeutic probe with the MP medications.
Belinda
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Cher from Chicago
Member
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Posted: Tue Mar 15th, 2005 20:56 |
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Hello,
I attended the Conference In Chicago. (Well I live in Chicago) It was GREAT! 
I had so many question about Sarcoidosis and the MP. I went to the conference armed with questions, not know there were so many other with the same. I would especially like to thank Dr Marshall for making it possible for James and I to attend.
So many wonder people. I look forward to the next conference and seeing Barney and Elizabeth again. Elizabeth took me by the had and stated I should read a couple of excellent book that were there at the conference. Barney talked about the vitamin D in some foods and foods that were fine to eat.
Just a flood gate of informatio! I'll tell you if you did not know going into the conference you knew coming out!!!
I hope to be on the MP by the next Conference!
Again Thanks to everyone.
Cher & James From Chicago
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Frans
Member in Phase 2
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Posted: Tue Mar 15th, 2005 21:33 |
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Thank you all !
Perhaps it would be easier if I contacted ms Mattman with just the question if she has ever found CWD in CRPS/RSD patients. It would be a waste if I bought the book and found that there is no mention of RSD/CRPS.
I have used Barb's google search and added RSD and CRPS, but that didn't give me an answer.
However ! I found some articles stating that Lyme sometimes presents itself as RSD/CRPS !
That, plus all dr Marshall's findings and explanations and the overlap between dr Marshall and Huygen's work (http://www2.eur.nl/fgg/medbib/EUR-diss/040702_Huygen_F/Huygen_F.html) and the overlap in symptoms, all lead me to thinking MP must be something Ellen could/should try.
Belinda: Yes, I have thought about the therapeutic probe and don't think I have to explain any more to Ellen. I am convinced that we should find out if MP can do the trick for her. Huygen found higher levels of TNF-alpha and interleukin-6 in RSD/CRPS patients. Sounds like the cytokine-cascade in extrema. Something where Benicar would be of use, no matter what. He tried anti-TNF.
The therapeutic probe will prove if there are CWD-bacteria involved in Ellen's case. I just can't wait. She can...... 
Sincerely, Frans
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Burn-out/nervous breakdown Jan01 125D 48 25D8.48 Ph1Nov06 ModPh2Jan07 Ph2Apr08 Cipramil Seroquel NoIRs lite exp r/t work cover up 25D3.9(Oct07)
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Frans
Member in Phase 2
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Posted: Tue Mar 15th, 2005 21:37 |
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Ouch!
We strayed off-topic!
This thread was about the conference 
I hope you will be willing to ship the dvd to The Netherlands.
Will dr Marshall post a report about the conference? He did so about another conference he visited, even though he wasn't visitor here, but the boss??
Sincerely, Frans
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Burn-out/nervous breakdown Jan01 125D 48 25D8.48 Ph1Nov06 ModPh2Jan07 Ph2Apr08 Cipramil Seroquel NoIRs lite exp r/t work cover up 25D3.9(Oct07)
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BARNEY
Moderator
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Posted: Tue Mar 15th, 2005 22:33 |
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EVERYONE,
BARNEY HERE. YOU TALK ABOUT A GREAT TIME, WELL ALL WAS HAD AT THE CONFERENCE.
I ARRIVED THE EVENING BEFORE THE CONFERENCE TO MEET MY ROOMMATE, LOTTIE, WHO MODERATES ON SARCINFO.COM. SHE WAS A GREAT ROOMMATE AND I LEARNED ALL THAT I COULD FROM HER ON HOW TO GET BACK ON MY REGULAR MEDS, SINCE I TOOK MY REGULAR MED DOWN TO MAINTENANCE JUST TO BE ABLE TO TRAVEL TO THE CONFERENCE.
LOTTIE AND I WENT OVER TO TGI FRIDAYS FOR DINNER AND GOT TO OUR ROOM AND HAD DECIDED TO LIE DOWN. THIS QUICKLY BECAME A THING WE COULD NOT DO, BECAUSE SOMEONE CALLED AND SAID THERE WAS A MEETING AT 9PM IN BELINDA'S ROOM. WE ASKED FOR SOMEONE TO COME OVER AND CARRY US BUT WE ENDED UP HAVING TO WALK OVER (HAHA).
MET DR. M, HIS WIFE, BELINDA, MEG, REENIE, SUE CAROLINE, (AND HER HUSBAND AND ADORABLE CODY, HER SERVICE DOG), ETC. DR. M TOLD US WHAT HE WOULD LIKE TO HAPPEN AS FAR AS TALKING WITH NIH AND FDA,ETC.
HE IS SUCH A TREAT TO LISTEN TO, SO VERY INFORMATIVE AND SO DOWN TO EARTH, SO SWEET, NEVER TURNED DOWN EXPLAINING OR TALKING WITH ANYONE WHO ASKED HIM A QUESTION. NOT A STUFFED SHIRT TYPE AT ALL. IT IS A PLEASURE TO BE ASSOCIATED WITH HIM AND I WILL SING HIS PRAISES FOREVER.
WE HAD A GREAT MEETING AND I FELT AS THO I WAS MEETING MY FAVORITE FAMILY MEMBERS, EVERYONE WAS SO SWEET AND CARING. LOTTIE AND I WENT BACK TO OUR ROOMS, GOT IN BED AND TALKED A LONG TIME ABOUT MP AND OTHER THINGS.
I GOT UP (7AM) AND WENT OVER TO SEE IF THERE WAS ANYTHING I COULD DO TO HELP DR M. AND FROM THEN ON THE SNOWBALL WAS ROLLING. PEOPLE STARTED ARRIVING.
I DON'T THINK I HAVE EVERY SEEN AS MANY DOCTORS IN ONE SPOT AS WE HAD THERE. TOM (MEG'S SWEET HUSBAND) WAS WORKING THE REGISTRATION TABLE AND WAS TELLING FUNNY STORIES OF THINGS MEG DOES TO HIM (HE WAS A RIOT). I HELPED HIM FOR A WHILE. SOME PEOPLE JUST CAME THRU REGISTRATION AND LOOKED FOR THEIR OWN BADGES AND PICKED UP MATERIALS WE HAD FOR THEM (THE THINGS REENIE MENTIONED IN ANOTHER POST).
I HAD TYPED UP A LIST OF 13 MAJOR IMPROVEMENTS I HAVE HAD ALREADY IN JUST 70 DAYS ON MP. I ENDED UP HAVING TO MAKE COPIES BECAUSE EVERYONE WANTED A COPY TO REMEMBER HOW WELL MP WAS GOING FOR ME. I WAS ON MY FEET TO ABOUT 9 PM JUST TRYING TO HELP DR M OUT BY HELPING ALL TO UNDERSTAND JUST HOW GREAT MP WORKS.
WHEN I SAY 'DR' ON THEIR BADGE, I MADE SURE THEY KNEW MY IMPROVEMENTS AND ASKED MANY ATTENDING TO PLEASE HELP PATIENTS WITH THE MP.
THERE WAS A LADY FROM IRELAND, WHO JUST LOOKED LIKE SHE WAS GOING TO CRY, SHE WAS SO DESPERATE FOR ANSWERS AND THE FIRST DAY WAS SO TECHNICAL WITH DR'S SPEAKING. I ASKED IF SHE WAS STAYING FOR SUNDAY, I EXPLAINED IT WOULD BE MUCH BETTER, 7 OR 8 OF US WERE GOING TO TELL HOW BAD WE WERE WHEN WE STARTED AND HOW WELL WE ARE GETTING. I THREW IN SOME HUMOR AND MS. DALE HAD THE AUDIENCE IN TEARS WITH HER RECOVERY. DR. M CAME OVER, AT MY REQUEST, AND TALKED WITH THIS LADY FROM IRELAND AND ASSURED HER IT WOULD BE BETTER TOMORROW. SHE TOLD ME WHEN SHE LEFT SUNDAY NIGHT THAT SHE WAS SURE THIS IS WHAT SHE WANTS TO DO. SHE IS SUPPOSED TO EMAIL AND LET ME KNOW HOW IT GOES FOR HER.
WE ALSO HAD A SWEETIE WHO IS A 15 YEAR OLD NAMED MIKE. SARC HAS REALLY DONE A NUMBER ON HIM. HE, HIS MOTHER AND HIS AUNT (A NURSE) BOTH SWEETHEARTS ALSO WENT HOME BELIEVING THAT MP WAS THE ANSWER FOR MIKE. GOOD LUCK MIKE, HANG IN THERE, WE WILL MAKE IT.
THAT IS THE STORY OF BOTH DAYS IN A SENSE, TALKING WITH EVERYONE WE COULD THAT WAS THERE SO THAT THEY COULD UNDERSTAND MP REALLY IS THE ANSWER. WE HAD A NICE BANQUET DINNER THAT BROUGHT THE NIGHT TO A CLOSE OTHER THAN EVERYONE BREAKING UP IN TO A GROUP HERE AND A GROUP THERE TALKING AND TALKING AND TALKING.
SUNDAY, WE HAD A NICE BREAKFAST TYPE MEAL TO START THE DAY.
REENIE, SUE CAROLINE, MYSELF, LOTTIE, ELIZABETH, AND MS DALE ALL GAVE ABOUT A 10 MINUTE SPEECH ABOUT HOW SICK WE HAVE BEEN AND HOW WE HAVE IMPROVED.
VARIOUS DOCTORS (MP PATIENTS) THEMSELVES TOLD OF THEIR STORIES AND STORIES OF PATIENTS WHO ARE DOING SO WELL ON MP. I WAS REALLY BLOWN AWAY AT HOW MANY DOCTORS WERE MP PATIENTS THEMSELVES.
YOU COULD TELL THEY WERE MP PATIENTS BECAUSE WE ALL WORE RED RIBBONS ON OUR NAME TAGS. OF COURSE, OUR NOIRS WERE ALSO A GIVEAWAY. WE ENDED AFTER LOTS OF TALKING AND LATE INTO THE AFTERNOON.
I LOVED DR LIDA, SHE JUST TELLS IT LIKE IT IS. ANOTHER DR THERE, LOTTIE TOLD HIS NAME 3 TIMES, BUT DO YOU THINK I CAN REMEMBER IT, HE WAS SO STRAIGHT FORWARD WITH ANSWERS TO SO MANY THINGS AND SO MUCH HELP TO ME INDIVIDUALLY ABOUT NOT HAVING GLUCOSE IN YOUR DIET WHILE ON MP.
THIS IS THE HARDEST PART FOR ME. I AM STILL A KID AT HEART AND I WOULD LOVE TO EAT EVERY SWEET IN THE WORLD EVEN THO I AM DIABETIC AND SHOULD NOT. I DO THE MOST RESTRAINT I CAN. REENIE ALSO 'LECTURED' (HAHA) ME ABOUT MY DIET. I HAVE COME A LONG WAY, BUT BETWEEN DOC AND REENIE, I THINK I CAN DO BETTER.
PEOPLE STARTED TO DWINDLE AS THE DAY PROGRESSED TO EARLY EVE AND SOME PEOPLE NEEDED TO GO CATCH THEIR PLANES. LOTTIE AND I ENJOYED EACH OTHERS COMPANY ONE MORE NIGHT WITH ME LEAVING TO CATCH MY PLANE AT 5AM. LOTTIE LEFT LATER.
TO DR M, MRS M, KAREN M, BELINDA, MEG & TOM, REENIE, MS DALE, LOTTIE, AND ALL THE OTHERS I FAILED TO NAME, YOU MADE ME FEEL SO WELCOME AND SO MUCH LIKE FAMILY, I WANT YOU TO KNOW I LOVE YOU ALL FROM THE BOTTOM OF MY HEART AND FOR ALL OF YOUR SUPPORT.....THANK YOU!!!!
HANG IN THERE, WE WILL MAKE IT!!
PS. HAD A LOT OF LIGHT EXPOSURE AND REALLY MESSED UP MY PILL ROUTINE, BUT AM NOT SUFFERING AS BAD AS I THOUGHT I WOULD. (BAD ENOUGH, BUT NOT UNBEARABLE).
____________________
64jointsarc77skinsarc80lungsarc81asthma/migranes
95rkidneyremoved(cyst)diabetic/gallbremoved,96
totalhyst(cysts,endom)01fibro,Benicar40/20mg&xtra
as needed,stage5,
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Julia
Member in Phase 3
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Posted: Tue Mar 15th, 2005 22:56 |
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A big Thank You to all who are taking the trouble to post about the conference. It's a great encouragement to those of us who couldn't go. Maybe one day there'll be a UK conference...!
Julia
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Sarc/uveitis/hypercalcaemia/ankle osteoarthritis/eczema. MP May04. 25D Apr09:5.6. Life is good! Julia's story
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